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Lydia, 34

@lydiafd.bsky.social
322 followers 1.7K following 87 posts

Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022

PostsRepliesMedia
Lydia, 34 @lydiafd.bsky.social · 30/06/2026
Four years, and these are the findings? A repetition of debunked biopsychosocial understanding of post-viral conditions. Also, do we mean POTS, ME/CFS, Sjögren's, MCAS? This is deeply disappointing and dangerous for patients in 2026 EU. @ec.europa.eu @horizoneu.bsky.social @ema.europa.eu
recovery-channel.org
EU Long COVID Project: Final Results after Four Years of Research - The Recovery Channel
The EU Long COVID project has published its final results after four years of research. Read the 7 key findings and watch our panel discussion
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Lydia, 34 @lydiafd.bsky.social · 29/04/2026
Register to be part of a Global Long Covid Map! Currently quite North American/Western Europe heavy - would be great to share widely in other regions to better reflect the reality of this condition globally. Map: www.google.com/maps/d/u/0/v... @longcovidsos.bsky.social @lcaireland.bsky.social
docs.google.com
Global Long Covid Registry (Anonymous)
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Lydia, 34 @lydiafd.bsky.social · 09/04/2026
One way to tackle the growing problem of Long Covid is to implement #cleanairstrategies in public spaces! @hselive.bsky.social @roinnslainte.bsky.social @etbireland.bsky.social @educatetogether.bsky.social @cleanairie.bsky.social @lcaireland.bsky.social @ecdc.europa.eu @meactnet.bsky.social
irishtimes.com
Long Covid to cost OECD economies up to €115bn a year
New research predicts impact of lower productivity and workers quitting because of long-term illness after Covid-19
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Lydia, 34 @lydiafd.bsky.social · 02/04/2026
Please consider donating to our good friend Nevra www.gofundme.com/f/save-nevra
gofundme.com
Donate to Help Nevra Secure Surgery, Care, and Safety, organized by Adrian Bamforth
Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety
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Liz Nevra A. @nlizaki.bsky.social · 18/02/2026
Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen her very severe ME/CFS significantly. She is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI.
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Lydia, 34 @lydiafd.bsky.social · 20/02/2026
Nevra requires further fundraising! Please consider donating and reflect upon the fact that this is the reality for many living with ME/CFS! @meactnet.bsky.social @remissionbiome.bsky.social @mecfs.at @longcovidsos.bsky.social @longcovidadvoc.com @longcovidjustice.org @lcaireland.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 15/01/2026
With more people falling ill with post covid complications, why are Long Covid being shut down? @nytimes.com @democracynow.org @longcovidjustice.org @meactnet.bsky.social @newyorker.com @washingtonpost.com @bostonglobe.com
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Lydia, 34 @lydiafd.bsky.social · 15/01/2026
Check out Sinead O'Brien of @cleanairie.bsky.social speaking tonight about all things covid and clean air strategies!
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Lydia, 34 @lydiafd.bsky.social · 09/01/2026
Great to see this information in mainstream media! Clean air strategies protect patients! @hselive.bsky.social @roinnslainte.bsky.social @fphuk.bsky.social @maritahennessy.bsky.social @president.ie @independent.ie @irishtimes.com @irishexaminer.bsky.social @news.rte.ie @francesryan.bsky.social
theguardian.com
Face masks ‘inadequate’ and should be swapped for respirators, WHO is advised
Experts are urging guideline changes on what health professionals should wear to protect against flu-like illnesses including Covid
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Lydia, 34 @lydiafd.bsky.social · 15/12/2025
@togetherwemask.bsky.social very kindly shared my story regarding Long Covid. In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours! #cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS
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Long Covid Advocacy @longcovidadvoc.com · 11/12/2025
😷 Masks aren't traumatising. Abandonment is. Airborne denial is. Hospital-acquired infection is. Long Covid and severe ME is. The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14
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Lydia, 34 @lydiafd.bsky.social · 12/12/2025
The discussions of masking here highlight a huge misunderstanding in how airborne viruses function. This, in turn, highlights a massive failure in public health education. Public Health needs to highlight the difference between airborne and droplet transmission. It is vital to protect our health.
youtube.com
Flu Spike: Should We Bring Back Masks? | This Morning's View
YouTube video by This Morning
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Lydia, 34 @lydiafd.bsky.social · 10/12/2025
Long Covid has now surpassed asthma as the most common childhood condition contributing to memory issues, concentration and anxiety. We need to reflect this in studies, as we are only getting one part of the picture. @cleanairie.bsky.social @roinnslainte.bsky.social @etbireland.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 10/12/2025
Finally, politicians are recognising airborne viruses exist, and clean air strategies are a dire need - especially in our schools and in the context of the current flu surge! @earlychildhoodireland.ie @roinnslainte.bsky.social @etbireland.bsky.social @cleanairie.bsky.social @rte.ie @esri.ie
shh-uk.org
Minister Admits Airborne COVID Risk In Schools
Minister’s letter implicitly recognises airborne COVID-19 risks in schools but offers no central funding for clean air measures.
