iiinova — where your digital self keeps evolving

Reposted by Gary Anderson

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 15/04/2026

Long COVID is significantly underreported across the globe. Long COVID has affected over 400 million people globally as of 2024, but it’s likely underreported—especially in low- and middle-income countries where data and access to care are limited. Source: archive.md/26rjh

Article from The Sick Times. Headline: “Long COVID is significantly underreported across the globe.” Written by Jamie Ducharme, April 14, 2026. Subheading: “Researchers and advocates are trying to change that.”

Image shows a woman wearing glasses and a face mask, with a patterned headscarf. Background features abstract artwork with virus-like shapes and grid patterns.

Caption credit: Miles Griffis / The Sick Times (image source: Pexels).

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Gary Anderson @grandsong.bsky.social · 18/04/2026

"In Pursuit of Understanding the Crash" After your bout with Covid, does it seem like you're losing ground? Losing more and more energy and never waking up refreshed? Lots of "horizontal time"?? Todd explains this well and MANY other symptoms go with this one. open.substack.com/pub/likeanno...

open.substack.com

In Pursuit of Understanding the Crash

What Post-Exertional Physiology Tells Us About ME/CFS

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Reposted by Gary Anderson

Tom Kindlon @tomkindlon.bsky.social · 18/04/2026

"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @kjohnstone.bsky.social (Apr 18, 2026) mecfs.substack.com/p/psychologi... #chronicillness #invisibleillness

Making sense of ME/CFS

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Psychologizing kids with asthma, in the past and today
Attributing physical illness to a neurotic personality isn't new.
K. Johnstone
Apr 18, 2026

When we struggle to make sense of how physical illness is dismissed and psychologized, it helps to remember that this problem isn’t new. Physical illness was also minimized and psychologized in the past, in ways that can seem ridiculous to us now. Looking to the past can help us get some perspective on our current struggles.

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Gary Anderson @grandsong.bsky.social · 07/03/2026

Thank you for writing this, Nick! It hits all the relevant points in a non-ambiguous way. 👏👏👏

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Reposted by Gary Anderson

Michael Stingl @neurostingl.bsky.social · 04/03/2026

Alle ähnlich gelagerten Geschichten, die ich kenne, sind deswegen eskaliert, weil die pure Möglichkeit, dass #MECFS vorliegen/überhaupt existieren könnte, negiert wurde. Das ist absolut kontraproduktiv und gelinde gesagt skandalös. www.sn.at/salzburg/chr...

sn.at

„Mit so etwas bist du bei jedem falsch“: Mutter von 14-jährigem Kind mit ME/CFS kämpft mit Behörden

Die Erkrankung der 14-jährigen Alissa blieb lange unentdeckt. Das brachte der Familie viel Ärger ein. Das Münchhausen-Syndrom Stand im Raum.

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Reposted by Gary Anderson

Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 26/11/2024

Ventilation 💨 "You wouldn't build a public building without fire prevention. You wouldn't make people eat contaminated food, and yet this concept of clean, fresh, uncontaminated air has just bypassed everybody." "There could have been HEPA filters put in" 5/

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Gary Anderson @grandsong.bsky.social · 06/03/2026

Sadly, as a former healthcare worker veteran with 42 years I'd have to say "Yes" there IS a bias towards NOT acknowledging #LongCOVID 's existence primarily in Healthcare administration, insurance, research, and (lately) funding.

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Reposted by Gary Anderson

Brenna Clarke Gray @brennacgray.bsky.social · 10/02/2026

I hope this message makes it to more pregnant people. Your placenta is a big ol’ vascular organ and if you looked at images of Covid-impacted placentas you would mask up *at least* in pregnancy.

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Reposted by Gary Anderson

Christophe Veltsos @drinfosec.bsky.social · 16/08/2024

Great set of FREE #CovidAwareness images created by @Scott_Squires (on X): "A few of the 170 'I Mask' series. (I still have to correct typos on a handful ). Please share, post, print out, post on walls, etc" Link to his Google Drive folder: drive.google.com/drive/folder... #CovidInformed #Images

Small thumbsize images of the more than 150 "I mask" [because] images created by Scott Squires. These are free to use.

Link to OP: https://x.com/scott_squires/status/1823832566912409779?t=-5S7CXN8NwwARbm4y0yjVA&s=09

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Reposted by Gary Anderson

Trust for America's Health (TFAH) @tfah.bsky.social · 16/01/2026

US Against Alzheimers' Brain Health Academy is back with a new series designed for clinicians and health leaders who want to stay at the forefront of brain health and dementia prevention. www.usagainstalzheimers.org/brain-health...

usagainstalzheimers.org

Brain Health Academy 2025

Affordable, evidence-based courses to equip healthcare and wellness providers with the knowledge and resources to help people reduce the risk of dementia and Alzheimer’s.

