iiinova — where your digital self keeps evolving

Reposted by Ness

emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 27/09/2026

Just listened to this full interview & it’s fantastic. @georgemonbiot.bsky.social doesn’t mince words, reminding us the #GreatestMEdicalScandal of the century is not just about neglect, it’s abuse by the medical system & complicity from all of society. Full interview (9 mins): youtu.be/H2rRf_f2hJs

02811

Reposted by Ness

Dan Wyke @danwyke.bsky.social · 24/09/2026

📰 New article in today's Guardian: "Abandoned, dismissed and gaslighted: there is no excuse for the way M.E. sufferers have been betrayed." Huge thanks to George Monbiot for trying to keep this issue in the public eye. www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

0255

Reposted by Ness

Tortoise & Gecko @tortoiseandgecko.bsky.social · 26/08/2026

Episode 61: The Incubation Chamber Asleep and awake. theamazingadventuresof.tortoiseandgecko.au/p/episode-61 #tortoiseandgecko #sff #books 🪐📚️️💙

theamazingadventuresof.tortoiseandgecko.au

Episode 61

The Incubation Chamber

022

Reposted by Ness

Vanessa Smith @normalness.bsky.social · 03/07/2026

New section of the podcast - mutual aid. Please help if you can, Anna could use your help @halcionandon.bsky.social Details: chuffed.org/project/1619...

233

Reposted by Ness

Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 28/06/2026

Orthostatic intolerance after spaceflight journals.physiology.org/doi/abs/10.1... 14 astronauts 10 minute stand test pre- and post-spaceflight All could finish the test pre-flight, only 5 could complete the test after. What's more interesting is the cardiovascular responses in each group 🧵

journals.physiology.org

Orthostatic intolerance after spaceflight | Journal of Applied Physiology | American Physiological Society

Orthostatic intolerance occurs commonly after spaceflight, and important aspects of the underlying mechanisms remain unclear. We studied 14 individuals supine and standing before and after three space...

172

Reposted by Ness

Belinda Medlyn @bmedlyn.bsky.social · 22/06/2026

I am hiring! My former postdocs have all gone on to great ongoing roles, so I am now looking for 2 new postdocs in dynamic vegetation modelling: Modelling vegetation-fire interactions in Australia Modelling Australian vegetation distributions Details linked below - please share!

23547

Ness @nessau.bsky.social · 20/06/2026

World refugee day, 20 June We recorded this more than a decade ago and it still brings tears to my eyes Arbitrary or mandatory imprisonment of refugees is cruel & illegal Everyone has a right to safety when they flee conflict or persecution stevetowson.bandcamp.com/track/christ... #RefugeeDay

stevetowson.bandcamp.com

Christmas Island, by Steve Towson

track by Steve Towson

000

Reposted by Ness

Louise Milligan @milliganreports.bsky.social · 15/06/2026

THREAD: 1. Some years ago women academics contacted me unsolicited on Twitter (which I no longer use) about an academic in Melbourne. They’d made complaints to a faculty head about the man’s targeted, obsessive bullying of women colleagues, including First Nations women. The university kept him on.

211752

Reposted by Ness

💜 phonakins 🍉🌲 @phonakins.com · 10/06/2026

Anna needs to escape her family in Melbourne. She needs a place to go and someone to get her there. Are you that person? Do you know a place?

169

Reposted by Ness

Michiel @murtoz.bsky.social · 10/06/2026

#SevereMErgency #pwME, please sign this petition and email the hospital if you can. Instructions on the petition. @tessamunt.bsky.social - here we go again. @jamesmurrayldn.bsky.social @sharonhodgsonmp.bsky.social how many more times will you allow this to happen? We need safe beds for the Severe!

change.org

Sign the Petition

Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk.

179

Reposted by Ness

It's ME(Jaime) @exceedhergrasp1.bsky.social · 01/06/2026

Hey, #NEISvoid and #MECFS ppls-- I know we SAY this a lot but is it cited anywhere you know of? - We're probably not diagnosing ppl at the mild end AND ppl at the severe end at the rare we're dxing moderate presentation.

