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Sedimentary Stories

@sedimentarystories.bsky.social
381 followers 627 following 340 posts

Grief support & writing workshops to help you heal ancestral relationships, connect with nature, and to put your best story forward. #AuDHD #spoonie 🏳️‍🌈🏳️‍⚧️✍🏻🌱🪨

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The Autistic Coach | Mati (he/they) @theautisticcoach.bsky.social · 01/06/2026
Autistic & Trans? Our free online support and discussion group meets every month and has been for the past 3 years. Come join us www.theautisticcoach.com/autism-discu...
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Eb @ebthen.bsky.social · 02/06/2026
They know damn well that this isn't going to benefit people or reduce "fraud". The whole point is just to not pay for the people who can't meet the administrative burden. It's not even a secret. It's their whole tactic.
Along with the new rule, the administration published an article Monday arguing that the Medicaid work requirement would lift at least 1.6 million Americans out of poverty, by encouraging more work and higher incomes. To support its analysis, staff members at the Department of Health and Human Services cited studies of work requirements in other social welfare programs. Not everyone who has studied those programs shares the authors’ view.

More specifically, the research on Medicaid has so far not supported the conclusion. Only one state that covered childless adults without disabilities has tried work requirements for Medicaid. In a 2018 pilot program in Arkansas, 18,000 people quickly lost coverage after failing to submit documentation proving their work status. A study found that the policy did not increase the number of eligible people who worked.
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Unknown Etiology @viralpersistence.bsky.social · 03/06/2026
ok last post on this: I feel like a lot of the attempt to force mind body approaches into pwLC and pwME is driven by people’s anxiety about seeing disabled women engage with the mechanical nature of human existence. and perhaps disabled people more broadly behaving unspiritually.
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Sedimentary Stories @sedimentarystories.bsky.social · 03/06/2026
I was shocked when my recent blood tests showed some problems (anemia & possible malnutrition)—it made me feel vindicated. Completely passed my POTS test that I hoped/expected to fail though during the same visit.
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Martha Crawford @whatashrinkthinks.com · 01/06/2026
Free & by donation groups and workshops A few essays liberated from behind a subscription paywall, Entirely new groups with new collaborators And the beginnings of maybe my biggest folly ever - A legacy folly
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Null convention @nullconvention.bsky.social · 03/06/2026
Doing the right thing and following through will lose you friends and that's something we all have to live with even though you'll never like it and it's never comfortable. That's a counterculture value. You will lose the people who won't accept a need to commit so you need to find your friends.
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Sedimentary Stories @sedimentarystories.bsky.social · 03/06/2026
Who’s got new glasses & no signs of optic nerve pressure? This kid!
A white queer person smiling and wearing cute new purple metal framed glasses. In the background are some books, a needle felted gnome & some other knickknacks.
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Angela Marie Morton @angemmorton.bsky.social · 03/06/2026
To everyone still masking in 2026: You are smart & beautiful. Do not ever doubt that you are doing what is right - morally, as well as practically. Protecting yourself, your loved ones & your community does not need to be justified. We ALL deserve accessibility, health & safety. 😷✊️✌️❤️
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Tom Kindlon @tomkindlon.bsky.social · 03/06/2026
From @mayalongcovid.bsky.social #MEcfs #PwME #CFS #MyalgicEncephalomyelitis
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Kaj [they/them] @speedofhuman.bsky.social · 03/06/2026
This is a great piece that I encourage everyone to read, but especially cis allies. 🏳️‍⚧️
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ace tilton ratcliff @mortuaryreport.bsky.social · 27/05/2026
btw you can call and speak to an ADA specialist if you have q’s like this. they’re thru ADA.gov and they have a pretty tiny staff so sometimes you wait awhile but that’s fun 1-800-514-0301
ada.gov
The Americans with Disabilities Act
Disability rights are civil rights. From voting to parking, the ADA is a law that protects people with disabilities in many areas of public life.
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Eric Topol @erictopol.bsky.social · 28/05/2026
Important #LongCovid finding of auto-antibodies in patients directed to neural tissue, and then, by transferring the antibodies, recapitulated the disease symptoms in mice @cellcellpress.bsky.social @virusesimmunity.bsky.social cell.com/cell/abstrac...
cell.com
A causal link between autoantibodies and neurological symptoms in long COVID
Passive transfer of IgG from long COVID patients induces pain behavior accompanied by intraepidermal nerve fiber damage in mice.
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Michiel @murtoz.bsky.social · 12/05/2026
even in their funding announcement they minimise #ME/CFS "Thousands of patients" At least 400k have ME in the UK, potentially 1.3m when including pwLC meeting dx criteria. pwME abroad will benefit too. So it's ~204m But £4.75m for "thousands" sounds a lot more... And is still less than PACE got!
gov.uk
Thousands of ME/CFS patients to benefit from first genomics study
People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study.
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Bright D Limm 임대중 @bdlimm.myatproto.social · 12/05/2026
This is the message I just sent to the NYC Mayor's Office. Fascism's strength depends on institutional pillars of support. Currently, our own state or city governments are functioning as pillars on this matter through their silence, passivity, and complicity. We must tell them that is unacceptable.
Mailing address: 

