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keepinghopealive.bsky.social

@keepinghopealive.bsky.social
1.7K followers 3.5K following 19 posts

Disabled Advocate ♿️🦓ME,LC,AuDHD🌈💙 Nature Lover 🌱 she/her Trying to find a space of calm in all the chaos. 🫶

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keepinghopealive.bsky.social @keepinghopealive.bsky.social · 26/02/2025
What are your favorite go-to items?
Hi Community, Lets do a thread with all the cannot live without items that make your days a bit easier.
What items help you get through a day? 

It can be comfort items, supplements, accessibility tools, anything you believe is helpful for you.

→ This is not medical advice, nor is anyone suggesting that anything listed is a cure for any illness.
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aslynn is just a ghoul 👻 @aslynnromano.com · 07/12/2024
There's a nearly universal experience of workplace trauma where Autistics experience exactly this: hired for your attention to detail praised for being thorough resented for your nitpicking admonished for not letting something go & leave because burnout rinse. repeat. variations on a theme.
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Vaila @vaila.bsky.social · 19/12/2024
Thank you for saying this, also make sure to follow autistic posters from different backgrounds.
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Dr. Nicole Lee Schroeder @nicole-lee-sch.bsky.social · 19/12/2024
And if you dont know where to begin, this is a good starter pack! go.bsky.app/UysYHi6
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Dr. Nicole Lee Schroeder @nicole-lee-sch.bsky.social · 19/12/2024
To be absolutely clear: RFK framing vaccines as the "cause" of Autism is eugenics. First and foremost its wrong by every scientific standard. But also theres an implication that we need to "cure" or prevent Autism. Neurodivergence is not a bad thing.
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Megan Sass @megan-sass.bsky.social · 12/12/2024
But I heard him exclaim, ere he drove out of sight— Healthcare for us all, for it’s a human right.
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The Autistic Coach | Mati (he/they) @theautisticcoach.bsky.social · 12/12/2024
Boundaries aren’t walls - they’re invitations to clarity and connection. For autistic humans, boundaries are often about survival. They protect our energy, help us avoid burnout, and create space for us to thrive.
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KnittaPhD @knittaphd.bsky.social · 13/12/2024
I don’t want to support small businesses that endorse politicians/political parties that actively harm vulnerable populations. What’s the best way to inquire about these affiliations if it’s not readily apparent?
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Sir Turd of Squirrel 💜MagaPedoSuspensionServices @squirrelturd.bsky.social · 10/12/2024
This is my Maga trash mod list. I have a 99.9% accuracy rate and add approximately 200 per day to the list. I also have 3 other mod lists for other types that are not maga. Lottery/get rich quick/become powerful, Tig Ol Bitties 4 Sale and Bots, Snots & Traitor Tots. Check my "Lists" on my profile.
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Sir Turd of Squirrel 💜MagaPedoSuspensionServices @squirrelturd.bsky.social · 07/12/2024
The Master Mod List. I can vouch for the creator of this list in removing bad actor mod lists when they are pointed out. Please vet your mod list creators and their mod lists before you use them. You might be blocking good people. #modlist #mastermodlist
docs.google.com
Bluesky - Moderation lists / Listes de modération
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Guy Felicella @guyfelicella.bsky.social · 08/12/2024
Childhood trauma isn’t just about what you experienced, it’s also about what you didn’t experience - kindness, understanding, empathy, and a caring supportive home #Trauma
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Andrea Junker @strandjunker.com · 03/12/2024
If you’re afraid that books might change someone’s thinking, you’re not afraid of books, you’re afraid of thinking.
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keepinghopealive.bsky.social @keepinghopealive.bsky.social · 03/12/2024
The internet isn’t just a place for memes and videos, though those can be great—it’s a space where real, meaningful connections are made. A kind word, shared story, or ‘virtual’ friend CAN change a life. Never underestimate the power of an online community. 🌍💻
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ProPublica @propublica.org · 03/12/2024
