iiinova — where your digital self keeps evolving

Reposted by Margaret O’Hara

Otto English @ottoenglish.bsky.social · 4h

All authoritarian cults resemble one another. All democracies are democratic in their own particular way.

Reposted by Margaret O’Hara

Jon Douglas @atranscendedman.bsky.social · 13h

Researchers found that SARS-CoV-2 spike and nucleocapsid proteins directly bind a pancreatic protein, triggering amyloid buildup, inflammation, and insulin-producing cell damage in monkeys. A potential mechanism for post-COVID diabetes. www.nature.com/articles/s41...

nature.com

SARS-CoV-2 seeds IAPP aggregation and β-cell failure - Signal Transduction and Targeted Therapy

Signal Transduction and Targeted Therapy - SARS-CoV-2 seeds IAPP aggregation and β-cell failure

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Grudgie the Wail @grudgie.bsky.social · 3h

In a normal information society, the big reveal that Exxon Mobil knew with certainty climate change was real from their own studies but poured money into denial groups would have ended the debate forever

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Long Covid SOS @longcovidsos.bsky.social · 7h

We have written to the JCVI before about the evidence that vaccination reduces the risk of developing Long Covid. We’ve now written AGAIN following their advice for autumn 2027 2 million #pwlc in the UK. Yet #LongCovid isn’t mentioned in the latest advice. www.longcovidsos.org/post/respons...

longcovidsos.org

Response to the JCVI’s Autumn 2027 COVID-19 Vaccination Advice

On the 9th of October we wrote to the Joint Committee on Vaccination and Immunisation (JCVI) about their Autumn 2027 COVID-19 Vaccination Advice.

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Margaret O’Hara @margaretohara.bsky.social · 3h

Omg he’s just a big f*cking baby!!! How can American politicians, even Republicans, suffer the embarrassment? What will it take?

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Reposted by Margaret O’Hara

Jon Douglas @atranscendedman.bsky.social · 08/10/2026

Technical University of Munich researchers studied 102 Long COVID patients and found that weaker muscles and poorer recovery were linked to blood vessel dysfunction. Higher SARS-CoV-2 spike antibodies were also associated with muscle impairment. www.nature.com/articles/s41...

nature.com

Handgrip strength parameters as predictors of post-COVID syndrome severity and muscle weakness in an observational study - Scientific Reports

Scientific Reports - Handgrip strength parameters as predictors of post-COVID syndrome severity and muscle weakness in an observational study

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Margaret O’Hara @margaretohara.bsky.social · 22h

Recommend this excellent satirical article, for those who’re fed up of seeing health inequality described but not really addressed

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/10/2026

How (not) to Write about Health Equity-- an excellent satirical article published in @plosglobalpublichealth.org 🧪 An encapsulation of the feel-good, do-nothing approach to health equity; the lived experience paragraphs resonated most. Read the whole article here: journals.plos.org/globalpublic...

Praise “intersectoral and interdisciplinary collaboration” as the panacea. Everyone can collaborate: ministries, health professionals, researchers, civil society, philanthropic foundations, and commercial actors whose business models actively harm public health. Do not discuss conflicts of interest. Do not ask who has power in the room. Oppression disappears once everyone is brought to the table – provided no one asks who owns it, who paid for it, or who keeps poisoning the food.

Once the table is set, invite “lived experience” into the conversation. Invite structurally marginalised people to share their stories. Thank them for their courage. But do not let them decide what should change. Lived experience should move the room, not move resources or authority.

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Mark Faghy @profmarkfaghy.bsky.social · 08/10/2026

We're looking for a Research Associate in Human Physiology, Immunology, and Long COVID to join our research team at Loughborough University: lnkd.in/e3uBjs9z Please share widely!

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Peter Gleick @petergleick.bsky.social · 08/10/2026

Siri, define "sycophant".

