iiinova — where your digital self keeps evolving

Reposted by C.H. Romatowski

Billy Hanlon @bhanlon15.bsky.social · 13h

'RECOVER-TLC to discuss launch of clinical trials at annual workshop' 'Registration is now open for the annual RECOVER-Treating Long COVID Workshop, where attendees come together to discuss the program’s progress as it prepares to launch new clinical trials' recovercovid.org/news/recover...

recovercovid.org

RECOVER-TLC to discuss launch of clinical trials at annual workshop

Registration is open for the third annual RECOVER-TLC Workshop, where researchers, clinicians, people living with Long COVID, and advocates will discuss the latest clinical trial updates and the futur...

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CIDRAP @cidrap.bsky.social · 11h

Study: More than 2 million new cancer cases caused by infections in 2024 A dozen infectious pathogens contribute to cancer. Finding ways to prevent them could help millions avoid a cancer diagnosis. Read more: bit.ly/4rOiPYE

Two women embrace. One wears a pink scarf on her head

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Billy Hanlon @bhanlon15.bsky.social · 13h

LBC: 'Chronic illness cases surge post-covid, leaving young patients searching for answers' 'Diagnoses of a chronic condition..have risen five-fold since the COVID-19 pandemic began, according to experts...Postural Orthostatic Tachycardia Syndrome (POTS)...' www.lbc.co.uk/article/chro...

lbc.co.uk

Chronic illness cases surge post-covid, leaving young patients searching for answers | LBC

Experts are reporting a five-fold surge in diagnoses of a rare chronic condition since the COVID-19 pandemic began

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C.H. Romatowski @chromatowski.bsky.social · 10h

From this WashPost article on the long term effects of the flu: “When there’s potential for viruses to cause neuronal damage, then ‘we have to prevent getting infected as much as possible,’ [neurobiologist] Hosseini said.”

washingtonpost.com

Column | ‘Long flu’ can linger for months. Here’s how to reduce your risk.

Persistent symptoms can harm the lungs and other organs, including the brain.

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Paris Marx @parismarx.com · 29/09/2026

funny to me that last year taylor lorenz was privately trying to suggest i was being funded by peter thiel after we got into an argument over her shitty takes, and now she’s literally running cover for him saying being evil is good. quite a journey she’s on.

Taylor Lorenz: "Listening to this whole interview and these comments in context you see he is actually making a pretty nuanced point. You can criticize him all u want but taking clips out of context to manufacture outrage is so lame— critique what he actually said!"

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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 29/09/2026

RFK Jr. alleges that he wants to focus on chronic disease and sideline infectious disease research, but the big dummy doesn’t care about the interplay between the two. A new study estimates that 12% of all cancer cases in 2024 were caused by infections, including H. pylori, HPV, HBV, and EBV.

thelancet.com

Global burden of cancer attributable to infections in 2024: a worldwide incidence analysis

Our findings highlight the importance of infection control to achieve cancer prevention. Scientifically proven, but often underused, approaches include HPV and HBV vaccination; testing and treatment o...

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Kristin Meekes @kmeekes.bsky.social · 29/09/2026

Instead we still have handwashing and coughing into elbows for airborne viruses, outright dismissal of long covid, normalization of being sick all the time, and zero accountability

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Kristin Meekes @kmeekes.bsky.social · 29/09/2026

The pandemic should have led to clean indoor air, treatments for long covid and related illnesses, next gen vaccines, normalization of masking, mandatory respiratory protection in healthcare, sick leave, and a paradigm shift around what infections do to people

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Colette Delawalla, PhD @cdelawalla.bsky.social · 28/09/2026

The humanities have been calling out genAI theft since the jump, while STEM has rallied around “discovery potential”. I am *ONCE AGAIN* reminding EVERYONE that science is not the sacred cow, STEM isn’t the exception. They are going to steal our IP, too. We aren’t special.

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Prof Gavin Yamey MD MPH @gavinyamey.bsky.social · 28/09/2026

Russell Brand is central to MAHA & has been an adviser to its MAHA Action group This will make you throw up a little in your mouth: He dialled into a MAHA Action Zoom meeting from his bath tub, naked, to give a "rambling monologue" on media coverage of US healthcare www.yahoo.com/news/article...

yahoo.com

RFK’s MAHA Think Tank Slammed Over Bathtub Endorsement From Naked Hollywood Star Awaiting Trial for Rape

An influential health think tank linked to Health Secretary Robert F. Kennedy Jr. received a bizarre endorsement from Hollywood star Russell Brand, who addressed its online forum while naked in a bath...