Mayor Zohran Mamdani
City Hall
New York, NY 10007

* Indicates required fields

Please enter your message

* Message topic: "Public Safety"

* Message:

"Dear Mayor Mamdani,
I write to urge you to use the powers of both existing law, as well as the political power of your visibility, to pressure NYU Langone to (1) refuse to comply with the recently issued subpoena to provide medical records of trans children; (2) to impose fines on NYU Langone for ending its gender-affirming care program in violation of state & local human rights laws; and (3) budget for NYC Health + Hospitals to provide such care. We must not cede ground to the fascists."
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Chronic Illness Humor @chronicillness.bsky.social · 12/05/2026
Healthy friends are like: "You want to go deep-sea fishing this Wednesday?" ME: WTF did you just say to me?
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Brandon Diehl @iambrandondiehl.bsky.social · 12/05/2026
Encouraging my own ADHD by investing in a third computer monitor.
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Donia ♾️ ♿️ @ethyricalartist.bsky.social · 12/05/2026
What a great format, Tom! If there was a template it would be a great way for many to share our own "missing posters" 💙 (If anyone wants to create one - I'd do it, but have #SevereME & have been missing from my life since 1997 💔) linktr.ee/EthyricalArt... #MillionsMissing #WorldMEday #disabled #ME
linktr.ee
EthyricalArtist | Instagram | Linktree
Severely disabled, chronically ill artist with disabled black cat: currently homeless. Please help by donating or buying my art, yarn, or patterns! 🐈‍⬛ 🙏
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Chantal James @chantalalive.blacksky.app · 11/05/2026
Food & sleep dude. They do wonders for maintaining your madness. When the basics in our lives are off as mad people it throws us haywire. Just getting food & sleep right is a big help in mental stability.
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Robert Evans (the Only Robert Evans) @iwriteok.bsky.social · 11/05/2026
i am fine spending my tax dollars on schools and roads and medicine and the like. i would prefer not to spend my tax dollars on a new stadium while my teacher friends go on furlough. Oregon is in financial crisis. $200 million for a nicer stadium is idiotic.
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Chise @sailorrooscout.bsky.social · 06/05/2026
Guys. Heads up. Let’s talk about Hantavirus. There have been SEVERAL bad takes and BLATANT misinformation circulating regarding this outbreak so I figured it was a good idea to make a thread about it. Stay calm. Stay vigilant. Know your facts. Here’s ALL you need to know. 🧪🧵⬇️
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Luke Ontario @coolhand.bsky.social · 07/05/2026
I frequently links to maps and visuals that are over the Bluesky image resolution cap. I’ve never maintained a centralized location, so here is that. If anyone is interested, there are a couple of hundred here and growing. The viewer itself is for motor accessibility; the raw files are there too.
dr.eamer.dev
Viewer: Curated Visual Reference Collection
Curated high-resolution infographics, maps, charts, and visualizations with thorough alt text.
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Ebony Elizabeth Thomas @ebonyteach.blacksky.app · 07/05/2026
Shout out to the #LongCovid & #CovidConscious communities who warned us. They said: -keep masking in public spaces -invest in high quality indoor air filtration -don't declare the pandemic is over prematurely -demand single payer health care The majority of us didn't listen. It's a shame.
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jeeyon shim 심지연 @jeeyon.bsky.social · 07/05/2026
it's so cool and sexy how a medication i've been taking for over a decade that is key to helping me do things like "remember to eat" and "shower" is now something that necessitates drug testing bc a boiled raisin in washington d.c. thinks it's the same as meth
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Me and a small nugget of love. 🇸🇪♥️🇺🇦 @mnotme.bsky.social · 07/05/2026
The extremely rare catcopus.
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Candice Bernd @candicequestions.com · 05/05/2026
In "Illness as Metaphor," Susan Sontag unpacked the ways in which common metaphors linked illness to people's psychological traits & reinforced victim-blaming narratives. (Sontag was being treated for cancer as she wrote the book.) The pseudoscience of "The Body Keeps the Score" works the same way 🧵
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🪼Ghost Jellyfishlines 🔜 PaxU🪼 @jellyfishlines.itch.io · 19/04/2026
Email me proof of donation above $10 and get one of my games of your choice.
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babs ✨ @itsbabs.bsky.social · 06/05/2026
help @maskblocla.bsky.social keep LA's air a lil cleaner! YOU can sustain this mutual aid organization by coming to this event AND / OR by donating something to be auctioned or raffled (or donating to our venmo)! www.instagram.com/p/DX-hwLWHWSR/
A pink icon with stars and an orange cat wearing an n95 that reads
"MASK BLOC LA IS HAVING A FUNDRAISER!
SILENT AUCTION • RAFFLE • VENDORS FREE TO ATTEND • ALL AGES • MASKS REQUIRED
MAY 31 4 - 7 PM
FROGTOWN
EXACT ADDRESS COMING 1 WEEK PRIOR TO EVENT"A pink and yellow icon with stars that reads:
"MASK BLOC LA FUNDRAISER!
MAY 31 / 4 - 7 PM / FROGTOWN