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Reposted by Gary Anderson

Tom Kindlon @tomkindlon.bsky.social · 31/07/2025

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice by @sazanajayadeva.bsky.social ‪& @dalupton.bsky.social journals.sagepub.com/doi/10.1177/... Screenshot from Science for ME weekly update #LongCovid #PASC

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice — Sazana Jayadeva and Deborah Lupton
"Epistemic justice for people with Long COVID and other contested illnesses will never be fully achieved until the medical profession can develop greater epistemic humility and takes steps to redress testimonial and hermeneutical injustice."

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Reposted by Gary Anderson

University of Minnesota Infectious Diseases @umn-idim.bsky.social · 26/07/2025

🚨 New National Guidelines Alert! Our very own Dr. Dimitri Drekonja together with colleagues just authored the IDSA guidelines for urinary tract infections. ID expertise from the University of Minnesota helping shape clinical care nationwide. 💪💊 #IDSky #UMNproud #UTI #MedSky #InfectiousDiseases

idsociety.org

Complicated Urinary Tract Infections (cUTI): Clinical Guidelines for Treatment and Management

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CNN @cnn.com · 27/07/2025

A harmful algal bloom, fueled by a marine heat wave, has been choking South Australia's coastline, turning once-colorful ecosystems filled with thriving marine life into underwater graveyards. Read more: cnn.it/3H9z0wu

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Reposted by Gary Anderson

Tom Kindlon @tomkindlon.bsky.social · 26/07/2025

"Using language to describe ME" From the Winter 2024 InterAction magazine of Action for ME #MEcfs #CFS #PwME

Star letter
Using language to describe ME
I think Helen explained severe ME
very well with the description
“Severe ME is like dragging around
a dead body and I’m both the
dead body and the person
dragging it around” (Interaction
117, p 21).
I often use the phrase “dragging
myself round like a corpse” when
asked how I’m doing. I also use the
analogy, “Someone turned up the
gravity!”
I like to stay positive and not feel
like I’m moaning all the time, so I
find dark humour and descriptive
language (and swear words!) very
useful to describe how I’m feeling
without seeming too negative.
I also find it useful to have
shorthand to use with close friends
and family to communicate easily
which state I’m currently in. For
example, “struggling” means I’m
able to get out of bed, but even
the slightest activity is incredibly
difficult, and “wrecked” roughly
translates as “Don’t expect me to
be able to move much or string
together a coherent sentence.”
They also understand that when I
say I’m “good”, “okay” or “not
bad” I mean it in a purely
comparative sense!
Nikki Pope
Age 46, ME for over 30 years

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Reposted by Gary Anderson

Te Ara Paerangi Com - Research Advocacy Capability @te-ara-paerangi.community · 14/05/2025

I'm reading @georgemonbiot.bsky.social and and Peter Hutchison's Invisible Doctrine: The Secret History of Neoliberalism. They offer this definition of capitalism. See alt text for more. I just finished The Internet Con: How to Seize the Means of Computation by Cory Doctorow. NFTs are now gone...

Screen shot of text: "Capitalism is an economic system founded on colonial looting. It operates on a constantly shifting and self-consuming frontier, on which both state and powerful private interests use their laws, backed by the threat of violence, to turn shared resources into exclusive property, and to transform natural wealth, labor, and money into commodities that can be accumulated."
This is from the book Invisible Doctrine: The Secret History of Neoliberalism by George Monbiot and Peter Hutchison. It is offered as a definition of capitalism. IMHO this is very useful in a variety of ways, not the least of which that it distinguishes capitalism from commerce. Many seem to think that commerce is capitalism rather than a form of trading that precedes capitalism by thousands of years.
By using their definition of capitalism as a lens through which to examine current govt. and industry actions around the world, a much clearer understanding can be gained. To pick a few, the current actions of the Trump led US government and the many policies the AoNZ govt has pushed through under urgency - including the new pay equity law.

