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Hazel Godfrey

@drhazelgodfrey.bsky.social
222 followers 549 following 66 posts

She/her | Science, education and lived experience of pain, and many other aspects of the mind | Writing weaving academic and personal experience of chronic pain at pinchesofpain.com

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Reposted by Hazel Godfrey
Juuso Henrik Nieminen @juusonieminen.bsky.social · 15/09/2026
Call for papers for a special issue in @herdjournal.bsky.social: Beyond grades! 📣 Guest edited by me and David Boud at @cradledeakin.bsky.social, this SI reaches beyond grades as the dominant way of representing what students can do in #HigherEducation think.taylorandfrancis.com/special_issu...
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Dr Bex @drbex.bsky.social · 03/09/2026
My piece for @newsroom.co.nz has gone live!! Our welfare policy settings are driving disabled ppl & families into poverty + material hardship at a rate 3x higher than for non-disabled households. This is entirely unacceptable in a wealthy country like NZ newsroom.co.nz/2026/09/03/a...
newsroom.co.nz
A manifesto for Kiwi kids living in hardship
Too many children live with material hardship, and those in households with disabled people are severely hard-hit, the Child Poverty Coalition says
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Whatkonnerth @whatkonnerth.bsky.social · 18/08/2026
It is absolutely bonkers. We are creating a generation with chronic health conditions. The false economy of soldiering on is going to cost us dearly.💔
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Andrew Dickson @andrewdickson13.bsky.social · 17/08/2026
Please read the full analysis and the OIA background here, and please will some journalist take even a passing interest in this?? /ends andrewdicksonnz.substack.com/p/why-is-hea...
andrewdicksonnz.substack.com
Why Is Health New Zealand Telling Parents to Send Sick Kids to School?
Official documents reveal how political obsession with attendance targets replaced basic public health science... and why our kids are paying the price.
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Andrew Dickson @andrewdickson13.bsky.social · 17/08/2026
All this is built on a fundamental causal fallacy: school attendance does not inherently cause achievement. Forcing sick kids into class doesn’t fix education outcomes bro... it just accelerates viral spread to teachers, classmates, and vulnerable family members. /6
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Kelly @broadwaybabyto.bsky.social · 12/08/2026
Wearing a mask like an N95 is a fantastic investment in your long term health. Covid is still here. It’s still killing and disabling. It’s still re-activating other viruses that can lead to disability and chronic illness. Masking is community care. It’s resistance.
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jessamyn @librarian.bsky.social · 31/07/2026
I work at a public library. People who want to use AI seem to have no trouble doing so. People who don't want to use AI have a harder time. I crowdsourced and then finalized this document "How to disable or avoid intrusive AI" and then gave it a short URL: notoai.org Please pass along if it's useful
An aircraft passenger oxygen mask: a drop down passenger mask with air bag and yellow plastic mouth and nose cover, oxygen tube has been cut; Demonstration model used by flight attendant crew for passenger instruction. Has text on the side indicating that it's non-functional.
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The Conversation AUNZ @aunz.theconversation.com · 01/07/2026
People living with disabilities or through poverty and racism develop deep practical knowledge of how institutions function. They should be seen as experts.
theconversation.com
Lived experience is often dismissed – but we should recognise it as a form of expertise
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Hazel Godfrey @drhazelgodfrey.bsky.social · 01/07/2026
A new analysis article for the @aunz.theconversation.com from Snita Ahir-Knight and I: theconversation.com/lived-experi... (1/2)
theconversation.com
Lived experience is often dismissed – but we should recognise it as a form of expertise
People living with disabilities or through poverty and racism develop deep practical knowledge of how institutions function. They should be seen as experts.
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Peter Dearden @peterkdearden.bsky.social · 27/06/2026
on the destruction of New Zealand Science open.substack.com/pub/peterkde...
open.substack.com
on the destruction of New Zealand Science
and earthquakes
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🐶🐙Dr. Caffiend☕️😷 @captcaffiend.bsky.social · 24/06/2026
