In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026! Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork. https://t.co/B6w4pMvG7K #SevereME https://t.co/ZSRbXKArBX

Continuing the dialogue on ME, Long Covid and evidence-based psychiatric educationAudio on Substack In June, the Royal College of Psychiatrists responded to our open letter concerning the framing of Long Covid at the Royal College of Psychiatrists International Congress.We welcomed the opportunity to receive a formal response. Rather than replying immediately, we took time to consult with many of the charities, organisations, clinicians, researchers and patient advocates who supported our origin

Coverage of the debate in the House of Lords on the treatment of severe myalgic encephalomyelitis, on Thursday 18 June.

House of Lords

The response has been extraordinary. To date, the letter has received 1,200 individual signatories and the support of 58 organisations, including clinicians, researchers, patient advocates, and members of the public. This reflects a clear and growing call for scientific rigour, respectful discourse, and appropriate representation of evidence in discussions of IACC (infection-associated chronic conditions).

Department of Health and Social Care written question – answered at 27 May 2026

Karen Hargrave says she and her husband probably have a year before their savings run out 

Oonagh Cousins was selected for Team GB, then Long Covid ended her Olympic hopes.

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