Under Trump, EPA scientists say managers encouraged them to delete evidence of chemicals’ harms, including cancer, miscarriage and neurological problems, from their reports. And in some cases, they said, their managers deleted the information themselves. By @fastlerner.bsky.social
propub.li
EPA Scientists Said They Were Pressured to Downplay Harms From Chemicals. A Watchdog Found They Were Retaliated Against.
Three reports issued by the agency’s inspector general detailed personal attacks suffered by the scientists — including being called “stupid,” “piranhas” and “pot-stirrers” — and called on the EPA to…
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keepinghopealive.bsky.social @keepinghopealive.bsky.social · 03/12/2024
Tough times don’t need ‘good vibes only’—they need honesty, empathy, and space to heal. Toxic positivity dismisses real feelings and silences pain. Let’s replace it with authentic support that says: ‘It’s okay to not be okay, and I’m here for you.’ 🫶
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Alexandria Ocasio-Cortez @aoc.bsky.social · 02/12/2024
“Don’t feed the trolls” also extends to bad opinion pieces in papers of record. They run them bc people react to them the most. If we stop linking to bad columns and instead post thinkers we find valuable (& generate convo around it), incentives change. It’s not easy and takes constant practice!
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Katie Munday @kmunday.bsky.social · 02/12/2024
Society: Be yourself. Society: No. Not like that.
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keepinghopealive.bsky.social @keepinghopealive.bsky.social · 02/12/2024
Living with chronic illness is like having a full-time job where the hours are terrible, the boss is mean, there are zero vacation days and you aren’t allowed to quit-ever. 😒 #ChronicIllnessLife
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keepinghopealive.bsky.social @keepinghopealive.bsky.social · 02/12/2024
To you, it might be a small gesture—a smile, a kind word, or a moment of patience. To a stranger, it could be the thread they’re clinging to. Your kindness matters more than you know. #KindnessSavesLives #YouNeverKnow
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Radically Sunny @radicallysunny.bsky.social · 01/12/2024
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Radically Sunny @radicallysunny.bsky.social · 01/12/2024
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Radically Sunny @radicallysunny.bsky.social · 01/12/2024
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Radically Sunny @radicallysunny.bsky.social · 02/12/2024
“it could’ve been worse” ok and it also could’ve not happened
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Brosephine so scary 🎃 @joparkerbear.bsky.social · 04/07/2023
Me at 20: I want to make a difference in the world Me at 40: maybe if I stand really still and never speak again, I won’t fuck anything else up
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Roxi Horror 💀🌸 @roxiqt.com · 29/11/2024
I don't know who needs to hear this but you are important, you are loved, there is an opossum living in your attic which is why your socks keep going missing, you are valid & you matter.
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Dumb Beezie @dumbbeezie.bsky.social · 30/11/2024
Sorry for the anxiety but *gestures at everything*
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Jo Conklin Author @joconklin.com · 30/11/2024
If you’re looking for a free way to support an author, did you know you can ask your library to stock a book you want to read that they don’t have yet? And usually it’s a very basic online form? Google your library name plus the words “request a title” or “suggest a title” to find yours.
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Prof. Eliot Jacobson @climatecasino.net · 27/11/2024
Your 'moment of doom' for Nov. 27, 2024 ~ Hot! "A new study has identified 'hotspots' where temperatures are spiking far beyond what is expected as the planet warms, with some of the most striking examples occurring in the Pacific Northwest and southwestern Canada." www.newsweek.com/mysterious-h...
newsweek.com
Mysterious "hotspots" are appearing in US and around the world
Across the U.S. and the world, extreme temperatures are outpacing what scientists expect to happen according to climate models.
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Kelly @broadwaybabyto.bsky.social · 28/11/2024
This should be front page news. 70% of patients requiring the hospital for Covid CAUGHT it in healthcare. That’s an alarming amount of completely preventable hospitalizations. Healthcare settings know how to stop spread. Clean air & mandatory respirators. Forcibly infecting patients is wrong 🧵/1
Blue chart from the GIG Cymru NHS Wales. It reads