This looks like an interesting conference happening next week - free, online & sessions are being recorded. Might be of interest @meshedlight.bsky.social @drhazelgodfrey.bsky.social @puzzledbyadream.bsky.social accessibilityconference.org#hero
accessibilityconference.org
ACCESSIBILITY 2026 – The first international conference on Accessibility
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Olivia Guest · Ολίβια Γκεστ @olivia.science · 05/06/2026
"we must not allow AI, neither as bully nor so-called tool, to redefine our roles as educators or researchers. It is not our job to chase hype. What this means is by all means educators should feel empowered and inspired by the urgency to uplift students, but not to use AI to do so."
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Olivia Guest · Ολίβια Γκεστ @olivia.science · 21/04/2026
> LLMs are labor intensive, are economically infeasible, and pollute the environment, and these properties may outweigh any proposed benefits. For example, poor quality air directly harms human cognition, and thus has compounding effects on educators' and pupils' ability to teach and learn.
Huettig and Christiansen in an earlier issue argue that large language models (LLMs) are beneficial to address declining cognitive skills, such as literacy, through combating imbalances in educational equity. However, we warn that this technosolutionism may be the wrong frame. LLMs are labor intensive, are economically infeasible, and pollute the environment, and these properties may outweigh any proposed benefits. For example, poor quality air directly harms human cognition, and thus has compounding effects on educators' and pupils' ability to teach and learn. We urge extreme caution in facilitating the use of LLMs, which like much of modern academia run on private technology sector infrastructure, in classrooms lest we further normalize: pupils losing their right to privacy and security, reducing human contact between learner and educator, deskilling teachers, and polluting the environment. Cognitive scientists instead can learn from past mistakes with the petrochemical and tobacco industries and consider the harms to cognition from LLMs.
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Hazel Godfrey @drhazelgodfrey.bsky.social · 21/05/2026
The final set of papers in the Special Issue for @herdjournal.bsky.social is not a set but one paper on lived experience as knowledge. Find your way to the first, second, and third sets of papers via the quoted post. (1/8)
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Dr Bex @drbex.bsky.social · 16/05/2026
The Transport Minister has confirmed that the Total Mobility subsidy is being cut - disabled ppl use the subsidy to do ordinary things like meet-ups with friends, shopping for groceries, and attending health appointments. #savetotalmobility open.substack.com/pub/drbex/p/...
open.substack.com
Total Mobility: Disabled people lose out in the funding choices being made
The Transport Minister, Chris Bishop, has confirmed that the Total Mobility subsidy is being cut from 75% down to 65%.
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Olivia Guest · Ολίβια Γκεστ @olivia.science · 14/05/2026
Published with some minor changes! Please share widely. 😊 Guest, O., Suarez, M., ... & van Rooij, I. (2026). Against the Uncritical Adoption of 'AI' Technologies in Academia. Digital Culture & Education, 16(2), 85–118. doi.org/10.5281/zeno... Journal: www.digitalcultureandeducation.com/volume-162
digitalcultureandeducation.com
Volume 16.2 — Digital Culture & Education (ISSN: 1836-8301)
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Miriam Posner @miriamposner.com · 13/05/2026
“A citation is a formal assertion of a relationship between works, and when that relationship is fabricated, the integrity of the entire document and the scholarly record is compromised.”
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Sassy Little Hobbit @sassypolitico.bsky.social · 13/05/2026
Migration is our collective human history. People have always moved. Whether it’s from rural to urban, country to neighboring country, or straight up continents, this is what we do. Social stability is not at risk because people moved it’s at risk because you are a hater.
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Hazel Godfrey @drhazelgodfrey.bsky.social · 14/05/2026
The third set of papers in the Special Issue for @herdjournal.bsky.social explores views on, or approaches to, lived experience teaching in higher education. Find your way to the first and second sets of papers via the quoted post. Happy reading and thinking about your teaching! (1/4)
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Dr Elisa Perego @elisaperego78.bsky.social · 14/05/2026
Long Covid has become one of the most common chronic diseases, as common or more common of conditions "such as ischaemic heart disease, gout, chronic obstructive pulmonary disease, and rheumatoid arthritis." Yet it remains poorly addressed and treated #LongCovid newsroom.co.nz/2026/05/14/t...