FOR SALE
• Mask chains
• Art
• Stickers
• And more!

RAFFLE
• Metrix Reader and Tests (At-Home PCR Quality Covid Testing)
• Air purifier

SILENT AUCTION
• Photography sessions
• Dog training
• Tarot reading
• And more!"A pink, yellow, and blue icon with orange stars that reads
"HAVE SOMETHING YOU CAN DONATE TO BE SOLD, RAFFLED, OR PUT IN THE SILENT AUCTION?
yes please!
• GOODS
• SERVICES
• GIFT CARDS
• ET CETERA!
help us raise money!
CONTACT US AT
MASKBLOCLA@PROTONMAIL.COM
BY MAY 14!"A pink and yellow icon with yellow stars and an orange cat wearing an n95 that reads
"CAN'T MAKE IT BUT WANT TO HELP US? 
OUR VENMO IS
@MASKBLOCLA
thank you!"
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valebodi.bsky.social @valebodi.bsky.social · 06/05/2026
Post-COVID condition (PCC) in children and young people (CYP, PCCcyp) remains a significant health burden. Early identification of patients at risk for severe disease, including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is crucial for timely and adequate care. #MEAwarenessMonth
link.springer.com
Risk factors for severe post-COVID condition in children, adolescents, and young adults - European Journal of Pediatrics
Post-COVID condition (PCC) in children and young people (CYP, PCCcyp) remains a significant health burden. Early identification of patients at risk for severe disease, including myalgic encephalomyeli...
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Sokera! || Shop Closed for Wedding! @pyixus.bsky.social · 06/05/2026
May 5th. As of 2016, the National Crime Information Center has reported 5,712 cases of missing American Indian and Alaska Native women and girls. Strikingly, the U.S Department of Justice missing persons database has only reported 116 cases. Murder is the third leading cause of death for us.
niwrc.org
MMIW: Understanding the Missing and Murdered Indigenous Women Crisis Beyond Individual Acts of Violence | NIWRC
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Julia Métraux @juliametraux.bsky.social · 06/05/2026
Josh Turek in the Iowa State Senate Democratic Primary debate said the first bill he'd introduce in the Senate would be to push a bill that would end subminimum wage for disabled people. #CripTheVote
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#MEAction Network @meactnet.bsky.social · 05/05/2026
One week until May 12th - #MEAwarenessDay & #MillionsMissing. The week is May 9- 16. Your story matters! Resources & prompts in our toolkit: bit.ly/MM2026toolkit We will soon be sharing sample posts created by volunteers to help get us all started! #FrailAndFurious #pwME
Red and white graphic promoting the #MillionsMissing 2026 campaign with tips for sharing stories and engaging on social media using @meactnet and specific hashtags. Text: Be genuine! Tag us using @meactnet and use #MillionsMissing and #FrailAndFurious. If sharing your story in wriiting, add an image. Keep videos under 3 minutes. Give people an action to take. Link to our site or our fundraiser. US only: add to our Medicaid story bank and sign our HHS letter.
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🏴🚩 Trans Kafka (any pronouns) 🍉🍉🍉 IS A REAL HUMAN PERSON! @alexpetrovnia.bsky.social · 05/05/2026
I am on cymbalta, an antidepressant that is also the most effective medication treatment we currently have for fibromyalgia. If I am forced off my cymbalta, I will be unable to walk from pain. Going off cymbalta without ramping down causes severe, violent, and life threatening withdrawal symptoms.
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Zohran’s Mommy Dommey @loridiletto.bsky.social · 05/05/2026
