iiinova — where your digital self keeps evolving

Chantal Britt @chantalbritt.bsky.social · 12/09/2026

I‘m happy and proud that my son is helping raise awareness for post-acute conditions. He is playing for those who can no longer practice any sports due to long covid and myalgic encephalomyelitis. „I play floorball for those who can no longer do sports.“ @longcovidch.bsky.social

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Chantal Britt @chantalbritt.bsky.social · 17/08/2026

If you look closely at a drop of water you can see the entire world in it. From our research meeting on our #qualitativeresearch project about #longcovid #mecfs #ctrf #survivorship in covid and oncology.

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Chantal Britt @chantalbritt.bsky.social · 17/08/2026

Vielen Dank für diese Gedanken und die klare Darstellung.

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Chantal Britt @chantalbritt.bsky.social · 29/07/2026

People with long covid and ME are not deconditioned! Inactivity cannot explain lower exercise capacity and skeletal muscle adaptations in long covid and ME patients as their skeletal muscle characteristics differ from those of healthy individuals after bed rest. www.nature.com/articles/s41...

nature.com

Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest - Nature Communications

Low aerobic capacity in patients with long COVID and ME/CFS is often attributed to physical inactivity. The authors show that long COVID and ME/CFS patients have distinct skeletal muscle changes that ...

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Chantal Britt @chantalbritt.bsky.social · 29/07/2026

People with long covid have persistent reductions in pulmonary blood and airway volumes despite normal conventional imaging and pulmonary function tests. Subtle microvascular and small-airway abnormalities may contribute to ongoing respiratory symptoms. #Notlazyorcrazy www.mdpi.com/2076-3271/14...

mdpi.com

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Chantal Britt @chantalbritt.bsky.social · 28/07/2026

Psychotherapy fails to reduce physical long covid symptoms. German researchers also show that childhood trauma doesn’t play a role. Nothing new for people like me but surely news for those who believe in central sensitisation and cognitive behavioural therapy. link.springer.com/article/10.1...

link.springer.com

Efficacy of a psychotherapeutic group intervention for patients with Post-COVID-19 condition: a randomized controlled trial (PsyLoCo study) - BMC Psychology

Background Persistent physical symptoms such as fatigue following SARS-CoV-2 infection are common and often accompanied by cognitive complaints. Alongside biological mechanisms, psychosocial processes...

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Chantal Britt @chantalbritt.bsky.social · 27/07/2026

News study from the Wüst team showing that recovery after exertion is disturbed in people with long covid and exertion intolerance, and that heart rate variability can help monitor and prevent post-exertional malaise. This reflects our lived experience. link.springer.com/article/10.1...

link.springer.com

Wearable Heart Rate Variability Monitoring, Autonomic Dysfunction and Post-exertional Malaise in Long COVID: An Observational Study - Sports Medicine

Objectives Patients with long coronavirus disease (COVID) experience disabling fatigue, autonomic dysfunction, reduced exercise capacity and post-exertional malaise (PEM). Heart rate variability (HRV)...

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Chantal Britt @chantalbritt.bsky.social · 26/07/2026

More than 6 years after the pandemic started, people with long covid and myalgic encephalomyelitis are still struggling to cope with their physical disabilities as well as the stigmatisation and psychologisation, while research, healthcare and support are inadequate. www.rts.ch/info/sante/2...

rts.ch

Six ans après la pandémie, que deviennent les malades du Covid long ?

Le 19 février dernier, un jeune Autrichien de 22 ans, Samuel, fait appel au suicide assisté pour mettre fin à sa "souffrance inimaginable" causée par le Covid long. Plus de six ans après le début de l...

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Chantal Britt @chantalbritt.bsky.social · 22/07/2026

People with long covid face major barriers to timely coordinated care. We urgently need stronger primary care competencies, to expand multidisciplinary services, and implement structured patient-centered pathways to improve outcomes and reduce long-term disability. www.mdpi.com/2227-9032/14...

mdpi.com

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Chantal Britt @chantalbritt.bsky.social · 07/07/2026

If you want to understand what’s going wrong with long covid and myalgic encephalomyelitis, I urge you to read this article. This is the best I have read on the topic. It‘s not just a medical problem. Psychologisation of our disease is not the answer! ottokolbl.medium.com/me-cfs-long-...

ottokolbl.medium.com

Dismissed, Disbelieved, Damaged: The Cruel Treatment of Complex Chronic Illness Patients

Christina Koch, Otto Kolbl

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Chantal Britt @chantalbritt.bsky.social · 15/06/2026

Today @longcovidch.bsky.social posted its position on the limited role of biopsychosocial and neuroplastic approaches in the management of long covid. On the whole these models do more harm than good. Recovery narratives and testimonials are no scientific evidence. long-covid-info.ch/news/positio...

