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Binita Kane

@binitakane.bsky.social
11K followers 1.5K following 547 posts

Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25 Website: thelongcovidclinic.co.uk Linktree: linktr.ee/binitakane

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Reposted by Binita Kane
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Binita Kane @binitakane.bsky.social · 23/09/2026
Every now and again it’s great for clinicians and researchers to meet and ‘chew the cud’. Fantastic to see Prof Chris Ponting and meet some of his incredible team in Edinburgh today.
Picture of Dr Binita Kane and Prof Chris Ponting smiling into the camera, with Arthur’s Seat (Edinburgh) in the background
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David Osborn @safedavid3.bsky.social · 16/07/2026
I was delighted to be asked by COVID-ACTION to give them a talk. Initially we hadn't selected a topic for the talk, but the effrontery of a NERVTAG member (purporting that the pandemic planners had done a great job!) soon settled the subject in my mind. tinyurl.com/Pandemic-Pla...
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Kit Yates @kityates.bsky.social · 22/06/2026
You Don't Know What You're M ss ng is out. It's about how the information we use to understand the world contains gaps and how those gaps are important. If you've enjoyed reading my stuff on this site, do me a favour and get yourself a copy:
amazon.co.uk
You Don't Know What You're Missing: The science of what’s lost, and how to find it : Yates, Kit: Amazon.co.uk: Books
You Don't Know What You're Missing: The science of what’s lost, and how to find it : Yates, Kit: Amazon.co.uk: Books
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Long Covid Kids @longcovidkids.bsky.social · 17/06/2026
👀 ‘You're not imagining it.' 🗓️ Wednesday 22nd July 2026 We are pleased to support this hopeful and practical online conversation hosted by Asma Yunus, with Dr @binitakane.bsky.social & Dr Sanjay Gupta, as part of #SouthAsianHeritageMonth @sahm-uk.bsky.social www.eventbrite.co.uk/e/youre-not-...
eventbrite.co.uk
You're Not Imagining It — Long COVID, ME & other invisible illnesses
Free online event bringing leading clinicians for a practical and hopeful conversation about Long COVID and other invisible illnesses
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Binita Kane @binitakane.bsky.social · 14/05/2026
It was a pleasure to meet with Tracey Williams at the Welsh Government offices in Cardiff to discuss the possibility of all-Wales service for ME. With her background in nursing, Tracey truly ‘gets it’ and the conversation was refreshingly honest.
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sarah boothby @swastrosarah.bsky.social · 03/05/2026
#MEAwarenessMonth 🧵 by email this morning, "On Friday 1 May our lawyers issued our second letter before claim. Our challenge is in direct response to the Government's announcement on 24 March that it would not begin to consider NHS provision for severe/very severe ME before April 2027. 1🪡7
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Binita Kane @binitakane.bsky.social · 29/04/2026
Our new paper out today in Nature Comms, led by the amazing @profmarkfaghy.bsky.social Current status and future perspectives on the mechanistic And pathophysiological understanding of Long Covid www.nature.com/articles/s43...
nature.com
Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID - Communications Medicine
Faghy et al., review the current literature on Long COVID pathophysiology, linking immune dysregulation, viral persistence, and vascular injury to enduring symptoms. They highlight evidence to guide f...
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Binita Kane @binitakane.bsky.social · 27/03/2026
In Belfast. Looking forward to this patient-led meeting of minds to push forward change for people living with chronic complex post-viral illnesses. #longcovid #MECFS
Collaboration for Change poster: experts and advocates shaping the future of ME and Long Covid. Image shows speakers; Dr William Weir, Prof Tom Trinick, Dr Binita Kane and Prof Chris Ponting
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 14/03/2026
Cardiovascular adjustments to gravitational stress (1991) ntrs.nasa.gov/api/citation... Reading this review on spaceflight adaptations and this line has caught me: "Even vigorous exercise in the supine position fails to prevent orthostatic intolerance after bed rest"
ntrs.nasa.gov
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 14/03/2026
(Talk is here in case you missed it: www.youtube.com/watch?v=Ar0X...)
youtube.com
Hydration, Appetite, and Blood Sugar in POTS | #longCOVID
YouTube video by The Long Covid Clinic: What You CAN Do
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David Osborn @safedavid3.bsky.social · 13/03/2026
CATA (Covid Airborne Transmission Alliance) has today issued this press release ahead of next Thursday's publication of the Inquiry's module 3 report: tinyurl.com/CATA-press-r...
tinyurl.com
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Patient-Led Research Collaborative @patientled.bsky.social · 12/03/2026
Op-ed out today in @thesicktimes.org from PLRC co-lead @leticiasaurus.bsky.social and @jencurtinmd.bsky.social on the #LongCovid Treatment Guide! “Too often, people with Long COVID hear… not much can be done for them at this point. We… believe it is a fallacy that hinders access to care”
thesicktimes.org
A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide - The Sick Times
Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject ...
