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CrunchME

@crunchme.bsky.social
701 followers 6 following 13 posts

CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. 📍 crunchme.org

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CrunchME @crunchme.bsky.social · 06/05/2025
This week we are highlighting 7 different clinical trials across Long COVID, ME/CFS and POTS that are ✨ recruiting participants ✨ These are happening across USA 🇺🇸, UK 🇬🇧 and Australia 🇦🇺 If you'd like to find out more, the links are here 👇 crunchme.notion.site/clinical-tri...
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CrunchME @crunchme.bsky.social · 07/04/2025
As our Clinical Trials database continues to grow, we will be spotlighting some of the treatments being tested around the world, for Long COVID, ME/CFS & other IACCs 💊 Thank you to @mildtin.bsky.social, our clinical trials lead, for putting these together! A visual thread 🧵 #MECFS #LongCovid
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Yann (ME/LC) @me-cfs.bsky.social · 25/12/2024
ME/CFS Publications have steadily increased for a while. Despite this, ME is still one of if not the most underfunded common disabling illness on earth. Source: @crunchme.bsky.social #MEAwarenessHour
Graph showing increase
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Ror Preston @rorpreston.bsky.social · 30/11/2024
Currently writing a fundraising pitch for CrunchME 😀💙 @crunchme.bsky.social #MECFS #LongCovid #IACC
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Ror Preston @rorpreston.bsky.social · 24/11/2024
Absolutely delighted to welcome Elisa @mildtin.bsky.social to the volunteer team @ CrunchME 🤝🙌 #MECFS #LongCovid #IACC
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Ror Preston @rorpreston.bsky.social · 23/11/2024
We've just added a new table to CrunchME, showing government funding and policy announcements 🏛️ (Follow @crunchme.bsky.social if you wanna) Hopefully useful knowledge for helping to pressure governments slipping behind into action! You can check it out here 👇 crunchme.notion.site/1462a60c4996...
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CrunchME @crunchme.bsky.social · 21/11/2024
We are now on Bluesky! 🦋 CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙
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