95325

Reposted by Ness

CrouchingTigger @crouchingtigger.eurosky.social · 20/05/2026

A few midweek flowers for you, Bluesky 🙂

A close-up of a light pink Pasque flower (Pulsatilla vulgaris)

A deep blue gentian flower (Gentiana acaulis) next to a small houseleek (Sempervivum)

A close-up of a purple Pasque flower (Pulsatilla vulgaris)

0485

Reposted by Ness

Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social · 30/04/2026

Does #MutualAid exist anymore? Crowdfunding stalled. Too sick to stay visible? People too broke? If you’re reading please share pinned post! Help if able. Room or granny flat? Board neg. Land for trailer/ cabin? LMK. Dying, Dr backed! #DisabilityMA 💕💸 #MADBoost 💸❤️ bsky.app/profile/halc...

02329

Reposted by Ness

Michiel @murtoz.bsky.social · 19/05/2026

#pwME there was a study in the past year or two showing the detrimental effects of psychologising physical illness. I can't find it anymore tho, does anybody have the link to the study?

196

Reposted by Ness

Anil van der Zee @anilvanderzee.bsky.social · 12/05/2026

For #MEAwarenessday I interviewed 8 men about their experience with ME. As far as I'm aware there's never been a film with just men talk about ME. Make sure to check out and please share!! #myalgicEman #pwme #millionsmissing #millionsmissing #severeME #MECFS youtube.com/watch?v=z_MC...

youtube.com

Men about living with M.E. (with subtitles)

YouTube video by Anil about ME

03514

Ness @nessau.bsky.social · 12/05/2026

🧵🧵 A repository of selected ME/CFS and Long Covid documentaries & shorts. Plus some current affairs reports, art films and archival footage * Compiled over a few years from web searches * Apologies for any links that have broken #MECFS #LongCovid #GreatestMEdicalScandal #MillionsMissing #May12th

2103

Reposted by Ness

Carole Bruce @cabruce.bsky.social · 09/05/2026

Two poems by James Strazza who died this week. He had been suffering with severe #ME since 2019. A rare and sensitive man. It’s incredibly sad that once again we are mourning one of our own. May those that have blocked research and psychologised ME feel the pain of their actions 💙

53513

Reposted by Ness

David Tuller @davetuller1.bsky.social · 06/05/2026

This has been a challenging crowdfunding for Berkeley's Trial by Error project on ME, ME/CFS, Long COVID, etc, but it seems like things are catching up in the final days. Now at 80% of the goal! Thanks to all!!! crowdfund.berkeley.edu/project/49720

crowdfund.berkeley.edu

Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc

Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!

21910

Ness @nessau.bsky.social · 06/05/2026

Oooh nice!! Congrats to @davetuller1.bsky.social for being a finalist 👏 Last chance to support his Trial By Error reporting at UC Berkeley (3 days left): crowdfund.berkeley.edu/project/49720

033

Ness @nessau.bsky.social · 02/05/2026

A cute Beans n Bleb moment for Caturday. He's recovering well from his TNR surgery (a bit goopy in that left eye still) and turning out to be a real smoocher. We nose-booped today, which took reciprocal trust since last time he also bit me on the face, the little chaos gremlin! #Caturday #TNR

An ear tipped ginger & white cat. He's mid-bath so his tongue is blepped and eyes almost fully closed so he looks well dopey. Some of his toes are in the foreground. He's lying in my lap. I'm sitting in a wheelchair, wearing a capybara cartoon jumper, and rapidly falling in love with this little guy.

0170

Reposted by Ness

wamesmecfs.bsky.social @wamesmecfs.bsky.social · 30/04/2026

David Tuller is crowdfunding for his salary & expenses for period up until end of 2026, when he plans to retire. His work has played a major role in the ongoing shift in how ME/CFS is viewed, and Long COVID along with it. Contribute until 5 May. 58% of goal achieved so far tinyurl.com/5exx924e

tinyurl.com

Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc

Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!

0119

Reposted by Ness

Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social · 02/05/2026

Could we get this legend who fights for us paid for the last year before retirement, please!

045

Reposted by Ness

Anil van der Zee @anilvanderzee.bsky.social · 01/05/2026

‼️ BURIED ALIVE WITH M.E.‼️ For #MEAwarenessMonth I made a severe ME body‑bag “dance” film about death within the ME community. youtu.be/XhrAhGkrGuQ?... I also joined the online expo ME Kills by A Quiet Storm, which goes live on May 12th, 1/ #pwme #myalgicE #millionsmissing

youtu.be

Buried Alive with M.E. (with subtitles)

YouTube video by Anil about ME

1010666

Reposted by Ness

Jeremy Poxon @jeremypoxon.bsky.social · 01/05/2026

Ah, here it is "a single bed in a share house with multiple tenants" in North-Eastern Adelaide www.sbs.com.au/news/article...