newsroom.co.nz
The Long Covid paradox: everywhere but nowhere
Comment from Victoria University: In 2022 NZ’s Long Covid response showed promise, but it’s hard to justify our business-as-usual approach now
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Mojo Mathers 🇵🇸 @mojomathers.bsky.social · 14/05/2026
“… when disabled people are missing from decision-making tables, governments make decisions they would never survive themselves. They cut disability supports because they have never relied on them. They build inaccessible housing because stairs have never excluded them. They underfund healthcare”
huhana62.substack.com
Disabled People Are Good Enough to Vote, But Apparently Not Good Enough to Govern
By Dr Huhana Hickey MNZM
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Hazel Godfrey @drhazelgodfrey.bsky.social · 10/05/2026
A second subset of papers for you to read together today 🤩 from the Special Issue on lived experience teaching for @herdjournal.bsky.social The focus of the authors is on asking how we can support integration of lived experience in higher education teaching through: (1/)
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regeneration FTW @fernly.eurosky.social · 06/05/2026
If you can help, please do. Women's health is _horrendously_ underfunded. thespinoff.co.nz/science/06-0...
thespinoff.co.nz
Siouxsie Wiles: Menstrual cups are a great invention. But how safe are they?
They're a game-changer in terms of reducing waste, but only a handful of contradictory studies have been done on their safety.
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Hazel Godfrey @drhazelgodfrey.bsky.social · 30/04/2026
The Special Issue on lived experience teaching for @herdjournal.bsky.social has been out for six-weeks now 🎉. Over the next few weeks, I’ll be posting some further thoughts on the papers in the Special Issue and what conversations they extend. (1/7)
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Veronika Meduna @veronikameduna.bsky.social · 26/03/2026
Is this the Big Tobacco moment for Big Tech? An American jury found Meta and Google knew the design or operation of Instagram and YouTube was likely to be addictive when used by a minor, and that the platforms failed to adequately warn of that danger theconversation.com/jury-finds-i...
theconversation.com
Jury finds Instagram and YouTube addictive in lawsuit poised to reshape social media – platform design meets product liability
A lawsuit against Meta and Google avoided the issue of liability for content and focused on allegations that social media platforms themselves are harmful by design.
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Hazel Godfrey @drhazelgodfrey.bsky.social · 25/03/2026
The Special Issue of @herdjournal.bsky.social on lived experience in higher education teaching is out! See: www.tandfonline.com/toc/cher20/4... Please share widely. (1/4) #EduSky #LivedExperience #HigherEd #Universities
tandfonline.com
Higher Education Research & Development
Benefits and challenges of integrating lived experience in higher education. Volume 45, Issue 2 of Higher Education Research & Development
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Too Long Covid 💚 @toolongcovid.bsky.social · 16/03/2026
The first NZ data from MOH on #longcovid numbers is out It's based on data collected in the 2024/2025 health survey Around 1 in 11 NZ adults reported having at least one Long Covid symptom for over three months www.health.govt.nz/publications...
health.govt.nz
COVID-19 and long COVID 2024/25: New Zealand Health Survey | Ministry of Health NZ
This page presents a summary of data from questions about COVID-19 and long COVID added to the New Zealand Health Survey (NZHS) in 2024/25.
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Laurie Winkless @lauriewinkless.bsky.social · 06/03/2026
My March story for @forbes.com has just gone live. It's all about pedestrian crossings and how the timings they're based on no longer match the demographics of our cities ⚛️🧪👩‍🔬 www.forbes.com/sites/laurie...
forbes.com
Fewer Than 2% Of Older Pedestrians Can Cross The Street In Time
The length of the green signal on pedestrian crossings assumes that people can walk at a speed of 1.2 m/s. Scientists find that very few older people can walk that fast.
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Jasmin Taylor @meshedlight.bsky.social · 27/02/2026
Ōtepoti: Centre for Medical Humanities at Otago Uni is funding Chronic Illness & creative writing a free Ōtepoti Dunedin community workshop programme for people with ME/CFS or Long Covid Applications open till 13th March 2026 (will put link in following reply) image: poster, same info as above
Chronic Illness & creative writing

