iiinova — where your digital self keeps evolving

Reposted by Elle C

emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 15/05/2025

This is how the #GreatestMEdicalScandal continues. Patients spend precious energy raising awareness for #MEAwarenessDay on May 12th & @bmj.com publishes harmful, disproven, psychologizing propaganda on May 14th to put us back in our places. It’s disgusting, cruel, extremely pre-meditated behavior

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Something Chronic @somethingchronic.bsky.social · 12/05/2025

ME is one of the cruellest diseases you can possibly have. Most people think it’s as insignificant as having a cold. #May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers

Pink background with bright blue text saying: I haven’t been able to get downstairs in my own house for 2 years #SevereME

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Long Covid Advocacy @longcovidadvoc.com · 12/05/2025

Today is #MEAwarenessDay 🐋 Let's take a deep dive into what ME is and 😇 Why allyship is so important 1/15

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Long Covid Advocacy @longcovidadvoc.com · 12/05/2025

🏥 It's 171 years since Florence Nightingale developed ME... And hospitals are still not safe places for #pwME We need national ME safe protocols established and 😷 Infection Control #MEAwarenessDay

A historical black-and-white image featuring a quote from Florence Nightingale on hospital care and compassion.

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Carole Bruce @cabruce.bsky.social · 12/05/2025

Thousands of people are too ill to post on #MEAwarenessDay Most of us will struggle to wash or eat if we use our energy to post. Why do it? Because we are desperate after decades of neglect, false promises and lies. It has to change. That is why we are here to beg for action 💙

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Elle C @tis-me-elle.bsky.social · 12/05/2025

Please have a watch to understand what we face when we advocate for research and informed, compassionate medical care #MEAwarenessDay #GreatestMEdicalScandal

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Riley Black 🏳️‍⚧️ 🦖 @restingdinoface.bsky.social · 02/05/2025

I don’t think cis people understand the amount of pressure and coercion trans people face to not come out, to not transition. How swiftly and strictly gender is policed. How something as simple as listening to a song, a line of eyeliner, playing with the wrong toy meets stern correction.

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · 15/02/2025

You'll look great receiving your EMMY🌹for covering #GreatestMEdicalScandal @thedailyshow.com @weeklyshowpodcast.bsky.social (especially if you beat @lastweektonight1.bsky.social to win #JohnVsJonVsME too)! Make our #ValentinesDay dreams come true @TheDailyShow! 💕 (MEme c/o @PeteCaruso.bsky.social)

A meme of a man in a tuxedo that says “You Complete M.E.” at the top in black text. The man has the face of Jon Stewart and is holding three long stem roses. Above each rose is “Awareness”, “Funding”, “Treatment” in black text. The background is a light pink color with three bright pink hearts in the upper left. On the lower right of the cell is “Valentine’s Edition” in black text. At the bottom is “#GreatestMEdicalScandal” and “#JohnVsJonVsME” in black text.

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 15/02/2025

It’s dystopian as f*** in here, but we try to stay cheerful! 🫶🏻 JohnVsJon.com #GreatestMEdicalScandal #JohnVsJonVsME @johnvsjonvsme.bsky.social

Severance meme of Mark S talking to Helly R in the supply room. He’s saying “I find it helps to focus on the effects of sleep since we don’t get to experience it.” White text at the top says “When your love language is cheerfully sharing coping tips for your f***ed up situation with your fellow meeps.” Smaller text below says “#JohnVsJonVsME #GreatestMEdicalScandal”

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Tamara | ME/CFS Mama @mecfsmama.bsky.social · 12/02/2025

Here’s the TOOLKIT for the @johnvsjonvsme.bsky.social LoveFest. Have a browse out the MEme’s if you need a pick me up or some inspiration!

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · 14/02/2025

It’s a Love Fest! It’s #JohnVsJonVsME #ValentinesDay Edition. Time to start sharing your virtual valentines–telling @lastweektonight1.bsky.social @thedailyshow.com why you would LOVE for them to cover #GreatestMEdicalScandal 🧵 (MEme c/o @diatoma.bsky.social)

ALT Text: a meme of personified cartoon flowers with the faces of Jon Stewart and John Oliver on them holding balloons that say “All you need is love” “& funding for biomedical research & care” on them. Above them “Invite your friends & Valentines to join!” Below “February 14th starting at: 7pm Sydney/9 am Berlin/3 am EST/12 am PST (join when you’re awake!)” and then “#Greatest MEdical Scandal #John Vs Jon Vs ME Valentine’s Edition Love Fest”

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Elle C @tis-me-elle.bsky.social · 20/01/2025

Please sign to try and stop what is medical malpractice and outright torture in the year 2025!!! These situations are all too common but they cannot be ignored. Help #SaveLine #VerySevereME

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C.H. Romatowski @chromatowski.bsky.social · 05/12/2024

Prob not how I’d report a study that found 7.2% of kids who got Covid still hadn’t recovered two years later. I mean come on man. It’s kids. If baby food left 7.2% of kids sick two years later, we’d be climbing the walls. www.nature.com/articles/s43...

Post from The Guardian @theguardian.com • 2h

Most teenagers recover from long Covid after two years, study shows

The Guardian

Most teenagers recover from long Covid after two years, study shows World's largest 'longitudinal cohort study' reports that older teens and society's m...

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Danielle Beckman @daniellebeckman.bsky.social · 27/11/2024

"Look guys, the new head of the NIH is not that bad." The New York Times, Nov 27, 2024.

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Todd Davenport @sunsopeningband.bsky.social · 26/11/2024

1.7% of a population with a large closed health system in the U.S. had ME/CFS-like illness as defined by IOM criteria. 14% of all cases had COVID-19 as a precipitating factor. ME/CFS is still the most common thing nobody's ever heard of. journals.plos.org/plosone/arti...

journals.plos.org

Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey

Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). However, the impact...

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Christina Virgil @christinavirgil.bsky.social · 23/11/2024

I created this starter pack if anyone is interested: •SARS-CoV-2 & other infectious diseases focused —It automatically adds me (which I find a bit cringe 🥴) #SARS2 #covid #saltingthevibes #science #infectiousdisease #h5n1 #copium

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