Living with Myalgic Encephalomyelitis, ME—not CFS.

I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.

Living with Myalgic Encephalomyelitis and Postural Orthostatic Tachycardi Syndrome, so no longer working. Married, and have two grown up daughters.

New main account of @violetta.bsky.social #PwME #MEcfs #PoTS #CPTSD #MCAS #SFN #FQtoxicity #TalkCollapse #CR41W Wishlists: https://paths.to/VioletsWishl

Carer for my daughter with very severe ME | ME-Myalgic Encephalomyelitis |

Tattoo Artist & Illustrator 👽💖🌈 Making use of viral mitigations😷 Books closed 🖤 Living on the unceded territories of the Lekwungen and W̱SÁNEĆ nations (so

Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats

Chronically curious. Talks gardening for hours. Used to be a medical librarian. My lay expertise is galactosemia (spouse), ME/CFS, LongCovid. Interests: Birds

6th year MedStudent

Mediocre photos of very fine creatures. From Chicago; in Wisconsin. She/her. Reader. Science fiction fan. For human rights, books, art, health care for all, et

💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/

https://simondelfavero.com

ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪

South West UK, #autistic, #close2ME, learning as fast as I can! Caring for #pwme and posting occasional observations from daily life to remind me of things I se

Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #I

Owned by a cat. Refugee from the hell place. ME/CFS for 34 years and counting. "Anti-recovery activist" ( some chance!) Boring.

😮‍💨pwME/👹Left/🐔COYS/👻Lurkhorse 🇵🇸Free Palestine/🍉Save Gaza NOW!

Bouwjaar 1964 - woon sinds 15 jaar in het oosten van Vlaams-Brabant, samen met hubby - voorheen druivendorp bij Brussel - geïnteresseerd in mensen, natuur, kuns

😷 Born 322ppm 🌎 ❤️ Poetry. Bees. Bikes. Ecological education. Eco/Climate Justice. UofCalgary Assoc Prof Curriculum/Learning. She/Her

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery

Please scream inside your heart. || He/Him

(or annette) • 34 • they/them, xe/xer, or xey/xem • queer nb • disabled + nd • writer • definitely Normal about shadow the hedgehog annuska on ao3, @whitejungl

Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.

ME/CFS | Medizin | Wissenschaft Website: https://bit.ly/waldmeer Auch unter: @waldpol.eurosky.social

42-jährige Münchnerin mit #MEcfs nach einer Corona-Infektion im April 2022, die Hörbücher 📚, Podcasts 🎙️ und die #kleineKunstklasse 🎨 mag.

One of #MillionsMissing since 2002 #MEcfs Diagnose 2021 🐦 @will_ins_Gruene

person with ME/CFS professional slug

Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino,

Interessiert an Politik, Geschichte, Musik, Kunst, Architektur, Technik, Web, Computer, Menschenrechte, Digitalisierung, Zukunft, Klimawandel, Archäologie (Dies

I generally don’t deal in absolutes

Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging

I'm Cal, in Toronto 🇨🇦. Doing tool and #gamedev, #film, #writing. Wrangling chronic illness, so I can get back to acting, circus, martial arts. Tech prefs: #M

psychologist | research associate @UniLeipzig | psychotherapist in training | my research is on psychologization & stigma of Long COVID, ME/CFS, PAIS

Hausarzt, Immer mit Maske, für SaubereLuft, Impfbefürworter und Verfechter evidenzbasierter Medizin, KEINE Homöopathie

Was ocean and climate modelling phd | Now bedbound advocacy | masking is community care | #SevereME

ME-dically gaslit for 10yrs.

Verbundzusteller bei der Post

🦼 #ME/CFS Hungry for life, future, perspective. Instead, stagnation, trapped in MECFS hell "and then you have no choice but to search for life in the ruins

Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primar

i'm just here to horse around. All statements and opinions are my employer's and they made me say them ☭

I'm here to have a good time, stay informed, and cyberbully as needed

Currently out of order due to Long Covid and ME/CFS Graphic design student she/her

Here for ind media. & animals. Progressive. Aunt!fa. 🏳️‍🌈GenX; 🏳️‍⚧️Ally; American in 🏴󠁧󠁢󠁳󠁣󠁴󠁿. [🫘] Header pic: some pals I met while hiking here in S

Data analyst/scientist making data analysis software, #datavis, #datascience , etc, nature photography, some creativity and hobbyist personal complex medical re

he/him

Average dag. Renewables nutter. Passive solar owner builder. Australian plants and animals Bicycles (recumbent!). EVs. Much musics! The standard no DMs unless

#CannabisMedizin🥦 #MEcfs🪫😷 #IchBinArmutsbetroffen💣 #GGUltra📎 ᓚᘏᗢᗢᘏᓗ ✨Anne Brorhilker Fan Club✨ I may be sick, but I won't be still.📢 Profilbild, schlafend

PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS ME/CFS | Disability | Social Justice https://milaandmecfs.fi

For music go to: @otherdays.bsky.social For COVID, public health, politics, etc.. stay here...

sociologist working on demography of same-sex couples | Vienna | living with Long Covid + MCAS & ME/CFS 😷 | interested in clean indoor air, public health | lif

All I want is democracy!

Science defender and eco-worrier. (she/her) No DMs please (can't access).

Covid informed #PlusLife user looking for all the smart people I followed on the other place… #MECFS ally #sisterofpwme #millionsmissing #cleanair #covidisairbo

🩵 Nature - Science - Comedy 🩷 Writer & Heart & Women's Health Advocate - PhD in Irony - Baby Yoda Lover ✍🏼 Blog https://medium.com/@deborahbollyn./ 🫀 INO

Skeets und Gedanken über Recht, Leben, Lieben, Leidenschaft ✈️ + was sonst noch so anfällt. Nicht immer das, was man hören will xD ME is not a joke. AuDHD is

I make tough conversations easier. Newsletter at https://FacilitatingCommunity.Care.

Alumnus @Ruhr-Uni-Bochum.de Mathematical and Statistical Modelling Interests: - Antibiotic Resistance - ME/CFS - Selective Mutism - Critique of EbM, Causality,

25 | moop meep mop mep she/they

Empowering persons w Myalgic Encephalomyelitis. 35y w/ME Colab at ONG PEM Spain, ME-International.org, EMEA ICPrimer our best tool. #UniteToFight2024 Empoder

My interests inc health, welfare & disability policy, media, hospice/palliative care, the environment & animal welfare. Happy to have left the other place :)

ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna | posts/skeets = personal opinion www.verhac.at de/en

disabled / ancom / trans nb / artist / plant knower 1312, terfs eat dirt, wear a mask

Subscribe to my tech and online culture newsletter UserMag.co Listen/watch Power User podcast on all platforms!! Support my work on Patreon: https://www.patr