a free Ōtepoti Dunedin community workshop programme for people with ME/CFS or Long Covid

Applications open till 13th March 2026

Funded by The Centre for Medical Humanities (University of Otago)

illustrated with cartoon graphic of person (with long, curly black hair & wearing shortsleeved purple top) holding a notebook and pen
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Chronic Illness Humor @chronicillness.bsky.social · 05/02/2026
I’m not unreliable. I’m just unwell.

You don’t see the hours I spend recovering.

You don’t feel the guilt when I cancel.

You don’t hear the noise inside my body.

But I promise you I want to show up.

More than you’ll ever know.

@cfshealth
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Olivia Guest · Ολίβια Γκεστ @olivia.science · 02/12/2025
New preprint! @marentierra.bsky.social @irisvanrooij.bsky.social & I have been working on what CAIL means to showcase & propagate the idea of thinking very differently to tech industry norms on "artificial intelligence" Towards Critical Artificial Intelligence Literacies doi.org/10.5281/zeno... 1/
Figure 1: The important dimensions of CAILs across research and education; clockwise from 12 o’clock: Con-
ceptual Clarity is the idea that terms should refer. Critical Thinking is deep engagement with the relationships
between statements about the world. Decoloniality is the process of de-centring and addressing dominant
harmful views and practices. Respecting Expertise is the epistemic compact between professionals and society.
Slow Science is a disposition towards preferring psychologically, techno-socially, and epistemically healthy
practices. The lines between dimensions represent how they are interwoven both directly and indirectly.
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Hazel Godfrey @drhazelgodfrey.bsky.social · 21/11/2025
Please read these responses!
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Kelly @broadwaybabyto.bsky.social · 16/11/2025
“She explained how much Covid could hurt her & how vulnerable it felt to be unable to wear a mask to protect herself. She was a perfect example of why other people need to wear masks even if they don’t personally think Covid will hurt them” If you want to honour Alice Wong’s memory, please mask up
disabledginger.com
Thank You Alice Wong
Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.
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Shaun Hendy @hendysh.bsky.social · 31/10/2025
As a reward for supporting @siouxsiew.bsky.social I've donated 6 signed copies of #TheCovidResponse. And if you want to know how important Siouxsie's case was for academic freedom in Aotearoa, I've written a piece for the NZSR on what I think it means: ojs.victoria.ac.nz/nzsr/article...
ojs.victoria.ac.nz
How Wiles v the University of Auckland strengthens academic freedom in New Zealand | New Zealand Science Review
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Joanna Kidman @joannakidman.bsky.social · 30/10/2025
At a time when academics are under sustained right-wing attack, Dr Siouxsie Wiles stood up to the neoliberal regime of university management and won, but it came at a cost. If you can, please consider supporting Siouxsie, one of the most courageous scholars I know. www.pledgeme.co.nz/projects/852...
pledgeme.co.nz
Support Dr Siouxsie After She Supported Us! | PledgeMe
Support Dr Siouxsie to recover some of the money she spent fighting her legal case to protect employees experiencing online abuse
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Hazel Godfrey @drhazelgodfrey.bsky.social · 19/10/2025
New, old, percolating writing about pain, suffering and stigma pinchesofpain.com/2025/10/17/y...
pinchesofpain.com
“You hurt too much”: pain, suffering, and stigma
Ngā mihi nui, thank you very much, to family, friends, and colleagues who have read and responded to this piece over the last three years. Ngā mihi nui to the students of SCIS 314 whose feedback an…
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Science Media Centre NZ @smcnz.bsky.social · 14/10/2025
Big shakeup for NZ’s research funding – Expert Reaction
sciencemediacentre.co.nz
Big shakeup for NZ's research funding - Expert Reaction - Science Media Centre
The Government will consolidate decision-making for New Zealand's science research funding as part of its new science system strategy. Research Funding New Zealand will be a new independent board that...
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Andrew Jull NZRN (he/him) @andrewjull.bsky.social · 26/08/2025
Another way government austerity is failing healthcare and the NZ people. Underfunded Te Whatu Ora / Health NZ is cutting access to the Cochrane Library, a gold standard source of information to support health decision-making. NZers use it 246 times per day. #nzpol tinyurl.com/3jya8hkd
tinyurl.com
The Cochrane library is a global source of independent health evidence for everyone – why is NZ restricting access?
New Zealanders download Cochrane Library health reviews daily. Restricting access is a step back to when medical knowledge was held tightly by professionals.
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E-Tangata @etangata.bsky.social · 23/08/2025
“Children have a human right to a quality education that equips them for effective participation in a strong democracy — not one that simply shapes them into cogs for the economic machine.” — Catherine Murupaenga-Ikenn.
e-tangata.co.nz
Preparing our kids for the real world? | E-Tangata
“Children have a human right to a quality education that equips them for effective participation in a strong democracy — not one that simply shapes them into cogs for the economic machine.”  — Catheri...