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Anil van der Zee @anilvanderzee.bsky.social · 08/10/2026

Sometimes it can feel like things are standing still. Especially for severe ME patients who can't easily participate in research. But in the Netherlands, they are being included. archive.today/8DqOm #pwME #longcovid #QVS #lyme #PAIS #severeME

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Reposted by Margaret O’Hara

Nature @nature.com · 07/10/2026

None of this year's science Nobel Prizes have gone to women. The number of these prizes to go to women remains at 27 out of more than 600. See how many you can name in our quiz: www.nature.com/immersive/d4...

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Patient-Led Research Collaborative @patientled.bsky.social · 07/10/2026

PLRC co-founder @ahandvanish.bsky.social spoke to @thesicktimes.org about the importance of illness duration in validating #LongCovid biomarkers: “If your study has patients that are all over the place in terms of illness duration, that’s going to complicate the findings”

thesicktimes.org

VIPER aims to fast track Long COVID biomarkers. Here’s how it works. - The Sick Times

Led by researchers at UCSF, the research program plans to validate promising candidates for noninvasive tests that can be used to advance clinical trials.

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Dan Neidle @danneidle.bsky.social · 07/10/2026

We'll have a full analysis of the Conservatives' proposed inheritance tax cuts tomorrow. But, for now, three charts. 1. Who would benefit from the cuts?

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ME/CFS Science @mecfsscience.org · 07/10/2026

1) 🔬 New funding opportunity for ME/CFS research! Solve is now accepting submissions for their Ramsay Research Grant Program! Funding is between $50.000 - $150.000 depending on the category. The deadline to apply is Friday, November 13, 2026.

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Reposted by Margaret O’Hara

BuDS Disability Service @buds-disability.bsky.social · 07/10/2026

The Covid wave in England is growing very fast, and the overall Covid risk level has been raised to High. As of 4 October, 1 in every 175 people were infected, up 34% on the previous week. We continue to recommend that Covid-Cautious people take full precautions in ALL indoor places. A thread 🧵

Covid wave rapidly growing in England.
Risk level now High with 1 in 175 infected.
PPE masks recommended indoors.

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Reposted by Margaret O’Hara

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 06/10/2026

New paper: Long COVID exposes a huge blind spot in how governments define “security.” We respond quickly to sudden, visible crises, but seem to accept mass disability as normal, even while it puts growing pressure on healthcare, the workforce, the economy and society. Published: 28 September 2026

link.springer.com

The securitization of global slow-onset risks/threats: long COVID, a case study - Globalization and Health

This paper investigates why Long Covid, despite affecting millions globally and posing a serious threat to public health and economic stability, remains largely absent from contemporary security agend...

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Didier @medidier.bsky.social · 06/10/2026

I think every #pwME (from LC or before) has experienced the trauma and sheer surprise and shock of realising you are left to rot. But one thing I will never get my head around is how the indifference remains intact despite being an illness that chains children to a bed, in worst hell imaginable.

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Long Covid UK @longcoviduk.bsky.social · 06/10/2026

Last weekend, 16 members of the Hollinghurst and Hole families set off on their annual family fundraising walk. This year, they very kindly decided to raise money for Long Covid UK, as a member of their family has been impacted by the illness. #Fundraisingheroes #LongCovidUK

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Margaret O’Hara @margaretohara.bsky.social · 06/10/2026

I remember once at a maternity related conference, so a room full of women, a delegate saying I have a headache does anyone have any painkillers. Cue a mass rummaging in handbags, about half of delegates did indeed have painkillers. Women just carry them around bc we’re often in pain.

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The Tennessee Holler @thetnholler.bsky.social · 05/10/2026

😕 🌎 🔥

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Adam @abrokenbattery.bsky.social · 06/10/2026

“The harm you have done is incalculable. It’s not me who has been spreading great harm around the world. It’s you, mate.” George Monbiot on being accused by Prof Michael Sharpe of “spreading” #LongCovid by writing about it and why he started writing about the #MECFS scandal.

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Miles W. Griffis @mileswgriffis.bsky.social · 05/10/2026

"These Long COVID Superheroes may not be able to leap tall buildings in a single bound, but they’re showing us a world where listening to your body, standing up for your needs, resting, and leaning on others is true bravery" 📝: @heatherhogan.bsky.social thesicktimes.org/2026/10/05/k...

thesicktimes.org

Kids with Long COVID co-created their own superhero comic book - The Sick Times

Long Covid Superheroes showcases the bravery of asking for help, resting, and being compassionate with yourself and others.