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Ross McNally @rossmcnally.bsky.social · 13/05/2025

So the meat industry has beef with @georgemonbiot.bsky.social, but the three responses here merely double down on bullshit. 1) The FAI farms guy attempts to dodge Monbiot's criticisms with vague obfuscation, providing no clarity in his explanation. 🧵 1/2 www.theguardian.com/environment/...

theguardian.com

What’s the real beef over sustainable cattle farming? | Letters

Letters: Øistein Thorsen of FAI Farms, Aidan Harrison and Nelly Trevelyan of Yorkshire Organic Millers respond to an article by George Monbiot

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Reposted by Gary Anderson

Mike Melton @mikemelton.bsky.social · 01/05/2025

I love these too much. I just can't help myself with photographing them. Fiery-throated Hummingbird at Batsu Gardens, San Gerardo de Dota #CostaRica #birds #hummingbirds #nature 🌿

A small bird with shimmering green, blue, and golden feathers, a dark head, and a slender black beak perched on a light brown branch against a softly blurred background.

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Reposted by Gary Anderson

C.H. Romatowski @chromatowski.bsky.social · 23/02/2025

NIH recently found 1 in 22 ppl who’d had Covid developed ME/CFS. The “mild” form of that disease, as @julialmv.bsky.social’s graph shows, means losing capacity to do 50% of your daily activities. What would you give up? Friends? Time w/your kids? Could you cut work hours in half w/o losing yr job?

A stacked bar chart (oriented horizontally) labeled: Living with ME (myalgic encephalomyelitis / chronic fatigue syndrome)

Each horizontal bar is a disease status: Pre-ME, Mild ME, Moderate ME, Severe ME, Very Severe ME.

The width of each bar represents how much energy is available in each status (100, 50, 25, 12.5, and 6.25 respectively).

Each bar is divided into sections for how one might allocate their energy: hygiene & nutrition (gray); caregiving, cleaning errands (red); work (orange); exercise (yellow); friends (green); hobbies (blue); fun (purple).

With worsening ME, the hygiene & nutrition takes up a larger proportion of total available energy and the amount of energy available for all other parts of life shrinks.

Mild ME has most things cut in half, with exercise cut smaller.

Moderate ME removes exercise altogether, and everything else shrinks.

Severe ME has only tiny slivers of red, orange, green, blue and purple.

Very Severe ME has only a tiny sliver of green.

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Reposted by Gary Anderson

Long Covid UK @longcoviduk.bsky.social · 29/04/2025

At our webinar on our #LongCovid Clinics report with @longcovidkids.bsky.social, our Trustee @margaretohara.bsky.social talked about hidden demand for Long Covid care: “Hidden demand far outstrips visible demand. Referrals are NOT a good metric for demand.” Link to report below. #ClosingClinics

Screenshot from webinar showing image of Dr Margaret O’Hara at the top below which is a slide with a blue background with the Long Covid Kids and Long Covid Support logos in the top right. The slide is titled 08 Hidden Demand below which is a chart showing the hidden demand for Long Covid Services in Derbyshire Primary Care Network. Text on the right reads Hidden demand far outstrips visible demand Referrals are NOT a good metric for demand.

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Reposted by Gary Anderson

Maya Lindemann @mayalongcovid.bsky.social · 16/03/2025

#PedroPascalPapers Pedro Pascal as Neurological Manifestations of #LongCovid #LongCovidAwarenessDay

Pedro Pascal matched to ME/LongCovid research infographic
Long Covid Now Looks Like a
Neurological Disease
Scientific American, 2023
Covid protein found in neurons & astrocytes up to 3 months after initial infection in those with neuropsychiatric symptoms. Autopsies have found Covid RNA in the brain up to 8 months after infection.
Those with cognitive problems have immune-related abnormalities in their cerebrospinal fluid & higher amounts of immune cells in the brain that should not be there, causing inflammation.
"(Long Covid) is not a psychological or psychosomatic disorder; this is a neuroimmune disorder"

Pedro Pascal matched to ME/LongCovid research infographic
Current update on the neurological manifestations of long COVID
PubMedID: 39850323, 2024
Neuroinflammation: elevated levels of pro-inflammatory cytokines & autoantibodies →chronic inflammation in central & peripheral nervous systems.
Latent virus reactivation exacerbates & viral reservoirs may perpetuate inflammation.
Endothelial dysfunction damages blood brain barrier.
Hypometabolism likely due to mitochondrial dysfunction & oxidative stress are found in high ACE2 areas such as brainstem, hippocampus, olfactory bulb.
Autonomic dysfunction is possibly due to damage to the brainstem & vagus nerve. Genetic susceptibility

Pedro Pascal matched to ME/LongCovid research infographic
Persistence of spike protein at the skull-meninges-brain axis may contribute to the neurological sequelae of COVID-19
Cell, 2024
The accumulation of SARS-CoV-2 spike protein in the skull-meninges-brain axis of human COVID-19 patients was observed, persisting long after viral clearance.
Biomarkers of neurodegeneration were elevated in the cerebrospinal fluid from long COVID patients.
Proteomic analysis of human skull, meninges, and brain samples revealed dysregulated inflammatory pathways and neurodegeneration-associated changes.