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Beatrice Adler-Bolton @reallandsend.bsky.social · 28/09/2026

only 95 days to go until federal medicaid work requirements take effect

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C.H. Romatowski @chromatowski.bsky.social · 28/09/2026

For what it’s worth, according to the National Academy of Sciences, Engineering and Medicine (NASEM) definition, this also counts as Long Covid—not just new symptoms but also worsened existing ones. If you have ever wondered if you’re part of the LC cohort.

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C.H. Romatowski @chromatowski.bsky.social · 28/09/2026

It’s not a story that anyone wants to hear but in February 2018 I caught a friend’s sore throat. While he recovered fully, I just kept declining, and by June I was 99% bedbound. Eight years later, that’s where I remain. We desperately need better defenses against all respiratory viruses.

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Myra Batchelder @myrabatchelder.bsky.social · 28/09/2026

Midterm election has begun. People are already turning in ballots in some states. Now is the time to get involved. Phonebank. Textbank. Call your friends & family in key election districts. Donate. So many important elections from Senate to House to Governors to more that will impact our lives

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Beatrice Adler-Bolton @reallandsend.bsky.social · 28/09/2026

explaining to my toddler that we pay a lot of money for health insurance which pays for our healthcare, but also we have to pay the doctor for healthcare until we pay enough money for the health insurance to start paying for our healthcare but even then we still pay the doctor

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 28/09/2026

we all know this season of America has jumped the shark but this is too much

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Myra Batchelder @myrabatchelder.bsky.social · 28/09/2026

"More than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds" #COVID19 #LongCOVID www.cidrap.umn.edu/covid-19/mor...

cidrap.umn.edu

More than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds

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Tom Kindlon @tomkindlon.bsky.social · 28/09/2026

Stanford's Genome Technology: Center Community Symposium on the Molecular Basis of ME/CFS Recordings from the symposium sessions are now available. www.youtube.com/playlist?lis... #MEcfs #CFS #PwME

youtube.com

2026 Community Symposium on the Molecular Basis of ME/CFS - YouTube

Community Symposium on the Molecular Basis of ME/CFS September 11, 2026, hosted by Stanford University and Ron Davis Opening Remarks: Ronald W. Davis, PhD, S...

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Tom Kindlon @tomkindlon.bsky.social · 28/09/2026

The Severe & Very Severe ME Research Registry has been created. It gives people with severe and very severe ME from Germany, Austria, & Switzerland the opportunity to participate in research through home visits severe-me-registry.de #SevereME #MEcfs #CFS #PwME #VerySevereME #ChronicFatigueSyndrome

severe-me-registry.de

Severe & Very Severe ME Research Registry

Das Severe and Very Severe ME Research Registry verbindet ME Schwer- und Schwerstbetroffene mit biomedizinischer, häuslicher Forschung.

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C.H. Romatowski @chromatowski.bsky.social · 27/09/2026

Very concerned about this happening in the chronic illness community. So many formerly left-leaning people steeping in Elon’s algorithm and now can’t stop talking about how much they hate the left.

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Prisonculture @prisonculture.bsky.social · 27/09/2026

It's really really difficult to see what's happening to you from inside your own life. You can't tell that you're being coarsened until you leave an environment that is key to making you more coarse. That's my experience at least.

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Mr. Dan Zak @mrdanzak.com · 27/09/2026

The CDC awarded a no-bid contract for exploring whether immunizing pregnant women would lead to autism in their children; to pay for this contract, the CDC took $362,000 from a program that provides free vaccines to about half American children. www.nytimes.com/2026/09/26/h...

nytimes.com

‘Zombified’ C.D.C., Hobbled by Cuts, Struggles to Fulfill Scientific Mission

The agency has lost its independence and nearly a third of its staff, as Health Secretary Robert F. Kennedy Jr. and associates have tightened control.

