Sign in

Anais

@anais3.bsky.social
138 followers 484 following 7 posts

Long covid January 2020

PostsRepliesMedia
Reposted by Anais
Martin Winckler/Marc Zaffran @martinwinckler.bsky.social · 20/02/2026
Le mercredi 18 mars, de 9h à 11h, j'aurai la chance de bavarder et de répondre à une dizaine de personnes à La Nuit des Temps (Rennes) Venez à la librairie et mettez votre nom, prénom, numéro de téléphone et adresse mail sur un papier dans la petite boîte à la caisse. Tirage au sort le 6 !
032
Reposted by Anais
Eric Topol @erictopol.bsky.social · 27/01/2025
Some learnings about our immune system from Covid @nature.com —importance of T cells (not just neutralizing antibodies) —key role of interferons, the first line of defense —hybrid immunity —underpinnings of Long Covid www.nature.com/articles/d41...
nature.com
Four lessons COVID taught us about the immune system
In the midst of pandemic upheaval, researchers have gained fundamental insights about how the body fends off infections.
1440295
Reposted by Anais
Sue @inkblue01.bsky.social · 12/02/2025
The covid deniers have won, but they also have to live in the world they created. archive.ph/nHebN
4568
Reposted by Anais
Richard Vallée @richardvallee.bsky.social · 30/11/2025
If you know anything about the history of post-infectious illnesses, like Long Covid and ME/CFS, this happening in The Hague is hugely symbolic. A crisis of choice built on hubris and perpetuated by failed systems that refuse to learn from destroying millions of lives.
0217
Reposted by Anais
Chantal Britt @chantalbritt.bsky.social · 11/11/2025
Presenting our poster with recommendations in patient involvement at the 48th IHF World Hospital Congress in Geneva. The poster is about the unimedsuisse project with all university hospitals. We probably still have way to go.
073
Reposted by Anais
Chantal Britt @chantalbritt.bsky.social · 08/12/2025
Fascinating paper from Manuel Ruiz Pablos Bruno Paiva, showing that the survivor genes of our ancestors may be responsible for our overactive immune systems getting out of whack and the host developing autoimmune diseases such as #longcovid #mecfs #myalgicencephalomyelitis #postvac.
11610
Reposted by Anais
Nature Reviews Disease Primers @natrevdiseaseprimers.nature.com · 29/12/2025
Our NEW Primer on COVID-19-associated neurological and psychological manifestations is live! By Wilson, Gurdasani, Helbok, Ozturk, Fraser, Filipović, Peluso, Iwasaki, Yasuda, Bocci, Priori, Altmann, Alwan & Ely. Check it out here:
nature.com
COVID-19-associated neurological and psychological manifestations - Nature Reviews Disease Primers
This Primer by Wilson and colleagues summarizes the epidemiology, pathophysiology, diagnosis and treatment of neurological and psychiatric manifestations of COVID-19.
2135
Reposted by Anais
Conor Browne @brownecfm.bsky.social · 27/01/2026
Outstanding article from my friend Lucyl Harrison in @theconversation.com today. 'Human character changed in December 2019, when SARS-CoV-2 was discovered and the COVID pandemic began in earnest'. theconversation.com/on-being-ill...
theconversation.com
On Being Ill at 100: Virginia Woolf’s ‘best essay’ still shapes how we read sickness
Woolf argues that illness is ‘the great confessional’ which is never talked about in literature.
17226
Reposted by Anais
valebodi.bsky.social @valebodi.bsky.social · 21/10/2025
21 October 2025 Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study Brian T. Ruan, Sarojini Bulbule, Brooke Gile, Amy Reyes, Bela Chheda, Lucinda Bateman, Jennifer Bell, Brayden Yellman, @grachstephanie.bsky.social
translational-medicine.biomedcentral.com
Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study - Journal of Translational Medicine
Background mTOR activation is associated with chronic inflammation in ME/CFS. Previous studies have shown that sustained mTOR activation may cause chronic muscle fatigue by inhibiting ATG13-mediated a...
24724
Reposted by Anais
Danielle Beckman @daniellebeckman.bsky.social · 14/01/2026
New important publication in #LongCovid & #MECFS! After a viral infection, cells lining our blood vessels can become damaged and enter senescence, similar to accelerated aging. These cells are not healthy, but they also don’t disappear. Instead, they send out constant stress & inflammatory signals.
Manuscript: Virus-induced endothelial senescence as a cause and driving factor for ME/CFS and long COVID: mediated by a dysfunctional immune system

