iiinova — where your digital self keeps evolving

Reposted by Anna Brooks, PhD

Binita Kane @binitakane.bsky.social · 21/05/2025

Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

bmj.com

Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.

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Reposted by Anna Brooks, PhD

David Davies-Payne @d2p.bsky.social · 12/05/2025

Today is #InternationalMEawarenessDay recognising the #MillionsMissing with #MECFS. One story from NZ documenting how families have to create their own health system. www.youtube.com/watch?v=DsOA...

youtube.com

ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies

YouTube video by Re: News

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Reposted by Anna Brooks, PhD

Brian Hughes @bmhughes.bsky.social · 28/04/2025

"Both #LongCovid and #MECFS are under-recognised, not because they are rare, but because clinicians lack the tools and training to adequately detect the systemic dysfunction they reflect" @drannanz.bsky.social on how New Zealand’s Long Covid blind spot has now reached crisis levels #pwME 🇳🇿

newsroom.co.nz

NZ's Long Covid blind spot nothing short of a crisis

Analysis: Post-infection syndromes like Long Covid are nothing new – but pandemic-scale waves of a novel virus exposed just how ill-prepared we are to handle them.

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Anna Brooks, PhD @drannanz.bsky.social · 22/04/2025

Honoured to represent Aotearoa NZ 🇳🇿 on the 🌏 stage as part of the lead authorship team behind this global #LongCovid consensus 28 countries, 179 experts representing clinicians, researchers & lived experience. An important step toward better care, research & recognition doi.org/10.1186/s129...

doi.org

Long COVID clinical evaluation, research and impact on society: a global expert consensus - Annals of Clinical Microbiology and Antimicrobials

Background Long COVID is a complex, heterogeneous syndrome affecting over four hundred million people globally. There are few recommendations, and no formal training exists for medical professionals t...

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Reposted by Anna Brooks, PhD

Sammie McFarland @sammiemc.bsky.social · 21/04/2025

📣 It’s finally out out - initial guidance to address the spectrum of LC as a disease & reinforces the need for translational research & large-scale treatment trials for treatment protocols. 🌍 🫶🏼 🙏 to the 179 exerts who collaborated from 28 countries ann-clinmicrob.biomedcentral.com/articles/10....

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Reposted by Anna Brooks, PhD

David Davies-Payne @d2p.bsky.social · 30/11/2024

My co-founders of dysimmune.nz on Radio NZ. "Rohan Botica and @drannanz.bsky.social are two of the founders of DysImmune Research Aotearoa focusing on immune dysfunction research to help understand, diagnose, treat post-acute infection syndromes." #LongCovid #MECFS www.rnz.co.nz/national/pro...

rnz.co.nz

Is NZ the worst country to have Long Covid?

Rohan Botica and Dr Anna Brooks have been researching how to diagnose, treat post-acute infection syndromes like Long Covid in NZ.

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Reposted by Anna Brooks, PhD

David Davies-Payne @d2p.bsky.social · 29/10/2024

Co-founder of www.dysimmune.nz writing an opinion piece in The Spinoff — "almost five years into the pandemic, not only are there still no treatments for #LongCovid, there aren’t even any diagnostic tools – and we don’t seem overly interested in finding them." thespinoff.co.nz/science/30-1...

thespinoff.co.nz

The impact of long Covid will be huge. So why is New Zealand doing nothing about it?

'You think it won’t be you, then after your next inevitable Covid-19 reinfection, it is, and you’re left to wonder why nobody stepped up.'

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Reposted by Anna Brooks, PhD

Marc Veldhoen @marcveld.bsky.social · 11/01/2024

Long COVID manifests with T cell dysregulation, inflammation and an uncoordinated adaptive immune response to SARS-CoV-2 Cause and consequences. LC individuals exhibited systemic inflammation and immune dysregulation. @NatImmunol www.nature.com/artic... 1/8

nature.com

Long COVID manifests with T cell dysregulation, inflammation and an uncoordinated adaptive immune response to SARS-CoV-2

Nature Immunology - Roan et al. use Olink and single‐cell RNA sequencing (scRNA-seq) to show a dysregulated crosstalk between the cellular and humoral immune responses in individuals with...

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Reposted by Anna Brooks, PhD

David Davies-Payne @d2p.bsky.social · 05/01/2024

Fantastic interview with @edyong209.bsky.social — more timely with today's publication of one of the first major #LongCovid papers for 2024. The psychosomatic model for #MECFS has caused immense harm to patients, families, medicine itself and society generally. www.nature.com/articles/s41...

nature.com

Muscle abnormalities worsen after post-exertional malaise in long COVID - Nature Communications

In this longitudinal, case-controlled, cohort design study, authors show that post-exertional malaise is associated with severe exercise-induced myopathy, local and systemic metabolic disturbances and...

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Reposted by Anna Brooks, PhD

Anne Wyllie @annewyllie.bsky.social · 18/11/2023

Applications for this @salivadirect.bsky.social role are still possible by sending a CV, cover letter, and salary requirements to brittany@salivadirectinc.org. This is an exciting role to help guide future scientific activities and collaboration in the saliva space! docs.google.com/document/d/1...

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Reposted by Anna Brooks, PhD

Anne Wyllie @annewyllie.bsky.social · 12/09/2023

Please share! Non-profit SalivaDirect, Inc. is seeking a Scientific Director to lead all things research, development, and collaboration. This remote role will work closely with and be supported by some truly incredible colleagues. www.linkedin.com/jobs/view/37...

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Reposted by Anna Brooks, PhD

Anna Brooks, PhD @drannanz.bsky.social · 28/10/2023

#LongCovid & #MECFS biomed research 🇳🇿 🚨Reminder for those in Ao/NZ. We are still recruiting for our biomarker discovery study 🚨We have exciting intl collaborations to explore immunometobolic dysfunction, but just lack 💰 support to operate at pace 🚨To sign up or find more info: www.pvra.nz/donate

pvra.nz

Studies — Post-Viral Research Aotearoa

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Anna Brooks, PhD @drannanz.bsky.social · 28/10/2023

pvra.nz

Studies — Post-Viral Research Aotearoa

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Anna Brooks, PhD @drannanz.bsky.social · 18/10/2023

Long Covid research: "We call for a moonshot for long COVID, a commitment — from the US govt - to invest at least US$1 billion annually over the next 10 years to address the problem..." NZ govts investment in #LongCovid biomed research to date? Approx $0 www.nature.com/articles/d41...

nature.com

Long COVID research risks losing momentum – we need a moonshot

Investing US$1 billion every year for the next ten years into long COVID research could improve the lives of millions and save trillions in economic costs. Investing US$1 billion every year for the ne...

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Anna Brooks, PhD @drannanz.bsky.social · 16/10/2023

Just getting started over here! Hi bluesky peeps! 👋🏼

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Reposted by Anna Brooks, PhD

Matt Novak @paleofuture.bsky.social · 16/10/2023

A new study suggests people with long covid are experiencing a serotonin reduction triggered by remnants of the virus lingering in the gut, which could explain memory problems and some neurological and cognitive issues. 📰

nytimes.com

Scientists Offer a New Explanation for Long Covid

In some patients, remnants of the coronavirus in the gut may stifle production of serotonin, an important neurotransmitter, researchers suggest.

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