The only affordable house in Australia
The country's sole affordable rental for someone on JobSeeker is a single bedroom in a share house with multiple tenants in the Fairview Park neighbourhood of Adelaide, South Australia.

The rental space is 9.29 square metres with a shared bathroom, toilet, and laundry, and is listed as not accepting pets.

68841

Reposted by Ness

Guiness Pig @guinesspig.bsky.social · 29/04/2026

Guess what? It's #WaysideWednesday and here's the first episode of Wayside, an audio drama for the Covid Conscious community. I'll post episode 2 next Wednesday! youtu.be/MvcynQFPJRk

youtu.be

Wayside: An audio drama for the Covid Conscious community - Episode 1

YouTube video by N95sSaveLives

1185

Reposted by Ness

Something Chronic @somethingchronic.bsky.social · 30/04/2026

There was a great man called Dave Who was #pwME ‘s fave He stood up for them When they had PEM Please donate in memory of Maeve #GreatestMEdicalScandal #SevereME #MaeveInquest

0117

Reposted by Ness

Emerge Australia @emergeaustralia.bsky.social · 29/04/2026

Not up for a full research study? You can still make a big difference. One blood donation to the AusME Biobank can support up to 39 research studies into ME/CFS and long COVID. Low effort, high impact. Join here: zurl.co/JosYx

Promotional graphic for AusME and Emerge Australia showing a gloved hand holding a blood sample tube labelled “AusME Biobank donor sample” against a blurred laboratory background. Text reads, “From one small act comes big hope,” and asks, “Not up for a full research study?” It explains that a single blood donation can contribute to up to 39 research studies advancing understanding of ME/CFS and long COVID.

095

Reposted by Ness

David Tuller @davetuller1.bsky.social · 28/04/2026

Berkeley's crowdfunder for Trial By Error has received 350 donations!! Thanks to all who have supported my work over the years. Here's the link for the current effort: crowdfund.berkeley.edu/project/49720

crowdfund.berkeley.edu

Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc

Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!

0129

Reposted by Ness

Mr Spock's Cat @mrspockscat.bsky.social · 28/04/2026

@angryhacademic.bsky.social slow release vitamin 🍊 dose 🐾😽🐾

032

Reposted by Ness

Merrymac Farm Sanctuary @merrymacsanctuary.bsky.social · 28/04/2026

Lift off! Everyone is LOVING the recent summery weather!!

Photo of two baby goats on a bright sunny day. They are playing outside. A black-and-white one with ears pointing up in the air is leaping towards the camera. A brown and black one with floppy white ears stands nearby.

1040834

Reposted by Ness

ME/CFS Science @mecfsscience.org · 26/04/2026

1) This review on exercise for Long Covid now has a corrigendum, following a letter by David Tuller that points out multiple flaws.

14818

Ness @nessau.bsky.social · 20/04/2026

Can you help provide Anna with: 1. $$ 2. A quiet room in a COVID-conscious (masking) home in Melbourne, Australia (can pay $250 per week) 3. Relocation assistance 4. Advocacy 5. Assistance with basic phone calls

121

Reposted by Ness

Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 17/04/2026

Reminder: If you have diagnosed MCAS, or you think you have MCAS but it's not been diagnosed, please consider doing our survey 👇

122

Ness @nessau.bsky.social · 18/04/2026

Meet Gojan, the latest addition to our little #TNR colony. We got him out for desexing last weekend & he's doing well. #Caturday #LibraryCat

A ginger & white tomcat sits on a haybale with a knotted rope toy between his paws. He's relaxed but looking at something interesting to his left. This photo was taken shortly before his TNR appointment.

170

Ness @nessau.bsky.social · 18/04/2026

Self-appointed library Rodent Control Officer expanding her duties to stationery cabinet inspector 😻 Confirming that there were, in fact, no rodents (or treats) behind that drawer #LibraryCat #TNR #Caturday

A fluffy, ear tipped, dark chocolate-brown kitty is emerging from inside a stationery cabinet, and looking back at the camera with wide eyes. Two other stationery drawers have been pulled out of the cabinet and are stacked in the background for sorting.

