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Bateman Horne Center @batemanhornecenter.bsky.social · 53m

Join our online support group Tuesday, Oct. 6 at 1 p.m. MDT. We’ll talk about managing fatigue, pain, and cognitive symptoms, including what helps and what makes symptoms worse. All are welcome, and you may participate at your own comfort level. Register: bit.ly/4npZ4Ud

Oct 6 - Support Group: Managing Common Chronic Illness Symptoms at 1:00 PM MDT

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Bateman Horne Center @batemanhornecenter.bsky.social · 02/10/2026

October is Dysautonomia Awareness Month. Standing can bring on a racing heart, dizziness, weakness, and other symptoms for people with POTS. This month, we’ll share resources to help patients, families, and clinicians understand POTS, dysautonomia and orthostatic intolerance.

Teal poster with a white awareness ribbon and text declaring October as Dysautonomia Awareness Month.

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Bateman Horne Center @batemanhornecenter.bsky.social · 01/10/2026

October’s online outreach events are coming up: • Oct. 6, 1 p.m. MDT: Support Group • Oct. 14, 10 a.m. MDT: “Coffee” with a Clinician • Oct. 20, 1 p.m. MDT: Support Group Register Here: bit.ly/4npZ4Ud

Upcoming October events: Oct 6 chronic illness symptoms; Oct 14 cognitive impairment; Oct 20 relationships—chronically ill.

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Bateman Horne Center @batemanhornecenter.bsky.social · 23/09/2026

A tilt table test isn’t the only way to assess orthostatic intolerance. In this excerpt from our September “Coffee” with a Clinician, Melissa Cortez, DO, discusses active stand and lean tests, and why symptoms matter alongside heart rate and blood pressure. Watch: youtu.be/1IujvZukI_s

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Bateman Horne Center @batemanhornecenter.bsky.social · 21/09/2026

After each online support group, we’ll share a few reflections from Timothy’s Shared Wisdom. This week: navigating others’ limitations, practicing acceptance, and finding meaning amid chronic illness. Get the full monthly recaps by email: bit.ly/3POhK4d

Dismissive responses reflect others' limited empathy; don't internalize—be selective about whom you explain yourself to.

Timothy's wisdom: don't personalize others' denial; their capacity, not your worth. Support Group 9/15/26

Green background titled Timothy's Shared Wisdom: quote on dual consciousness—acceptance plus pursuing improvement.

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Bateman Horne Center @batemanhornecenter.bsky.social · 14/09/2026

Join us tomorrow for BHC’s online support group. Topic: Coping When Things Don’t Go the Way We Want Them To Tuesday, Sept. 15, 1:00 p.m. MDT All are welcome. Engage at your comfort level. Register: bit.ly/4npZ4Ud

Reminder: BHC support group tomorrow, Sept 15 at 1:00 PM MDT — topic: coping when bodies, life or others don't cooperate.

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Bateman Horne Center @batemanhornecenter.bsky.social · 10/09/2026

Trusted information and meaningful connection can feel like a lifeline. We’re grateful to hear how BHC’s resources and community events have brought understanding, compassion, and hope to someone navigating Long COVID. Explore our free resources and upcoming events: bit.ly/4qO9BLk

Testimonial with five star icons, quote praising Bateman Horne's Long COVID help, signed "Elyse."

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Bateman Horne Center @batemanhornecenter.bsky.social · 09/09/2026

Education is more powerful when it’s shared. Through our partnership with @emergeaustralia.bsky.social, self-paced modules on PEM, pacing, OI, sleep, and more continue to support people navigating ME/CFS, Long COVID, and related illnesses. Explore: emerge.org.au/lea-ea-bhc

Free self-paced education for ME/CFS, Long COVID and related conditions, developed with Emerge Australia.

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Bateman Horne Center @batemanhornecenter.bsky.social · 08/09/2026

Tomorrow: Join us for “Coffee” with a Clinician. Our panel will explore the signs and symptoms of orthostatic intolerance and dysautonomia, along with assessment, diagnosis and common in-office testing methods. Sept. 9 at 10 a.m. MDT | Free on Zoom Register: bit.ly/3JCHAFq

Coffee with a Clinician - Wed Sept 9, 10am MDT. Chapter 7: Assessment of OI & dysautonomia.

