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Lydia, 34

@lydiafd.bsky.social
323 followers 1.7K following 87 posts

Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022

PostsRepliesMedia
Lydia, 34 @lydiafd.bsky.social · 30/06/2026
@longcovidadvoc.com @longcovidjustice.org @longcovidfam.bsky.social @remissionbiome.bsky.social @batemanhornecenter.bsky.social @meactnet.bsky.social @meassociation.org.uk @lcaireland.bsky.social @mecfsscience.org @mecfs.at @longcovidsos.bsky.social @longcovidkids.bsky.social @daltmann.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 30/06/2026
@bettinagrande.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 30/06/2026
@ec.europa.eu @horizoneu.bsky.social Please fund better research that helps patients and stops promoting false narratives about the brain being 'fearful' of exercise and symptom hypervigilance. Look to the work of @putrinolab.bsky.social @decodemestudy.bsky.social @binitakane.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 30/06/2026
Four years, and these are the findings? A repetition of debunked biopsychosocial understanding of post-viral conditions. Also, do we mean POTS, ME/CFS, Sjögren's, MCAS? This is deeply disappointing and dangerous for patients in 2026 EU. @ec.europa.eu @horizoneu.bsky.social @ema.europa.eu
recovery-channel.org
EU Long COVID Project: Final Results after Four Years of Research - The Recovery Channel
The EU Long COVID project has published its final results after four years of research. Read the 7 key findings and watch our panel discussion
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Lydia, 34 @lydiafd.bsky.social · 29/04/2026
totally fair, I like the idea in principle but understand the data concerns
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Lydia, 34 @lydiafd.bsky.social · 29/04/2026
@thesicktimes.org @postviraltrials.bsky.social @mecfsscience.org @helenbranswell.bsky.social @virusesimmunity.bsky.social @kgandersen.bsky.social @ecdc.europa.eu @esri.ie @ec.europa.eu @whoeurope.bsky.social @who.int @chcrestani.bsky.social @newschambers.bsky.social @engagedroadmap.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 29/04/2026
@rtedoconone.bsky.social @rteradio1.bsky.social @tg4.bsky.social @thecovidinfoguy.bsky.social @dublininquirer.com @cleanairie.bsky.social @cleanaircatf.bsky.social @cleanairclub.bsky.social @cleanairclassrm.bsky.social @cleanairlondon.bsky.social @momscleanairforce.org @roinnslainte.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 29/04/2026
@longcovidkids.bsky.social @longcovidphysio.bsky.social @remissionbiome.bsky.social @longcovidjustice.org @longcovidadvoc.com @longcovidfam.bsky.social @meactnet.bsky.social @mecfs.at @meassociation.org.uk @irishexaminer.bsky.social @irishtimes.com @virginmedianews.bsky.social @news.rte.ie
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Lydia, 34 @lydiafd.bsky.social · 29/04/2026
Register to be part of a Global Long Covid Map! Currently quite North American/Western Europe heavy - would be great to share widely in other regions to better reflect the reality of this condition globally. Map: www.google.com/maps/d/u/0/v... @longcovidsos.bsky.social @lcaireland.bsky.social
docs.google.com
Global Long Covid Registry (Anonymous)
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Lydia, 34 @lydiafd.bsky.social · 09/04/2026
One way to tackle the growing problem of Long Covid is to implement #cleanairstrategies in public spaces! @hselive.bsky.social @roinnslainte.bsky.social @etbireland.bsky.social @educatetogether.bsky.social @cleanairie.bsky.social @lcaireland.bsky.social @ecdc.europa.eu @meactnet.bsky.social
irishtimes.com
Long Covid to cost OECD economies up to €115bn a year
New research predicts impact of lower productivity and workers quitting because of long-term illness after Covid-19
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Lydia, 34 @lydiafd.bsky.social · 02/04/2026
Please consider donating to our good friend Nevra www.gofundme.com/f/save-nevra
gofundme.com
Donate to Help Nevra Secure Surgery, Care, and Safety, organized by Adrian Bamforth
Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety
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Lydia, 34 @lydiafd.bsky.social · 20/02/2026
Oh gosh not at all! I completely agree and it makes sense in the context of the USA. It's just equally alarming to see other regions following suit - you weren't dismissive at all, don't worry!
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Reposted by Lydia, 34
Liz Nevra A. @nlizaki.bsky.social · 18/02/2026
Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen her very severe ME/CFS significantly. She is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI.
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Lydia, 34 @lydiafd.bsky.social · 20/02/2026
Nevra requires further fundraising! Please consider donating and reflect upon the fact that this is the reality for many living with ME/CFS! @meactnet.bsky.social @remissionbiome.bsky.social @mecfs.at @longcovidsos.bsky.social @longcovidadvoc.com @longcovidjustice.org @lcaireland.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 20/02/2026
True, unfortunately the same trend is being repeated globally across governments who are not in the same political scenario. There seems to be a collective decision to "surrender" to the devastation of Long Covid with little attempts to alleviate the situation.
