ME is a very neglected illness. Many medical professionals know little about it beyond being aware of something called ‘chronic fatigue syndrome’. This was the name given to it by psych…

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

Chair Mark Harper features in BBC Lifeline appeal.

Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!

The government has agreed to protect existing disability benefit claimants […]

People with ME/CFS have significant differences in their blood compared with healthy individuals, a new study reveals, suggesting a path towards more reliable diagnosis of the long-term debilitating i...

Hundreds of thousands of people were already living with the chronic post-viral illness ME/CFS before the covid pandemic. COVID turned out to be highly effective at producing chronic post-acute illnes...

Please join me and take this quick survey to stop the government stripping cash payments from sick and disabled people:

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Complex disorders like long COVID and myalgic encephalomyelitis/chronic fatigue syndrome are often dismissed or misdiagnosed: better communication can help, say UB researchers.

The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...

Research into myalgic encephalomyelitis or chronic fatigue syndrome also reveals diagnosis ‘postcode lottery’

Trussell report finds that higher levels of poverty mean Britain is losing out on £38bn a year of potential output

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Hundreds of thousands of people were already living with the chronic post-viral illness ME/CFS before the covid pandemic. COVID turned out to be highly effective at producing chronic post-acute illnes...

This survey is for individuals with Long Covid (LC) or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) who are receiving benefits affected by the government's proposed reforms. If the pers...

We want the Government to halt all planned benefit cuts for disabled people unable to work. Instead of reducing benefits, we want them to rise in line with inflation. We want support, not hardship and...

Cuts to disability benefits would be catastrophic

We want the Government to halt all planned benefit cuts for disabled people unable to work. Instead of reducing benefits, we want them to rise in line with inflation. We want support, not hardship and...

“The tilt table test is likely to be contraindicated in people with severe ME/CFS and related conditions,” Harvey said. Studies show about half of all Long COVID patients meet the diagnostic criteria ...

Those who lose benefit payments will find it difficult to access care and support services, says Policy in Practice

@WorkingWithLC: Thread by our Dr Clare Rayner @crr7310 Today we published an article I was commissioned to write: ‘Guidelines for a sustained return to work (#RTW) with #LongCovid ' A resource for wor...

Hundreds of thousands of people were already living with the chronic post-viral illness ME/CFS before the covid pandemic. COVID turned out to be highly effective at producing chronic post-acute illnes...