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jencurtinmd.bsky.social @jencurtinmd.bsky.social · 11/03/2026
So excited the #LongCOVID Treatment Guide is live! This has been over a year in the making working with the incredible team at @patientled.bsky.social! Thanks to everyone who reviewed & gave feedback on the guide! We really hope it helps the #IACC community!
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Binita Kane @binitakane.bsky.social · 11/03/2026
Phenomenon work from Jen Curtin and team 👏🏽👏🏽👏🏽
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Tom Kindlon @tomkindlon.bsky.social · 10/03/2026
HLTH Chat Podcast Episode 8: Treating ME and Long Covid with Dr Binita Kane @binitakane.bsky.social m.youtube.com/watch?v=pk00... Screenshot from Science for ME weekly update #LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
UK HLTH Chat Podcast Episode 8: Treating ME and Long Covid with Dr Binita Kane
“In this episode of HLTH Chat, we talk to Dr. Binita Kane, a consultant respiratory physician and founder of The Long Covid Clinic, about the immense challenges of treating chronic post-viral illnesses and the realities of establishing a specialist independent service.”
“We explore why so many patients with Long Covid and ME/CFS feel abandoned by the current healthcare system, and how Dr. Kane’s personal experience with her daughter’s illness drove her to leave a 25-year NHS career to fill a critical gap in care.”
“and why international research investment is a vital beacon of hope for millions.”
Video | Thread
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Adam @abrokenbattery.bsky.social · 04/03/2026
Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.
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Adam @abrokenbattery.bsky.social · 04/03/2026
Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness. The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.
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Laura @laurajerramp.bsky.social · 03/03/2026
Dr Benita Kane’s video series ‘Long Covid,What you can do’ on YouTube is fantastic for #MECFS too. Great combination of interviews with top international scientists with ideas, tips, support for patients. #longcovid youtube.com/@lccwycd?si=... Click on the ‘live’ header for the full video series:
youtube.com
The Long Covid Clinic: What You CAN Do
The Long Covid Clinic is a channel focused on what you can do if you have the condition. Presented by Dr. Binita Kane and Helen Oakleigh and with occasional guests.
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Binita Kane @binitakane.bsky.social · 03/03/2026
Just over a year ago, I left my 25 year NHS career to dedicate my life to a group of patients who remain largely unseen and unheard by the NHS - people with severe #LongCOVID and Myalgic Encephalomyelitis (#ME). 🧵 youtu.be/pk00btt7CVs?...
youtu.be
Episode 8: "Treating ME and Long Covid with Dr. Binita Kane" | HLTH Chat Podcast
YouTube video by HLTH Compliance
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Long Covid Kids @longcovidkids.bsky.social · 28/02/2026
Can you spare one minute to support children with Long Covid today? Use our template to write to your MP. longcovidkids.eaction.org.uk/awarenessday #LongCovidAwareness #ChildrensRights @lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social
longcovidkids.eaction.org.uk
Email your MP about Long Covid Awareness Day
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Tessa Munt MP 🔶 @tessamunt.bsky.social · 05/02/2026
Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation. The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
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Tessa Munt MP 🔶 @tessamunt.bsky.social · 26/01/2026
We desperately need good data to make the case for ME to government. The Big Survey - designed with #pwME for #pwME will be a great help. If you've got ME or ME-like symptoms as part of long Covid, do consider taking part. But, remember that the Big Survey closes tomorrow, Tuesday. 👍🏾
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Long Covid UK @longcoviduk.bsky.social · 21/01/2026
Reminder! Happening today at 8pm GMT. It will be recorded if you cannot join the live session. @binitakane.bsky.social
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Karen Hargrave @karenlhargrave.bsky.social · 15/01/2026
This from @nickbenton.bsky.social brings back memories of reading books in 10 min daily chunks when my ME symptoms were worse. It’s brilliant seeing Nick starting his own blog after writing a guest piece for @thereforme.bsky.social last year. A recommended read! open.substack.com/pub/theperso...