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Lydia, 34 @lydiafd.bsky.social · 15/01/2026
With more people falling ill with post covid complications, why are Long Covid being shut down? @nytimes.com @democracynow.org @longcovidjustice.org @meactnet.bsky.social @newyorker.com @washingtonpost.com @bostonglobe.com
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Lydia, 34 @lydiafd.bsky.social · 15/01/2026
Check out Sinead O'Brien of @cleanairie.bsky.social speaking tonight about all things covid and clean air strategies!
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Lydia, 34 @lydiafd.bsky.social · 09/01/2026
Great to see this information in mainstream media! Clean air strategies protect patients! @hselive.bsky.social @roinnslainte.bsky.social @fphuk.bsky.social @maritahennessy.bsky.social @president.ie @independent.ie @irishtimes.com @irishexaminer.bsky.social @news.rte.ie @francesryan.bsky.social
theguardian.com
Face masks ‘inadequate’ and should be swapped for respirators, WHO is advised
Experts are urging guideline changes on what health professionals should wear to protect against flu-like illnesses including Covid
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Lydia, 34 @lydiafd.bsky.social · 15/12/2025
Likewise, an overall of clean air strategies in public spaces, particularly schools, is needed. So better ventilation and HEPA filters. This would similarly take the onus off the individual to mask, but I still think would masking benefit from becoming culturally normalised as in east Asia.
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Lydia, 34 @lydiafd.bsky.social · 15/12/2025
I do get your point and the offer of free vaccines should absolutely be there. However, vaccines do not stop people from developing chronic post viral conditions. I believe we need to better inform people of these risks so they can in turn make informed decisions like masking.
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Lydia, 34 @lydiafd.bsky.social · 15/12/2025
@togetherwemask.bsky.social very kindly shared my story regarding Long Covid. In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours! #cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS
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Lydia, 34 @lydiafd.bsky.social · 15/12/2025
Thank you, Julie, for going out of your way to platform all our stories! This helps us all ❤️
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Lydia, 34 @lydiafd.bsky.social · 13/12/2025
This was such a relief to watch
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Reposted by Lydia, 34
Long Covid Advocacy @longcovidadvoc.com · 11/12/2025
😷 Masks aren't traumatising. Abandonment is. Airborne denial is. Hospital-acquired infection is. Long Covid and severe ME is. The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14
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Lydia, 34 @lydiafd.bsky.social · 12/12/2025
@healthfoundation.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 12/12/2025
@england.nhs.uk @samuelanimates.bsky.social @luckytran.com @eurosurveillance.org @socialepi.bsky.social @carolinejmolloy.bsky.social @gidmk.bsky.social @cecirahim.bsky.social @teachepi.bsky.social @fphuk.bsky.social @phiuk.bsky.social @phaffairs.bsky.social @itvnews.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 12/12/2025
The discussions of masking here highlight a huge misunderstanding in how airborne viruses function. This, in turn, highlights a massive failure in public health education. Public Health needs to highlight the difference between airborne and droplet transmission. It is vital to protect our health.
youtube.com
Flu Spike: Should We Bring Back Masks? | This Morning's View
YouTube video by This Morning
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Lydia, 34 @lydiafd.bsky.social · 10/12/2025
@longcovidkids.bsky.social @longcovidadvoc.com @longcovidfam.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social @childreninhospital.bsky.social @shrnwales.bsky.social @claireoconnell.bsky.social @rcsipophealth.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 10/12/2025
@longcovidfam.bsky.social @longcovidkids.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @longcovidsos.bsky.social @meactnet.bsky.social @cleanaircatf.bsky.social @educatetogether.bsky.social @dcuioe.bsky.social @meassociation.org.uk @independent.ie @irishexaminer.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 10/12/2025
Long Covid has now surpassed asthma as the most common childhood condition contributing to memory issues, concentration and anxiety. We need to reflect this in studies, as we are only getting one part of the picture. @cleanairie.bsky.social @roinnslainte.bsky.social @etbireland.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 10/12/2025
Finally, politicians are recognising airborne viruses exist, and clean air strategies are a dire need - especially in our schools and in the context of the current flu surge! @earlychildhoodireland.ie @roinnslainte.bsky.social @etbireland.bsky.social @cleanairie.bsky.social @rte.ie @esri.ie
shh-uk.org
Minister Admits Airborne COVID Risk In Schools
Minister’s letter implicitly recognises airborne COVID-19 risks in schools but offers no central funding for clean air measures.