Number of inpatient COVID-19 cases in hospital in Wales on 17/11/2024

Number of inpatient cases in hospital 266
Number of community acquired cases 44
Number of indeterminate acquisition cases 37
Number of hospital acquired cases 185 
Number of inpatient cases in critical care 3
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The Whimsical Muse @whimsicalmuse.bsky.social · 27/11/2024
Surround yourself with the kind of people who support their local library, bakery, bookstore, and café.
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it's Halloween name charloh! (it/its) @charloh.online · 28/11/2024
a message to allies: "I do not understand your struggle but I support you in it" is a thousand times better than trying to say you get it. nobody needs you to know what they're going through. they just need support as they go through it.
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cbme-mark.bsky.social @cbme-mark.bsky.social · 28/11/2024
wellcomecollection.org/stories/livi... Visit Jeremy Jeffs’s online exhibition of his photographs
wellcomecollection.org
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
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Kellalena @kellalena.bsky.social · 26/11/2024
Just got my steps in by avoiding someone I know at the grocery store.
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Gian D’Oh @giandoh.bsky.social · 27/11/2024
Me: Doctor, it hurts when I do this. *opens high school yearbook*
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Dak @dak.bsky.social · 27/11/2024
At my funeral there’ll be a 37 minute montage of me trying to find something to watch on Netflix
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Steve Suckington @stevesuckington.bsky.social · 23/11/2024
Imagine being the neighbor of a serial killer. They say they’re usually quiet and stay to themselves. Sounds pretty amazing
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The Daily Tism @thedailytism.com · 28/11/2024
“There was nothing wrong with Becky before this so-called diagnosis. She seemed totally normal the one time I met her.” thedailytism.com/woman-who-sp...
thedailytism.com
Woman who spent life masking autism to avoid attention now accused of faking autism for attention
A late-discovered autistic woman who spent her whole life masking her autistic traits in order to avoid attracting attention has recently been accused of faking her autism diagnosis to obtain said att...
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valebodi.bsky.social @valebodi.bsky.social · 27/11/2024
“In deciding how to act on long COVID, researchers and policymakers must take heed of what happened in the case of myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS). The condition shares some of the symptoms of long COVID, and people with ME/CFS www.nature.com/articles/d41...
nature.com
Long COVID: let patients help define long-lasting COVID symptoms
The terminology for long-lasting COVID symptoms — and the definition of recovery — must incorporate patients’ perspectives.
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Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 27/11/2024
From a great mate on the dark App. The kids aren't OKAY🔥🔥🔥🤬 @buonsenso.bsky.social 😔💔 www.nature.com/articles/s41...
nature.com
Long COVID syndrome in children: neutrophilic granulocyte dysfunction and its correlation with disease severity - Pediatric Research
Pediatric Research - Long COVID syndrome in children: neutrophilic granulocyte dysfunction and its correlation with disease severity
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David Gray-Hammond (NeuroHub Community) @neurohubcommunity.org · 22/11/2024
I really don't buy into the whole "Autism is a Superpower" thing. I also don't buy into the medicalised tragedy narrative. Being Autistic, like everything else, is incredibly neutral. There are positives and negatives, and there will be times where one outweighs the other. #ActuallyAutistic
Autistic people don't have to have a "superpower" for them to be considered valuable or treated like a human being.
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aslynn is just a ghoul 👻 @aslynnromano.com · 23/11/2024
“Autistic people should always be involved in research in a meaningful way and should be listened to at every stage of a project. By doing that, researchers can avoid inadvertently doing research that is either harmful to autistic people, or which misinterprets the findings." 🫠
theconversation.com
Why autistic people must be at the heart of autism research
A research project led entirely by autistic people aims to change the way autism research is conducted.
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Autistic Lauren 🏳️‍🌈 🏳️‍⚧️ @autisticlauren.bsky.social · 27/11/2024
"This other autistic person can do it, so what's your excuse for not being able to?" Perhaps it's because not every autistic person is the same....
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Kelly @broadwaybabyto.bsky.social · 28/11/2024
It’s shocking how many people are pro bodily autonomy when it’s THEIR body - but not when it’s someone else’s. Many are still angry about mask mandates & see them as an egregious violation of their rights - but they support mask AND abortion bans. Forced infection & pregnancy is NOT a violation?
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𝑀𝒶𝓎𝓇𝒶°❀⋆.ೃ࿔*:・🫧 @lepapillonblue.bsky.social · 28/11/2024
💯
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Dr. Glenn Patrick Doyle @drdoylesays.bsky.social · 26/11/2024
When your whole self-concept has been shaped around being "an old soul" or "the adult in the room" or "the problem solver," getting hit w/ trauma symptoms & reactions you neither understand nor can "control" can spike real confusion-- & shame. I know. But be gentle w/ yourself.
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Dylan Blaskey @dblaskey.bsky.social · 26/11/2024
💧 Curious about the water quality in your area? Thanks to science 🧪 and the EPA, you can explore your local watershed with this handy tool: mywaterway.epa.gov Unfortunately, Boulder has multiple impaired creeks from metals and 🦠—but tools like this are a great step toward awareness and action.
An image of the mywaterway tool from the EPA that shows multiple streams in the Boulder Creek watershed in Boulder, CO as impaired.
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Jonathan Edward Durham @thisone0verhere.bsky.social · 26/11/2024
Public library energy is the best energy. Like here is all the knowledge we could find, it's been meticulously organized and vetted and it will cost you nothing today, welcome to the absolute pinnacle of human civic evolution, feel free to pull up any bean bag chair you like
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C.H. Romatowski @romatowski.bsky.social · 25/11/2024
Today’s featured article on Wikipedia’s homepage is the ME/CFS entry! If you’re not familiar with ME/CFS, this is a great overview of a debilitating condition very commonly triggered by Covid. en.wikipedia.org/wiki/Myalgic...
From today's featured article

Graphic showing four icons labeled profound fatigue, worsening from exertion, disrupted sleep and brain fog

Text reads:

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling chronic illness. People with ME/CFS experience profound fatigue
Symptoms of ME/CFS that does not go away with rest, sleep issues, and problems with memory or concentration.
The hallmark symptom is a worsening of the illness which starts hours to days after minor physical or mental activity, and lasts from hours to several months.
The cause of the disease is unknown. ME/CFS often starts after an infection, and many people fit the ME/CFS diagnostic criteria after contracting long COVID. Diagnosis is based on symptoms because no diagnostic test is available. The illness can improve or worsen over time, but full recovery is uncommon. No therapies or medications are approved to treat the condition, and management is aimed at relieving symptoms. About a quarter of those affected are unable to leave their bed or home. People with ME/CFS often face stigma in healthcare settings, and care is complicated by controversies around the cause and treatments of the illness. (Full article...)
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Nelson Flores @nelsonlflores.bsky.social · 22/11/2024
There is nothing wrong with trying to find a social media platform that connects you with people who share similar values to you. This is not a desire for an echo chamber. It is desire for a community.
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SuzyQ @suzyqfit4u.bsky.social · 17/11/2024
Family includes everyone! ❤️
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