Figure shows: Overview of the present hypothesis. Acute viral infections induce endothelial senescence via direct and indirect mechanisms, which is then sustained by immune dysfunction and impaired clearance of senescent endothelial cells. (EC - endothelial cell).
212564
Reposted by Anais
Julia MV @julialmv.bsky.social · 10/12/2025
Thanks to the Long COVID community, eligibility screening for LoCITT-T is now closed, 41 days after it oopened. We'll share more about what's ahead on 12/17 at 2:30 eastern / 11:30 pacific. scrippsresearch.zoom.us/webinar/regi... For those who have taken the screener but not consented yet... 1/2
scrippsresearch.zoom.us
You are invited to join a webinar: Long COVID Treatment Trial-Tirzepatide (LoCITT-T): TBD. Registration is required and after registering, you will receive a confirmation email about joining the webin...
In this session, we will share updates on how the Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is progressing and discuss why continued engagement from all study participants is important for gen...
46117
Reposted by Anais
#ApresJ20 - Association Covid Long France @apresj20.bsky.social · 28/01/2026
🧠🦠 #CovidLong : une nouvelle revue montre comment intestin, persistance virale et dérèglement immunitaire convergent vers des séquelles neurologiques durables. Un modèle mécanistique cohérent émerge.
184
Reposted by Anais
#ApresJ20 - Association Covid Long France @apresj20.bsky.social · 31/01/2026
🧵🧠#CovidLong & mémoire Une nouvelle étude (2026) analyse en détail les troubles de la mémoire épisodique chez les personnes avec condition post-COVID (PCC)👇
143
Reposted by Anais
#ApresJ20 - Association Covid Long France @apresj20.bsky.social · 02/02/2026
#CovidLong : « Là où d'autres pays ont choisi d'investir et de cesser l'aveuglement, la France persiste à traiter ces maladies comme un angle mort au risque d'en payer durablement le prix. »
175
Reposted by Anais
#ApresJ20 - Association Covid Long France @apresj20.bsky.social · 03/02/2026
Le #CovidLong est une maladie immunologique systémique. #CovidLong #MCAS #SAMA #Allergies #Asthme #Immunologie #Apresj20
medscape.com
Long COVID Linked to New-Onset Allergies
Mounting evidence points to a link between new-onset allergies and Long COVID, with mast cell activation syndrome as a potential culprit.
011
Reposted by Anais
#ApresJ20 - Association Covid Long France @apresj20.bsky.social · 01/08/2025
Plus de 8000 publications scientifiques sur le Covid Long classées par système organique dans notre bibliographie #ApresJ20. Partagez le lien aux personnes que cela peut intéresser (malades, proches, médecins, chercheurs, journalistes...). 👉 www.zotero.org/groups/55621... #CovidLong
11619
Reposted by Anais
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 02/02/2026
'ME and Long Covid have brought my children's lives to a standstill' Talvin, 12, is among 1.3 million people in the UK with ME or Long COVID. Diagnosed with ME/CFS, he later developed Long COVID at age 8 after 3 COVID infections, suffers with severe fatigue, and sleep and cognitive issues.
Screenshot of a BBC News article titled “‘ME and Long Covid have brought my children’s lives to a standstill’.” Below the headline is a photo of a child lying on a sofa under a red blanket with eyes closed, appearing exhausted. The caption notes Talvin, 12, is one of an estimated 1.3 million people in the UK with ME or Long COVID.
49343
Reposted by Anais
Esther @elhopkins.bsky.social · 03/02/2026
Please don’t say ‘learn to live with Covid’ to folks who are vulnerable or have long covid. We have no clean air or good vaccine access or antivirals. There is no moving on, there is just further death and disability. Also everyone is at risk from long Covid. We must learn to live in a safer way.
08227
Reposted by Anais
The Sick Times @thesicktimes.org · 03/02/2026
One of the greatest barriers for addressing the #LongCOVID crisis is public invisibility. To make the illness more legible to the public, Kayli Jamieson’s research team has launched a photo exhibition called Living with Long COVID at the Museum of Vancouver. bit.ly/4byOFlX
A young person wears a black respirator and looks at a panel at the Living with Long COVID photography exhibit at the Museum of Vancouver. The panel the look at features photos of people with Long COVID. The text reads, “The Sick Times. Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition. By Kayli Jamieson.” Four photos: 

1) 

2) Many people in high quality masks explore the Living with Long COVID photography exhibit at the Museum of Vancouver. On person stands out in the middle of the photo wearing bright green and yellow clothes with a bright green respirator.

