Reposted by Irish ME/CFS Association
Irish ME/CFS Association
@irishmecfsassoc.bsky.social
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Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research NB: Posts ≠ advice. Registered Charity RCN 20100254. #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
![`Self-management support' often fails to reflect the physical and cognitive nature of the ME/CFS
r Researchers in Norway interviewed 12 people with -1 ME/CFS and 4 next of kin about their experiences of self management support for ME/CFS.
r Results indicated that participants felt that current support offered by the health care system often failed Lo reflect the physical and cognitive effects of ME/CF_S
rParticipant experiences were grouped into three key themes, which reflected that the following should be included in care:
Tailored, accesible Consistent care Peer, practical and L support and validation family support.
] r Note: Participants with ME/CFS in this study were all women, limiting the transferability of the results.
RESEARCH UK
INFORM. INFLUENCE. INVEST.
SC 036942
Gronning, K., Lysfjord, L.E. & Rostad, A.K.H. BMC Health Sery Res. 2026;26 (1182): 14962-9](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreidehhfcwcjkkl7swucqfcz5eekmqs25surwnxyptkztlwjbne4cv4)
![Pharmacological Treatment Approaches in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) — Habermann-Horstmeier
"To date, no causal pharmacological therapy exists for this disease […]. However, early implementation of symptom-oriented management strategies and pacing may improve symptom control, functional status, and quality of life, although no evidence currently demonstrates reversal of the underlying disease process."
Article | Thread](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreies5b6ic5tv4zzn5f5secuq53s74tcb7wp4fhrljnw55fm3t5s24q)