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Chantalle Smith @chaneyz85.bsky.social · 18/08/2025
This doesn’t surprise me. I know so many around me going down with illnesses! Wear a mask people. I reckon this is why I haven’t gotten sick
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E-Tangata @etangata.bsky.social · 09/08/2025
“We will no longer be tasked with local service design and delivery. Instead, our job will be to ‘engage’ and ’advise’. These changes take us from active partners to passive recipients.” — Louisa Wall on changes to Pae Ora law.
e-tangata.co.nz
Māori voices silenced in health, again | E-Tangata
“We will no longer be tasked with local service design and delivery. Instead, our job will be to ‘engage’ and ’advise’. These changes take us from active partners to passive recipients.”  — Louisa Wal...
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Hazel Godfrey @drhazelgodfrey.bsky.social · 22/07/2025
Kia ora Wellington based friends 😊 I’m posting to let you know about a research project I have underway with Octavia Calder Dawe, Eva Neely (both from the School of Health at Te Herenga Waka—Victoria University of Wellington) and Carmen Timu-Parata (NZ Breastfeeding Alliance). (1/3)
A poster showing a person breast/chest feeding in one image and craft items (pens, scissors, glue sticks in another). The text reads: "Breast/Chest-Feeding Pain Research. What is feeding pain like? What support do feeders need? Join us for a workshop about pain and what helps. Format: Creative Workshop Dates: 7, 9, or 11 August 2025. Koha and refreshments provided. This study was approved by the Te Herenga Waka—Victoria University Human Ethics Committee (#HE040069).
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IIML @modernletters.bsky.social · 29/06/2025
The Kāpiti Coast has its own writers' festival on 9-10 August - check it out!
bookmarkapiti.nz
Bookmark Kāpiti
Bookmark Kāpiti celebrates the people, stories and places of Kāpiti. 9 and 10 August 2025
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Violet Blue® @violetblue.bsky.social · 28/05/2025
Wow -- I didn't realize we've been added to Spotify, too! If that's how you roll, here's the link: open.spotify.com/show/0s6hEHu... * Audio distribution for indies like us takes a while and it's a crapshoot with major retailers. Corporate publishers get the real access, priority lane, tools, etc.
open.spotify.com
The Covid Safety Handbook: Staying Safe In An Unsafe World
Violet Blue · Audiobook
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Carl T. Bergstrom @carlbergstrom.com · 24/05/2025
tl;dr — this EO co-opts the language of open science to implement a system of political control wherein presidential appointees are given broad latitude to designate any number of reasonable scientific activities and inferences as scientific misconduct, and to penalize those involved accordingly.
whitehouse.gov
Restoring Gold Standard Science
By the authority vested in me as President by the Constitution and the laws of the United States of America, including section 7301 of title 5, United
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Brian Hughes @bmhughes.bsky.social · 28/04/2025
"Both #LongCovid and #MECFS are under-recognised, not because they are rare, but because clinicians lack the tools and training to adequately detect the systemic dysfunction they reflect" @drannanz.bsky.social on how New Zealand’s Long Covid blind spot has now reached crisis levels #pwME 🇳🇿
newsroom.co.nz
NZ's Long Covid blind spot nothing short of a crisis
Analysis: Post-infection syndromes like Long Covid are nothing new – but pandemic-scale waves of a novel virus exposed just how ill-prepared we are to handle them.
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Kelly @broadwaybabyto.bsky.social · 25/04/2025
"I don't know anyone with Long Covid" "It's a liberal disease" "It's the vaccine" We've all heard the excuses. The truth is more than 400 million people are suffering from Long Covid, and the stigma and denial associated with the condition makes it hard for people to realize they have it:
disabledginger.com
I Don't Know Anyone With Long Covid
Yes. You do. It might even be you. Let's take a look at why people don't realize, or can't admit, that they're dealing with Long Covid.
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Jennifer @jennifilm.nz · 15/04/2025
Good reporting from the spinoff, making an important point: specific language like "people with a cervix" is good for everyone. Not every woman - or cis woman - has the same body parts or needs the same type of care. Being specific about the bodies we talk about is good.
thespinoff.co.nz
A deeply frustrating line-by-line reading of Casey Costello’s letter to Health NZ
Does the associate minister of health know that sex and gender are two different things? Her letter suggests no.
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Te Pūnaha Matatini @tepunahamatatini.bsky.social · 07/04/2025
Governments like to boast that “data-driven” policies are the best way to make fair, efficient decisions. They collect statistics, set targets and adjust strategies to suit 🧪🧵
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Hank Green @hankgreen.bsky.social · 07/04/2025
A tricky thing about modern society is that no one has any idea when they don’t die. Like, the number of lives saved by controlling air pollution in America is probably over 200,000 per year, but the number of people who think their life was saved by controlling air pollution is zero.
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