long-covid-info.ch

Positionierung zu biopsychosozialen und neuroplastischen Modellen bei Long Covid - Long Covid Schweiz

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Chantal Britt @chantalbritt.bsky.social · 25/04/2026

Lea Rahels Maturarbeit über myalgische Enzephalomyelitis ist im Finale von Jugend forscht ! Das Video dient dazu, das Thema visuell zu verbreiten und mehr Aufmerksamkeit darauf zu lenken. Genau, das was wir für die Krankheit ME/CFS brauchen! Das Video ist jetzt auf YouTube: lnkd.in/d9aqht9z

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Chantal Britt @chantalbritt.bsky.social · 08/12/2025

Fascinating paper from Manuel Ruiz Pablos Bruno Paiva, showing that the survivor genes of our ancestors may be responsible for our overactive immune systems getting out of whack and the host developing autoimmune diseases such as #longcovid #mecfs #myalgicencephalomyelitis #postvac.

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Chantal Britt @chantalbritt.bsky.social · 02/12/2025

A diagnosis of three broken ribs is a doddle. 10 minutes of ultrasound. No discussion, no gaslighting and no doubt. Empathy and understanding. Compare that to a typical journey of a person with medically unexplained symptoms such as manifested with long covid and ME/CFS.

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Chantal Britt @chantalbritt.bsky.social · 11/11/2025

Presenting our poster with recommendations in patient involvement at the 48th IHF World Hospital Congress in Geneva. The poster is about the unimedsuisse project with all university hospitals. We probably still have way to go.

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Chantal Britt @chantalbritt.bsky.social · 28/10/2025

Five years ago we started our group on long covid which was the foundation for @longcovidch.bsky.social. I would not change a thing looking back. We have come a long way but it has taken a toll.

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Chantal Britt @chantalbritt.bsky.social · 18/09/2025

The motion for a Swiss Strategy for postinfectious conditions was approved! We , the patient organisations for long covid and myalgic encephalomyelitis thank all who made this possible! What a day!

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Chantal Britt @chantalbritt.bsky.social · 11/09/2025

I’m having fun with this covid test… Can you spot misinformation? seanmullen.com/covidcompete...

seanmullen.com

COVID Competency Exam

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Chantal Britt @chantalbritt.bsky.social · 13/08/2025

In der Schweiz leben rund eine halbe Million Menschen mit Long Covid und ME. Doch sie kämpfen nicht nur gegen eine unheilbare Krankheit – sondern auch gegen Stigma, Fehldiagnosen und lebensbedrohliche Behandlungen. daslamm.ch/chronisch-kr...

daslamm.ch

Chronisch krank und permanent angezweifelt

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Reposted by Chantal Britt

MissingDOCTORSandPSYCHOTHERAPISTS @medocspsytheras.bsky.social · 02/08/2025

📄 Unsere Antwort auf die Stellungnahme der @dgn-ev.bsky.social zu #MECFS Die Stellungnahme der Deutschen Gesellschaft für Neurologie zu ME/CFS ist ein medizinischer und ethischer Rückschritt. Sie ignoriert internationale Forschung, wiederholt widerlegte Annahmen – und gefährdet die Gesundheit 1/2

…“Als Fachleute mit zum Teil langen Berufsbiografien … ebenso wie als Betroffene sind wir über Ihre Stellungnahme … zutiefst entsetzt (…). Ohne Quellenbasis ignorieren Sie den umfassenden internationalen Forschungsstand, der ME/CFS als schwere somatische Multisystemerkrankung ausweist. Das Fehlen eines eindeutigen Biomarkers hätte dem Mangel an angemessener biomedizinischer Grundlagenforschung attribuiert werden müssen, zumal auch andere Erkrankungen ohne spezifische Biomarker klinisch diagnostiziert werden. Bei einer oftmals infektinduzierten Erkrankung wie ME/CFS können zudem immunologische Mechanismen nicht allein deshalb abgesprochen werden, weil die Forschung dazu noch nicht abgeschlossen ist.“

„Die Komplexität der Erkrankung und die lückenhafte Datenlage werden als Argumentationsgrundlage genutzt, um Patient:innen eine somatische Erkrankung abzusprechen, was ein längst veraltetes Krankheitsverständnis ungeklärter medizinischer Prozesse als funktionelles Geschehen widerspiegelt.“

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Chantal Britt @chantalbritt.bsky.social · 03/07/2025

PET scan and EEG of long covid show hypometabolism in the brain, which basically is the proof fir our cognitive dysfunction! The confirmation of what we have been experiencing for over five years. www.nature.com/articles/s41...

nature.com

Mapping brain changes in post-COVID-19 cognitive decline via FDG PET hypometabolism and EEG slowing - Scientific Reports

Scientific Reports - Mapping brain changes in post-COVID-19 cognitive decline via FDG PET hypometabolism and EEG slowing

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Chantal Britt @chantalbritt.bsky.social · 12/05/2025

Copenhagen airport and Denmark in general are well ahead of many countries for when it comes to recognising invisible illnesses such as long covid and myalgic encephalomyelitis.