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Prof Gavin Yamey MD MPH @gavinyamey.bsky.social · 27/09/2026

This is why my eyes roll when anyone says “MAHA wants to do something about chronic diseases” No, it doesn’t MAHA’s leaders, RFK Jr & Jay Bhattacharya, run the US health & health research systems & they have DECIMATED chronic disease prevention What MAHA *says* is divorced from what it *does*

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Jane Shi | 皮爬高 echolalia echolalia is out now @pipagaopoetry.bsky.social · 27/09/2026

it pisses me off when niche inter-community conflicts and conversations become viral and multiply marginalized people are exposed to public ridicule from a hostile public and in a deepening fascist social climate

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 27/09/2026

One of the downsides to socialized medicine is that the state REALLY wants to skimp on medical care, and the media is in their pockets.

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Casey Doherty @caseydoherty.bsky.social · 27/09/2026

Literally leave us alone

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Brian Lyman @brianlyman.bsky.social · 26/09/2026

A 48% drop in employees at National Center for Chronic Disease Prevention and Health Promotion. Yikes.

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Jenna Norton @jenna-m-norton.bsky.social · 26/09/2026

As Office of Management & Budget Director, Russell Vought continues to knowingly & willfully break the law. Yesterday, he again attempted a pocket rescission of almost $1B, alerting Congress of plan not to use appropriated funds with too little time for them to act. www.nytimes.com/2026/09/25/u...

nytimes.com

Trump Proposes $810 Million in Education and Health Cuts, Defying Congress

The attempted clawback represents the second time in as many years that the White House has sought to cancel funding approved by lawmakers.

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Politics and Health 🗳️ 🩺 @politicshealth.bsky.social · 26/09/2026

So fuc*ing infuriating and sad. The CDC used to be the crown jewel of the world's scientific firmament. Other countries came to us for help fighting deadly diseases. Its disease detectives learned what caused illness and helped change practices to prevent them. www.nytimes.com/2026/09/26/h...

nytimes.com

‘Zombified’ C.D.C., Hobbled by Cuts, Struggles to Fulfill Scientific Mission (Gift Article)

The agency has lost its independence and nearly a third of its staff, as Health Secretary Robert F. Kennedy Jr. and associates have tightened control.

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NBC News @nbcnews.com · 23/09/2026

The CDC raised its benchmark for levels of the Covid virus in wastewater, adjusting a key metric for assessing the disease’s transmission. As a result, officials may now classify a level that once counted as high transmission as moderate instead.

nbcnews.to

Why the CDC edited a key Covid metric, and what it says about the state of the virus

Covid infection counts are increasing in more than half the country.

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Jessica Luther @jessicawluther.com · 26/09/2026

My family of 3 showed up to get our flu and COVID shots at the CVS, and we’ve had to wait for the 3 people in line in front of us. Love seeing people get their vaccines!

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Gillian Brockell @gillianbrockell.com · 26/09/2026

I hope all the middle-aged women whose lives have been vastly improved by an ADHD diagnosis understand that we’re on the list after trans and autistic people. RFK Jr thinks we should be sent to camps instead of taking a daily medication to bring our dopamine pathways up to a normal level.

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The Sick Times @thesicktimes.org · 26/09/2026

We want to hear from you and understand how you engage with The Sick Times. Please take this quick survey to let us know what you think: www.surveymonkey.com/r/SS6ZH8S

A black background with white text reads, “If you have 5 minutes, we’d love your feedback on our Long COVID journalism. What do you say? Take the survey. The Sick Times.”

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C.H. Romatowski @romatowski.bsky.social · 26/09/2026

Heavyweight is back with a deeply affecting episode about living with disability, cruelty and forgiveness. I hope a lot of people will listen to this one.

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Disability Rights Oregon @disabilityrightsor.bsky.social · 26/09/2026

🎉 Today is the 53rd anniversary of the Rehabilitation Act of 1973! Section 504 was the first federal law to protect Americans with disabilities from discrimination. Its regulations were signed thanks to the historic 504 Demonstrations. ✊✊🏼✊🏾✊🏿❤️ #Section504 #DisabilityRights

Black and white photograph of disability rights activists protesting during the 1977 Section 504 sit-in in San Francisco, with protesters in wheelchairs holding signs including, 'We Shall Overcome.'

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Congresswoman Ayanna Pressley @pressley.house.gov · 26/09/2026

It's so good to join the National Alopecia Areata Foundation for their annual Walk for Alopecia. Nearly 7M people are living with alopecia, an auto-immune disease which every person carries differently. To my alopecia tribe: know this Congresswoman sees you & loves you.