This is some Streisand Effect shit. The govt has always downplayed research findings they don’t like, and most of them are never noticed anyway. Doing this was not smart.
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A. Zivarts @nondriver.bsky.social · 05/05/2026
Just published👇 "While individual nondrivers have diverse transportation circumstances, they share common travel characteristics that distinguish them from drivers. Given the substantial size of this population, their perspectives & needs must be meaningfully integrated into transportation planning"
sciencedirect.com
Unpacking living without driving: Travel modes, barriers, and transportation insecurity among nondrivers in Washington State, USA
Nearly one-third of eligible residents in the United States do not have a driver's license. An even larger share of the population likely lives withou…
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Balaeniceps tex 𓅣🌏🏳️‍🌈🏳️‍⚧️☭ @socialistpuffin.bsky.social · 05/05/2026
Please help Alex and Emery!!!
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Sara Nović @novicsara.bsky.social · 05/05/2026
Want another peek at Mother Tongue? Here are some pages on deaf accents, Martha's Vineyard sign language, and what it takes to make a utopia. Thanks to @literaryhub.bsky.social for hosting this piece. lithub.com/deafness-sho...
lithub.com
Deafness Should Be Allowed to Be Unremarkable
Accent is dependent upon a variety of factors influencing the speaker’s will and ability to modulate it, including whether the speaker is trying to hear themself against background noise, if they a…
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 05/05/2026
Today @thesicktimes.org: Advocates in France interrupted a recent Long COVID conference, calling for biological research, not “psychologization.” @mileswgriffis.bsky.social interviewed the organizations behind this action. thesicktimes.org/2026/05/05/l...
thesicktimes.org
Long COVID advocates demand biological research at a conference in Paris - The Sick Times
We spoke with the two organizations behind the viral moment where advocates interrupted speakers at the Long COVID EU Project event.
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Anna Holmes @annabookwriter.bsky.social · 05/05/2026
In addition to this nakedly eugenicist bullshit— Doctors have spent the last god knows how long prescribing antidepressants for chronic illness like it’s going out of style, and now that it will be, they are not fucking prepared.
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The Canary @thecanaryuk.bsky.social · 05/05/2026
Autistic young people have a right to an education, but the mainstream media thinks reasonable adjustments and supports are unnecessary, too costly, or over the top by @charliclement.bsky.social
thecanary.co
Autistic children aren’t just uncomfortable – causing them distress cannot be normalised
Autism is being attacked from every angle: demonising parents and vilifying those seeking a diagnosis. The mainstream media are propping this up more than anyone
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Sedimentary Stories @sedimentarystories.bsky.social · 05/05/2026
Finally made it to a Bateman Horne Center support group for #pwME & it was such a lovely space. batemanhornecenter.org/outreach/
batemanhornecenter.org
Support
Subscribe to BHC newsletter and support group reminders.
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Shannon Rosa @shannonrosa.bsky.social · 05/05/2026
Misinformation from top health officials in the Trump administration has created a “crisis of public trust”—and Congress should conduct oversight hearings & possibly impeach officials such as RFK Jr, the U.S. HHS secretary, according to a recently released report from @autisticadvocacy.org and AAPD.