open.substack.com
When the page went quiet
Reflections on reading before and after ME
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Prof Christina Pagel @chrischirp.bsky.social · 08/01/2026
It was not a super flu year and why I think government and NHS messaging was wrong and counterproductive - my latest post christinapagel.substack.com/p/it-was-not...
christinapagel.substack.com
It was not a super flu year
Update on flu and covid in England
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Karen Hargrave @karenlhargrave.bsky.social · 26/12/2025
Today James turns 39 🎈 It’s a hard day for us both, but also a time to think about how, despite the challenges, I’m so lucky to have had this wonderful man in my life for the past 12 years. In lieu of gifts we’ve been raising money for Edinburgh University’s ME research 👨‍🔬
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Nick Benton @nickbenton.bsky.social · 20/12/2025
Hi! I've started a free Substack - The Personal ME - about myalgic encephalomyelitis (ME). My first post is about my cognitive dysfunction - what it feels like and why explaining it can be maddening: thepersonalme.substack.com/p/the-day-my... If you enjoy it, please subscribe!
thepersonalme.substack.com
The day my brain shut down: my experience of ME cognitive dysfunction
Exploring the nebulous symptoms I've had for five years
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Clean Air Classrooms #CleanAirForLife @cleanairclassrm.bsky.social · 12/12/2025
FLU is in the AIR 🇬🇧 schools " We haven't done anything different. ...wash hands" 🤔 What lessons need learning from the pandemic? Give every child Every teacher Family Healthcare Workers #CleanAirIndoors #Ventilation #AirFiltration Wear a respirator youtu.be/WxEssOeEsVk?...
youtu.be
Indoor air systems crucial to curbing spread of viruses, aerosol researchers say | 60 Minutes
YouTube video by 60 Minutes
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David Osborn @safedavid3.bsky.social · 07/12/2025
Brilliant article by Rebecca Thomas (the Independent): tinyurl.com/yksjxj5b and Victoria Macdonald (Channel 4 News): tinyurl.com/3dn8mwx5 They've covered the 'formalin scandal' brilliantly. #1/21 @channel4news.bsky.social @the-independent.com @vsmacdonald.bsky.social @rebeccasmt.bsky.social
Excellent report by Rebecca Thomas which exposes the scandal of continued use of formalin in healthcare, lax regulation by the HSE and widespread breach of the COSHH Regulations IMHO.
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 03/12/2025
The final main thing @binitakane.bsky.social and I discussed in our YouTube chat 👇 was appetite. We were running out of time so we whizzed through a couple of points, but in this latest blog, I provide some more info: Appetite: lc-sc.co.uk/bodily-syste... 🧵
lc-sc.co.uk
Appetite
Many systems are (potentially) affected in long COVID and the same symptoms can be explained by dysfunction in any one of them. This blog is about appetite.
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Dr Jo Greer @drjogreer.bsky.social · 27/11/2025
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
theredtreeandme.substack.com
Red Leaves and Messages of Hope @ Chester Cathedral
By Jo and Nick Greer
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Kit Yates @kityates.bsky.social · 23/11/2025
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.” Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com observer.co.uk/news/...
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Adam @abrokenbattery.bsky.social · 21/11/2025
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
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Adam @abrokenbattery.bsky.social · 20/11/2025
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
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Trish Greenhalgh @trishgreenhalgh.bsky.social · 20/11/2025
What Martin said. Independent SAGE were not cranks, not extremists, not over-reacting. #covidinquiry
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Martin McKee @martinmckee.bsky.social · 20/11/2025
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
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Binita Kane @binitakane.bsky.social · 19/11/2025
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well. Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents. youtu.be/wZFEUnjWgOA?...
youtu.be
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 17/11/2025
The third topic @binitakane.bsky.social and I discussed was episodes of low blood sugar patients often report, even though their home testing shows normal blood sugar, broken down more in this blog (as promised!): Blood sugar regulation: lc-sc.co.uk/bodily-syste...
lc-sc.co.uk
Blood sugar regulation
Many systems are (potentially) affected in long COVID and the same symptoms can be explained by dysfunction in any one of them. This blog is about blood sugar (glucose) regulation. Blood sugar is tigh...