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Reposted by Margaret O’Hara

Tom Kindlon @tomkindlon.bsky.social · 05/10/2026

I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" www.sciencedirect.com/science/arti... #MEcfs #PwME #epatient #epatients #CFS

Abstract
It is usually assumed that patient and doctor know strictly different things: the patient knows the phenomenological aspects of their illness, and the doctor knows its medical aspects. I present a case study, that of myalgic encephalomyelitis, wherein, due to severely dysfunctional institutional knowledge production and transmission mechanisms, the medical aspects of the illness are on the whole better understood by sick people than by their doctors. Indeed, lay scientists within the patient community disseminate and produce science on their disease, ensuring that patients as a whole have reliable knowledge about their disease. By contrast, systemically produced and systemically maintained ignorance on the part of medical professionals is the norm, and may be beyond the specific case study I present.

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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 05/10/2026

"COVID-19 Linked to Increased Risk of Six Allergic Conditions" COVID-19 infection was linked to an increased risk of 6 newly diagnosed allergic conditions: - Atopic dermatitis - Asthma - Food allergy - Rhinoconjunctivitis - Medication allergy - Urticaria Archive: archive.li/fUxiO

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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 05/10/2026

Check out our conference poster on defining PEM: positivenutrition.ie/wp-content/u... Coauthors: @naomidharvey.bsky.social @ciarawrightphd.bsky.social @sunsopeningband.bsky.social Full paper currently in draft! 🧵

positivenutrition.ie

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The Conversation UK @uk.theconversation.com · 05/10/2026

For decades, we couldn’t trace the link between new fossil fuel projects and their damage to people and planet. But now we can. 👉 Read the full story: tcnv.link/2Y5f2BN 💬 Sign-up here to get more stories like this in your email inbox: tcnv.link/reaS3iB

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Long Covid UK @longcoviduk.bsky.social · 05/10/2026

ONE WEEK LEFT to apply for the position of in-person peer support project assistant! We're looking for an organised, enthusiasticself-starter to build on the success of this work and help grow attendance. Find out more and apply here: longcoviduk.livevacancies.co.uk#/job/details...

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Reposted by Margaret O’Hara

Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 04/10/2026

🧵 on this "COVID conscious = OCD" rhetoric that's going round. I say this as someone who has been diagnosed with OCD and suffered quite badly with it in the past. OCD is so badly misrepresented in the media that people have no clue what it actually is.

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worm @rfksbrainworm.bsky.social · 02/10/2026

If you ever wondered why visible light is those particular wavelengths, it's because life evolved to see in the narrow range where water is transparent

Diagram of absorption of emf by water. There's a gap right that dips in the 500 nm range

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Reposted by Margaret O’Hara

Long Covid UK @longcoviduk.bsky.social · 02/10/2026

📢 Help shape the future of care for Long COVID and ME/CFS! The HERITAGE study is looking for people with lived experience of Long COVID and ME/CFS to take part in our study! As a part of Work Packages 1 and 2, you will: ✅ Complete 5 questionnaires over 12 months ✅ Share your symptoms and experie…

Image with a header saying Health Effects From Infection Sequelae Tailoring Services and Advancing Guidance. Logos for the Heritage study, the University of Leeds, the University of Leicester, the University of Oxford and the NIHR are also shown. Main text reads Why is Heritage needed? Care for Long Covid and ME/CFS varies across the NHS. Heritage will explore what services are provided, what people experience, what works, what needs to change. Your experiences can help inform the future of Long Covid and ME/CFS care. There is a QR code above which it says Join the Heritage Study. A website address is also given of https://heritage.leeds.ac.uk/join/

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Eric Topol @erictopol.bsky.social · 02/10/2026

The list of reported benefits of the GLP-1 drug family that are weight-loss independent continues to grow. My tally with citations

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Orla Hegarty @orla-hegarty.bsky.social · 01/10/2026

Remember those really cheap, DIY fans with filters for classrooms? They work! #CorsiRosenthal pubs.acs.org/aeacd5/artic...