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Chantal Britt @chantalbritt.bsky.social · 07/05/2025

It was a pleasure talking about the long covid mode project developed by European network organisation Long COVID Europe to raise awareness for long covid, myalgic encephalomyelitis and other postinfectious conditions.

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Chantal Britt @chantalbritt.bsky.social · 16/04/2025

The children’s hospital in Zurich is closing its consultation for children and adolescents with #longcovid and myalgic encephalomyelitis. They plan to set up a psychosomatic consultation instead. Needless to say, families and patient organisations are appalled. www.beobachter.ch/magazin/gesu...

beobachter.ch

Long Covid: Kinderspital Zürich lässt Familien allein

Entgegen den Empfehlungen des Bundesamts für Gesundheit wird die Versorgung von Kindern und Jugendlichen, die an Long Covid leiden, weiter ausgedünnt: Das Kinderspital Zürich stellte seine interdiszip...

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Chantal Britt @chantalbritt.bsky.social · 14/04/2025

I will start a collection of events illustrating my cognitive dysfunction due to long covid. None of this would have happened pre covid. None. Never. I l“left“ my laptop at CPH. I tried to bake bread at 85 degrees instead of 185 degrees C last week. I’m wearing two different shoes today.

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Chantal Britt @chantalbritt.bsky.social · 23/03/2025

Story of my life after covid. 5 years #longcovid #myalgicencephalomyelitis and counting. If there is one thing I don’t regret it‘s advocacy for post-acute infectious conditions with the all-grrrrl team @longcovidch.bsky.social @swisslc-kids.bsky.social and all advocates at Long Covid Europe!

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Chantal Britt @chantalbritt.bsky.social · 21/03/2025

We published a response to the magazine of the Swiss research funding body. Their article gaslighted people living with #longcovid #myalgicencephalomyelitis #mecfs. We pointed out that targeted funding would help generate the desperately needed evidence on these neglected postinfectious conditions.

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Chantal Britt @chantalbritt.bsky.social · 16/03/2025

Five years of the pandemic have changed our country. These five years have also turned the lives of millions of people with #LongCovid #myalgicencephalomyelitis upside down. Jobs lost, no treatment, no support, no relief, no money. Little hope for recovery. www.nau.ch/news/schweiz...

nau.ch

Fünf Jahre nach Lockdown: So hat Corona die Schweiz verändert | Nau.ch

Heute vor fünf Jahren wurde in der Schweiz der Lockdown ausgerufen. Diese Zeit beeinflusst noch heute unser Leben.

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Reposted by Chantal Britt

swisslc-kids.bsky.social @swisslc-kids.bsky.social · 15/03/2025

450'000 betroffene Kinder, Jugendliche und Erwachsene in der Schweiz Nach 6 Monaten bleiben 75 Prozent krank Weniger als 12 Prozent der Schwerbetroffenen erhalten eine IV-Rente

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Chantal Britt @chantalbritt.bsky.social · 15/03/2025

Today like any other day over the past 5 years I want to draw your attention to the fact that we are witnessing a mass-disabling event with worldwide over 400 million adults, adolescents and children living with #longcovid #myalgicencephalomyelities #postvac and other postinfectious conditions.

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Chantal Britt @chantalbritt.bsky.social · 09/03/2025

Ladies running @longcovidch.bsky.social @swisslc-kids.bsky.social holding their retreat to decide on strategy! All sick with #longcovid, and 3/7 too sick to attend in person. That‘s the reality of #longcovid #myalgicencephalomyelitis #mecfs international women‘s day. Gender data gap! #genderhealth

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Chantal Britt @chantalbritt.bsky.social · 06/03/2025

5 years ago I went to a concert. I wasn’t aware of risks of acute covid, sequelae or my predisposition for immune disorders. 06/03/20 d0 10/03/20 mild acute 16/03/20 - tachycardia, myocarditis, lung & muscle problems, exertion intolerance #longcovid #longcovidawareness #MyalgicEncephalomyelitis

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Reposted by Chantal Britt

UZH Citizen Science Zürich @citizensciencezh.bsky.social · 27/02/2025

Was sind die Chancen von #CitizenScience im Allgemeinen & der Patientenbeteiligung im Besodneren? Welchen Wert hat «angewandte» Erfahrung? Kann Citizen Science ein Karriereweg sein? Wir sprachen über all das mit @chantalbritt.bsky.social . ➡️ www.citizenscience.uzh.ch/de/aktuelles/blog/teilhabe