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Michiel @murtoz.bsky.social · 05/05/2026
I need every man following me to read the below thread. All of it. And then take action to stop this misogynistic BS. Offer to accompany the women and femme and fab folk in your life to their medical appointments. Been doing this for a decade and I am still shocked in almost every appointment.
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Clayton @claytonwk.bsky.social · 04/05/2026
From JT Flowers (Albina Vision Trust, TriMet board member) Instagram: He’s proposing to extend service cuts to August 2027 and a bunch of other good stuff!
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Sedimentary Stories @sedimentarystories.bsky.social · 04/05/2026
Late DX folks: How do you process the grief of realizing that an earlier diagnosis would have saved you a bunch of stress/heartache/shame? So many things from my childhood I was punished & mistreated for were b/c I was autistic & had un-DXed hypermobility.
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Thinking Person's Guide to Autism @thinkingautism.com · 04/05/2026
For autistics, "Too much noise & clutter & stimulation can be exhausting, painful & impossible." It is better to "be able to spend some time in an environment where we can control our sensory input, and not have to filter anything for a while." @oolong.co.uk: thinkingautismguide.com/2019/02/star...
thinkingautismguide.com
Starting Points for Understanding Autism
I believe that the best path to understanding autism is a thinking style which tends to concentrate resources in a few interests and concerns.
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Sarah Carter @ephemerawoman.bsky.social · 04/05/2026
Please alt-text your images - supercooldesign.co.uk/blog/how-to-... Cone on pals, you’re better than this
supercooldesign.co.uk
How To: Write Good Alt Text - Supercool
Adding useful alt text to images is one of the easiest ways to make your website more accessible. But it's not necessarily an easy thing to do well …
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Richard Fisher @richardfisher.bsky.social · 04/05/2026
I had great fun writing this about David Attenborough's childhood fossil collecting. I went to Leicester for the day, tracing his route from his former home (on the university campus) to the fossil sites like Tilton-on-the-Hill which he visited as boy #earthscience www.bbc.com/future/artic...
bbc.com
'It was one of the key moments of my life': The thrilling fossil discoveries that sparked Attenborough's love for nature
Fossils fascinated Sir David Attenborough throughout his childhood. The BBC retraces the steps of Sir David's formative experiences roaming the British countryside.
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QueerAF @wearequeeraf.com · 04/05/2026
ICYMI: Our investigation verified 50 suicides of trans people in the UK over the past decade, and this is only the tip of the iceberg.
wearequeeraf.com
Trans people are dying of suicide more than the general UK population, new investigation reveals
Despite warning signs that trans people are dying of suicide more than the general UK population, official data remains inadequate – while rights and healthcare rollbacks continue
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Dr Noor Bari @njbbari3.bsky.social · 03/05/2026
For everyone sitting comfortably thinking “my kid doesn’t have long COVID, so I don’t have to worry about these things”… Your kid doesn’t have symptomatic long COVID YET.
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