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Lydia, 34 @lydiafd.bsky.social · 22/11/2025
@darraghobrientd.bsky.social @fingal.ie @labourpartyireland.bsky.social @social-democrats.bsky.social @duncansmithtd.bsky.social @dublininquirer.com @micheal-martin.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 22/11/2025
@hselive.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @social-protection.bsky.social @esri.ie @president.ie @dccbeta.bsky.social @irishmedicaltimes.bsky.social @hazelchu.bsky.social @simonharrisireland.bsky.social @fiannafailparty.bsky.social @fotoole.bsky.social @ec.europa.eu
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Lydia, 34 @lydiafd.bsky.social · 22/11/2025
Excellent interview regarding the devastating impacts of ME/CFS. The fact that Long Covid - with an estimated 40% - 60% meeting ME/CFS criteria - is not yet treated as an occupational illness in Ireland is further evidence of a societal underestimation of the severity of post-viral conditions.
youtube.com
BBC Somerset - 3 out of family of 4 diagnosed with ME/CFS
YouTube video by Broken Battery
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Lydia, 34 @lydiafd.bsky.social · 16/11/2025
thank you! The link is paywalled so I can share screenshots if desired!
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Lydia, 34 @lydiafd.bsky.social · 16/11/2025
Thank you for sharing my story and for all your advocacy work!
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Lydia, 34 @lydiafd.bsky.social · 11/11/2025
If someone would like to read the full article, please DM me as it is quite long!
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Lydia, 34 @lydiafd.bsky.social · 11/11/2025
@oxfordwomenshealth.bsky.social @sam-trevaskis.bsky.social @maritahennessy.bsky.social @rcsipophealth.bsky.social @rcsi-research.bsky.social @drjenirwin.bsky.social @drclairetaylor.bsky.social @immunofever.bsky.social @glenpyle.bsky.social @elisabethalicee.bsky.social @drrebeccaryan.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 11/11/2025
@irishmedicaltimes.bsky.social @irishmedicalorg.bsky.social @irishmecfsassoc.bsky.social @rte.ie @natashaloder.bsky.social @lizs1.bsky.social @lcaireland.bsky.social @thelancet.com @frontiersin.bsky.social @thecovidinfoguy.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 11/11/2025
@longcovidadvoc.com @patientled.bsky.social @meassociation.org.uk @meactionuk.bsky.social @meactionscotland.bsky.social @polybiorf.bsky.social @bihatcharite.bsky.social @berlin-buyers-club.bsky.social @longcovidsos.bsky.social @remissionbiome.bsky.social @longcovidjustice.org
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Lydia, 34 @lydiafd.bsky.social · 11/11/2025
I am sincerely thankful to @arleneharris.bsky.social and Yvonne Hogan @independent.ie for covering this story. I have had messages of relief from Long Coviders in Ireland and abroad - our voices are being heard. Thank you! @newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social
independent.ie
Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone
The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...
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Lydia, 34 @lydiafd.bsky.social · 16/10/2025
@longcovidadvoc.com @remissionbiome.bsky.social @meassociation.org.uk @longcovidkids.bsky.social @longcovidfam.bsky.social @longcovidjustice.org @meactionuk.bsky.social @meactionscotland.bsky.social @berlin-buyers-club.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 16/10/2025
Poor research article based on self-reported phone interviews and discussing the pandemic in the past tense. Do these types of articles do more harm or add to the understanding of the ongoing COVID-19 pandemic? @frontiersin.bsky.social @meactnet.bsky.social @longcovidsos.bsky.social
frontiersin.org
Frontiers | Prevalence of post COVID-19 condition and associations with risk factors among U.S. adults: 2023 Behavioral Risk Factor Surveillance System
IntroductionDuring the COVID-19 pandemic, between 12 and 20% of US adults were identified as having post-COVID-19 condition, commonly referred to as ‘Long CO...
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Lydia, 34 @lydiafd.bsky.social · 08/09/2025
Nevras gofundme attached for ease of access - please consider donating any pennies you might have! 🙏
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Lydia, 34 @lydiafd.bsky.social · 08/09/2025
As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund. Nevra is a polyglot, inquisitive, and creative young woman. Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️
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Lydia, 34 @lydiafd.bsky.social · 02/08/2025
I am a living example of this! Completely fine with my first infection, recovered and back to normal. Second infection led to long term illness and disability. The literature repeatedly backs this trend up: reinfections are a detriment to our health!
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Lydia, 34 @lydiafd.bsky.social · 22/07/2025
It's alright Mairead but thank you! It's me and millions of others!
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Lydia, 34 @lydiafd.bsky.social · 21/07/2025
And I am one of them! 2019 fully healthy and working. 2025 chronically ill, disabled and not able to work. My last healthy year I was 29 years old. A second covid infection got me. The question is, how many more will continue to fall ill?
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Lydia, 34 @lydiafd.bsky.social · 29/06/2025
Interesting research outcomes - I wonder how this will impact treatment development?
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Lydia, 34 @lydiafd.bsky.social · 21/06/2025
Yes, it's very frustrating, I wish we would move away from a predominantly psychological model to a biomedical one!
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