3) Twelve pillows are displayed on a pink wall at the Living with Long COVID exhibit at the Museum of Vancouver. Each pillowcase contains writings about Long COVID from a March 2025 demonstration for Long COVID Awareness Day.

4) A man wears a respirator and looks at a panel at the Living with Long COVID photography exhibit at the Museum of Vancouver. The colorful panel includes text and features photos of people with Long COVID.
29246
Reposted by Anais
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 02/02/2026
An Uber driver asked a passenger why they were wearing a mask. The passenger explained COVID transmission is high and reinfection could worsen their Long COVID. The driver said he hadn’t heard of this and advised “building immunity” and positivity, showing widespread misunderstanding of Long COVID.
Screenshot of The Sick Times article titled “Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition,” by Kayli Jamieson, dated February 2, 2026. The image shows a masked visitor standing in a gallery, looking at a wall filled with colorful photos and text panels from the “Living with Long COVID” photography exhibition at the Museum of Vancouver.
811328
Reposted by Anais
19thnews @19thnews.org · 03/02/2026
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon. This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
19thnews.org
Long COVID affects millions of children. The largest pediatric trial so far launches this year.
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.
08032
Reposted by Anais
Christophe Veltsos @drinfosec.bsky.social · 04/02/2026
New review highlights growing evidence that diabetes drug metformin can prevent long COVID (Feb 3, 2026) www.cidrap.umn.edu/covid-19/new...
cidrap.umn.edu
New review highlights growing evidence that diabetes drug metformin can prevent long COVID
26122
Reposted by Anais
Prof Deborah Lupton, MPH PhD @dalupton.bsky.social · 29/01/2026
New publications added to the list!
1288
Reposted by Anais
Adam @abrokenbattery.bsky.social · 31/01/2026
A powerful introduction to a parliamentary debate in the Netherlands on post-acute infection syndromes (PAIS), including #LongCOVID, #MECFS, chronic Lyme & post-sepsis conditions. Dutch MP Kostić describes it as one of the biggest medical scandals of recent decades. (29/1/26)
38135
Reposted by Anais
Rachel Pope @prehistorian.bsky.social · 24/12/2025
Ah this is good. It’s shameful how this disease has been psychologised over the years. I’m happy to have campaigned on Long Covid if it contributed in any small way to ME being taken more seriously ❤️
415845
Reposted by Anais
Billy Hanlon @bhanlon15.bsky.social · 28/12/2025
Health Rising: Something in the Blood” Again! ME/CFS & Long COVID Serum Locks the Muscles Down “..both diseases..the mitochondria in the muscles appeared to be under severe stress…mitochondria in muscle tissues exposed to ME/CFS serum..were eating up oxygen..” www.healthrising.org/blog/2025/12...
healthrising.org
"Something in the Blood" Again! ME/CFS and Long COVID Serum Locks the Muscles Down - Health Rising
Geoff’s Narration The GIST Muscles on a Chip Whoa, another muscle study. We recently reported on a proteomic study suggesting that muscle repair problems contribute to post-exertional malaise in ME/CF...
14118
Reposted by Anais
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 27/12/2025
This is the primary paper Rob has also shown us some seriously good science in our WHN Long Cövid Group... Sitting with the grownups is a great privilege 😊 www.cell.com/trends/endoc...
cell.com
Skeletal muscle adaptations and post-exertional malaise in long COVID
When acute SARS-CoV-2 infections cause symptoms that persist longer than 3 months, this condition is termed long COVID. Symptoms experienced by patients often include myalgia, fatigue, brain fog, cogn...
46426
Reposted by Anais
Elana Levin @levin.bsky.social · 28/12/2025
Here’s another article explaining why this happens to people with long covid. I want to note: you can get long Covid even if you’re acute case of Covid was mild and you can get even if you are vaccinated. Many people with long Covid are former gym heads like us. It’s not just a disease of “the weak”
npr.org
A discovery in the muscles of long COVID patients may explain exercise troubles
Long COVID patients can experience severe energy crashes after physical exertion. New research provides clear evidence that there's a biological basis for the symptoms.
0171
Reposted by Anais
Esther @elhopkins.bsky.social · 27/12/2025
What is long covid? Not a mild cold.
03212
Reposted by Anais
Jessica Ellis @baddestmamajama.bsky.social · 28/12/2025
There are 20 million people in the US with long covid, and tens of millions more with a high risk/immunocompromised condition. Why, in 2025, are you mocking disabled and sick people??
727165
Reposted by Anais
Elana Levin @levin.bsky.social · 28/12/2025
People don’t realize if you get Covid you may never be able to work out again (unless we develop better long covid treatments). Not being able to work out ever again can’t be good for your longevity. Even if Covid probably won’t kill you immediately it will lead to death sooner than otherwise.
415149
Reposted by Anais
Elizabeth Chin @labspeceth.bsky.social · 21/12/2025
I did a very tiny bit of exercise two weeks ago and my muscles are still sore. Long covid.
61172
Reposted by Anais
ZabouVillon @zabou.bsky.social · 02/12/2025
@olivierfaure.bsky.social et @borisvallaud.bsky.social sont allés négocier que votre ALD ne soit pas supprimée dans 3 mois mais dans 6 ? #PlusJamaisPS
032
Reposted by Anais
Vilain Syndicaliste @vilainsyndicaliste.bsky.social · 09/12/2025
Pour celles et ceux qui comptent voter le budget de la sécu aujourd'hui : L'article 19 prévoit d'exclure de l'Affection Longue Durée (ALD) des millions de personnes, qui ne vont du coup plus voir leurs soins remboursés totalement. Cela va par exemple concerner 1,5 million de diabétiques.
39654
Reposted by Anais
Laury-Anne @lauryanne.eurosky.social · 09/12/2025
Les fossoyeurs de notre santé. Qui sont-ils? Ensemble, MoDem, Parti socialiste, LIOT, Horizons, Écologistes, LR. Les législatives arrivent. www.lemonde.fr/les-decodeur... #budget #sécu
Voilà les horreurs qu'ils viennent de permettre :