Image of air cleaner in the link with graph showing >60% reduction in particle levels

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Margaret O’Hara @margaretohara.bsky.social · 01/10/2026

Did he use AI or did he use the knowledge of clinician scientists who wrote up the papers that the AI found in the published scientific literature? If they hadn’t done that work there would have been nothing for the AI to find.

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Alf Dubs @alfdubs.bsky.social · 30/09/2026

I'm so very sad to hear of the death of Esther Ranzen who played an important role in reuniting me with Nicky Winton - the man who saved my life. It's so desperately sad that she couldn't choose assisted dying as was her wish.

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South-East London for Europe (Selfe) @selfe.bsky.social · 30/09/2026

#NigelFarage has been named Terrorists’ PR Professional of the Year after once again demonstrating that people can be made to #fear a terrorist attack without terrorists even having to organise one. #ReformPanic

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Robert Saunders @robertsaunders.bsky.social · 30/09/2026

It’s a mark of the corruption of our whole way of thinking about the world that trying to meet a planetary emergency is routinely described as “ideological”, while continuing to accelerate it is presented as “pragmatic” and “economic”.

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Kristin Meekes @kmeekes.bsky.social · 29/09/2026

The pandemic should have led to clean indoor air, treatments for long covid and related illnesses, next gen vaccines, normalization of masking, mandatory respiratory protection in healthcare, sick leave, and a paradigm shift around what infections do to people

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J. Offir, PhD @joffirphd.bsky.social · 29/09/2026

A new study "linked 2.3 million new cancer cases to an infection. Most were caused by just five pathogens: Helicobacter pylori (4%), human papillomavirus, or HPV (4%), hepatitis B (2%), Epstein-Barr virus (1%) and hepatitis C (under 1%). These infections can... theconversation.com/one-in-eight...

theconversation.com

One in eight cancers are likely caused by an infection worldwide – new study

Four viruses and one bacteria were responsible for 12% of the world’s cancer cases in 2024. Does this mean they’re preventable?

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Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 29/09/2026

Adebisi et al. Tropical Medicine and Health (2026) 54:214 doi.org/10.1186/s411...

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Long Covid Kids @longcovidkids.bsky.social · 29/09/2026

🧡 A little bit of LCK orange is heading to #WOY2026. We’re delighted that our Founder and CEO, Sammie McFarland, has been invited to this year’s Women of the Year Lunch and Awards. Since founding LCK in 2020, Sammie has advocated alongside children, young people, families & colleagues

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Reform Party UK Exposed @reformexposed.bsky.social · 28/09/2026

Reform UK Councillors, know the 5 stages.

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Dr Elisa Perego @elisaperego78.bsky.social · 28/09/2026

My new research is out. "Long Covid perspectives" addresses the recognition of #LongCovid as disease entity and patient-led advocacy movement, the paradigm shifts driven by LC advocacy-research, and challenges ahead (Perego 2026, preprint 2023) www.degruyterbrill.com/document/doi...

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The Vertlartnic @thev.bsky.social · 28/09/2026

For Decades Doctors Thought Post-Infection Syndromes Were Hysteria, Then Stress, Then Trauma, Before Finally Discovering They Were All In The Mind

A doctor reassuring their patient that they're just crazy
Headline:
For Decades Doctors Thought Post-Infection Syndromes Were Hysteria, Then Stress, Then Trauma, Before Finally Discovering They Were All In The Mind
Story by Sorin Malvolio and Frunk Wurlitzer

Photo from Adobe

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Dr Charlie Gardner @charliejgardner.bsky.social · 28/09/2026

I wish this was better understood in the scientific community, and scientists would stop approaching policymaking as an information deficit problem We don't get the policies we need through more evidence, but by limiting the power of those opposed to them

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Greens Against Covid @greensagainstcovid.bsky.social · 26/09/2026

Whereas in the UK, pretty much nobody can get it unless they pay a hefty price to get it privately.

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