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Bateman Horne Center @batemanhornecenter.bsky.social · 07/09/2026

Lucinda Bateman, MD, will participate in the NIH discussion “The Brain Body Connection: The Autonomic Nervous System’s Role in Disease.” Sept. 24 | 1:30–3 p.m. ET Open to the public. Registration closes Sept. 9: mregs.nih.gov/NINDS/VF45-44Z5

Poster for NIH workshop 'From Mechanisms to Medicine' on multisystem disorders, Sept 23–24

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Bateman Horne Center @batemanhornecenter.bsky.social · 01/09/2026

The BHC Clinical Care Guide is free to download; and also available in print on Amazon. Access practical, evidence-informed guidance for ME/CFS, Long COVID and other infection-associated chronic conditions. Download: bit.ly/432YdzF Order: www.amazon.com/dp/B0G3CNDDSB

Clinical Care Guide for managing ME/CFS and long COVID displayed; available on Amazon.

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Bateman Horne Center @batemanhornecenter.bsky.social · 31/08/2026

Join our next online support group: bit.ly/3SnqfVr Emotional Freedom While Experiencing Illness: Avoiding Thinking Traps That Make Us Suffer We’ll explore thoughts that can intensify emotional pain and ways of thinking that may help us access calm, hope, or peace. Sept. 1 | 1 p.m. MDT

Sept 1 circled — Support group 1:00 PM MDT: emotional freedom while ill; avoiding unhelpful thinking.

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Bateman Horne Center @batemanhornecenter.bsky.social · 30/08/2026

“We hear you. We’re on your side.” As #SevereMEAwareness Month closes, Stoo Brown of WIMEL reminds us why lived experience needs to reach healthcare professionals and decision-makers. Listening, learning and advocacy continues. youtu.be/HlfbfyRl3K8

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Bateman Horne Center @batemanhornecenter.bsky.social · 29/08/2026

September online events at BHC: Sept. 1, 1 p.m. MDT: Emotional Freedom While Experiencing Illness Sept. 9, 10 a.m. MDT: “Coffee” with a Clinician: Assessment of OI & Dysautonomia Sept. 15, 1 p.m. MDT: Coping When Things Don’t Go as Planned Register: bit.ly/4npZ4Ud

Upcoming events: Support groups Sept 1 & 15; Clinician Q&A Sept 9 on orthostatic intolerance/dysautonomia.

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Bateman Horne Center @batemanhornecenter.bsky.social · 28/08/2026

“Believe yourself as a witness.” Amy Mooney, OT, reflects on the often unseen experience of caregiving and reminds caregivers to find support, give themselves compassion and grace, and know: “You are doing enough. You also belong. And you are also witnessed.” Watch: youtu.be/HlfbfyRl3K8

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Bateman Horne Center @batemanhornecenter.bsky.social · 27/08/2026

Understanding the full spectrum of ME/CFS requires including those most profoundly affected. Jessica from @solveme.bsky.social shares how decentralized trials and other accommodations can make research more centered around people with severe ME/CFS. Watch: youtu.be/HlfbfyRl3K8

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Bateman Horne Center @batemanhornecenter.bsky.social · 26/08/2026

Listen. Believe. Advocate. Respect. @amymooney.bsky.social explains how healthcare professionals can support people with severe ME/CFS by listening to their lived experiences, acting on what they hear and documenting their needs. Watch: youtu.be/HlfbfyRl3K8

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Bateman Horne Center @batemanhornecenter.bsky.social · 25/08/2026

Research must be designed to include and center those with severe and very severe ME/CFS. Danielle Meadows of @openmedf.bsky.social explains how OMF’s decentralized clinical trial network aims to make participation possible from home. Watch full converstaion: youtu.be/HlfbfyRl3K8

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Bateman Horne Center @batemanhornecenter.bsky.social · 24/08/2026

For people with severe ME/CFS, more activity is not always the goal. Good care may mean reducing unnecessary exertion and protecting limited capacity for what matters most. Read the full blog post: bit.ly/4zlv02i

Question: How can we help this person do more?