X Limitation de la durée d'arrêt maladie après un accident de travail

X 4 milliards en moins pour la santé

Hausse du coût des mutuelles

X Déremboursement de soins pour des malades chroniques, par exemple atteints de diabète

X 60 millions en moins dans l'investissement et la modernisation des établissements de santé
21512
Reposted by Anais
Martine Mounier @reverseyourmind.bsky.social · 05/05/2025
#FinDeVie Le projet eugéniste devient clair pour tout le monde ou toujours pas !? www.lepoint.fr/postillon/l-...
lepoint.fr
« L’euthanasie permettrait d’économiser 1,4 milliard d’euros par an »
INTERVIEW. Le Dr Pascale Favre, autrice d’une note de la Fondapol, constate que les pays qui ont légalisé cette pratique ont élargi son champ d’application, provoquant l’explosion des demandes.
15290213
Reposted by Anais
Gwen Pallarès 🏳️‍⚧️ @sornette.bsky.social · 24/09/2025
Pas faute d'alerter sur l'influence hyper néfaste de personnalités comme Ramus ou Bronner depuis des années sur le discours institutionnel...
0379
Reposted by Anais
Thémis 😷 Covid is not over ≽(•⩊ •マ≼ @themis2023.bsky.social · 28/09/2025
Oh tiens, JC Grange, soutien de la GBD, opposé à la prévention à l'école, essaie de lancer un harcèlement contre moi en utilisant les éléments de langage de J. Barrière et dans une impressionnante cascade d'inversion accusatoire mêlant désinformation et rhétorique des antivax. 1/Thread
Docdu16
@docdu16.bsky.social
1/ Je découvre @themis2023.bsky.social sur ce réseau et je me pince en me demandant si je ne suis pas égaré dans une faille spatio-temporelle car en lisant ce qu'iel publie j'en retiens que iel déroule un discours comploto-délirant sur l'éradication du covid.
28 septembre
2025 à 12:45