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Reposted by Chantal Britt

UZH Citizen Science Zürich @citizensciencezh.bsky.social · 27/02/2025

What are the opportunities for citizen participation in general & patient involvement in particular? What is the value of “applied” experiences? Can #CitizenScience be a potential career path? We talked with @chantalbritt.bsky.social about all this. ➡️ www.citizenscience.uzh.ch/en/news/blog/teilhabe

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Chantal Britt @chantalbritt.bsky.social · 26/02/2025

Swiss government recommends that parliament approves the motion for a national strategy on #longcovid #myalgicencephalomyelitis #mecfs #postvac. This is a milestone for people affected, their families, friends and supporters. Thanks to all politicians involved! www.parlament.ch/de/ratsbetri...

parlament.ch

Geschäft Ansehen

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Chantal Britt @chantalbritt.bsky.social · 21/02/2025

I’m moved to read that so many fantastic people across the world are fighting for us, for truth, for evidence. Thanks to all of you who signed the letter to Cochrane to protect the health of people with #longcovid #myalgicencephalomyelitis #mecfs from harmful therapies. virology.ws/2025/02/20/t...

virology.ws

Trial By Error: A Letter to Cochrane's Editor-in-Chief | Virology Blog

By David Tuller, DrPH This morning, I e-mailed the following letter to Dr Karla Soares-Weiser, Cochrane’s editor-in-chief, about the decision to abandon a p ...

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Reposted by Chantal Britt

Pflegeherz @pflegeherz.bsky.social · 13/02/2025

1/1 Ggfls. kann es sinnvoll sein, nach SARS-CoV-2 Infekt ab und zu den Blutzuckerspiegel zu überprüfen. Eine aktuelle Studie zeigt auf, dass nach Infektion mit SARS-CoV-2 der Kohlenhydrat-, Lipid- und Aminosäurestoffwechsel pathologisch beeinflusst wird: www.sciencedirect.com/science/arti...

sciencedirect.com

Recent advances in nutritional metabolism studies on SARS-CoV-2 infection

In the context of the coronavirus disease 2019 (COVID-19) pandemic caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), metabolic r…

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Chantal Britt @chantalbritt.bsky.social · 09/02/2025

The Swiss government will soon decide if it should recommend that parliament approves a motion demanding a national strategy on #longcovid #mecfs myalgic encephalomyelitis #postvac. @swisslc-kids.bsky.social @sgme.bsky.social ME/CFS Schweiz and @longcovidch.bsky.social support the strategy.

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Chantal Britt @chantalbritt.bsky.social · 01/02/2025

Human rights body Council of Europe passes long covid resolution 1. significant public health, economic, quality of life impacts 2. need of funding for research, healthcare, policies involving patients 3. care centers, training, awareness, recognition as disability pace.coe.int/en/files/341...

pace.coe.int

Res. 2591 - Resolution - Details tab

Title: “Long Covid” and access to the right to health - Related documents: Doc. 15416, Doc. 16088, Res. 2591

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Chantal Britt @chantalbritt.bsky.social · 23/01/2025

Swiss pediatricians still try to explain the rise in diabetes in kids with immunity debt. They claim autoimmunity is caused by masks, disinfecting hands and staying at home for a week. No autoimmunity and immune dysfunction are a host responses triggered by SARS-CoV-2. www.srf.ch/wissen/gesun...

srf.ch

Diabetes Typ 1 bei Kindern: Pandemie als Auslöser?

2020 und 2021 erkrankten mehr Kinder als je zuvor an Diabetes Typ 1. Was hatte das mit der Corona-Pandemie zu tun?

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Reposted by Chantal Britt

Pflegeherz @pflegeherz.bsky.social · 17/01/2025

1/1 Entstehen Alzheimer & Co durch Herpesviren? Alzheimer und multiple Sklerose könnten in Wirklichkeit Infektionskrankheiten sein. Indizien deuten darauf hin, dass neurodegenerative Erkrankungen auf Herpesviren zurückgehen. www.spektrum.de/news/entsteh...

spektrum.de

Neurodegenerative Erkrankungen: Entstehen Alzheimer & Co durch Herpesviren?

Indizien deuten darauf hin, dass neurodegenerative Erkrankungen wie Alzheimer auf Herpesviren zurückgehen

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Chantal Britt @chantalbritt.bsky.social · 17/01/2025

#LongCovid risk associated w/ multiple SARS-COV-2 infections, severe #COVID, and being unvaccinated at 1st infection after adjusting for relevant demographic, lifestyle, clinical variables. Can we please focus on those now!? (Not BMI, anxiety, personality) www.sciencedirect.com/science/arti...

sciencedirect.com

SARS-COV-2 re-infection and incidence of post-acute sequelae of COVID-19 (PASC) among essential workers in New York: a retrospective cohort study

After surviving Coronavirus Disease 2019 (COVID-19), some people develop symptoms known as post-acute sequelae of COVID-19 (PASC). PASC is an emerging…

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