Prompt to prioritize what matters most and make it manageable within people's capacity.

Blue textured background with text: The goal is not doing more. It is protecting what matters. Read the full blog.

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Bateman Horne Center @batemanhornecenter.bsky.social · 22/08/2026

How do you plan your day when your energy and abilities are limited, or unpredictable? Join Dr. Zeest Khan for a live guided session on creating a flexible workflow for your current season of life. Aug. 23 at 9 a.m. PT Learn more and join: open.substack.com/live-stream/313391

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Bateman Horne Center @batemanhornecenter.bsky.social · 21/08/2026

@amymooney.bsky.social, OT, discusses why care for severe ME/CFS should protect rest, create stability, and be built around what the patient’s body can tolerate. Watch the full conversation: youtu.be/HlfbfyRl3K8 #SevereME #MECFS

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Bateman Horne Center @batemanhornecenter.bsky.social · 20/08/2026

People with severe ME/CFS are too often left out of conversations about their own illness. Jaime Seltzer of @meactnet.bsky.social shares how advocacy, art and peer support can help amplify their voices, and remind them they are still part of this community. Watch here: youtu.be/HlfbfyRl3K8

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Bateman Horne Center @batemanhornecenter.bsky.social · 19/08/2026

Lisa Marie of the WIMEL Writers shares an excerpt from When My Myalgic Encephalomyelitis Was Severe, offering a glimpse into a reality too often unseen. Watch the full conversation: youtu.be/HlfbfyRl3K8 #SevereMEAwareness

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Bateman Horne Center @batemanhornecenter.bsky.social · 18/08/2026

In April 2025, Dr. Orit Gourgy-Hacohen visited BHC to learn more about our patient-centered approach to ME/CFS care. Just over a year later, she has opened an ME/CFS clinic in Tel Aviv! We’re excited to celebrate her success and the expansion of informed care in Israel.

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Bateman Horne Center @batemanhornecenter.bsky.social · 17/08/2026

Being kind to yourself during chronic illness isn't always easy. Join our Aug. 18 Support Group to explore self-compassion, navigating isolation, and responding to symptom flare-ups with greater kindness. Register: bit.ly/4npZ4Ud

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Bateman Horne Center @batemanhornecenter.bsky.social · 13/08/2026

Presented in February 2025, our four-part series with @solveme.bsky.social explores the medical, legal and practical challenges of #severeMECFS, including caregiving, legal rights, medical care and accessible research. Watch the complete series here:

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Severe ME: Care, Rights, and Research Webinar Series

Galen Warden is the mother to an adult son with severe ME/CFS. In this video she shares the focus of her participation as a panelist in the October 9th Careg...

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Bateman Horne Center @batemanhornecenter.bsky.social · 12/08/2026

“What Is Myalgic Encephalomyelitis Like?” shares 80 firsthand accounts from people living with and caring for those with ME worldwide. BHC was honored to write the book and chapter forewords for this important project by WIMEL writers. Available here: a.co/d/04g8q4Ji

Recommendation for book 'What Is Myalgic Encephalomyelitis Like?' — 80 patient and caregiver accounts about living with ME.

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Bateman Horne Center @batemanhornecenter.bsky.social · 11/08/2026

Tomorrow: Five organizations. One conversation. Join #UnitedForME for a special "Coffee" with a Clinician recognizing #SevereMECFSAwareness Month. Aug. 12 | 10 a.m. MDT There’s still time to register: bit.ly/3JCHAFq @openmedf.bsky.social @meactnet.bsky.social @solveme.bsky.social

Coffee with a Clinician flyer for Severe ME/CFS Awareness Month showing six speakers with names and titles.

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Bateman Horne Center @batemanhornecenter.bsky.social · 10/08/2026

We're grateful to see Bateman Horne Center represented at the Dysautonomia International Conference, where Clayton Powers, PT, DPT, shared perspectives on caring for people with severe dysautonomia and ME/CFS who are homebound or bedbound. Read The Sick Times recap: bit.ly/44SKyNb

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