2/ lel serait le pendant covidicide (théorie millénariste prétendant que les virus respiratoires peuvent être éradiqués comme la grippe -cela fait 50 ans que l'on n'y arrive pas ou plutôt que l'on n'essaie pas-- grâce à la vaccination universelle et semestrielle,

3/... au port d'un masque FFP2 dans tous les lieux publics de la maternelle à l'EHPAD, à l'équipement de tous les lieux fermés et publics de purificateurs d'air,

4/ prétendre que des essais randomisés ne sont pas nécessaires sans pour démontrer l'efficacité des vaccins, des masques distinction, du tissu au FFP2--, de la purification de l'air et de la distanciation sociale mon oreillette me dit que cette recommandation a été abandonnée en route--),
127834
Reposted by Anais
Nima SADAGHIANI @nimasadaghiani.bsky.social · 26/10/2025
Il n’est pas rare de voir en consultation des patients présentant ces symptômes après un #Covid avec des répercussions sur leur activité quotidienne Et ils n’ont pour la majorité jamais entendu parler de #CovidLong malgré des passages chez les spécialistes ou au Service des Urgences
12311
Reposted by Anais
despondentindystopia ✨ @saltingthevibes.bsky.social · 17/11/2025
youtu.be/_TbbBFeeSzs Sharing for my dear friend Nathan - be sure to check out part 2 as well. #longcovid "After months of trying to get in touch with editors and media outlets, I have published my story of living with Long COVID on Youtube, please check it out and feel free to comment and share."
youtu.be
Living with Long COVID 1
YouTube video by Nathan Fernandez
053
Reposted by Anais
Dr Elisa Perego @elisaperego78.bsky.social · 14/11/2025
Germany set to allocate 500 millions euros in 10 years for the study of post-infectious diseases such as Long Covid and ME/CFS www.bmftr.bund.de/SharedDocs/K...
bmftr.bund.de
17223
Reposted by Anais
Esther @elhopkins.bsky.social · 15/11/2025
Long Covid can impact anyone regardless of age or health status. Women can be at higher increased risk of severe outcomes. There is not enough awareness of long Covid very little help for sufferers. COVID has been politicised so I believe out there many struggle on not wanting to label 🧵
23716
Reposted by Anais
Billy Hanlon @bhanlon15.bsky.social · 13/11/2025
BBC: ''Long Covid has ruined my life' 'Helen Lunt Davies, 56, from Stroud, Gloucestershire, described the life-changing impact of contracting Covid-19 as fellow patients campaign for further research and treatments.' www.bbc.com/news/article...
bbc.com
Gloucestershire woman says long Covid has 'ruined' her life
Helen Lunt Davies said she had struggled with heart palpitations, migraines and fatigue.
414148
Reposted by Anais
Adam Umak @adamumak.bsky.social · 15/11/2025
Hi, folks. I wrote about my buddy @leslieleeiii.bsky.social. He had #LongCOVID and passed away this week. Thanks for reading. adamumak.medium.com/leslie-lee-i...
adamumak.medium.com
Leslie Lee III: Funeral for a Friend
Explaining the one important lesson that he wanted you to learn.
410638
Reposted by Anais
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 15/11/2025
By tern @1goodtern So... this young woman is very excited, because she has been told by a neurologist that she has FND not Long Covid... because her symptoms started two months after her covid infection. Doctors are so whack. Source: x.com/1goodtern/st...
58616
Reposted by Anais
C.H. Romatowski @chromatowski.bsky.social · 17/11/2025
I especially appreciated that Miles’s obituary recorded how much Alice did for people with Long Covid.
0258
Reposted by Anais
Sean Mullen, Ph.D. @drseanmullen.bsky.social · 15/11/2025
6 million American kids have Long Covid. This isn’t fringe. It’s now more common than asthma — the #1 chronic condition in U.S. children. Do you even know what Long Covid refers to?
34313
Reposted by Anais
Mar Hicks @histoftech.bsky.social · 16/11/2025
Just heard about this huge (49 state) long covid trial using tirzepetide (aka zepbound) one of the newer glp meds. It’s run by researchers at scripps, funded by the eric & wendy schmidt foundation. It looks like it is still enrolling, fully remote participation: longcovid.scripps.edu/locitt-t/?ut...
longcovid.scripps.edu
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
8330204