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Lydia, 34 @lydiafd.bsky.social · 22/11/2025
Excellent interview regarding the devastating impacts of ME/CFS. The fact that Long Covid - with an estimated 40% - 60% meeting ME/CFS criteria - is not yet treated as an occupational illness in Ireland is further evidence of a societal underestimation of the severity of post-viral conditions.
youtube.com
BBC Somerset - 3 out of family of 4 diagnosed with ME/CFS
YouTube video by Broken Battery
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Lydia, 34 @lydiafd.bsky.social · 11/11/2025
I am sincerely thankful to @arleneharris.bsky.social and Yvonne Hogan @independent.ie for covering this story. I have had messages of relief from Long Coviders in Ireland and abroad - our voices are being heard. Thank you! @newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social
independent.ie
Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone
The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...
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Lydia, 34 @lydiafd.bsky.social · 16/10/2025
Poor research article based on self-reported phone interviews and discussing the pandemic in the past tense. Do these types of articles do more harm or add to the understanding of the ongoing COVID-19 pandemic? @frontiersin.bsky.social @meactnet.bsky.social @longcovidsos.bsky.social
frontiersin.org
Frontiers | Prevalence of post COVID-19 condition and associations with risk factors among U.S. adults: 2023 Behavioral Risk Factor Surveillance System
IntroductionDuring the COVID-19 pandemic, between 12 and 20% of US adults were identified as having post-COVID-19 condition, commonly referred to as ‘Long CO...
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Lydia, 34 @lydiafd.bsky.social · 08/09/2025
Nevras gofundme attached for ease of access - please consider donating any pennies you might have! 🙏
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Lydia, 34 @lydiafd.bsky.social · 08/09/2025
As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund. Nevra is a polyglot, inquisitive, and creative young woman. Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️
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Lydia, 34 @lydiafd.bsky.social · 02/08/2025
I am a living example of this! Completely fine with my first infection, recovered and back to normal. Second infection led to long term illness and disability. The literature repeatedly backs this trend up: reinfections are a detriment to our health!
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Lydia, 34 @lydiafd.bsky.social · 21/07/2025
And I am one of them! 2019 fully healthy and working. 2025 chronically ill, disabled and not able to work. My last healthy year I was 29 years old. A second covid infection got me. The question is, how many more will continue to fall ill?
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Lydia, 34 @lydiafd.bsky.social · 29/06/2025
Interesting research outcomes - I wonder how this will impact treatment development?
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Lydia, 34 @lydiafd.bsky.social · 12/06/2025
Pop science articles like this do little to further the understanding of ME/CFS. The old adage that correlation is does not mean causation comes to mind. #me/cfs #longcovid #biopsychosocial #postviralfatigue
psychologytoday.com
ME/CFS, Long Covid, and Disconnection From the Self
Clinicians and researchers have observed certain personality traits in many people living with ME/CFS and long Covid. Could they help some people to unravel their illness?
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Lydia, 34 @lydiafd.bsky.social · 04/06/2025
Great article in the @irishtimes.com about upcoming drug Mitodicure for ME/CFS, which aims to stop PEM! Investors needed! @meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org
Image of newspaper article/interview including description of Mitodicure and picture of patient advocate Patrick Ussher.
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Lydia, 34 @lydiafd.bsky.social · 04/06/2025
It's factors like this that need indepth analysis - and when unclean air has been proven to lead to the spread of pathogens, why do we expose our schools to that? @intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 03/06/2025
Clean Air protects both employees and their organisations! @hselive.bsky.social @intonews.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @cleanairie.bsky.social @independent.ie @newstalkfm.bsky.social @rte.ie @thejournal.ie
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Lydia, 34 @lydiafd.bsky.social · 01/06/2025
Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 28/05/2025
Why does the criteria for the covid booster change so arbitrarily @hselive.bsky.social ? I have Long Covid and am being denied everywhere because I am under 80. My neighbour who is 79 was denied. There is a big covid wave coming this summer with children already in hospital with it. Logic?
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Lydia, 34 @lydiafd.bsky.social · 25/05/2025
Excellent interview on the dire need for #cleanairstrategies at schools by @cleanairie.bsky.social - and how this can reduce absences! @hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social
youtube.com
Clean Air Advocacy Ireland on Highland Radio, May 21st 2025
YouTube video by Clean Air Advocacy Ireland
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Lydia, 34 @lydiafd.bsky.social · 20/05/2025
Thank you @putrinolab.bsky.social for your work and continued advocacy 👏
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Lydia, 34 @lydiafd.bsky.social · 19/05/2025
Thank you to everyone at @bihatcharite.bsky.social who campaign for us, believe us and are researching to help us! @paulgarnerwoof.bsky.social and the recent opinion piece publication by @bmj.com would benefit from taking a few lessons from contemporary pioneers in the ME/CFS field.
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Lydia, 34 @lydiafd.bsky.social · 19/05/2025
An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.
bmj.com
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...