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Mayor of London, Sadiq Khan @london.gov.uk · 16/11/2025
Here’s what you won’t hear from some commentators on social media: in the year to October, London recorded 10,000 fewer violent crimes leading to injury than it did in the twelve months before I was elected. More on the progress we’re making ⬇️ www.mirror.co.uk/news/politic...
mirror.co.uk
'London is world's best city - people claiming it's lawless hate its success'
'The fact that London has again been crowned greatest city in the world disproves everything our critics claim, and they can’t stand it', the London Mayor Sadiq Khan writes
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 13/11/2025
The 2nd thing @binitakane.bsky.social & I discussed was thirst. We barely scratched the surface of this fascinating appetite, explained more in this blog: lc-sc.co.uk/bodily-syste... Including: Blood volume Prostaglandins Acetylcholine Mast cells Dopamine Glutamate & other neurotransmitters 🧵
Cartoon of a lady lying in bed looking unwell. Around her is a cycle: symptom flare up / crash → more autonomic dysfunction → more RAS dysfunction → ↑ angiotensin 2 → ↑ thirst → drinking → prostaglandin E → ↑ malaise-related symptoms → symptom flare up/crash...etc
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ThereForME @thereforme.bsky.social · 13/11/2025
🚨 NEXT WEDNESDAY 19 NOVEMBER We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME. If you have the energy - an email to your MP asking them to attend can go a long way 🙏 Template in next post👇
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Binita Kane @binitakane.bsky.social · 12/11/2025
Thank you Harriett! This is so helpful ⬇️
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Justadutchguy | Convoy Goblin for Ukraine | NAFO @justadutchguy.bsky.social · 07/11/2025
USA Photo of the year
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Dr Jackie Turvey Tait @jaxtait.bsky.social · 08/11/2025
Happy World Ventil8 Day @profstevegriffin.bsky.social @sunny-rae1.bsky.social @binitakane.bsky.social ✅ #CleanAirEverywhere ✅ #MakeHopeNormalAgain
Logo of Greens Against Covid. Text: Greens Against Covid. World Ventil8 Day logo. Text: Clean air for health: Protection from pollution AND from infectious diseases. Collaborate to Ventilate. Symbols for Youtube, Instagram and X.  #WorldVentilateDay #Collabor8Ventil8 worldventil8day.com #CleanAirIsAHumanRight Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ. Colours - apple green, fair green, vivid azure and white.
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Long Covid Advocacy @longcovidadvoc.com · 08/11/2025
Exulansis -the moment you simply give up trying to explain the in‑between. 📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them. www.longcovidadvoc.com/post/exulans...
longcovidadvoc.com
Exulansis - The Gulf of Understanding
An Ongoing Battle for Adequate Treatment and Care: The Impact of Long Covid on Families' by Marianne Lynch.
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Mayor of London, Sadiq Khan @london.gov.uk · 08/11/2025
When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits. Due to our policies, we've done it in 9. In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
Mayor of London Sadiq Khan with colleague stood in front of C40 cities info board.
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Prof Christina Pagel @chrischirp.bsky.social · 06/11/2025
The early flu season in England continues to build, while the latest Covid wave continues to recede. Latest UKHSA hospital admission data up to 27 Oct.
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Long Covid UK @longcoviduk.bsky.social · 31/10/2025
Ep26 | Long COVID Clinic Fireside Chat with @binitakane.bsky.social & @helenoakleigh.bsky.social Hydration, Appetite & Blood Sugar in POTS 🗓️ Wed 5 Nov 18:00 GMT | 📺 YouTube Dr Binita Kane & @angryhacademic.bsky.social unpack low blood volume, thirst, “low blood sugar” sensations & hunger in POTS.
Promotional graphic for a YouTube livestream titled “Hydration, Appetite, and Blood Sugar in POTS.” On the left is Dr. Kane, and on the right is Dr. Harriet Carroll. Text below reads: “Dr. Kane talks with Dr. Harriet Carroll. LIVE: Wednesday 5th November 2025 18:00 (GMT).” Logos for The Long Covid Clinic and Long Covid Support appear in the center. Bottom banner reads: “The Long Covid Clinic – What You Can Do. YouTube @LCCWYCD.”
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