180

Reposted by Ness

💜 phonakins 🍉🌲 @phonakins.com · 27/01/2026

Anyone in Melbourne able to help Anna find a safe room to move into?

126

Reposted by Ness

Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social · 13/01/2026

Do you know any #Naarm #FDV #disability support people? Maybe there’s some on here? Sometimes they do work outside official employment, but I don’t know the right people. Regular people are welcome to help. This is the hardest one. Nobody in Melbourne wants to help. I can’t do this alone.

132

Reposted by Ness

Tortoise & Gecko @tortoiseandgecko.bsky.social · 07/01/2026

The Amazing Adventures of Tortoise & Gecko (Part 1) is complete! A tale of talking animals, pirates, empire, & buried texts, you can download a free copy here: theamazingadventuresof.tortoiseandgecko.au/p/e-books #tortoiseandgecko #sff #books #ebooks #booksky 🪐📚💙

theamazingadventuresof.tortoiseandgecko.au

E-books

When Tortoise joins Gecko on the high seas, he learns that the stories we're told and the ones we tell transform us. With talking animals, pirates, empire, & buried texts, this shapeshifting philosoph...

254

Reposted by Ness

💜 phonakins 🍉🌲 @phonakins.com · 07/01/2026

WE MADE THE GOAL chuffed.org/project/1619... We will keep it open because Anna will certainly have more expenses relating to moving, health and generally setting up her life again after she finds a place NEXT STEP - need a room to move into and an advocate in Melbourne

chuffed.org

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

298

Reposted by Ness

💜 phonakins 🍉🌲 @phonakins.com · 06/01/2026

Also PLEASE if anyone can help Anna out with a room or advocacy, making phone calla on her behalf to access services or any support in Melbourne please email her directly Halcionandon at gmail dot com

044

Reposted by Ness

💜 phonakins 🍉🌲 @phonakins.com · 06/01/2026

Thank you SO much for getting us 80% of the way there! Paypal is now an option for payment Anna's expecting 44 degrees in the heatwave today and has no aircon. Help her get out of there so she doesn't have to suffer through another heatwave or at the hands of her family again #MutualAidAustralia

chuffed.org

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

145

Reposted by Ness

Lavender (she/her) @lavender63.bsky.social · 03/01/2026

I have an increase in headaches & nausea, and new sudden vomiting with POTS from longcovid. It’s not improving after stopping Mestinon. Anyone have recommendations for things I can ask my neuro’s NP next week?

011

Ness @nessau.bsky.social · 25/12/2025

The link has non-financial ways to help if you can't give $ (Help would be easier given by people in Australia though)

000

Reposted by Ness

Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social · 24/12/2025

#Urgent Appeal: Help Anna Escape #Abuse – Time is Running Out! @phonakins.com kindly helped make a Chuffed ♥️ Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms. chuffed.org/project/1619... #SevereME #MutualAid #Disability #MECFS #ChronicIllness

chuffed.org

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

21617

Reposted by Ness

💜 phonakins 🍉🌲 @phonakins.com · 19/12/2025

I have helped Anna @halcionandon.bsky.social to set up a chuffed to raise funds the help her have a chance! Anna lives with severe ME and is abused and neglected by her family - Her doctor fears that staying in this environment will kill her Please share widely! chuffed.org/project/1619...

chuffed.org

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

21318

Reposted by Ness

U.S. Consumer Product Safety Commission @cpsc.gov · 19/12/2025

You might be thinking, "CPSC, does a dry Christmas tree really burn that much faster than a well-watered tree?" Friend, let's find out together by watching this PSA.

11637511412

Reposted by Ness

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 12/12/2025

Huge thanks to @mikehoney.bsky.social for all the valuable COVID data he tracks. His work has become incredibly important for scientists and health professionals, and with so little data available now, it really matters for people who want to stay safe and informed. www.sbs.com.au/news/article...

sbs.com.au

Scientists rely on this COVID-19 data. It's made by a volunteer in Melbourne

Meet the Melbourne IT specialist who tracks "incredibly valuable" COVID-19 data in his spare time.

12366121