Rep. Ayanna Pressley poses for a photo with a young boy with alopecia and his family.

Rep. Ayanna Pressley poses for a photo with a woman with alopecia.

Rep. Ayanna Pressley poses for a photo with a toddler with alopecia and his mom.

Rep. Ayanna Pressley takes a selfie with an attendee of the annual Walk for Alopecia.

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26/09/2026

I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?

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High Country News @highcountrynews.org · 26/09/2026

Disability is the one marginalized identity that anyone at any point can join. Many people, at some point in their lives, will be disabled if they live long enough. Why not look out for our future selves by making things more accessible now? buff.ly/qJLtRwq

buff.ly

‘Everyone deserves to have a good quality of life’ - High Country News

#iamthewest: Giving voice to the people that make up communities in the region.

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Jen-of-Λrc @jen-of-arc.bsky.social · 24/09/2026

PSA: Maine is one of 13 states that allow electronic voting for seniors & those w/ disabilities. Have her call ☎️ her local election office & sign up for this. I contacted mine in Utah—it was quick—and I’m all signed up to vote 🗳️ electronically! Here’s the full list of states that allow it:

eballot.com

These States Allow Online Voting for Citizens. Does Yours?

Find out which forward-thinking US states allow email and online voting options for certain voters.

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Julie Rehmeyer @julierehmeyer.bsky.social · 24/09/2026

Whoa! Speaking of @environmentalvoter.bsky.social, they've teamed up with Patagonia for a program that launches Saturday where if you get three voters to commit to a voting plan, you get a $100 voucher for Patagonia! It launches Saturday. www.nytimes.com/2026/09/22/b...

nytimes.com

Patagonia Offers $100 to Customers Who Help Others Plan to Vote (Gift Article)

The outdoor apparel brand, which sued the Trump administration this month, is ramping up its environmental activism before the midterm elections.

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Guttmacher @guttmacher.org · 24/09/2026

Thank you Sen. @murray.senate.gov for introducing the Affordability Is Access Act to require coverage of OTC contraception without cost sharing. This bill could be transformative—including for millions of women who need low- or no-cost birth control, but live in communities without adequate access.

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Mar Hicks @histoftech.bsky.social · 26/09/2026

As of today, the CDC has changed (reverted) their Covid guidance to make the vaccine recommended for all people over 18. In addition to being a smart public health move, this recommendation also means insurance must cover it. Read more here: www.cdc.gov/covid/hcp/va... Listen to a breakdown here:

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D is tired, but there is coffee @grrlintersect.bsky.social · 25/09/2026

This is an example of how ableism shows up in the interview process and goes unnoticed, and honestly, even if you do not need a drink for disability reasons, if you have any choice about the matter, don’t work for companies that would treat you taking steps to hydrate yourself as a deficit.

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Melissa Gira Grant @melissagiragrant.com · 25/09/2026

“'A lot of people just thought we want things to go back to normal,' Noire said. 'Long Covid is something that is disproportionately affecting LGBTQ and Black communities. People are getting long-term effects from getting reinfected again and again.'" thx @greenfieldrecorder.bsky.social

recorder.com

Greenfield takes stock of viral attention: Businesses, officials weigh in after coverage of lesbian bar Last Ditch takes national spotlight - Greenfield Recorder

Local leaders and business owners defend Greenfield's Last Ditch bar amid a viral dispute over Saturday night masking policies.

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Matthew R Francis @bowlerhatscience.org · 25/09/2026

this @juliametraux.bsky.social piece addresses a question I genuinely wanted to know about: what do *actual* people with disabilities think about the way Meta claims their perv glasses are for them? www.motherjones.com/politics/202...

motherjones.com

Is Meta using disabled people to promote its glasses?

AI glasses are a double-edged sword for disabled people, who face unique risks from surveillance.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 25/09/2026

Can't believe this wasn't broadcast more broadly, but it looks like #CDC is looking for someone to do... symptom cluster characterization in #MECFS. Deadline is today. 😅 I know who your supervisor would be, and they're legit. PhD required. www.zintellect.com/Opportunity/...

zintellect.com

Zintellect - Centers for Disease Control and Prevention (CDC) - CDC ME/CFS Data Analysis and Symptom Characterization Fellowship - CDC-2026-0028

*Applications will be reviewed on a rolling-basis. CDC Office and Location: A research opportunity is available in the Centers for Disease Control and Prev

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