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Lydia, 34 @lydiafd.bsky.social · 17/05/2025
Excellent article on the realities of airborne pathogens - again highlighting Carl Zimmer's must-read "Airborne"! @cleanairie.bsky.social @carlzimmer.com @hselive.bsky.social @intonews.bsky.social @astiunion.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 14/05/2025
As someone who fell with ME/CFS in an education setting, the need for #cleanairstrategies in schools is pressing! Please check out Anne McConway's article on this very issue! @educatetogether.bsky.social @edmatters4all.bsky.social @neatoday.bsky.social @intonews.bsky.social @astiunion.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 06/05/2025
Open windows, pathogen removing lights, and HEPA filters. An ME/CFSers dream ❤️
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Lydia, 34 @lydiafd.bsky.social · 03/05/2025
@cleanairie.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social @intonews.bsky.social @esai-irl.bsky.social @educatetogether.bsky.social @emernowlan.bsky.social @astiunion.bsky.social We need clean air in schools! Great initiative shown below in the UK! #CleanAirForKids
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Lydia, 34 @lydiafd.bsky.social · 02/05/2025
www.thejournal.ie/long-covid-c... We're here in our thousands, hidden behind closed doors @hselive.bsky.social @lcaireland.bsky.social @cleanairie.bsky.social @earlychildhoodireland.ie @roinnslainte.bsky.social
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Alison Kemper @profalisonk.bsky.social · 05/04/2025
Great new article about Indoor Air Quality in schools. www.thegrindmag.ca/airborne-dan...
thegrindmag.ca
Airborne Danger
Stuffy, crowded classrooms mean kids are breathing in viruses and pollution. Parents are trying to make the air safer, but hitting roadblocks.
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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · 15/04/2025
The moral of the story is this: do not experiment on yourself by snorting airborne viruses into your brain. Stay in the control group.
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Lydia, 34 @lydiafd.bsky.social · 15/04/2025
Great book on ME/CFS treatment and research by Patrick Ussher and Prof. Klaus Wirth 👏
books2read.com
Available now at your favorite digital store!
Understanding ME/CFS & Strategies for Healing by Patrick Ussher
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Reposted by Lydia, 34
Billy Hanlon @bhanlon15.bsky.social · 24/03/2025
Univ. of Toledo: 'COVID-19 Brought About a Large Rise in POTS Cases' The study also found the incidence rate of POTS was 1.42 per 1 million person-years before COVID and 20.3 cases per 1 million person-years after COVID. news.utoledo.edu/index.php/03...
news.utoledo.edu
COVID-19 Brought About a Large Rise in POTS Cases | UToledo News
A UToledo study has found a five-fold increase in the number of newly identified postural orthostatic tachycardia syndrome patients post COVID.
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Lydia, 34 @lydiafd.bsky.social · 19/03/2025
An excerpt of my interview about the difficulties living with Long Covid on @news.rte.ie Instagram Link Here: www.instagram.com/reel/DHVXpDx... @virginmedianews.bsky.social @virginmediaireland.bsky.social @cleanairie.bsky.social @patientled.bsky.social @lcaireland.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 18/03/2025
Short interview segment on @rteone.rte.ie about the impacts of Long Covid @longcovidadvoc.com @c19lap.bsky.social @longcovidsos.bsky.social @longcovidsupport.bsky.social @irishmecfsassoc.bsky.social @meassociation.bsky.social @meactnet.bsky.social @fndireland.bsky.social
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Lydia, 34 @lydiafd.bsky.social · 18/03/2025
Thank you to @lcaireland.bsky.social and @fergalbowers.bsky.social for letting me share my story! @irishmecfsassoc.bsky.social @meactnet.bsky.social @meassociation.bsky.social @fndireland.bsky.social @fndsociety.bsky.social @longcovidadvoc.com @c19lap.bsky.social @darraghobrientd.bsky.social
rte.ie
People continue to struggle with Long Covid symptoms
Five years on from the first cases of Covid-19 in Ireland, many people are living with Long Covid, a group of health problems that persist after initial infection.
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Kelly @broadwaybabyto.bsky.social · 06/03/2025
“Pediatricians and family doctors should learn about diseases relegated to history. They should ensure they know what measles, polio & different types of meningitis look like” When we stop vaccinating, diseases we eradicated come back. People die or become disabled and it’s completely preventable:
usatoday.com
This young Texas doctor only read about measles. Now she's a leading expert amid outbreak.
Many doctors have never seen measles in person. The Texas outbreak is reshaping how health systems prepare for drops in vaccinations.
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Lydia, 34 @lydiafd.bsky.social · 04/03/2025
"Repeat Covid Infections are a Danger to our health - so where's the Public Health Messaging?" Regionally specific but globally relevant #me/cfs #LongCovid @longcovidadvoc.bsky.social @irishmecfsassoc.bsky.social @meactnet.bsky.social @remissionbiome.bsky.social @openmedf.bsky.social @mecfs.at
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