Pedro Pascal matched to ME/LongCovid research infographic
Microglia dysfunction, neurovascular inflammation & focal neuropathologies are linked to... systemic inflammation in COVID
Nature Neuroscience, 2025
Microglial dysfunction, mitochondrial failure & cell death occurs at sites of Covid-associated vascular inflammation. These pathologies are found in several areas of the brain, but more severe in the medulla, where key autonomic centers are localized.
Covid induced inflammation may lead to gliovascular failure in the brain, which could be a common contributor to COVID-19-related neuropathologies

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Gary Anderson @grandsong.bsky.social · 28/11/2024

#LongCovid syndrome in children: neutrophilic granulocyte dysfunction and its correlation with disease severity

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Gary Anderson @grandsong.bsky.social · 28/11/2024

"Because younger and middle-age people are the most frequently and severely affected by Neuro-PASC, whether this could potentially translate into a higher or earlier incidence of subsequent cognitive impairment and neurodegenerative diseases in this population is a matter of serious concern"

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Reposted by Gary Anderson

🔬🔭🧭👨‍💻🏞️👾🤖🌡️ @dcrinyyc.bsky.social · 27/11/2024

For people to accept vaccinations, they need to accept there is a small risk of adverse outcomes, for a much larger benefit. This is a rational response. The same is not true of pretending that a dangerous pathogen is not pecking away at our population for the sake of "normalcy" & profit.

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Gary Anderson @grandsong.bsky.social · 28/11/2024

"It takes so long to be found... "

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LET'S AIR @nousaerons.bsky.social · 27/11/2024

Deployment of 100 monitors in Riga 1st Hospital: find out how to ensure a safe indoor environment for patients and staff, particularly in high-risk areas and how to reducing energy consumption and improving operational efficiency. pro.aranet.com/riga-first-h...

pro.aranet.com

Case Study: Aranet Sensors at Riga First Hospital - Aranet

Aranet sensors optimize indoor climate and energy efficiency at Riga First Hospital by providing accurate, real-time monitoring of environmental conditions. About the hospital Riga First Hospital, Lat...

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Gary Anderson @grandsong.bsky.social · 27/11/2024

Hi Sabrina! I would appreciate being added to this ME & LC community. Ty. 🙂

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Rose 🌹 @rose.bsky.team · 27/11/2024

We want Bluesky to be a great home for journalists, publishers, and creators. Unlike other platforms, we don't de-promote your links. Post all the links you want — Bluesky is a lobby to the open web.

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Gary Anderson @grandsong.bsky.social · 27/11/2024

Thank you, Katharina! I'm relieved and comforted seeing you here on Blue Sky. Hopefully, more our Berlin peeps will be here soon. 🫶

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Gary Anderson @grandsong.bsky.social · 27/11/2024

Well, AI DOES seem like it's developing into a silicon-based organic AI lifeform! 😁

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tern @1goodtern.bsky.social · 26/11/2024

It's just nuts how many illnesses are doing this here since 2021. Hepatitis D, England.

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Scribbler Pen @scribblerpen.bsky.social · 26/11/2024

#LongCovid + #NHS waiting lists can explain this in #DWPWhitePaper: "The UK is also the only major economy that has seen its employment rate fall over the last five years, which has been largely driven by a significant rise in the number of people out of work due to long-term ill health" #DWP #Work

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Chantzy @chantzy.bsky.social · 27/11/2024

Ok, this made me laugh. I love that someone had the research question: "Why are fluorescent neon, artificially coloured, highly- processed rainbow fruit loops produced by big money brands bad for our bods?"

Economist screenshot of an artificially coloured brightly rainbow bowl of fruit loops. Headline - scientists are learning why ultra-processed foods are bad for you

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Jutta Reinke @juttareinke.bsky.social · 15/05/2024

💙 jetzt und sowieso: #unitetofight

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Trish Davis @ozfish.bsky.social · 10/11/2024

Cochrane is stubbornly refusing to withdraw the 2019 review recommending exercise therapy for ME/CFS despite being supplied with ample evidence that it doesn't work and causes harm for #pwME with post exertional malaise. Please sign the petition: chng.it/zTZ7vX9Czd

chng.it

Can you spare a minute to help this campaign?

Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

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