iiinova — where your digital self keeps evolving

Reposted by C Has Long-Covid

Dr. Lucky Tran @luckytran.com · 14/04/2025

With current border policies, it is unethical to continue holding so many important science conferences in the US. In addition to moving conferences to safer international locations, US organizers must reorganize meetings around remote participation.

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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · 14/04/2025

“If you look at the tests they have the profile of a person with very early Alzheimer’s disease. Do they have Alzheimer’s disease? We don’t know.” apple.news/AjLJlXpTWR9G...

In younger people such as Todd, complaints of brain fog and cognitive difficulties may be intertwined with, or stem from, other common long-Covid symptoms, such as fatigue and pain, doctors say.
Dr. Gabriel de Erausquin, a neurologist at University of Texas Health San Antonio, recently published a study that found the risk of moderate to severe cognitive impairment in older adults with long Covid was double that of younger ones.
For those long-Covid patients over 57, the symptoms associated with cognitive difficulties look much like early dementia, he says.

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jenny tightpants @jtp.bsky.social · 13/04/2025

one thing i think is cool is that if you are interested in something a particular scientist is doing or want to tell them something, you can usually just email them about their work and they'll reply.

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Walker Bragman @walkerbragman.bsky.social · 10/04/2025

Trump’s public health picks—Kennedy, Bhattacharya, Makary, Nesheiwat—were put in their roles to dismantle science. Because the American political right views it as a threat to business. That’s the lesson they have taken from COVID.

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jonathan (pwME) @crumpledleaf.bsky.social · 09/04/2025

The subject of this article is a friend of mine. His circumstances are utterly heartbreaking and yet, somehow, he remains a warm and kind young man. It would mean something to me if you read his story.

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Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 07/04/2025

Long COVID and viral reactivation are linked. Our latest trial focuses on repurposing existing, broad spectrum antivirals to reduce symptoms in adults with #LongCOVID. Our clinical trial is currently recruiting! Email CoreResearch@mountsinai.org to inquire

Volunteers Needed
Long COVID
Clinical Trial
Icahn
School of Medicine at
Mount
Sinai
Do you have a confirmed diagnosis of Long Covid?
You may be eligible for a 6 month drug clinical trial involving antiviral drugs
You may qualify if:
• You are over 18
• You have a diagnosis of Long Covid from a physician
• You are HIV negative
• You are able to commute to our office
• Other criteria are considered as well
| Participation Involves:
• Being randomly assigned into one of three groups
• Truvada (drug)
• Selzentry (drug)
• Placebo
• Attend 6 in-person study visits
• Blood and saliva samples
• Completion of surveys online
Study goal:
We are investigating if antiviral medications have an effect on
Long Covid symptoms
IRB Approved
Effective Date: 12/17/2024
End Date:7/22/2025
Please email
CoreResearch@MountSinai.org
for more information
Location: 5 East 98th St, SB-18
Lead Researcher: David Putrino, PT, PhD
STUDY- 24-00088
Participation will be compensated up to $300

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Danielle Beckman @daniellebeckman.bsky.social · 06/04/2025

Remember the Nazi book-burning campaigns in 1933? It is back now, but worse: we are losing crucial healthcare digital data that is unarchivable.

Massive, Unarchivable Datasets of Cancer, Covid, and Alzheimer's Research Could Be Lost Forever. Days before Robert F. Kennedy Jr. announced that 10,000 HHS staffers would lose their jobs, a message appeared on NIH research repository sites saying they were "under review."

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Jessica Ellis @baddestmamajama.bsky.social · 04/04/2025

Imagine you wake up and find you have cancer. It’s devastating to your body, your life. And at least twice a week, you see articles titled “The world has moved on from cancer.” When you go to doctors, they say, oh cancer? Have you tried SSRIs? Your friends occasionally ask if your cancer is better.

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Naomi Klein @naomiaklein.bsky.social · 02/04/2025

This is, in large part, pandemic revenge. As far as these oligarchs are concerned, all science does is tell them stuff they cannot do. They can't keep spewing carbon. They can't keep businesses open as usual when millions are dying. They have concluded that research is the enemy of profit.

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dona 🍤🥔 @aldonanana.myatproto.social · 02/04/2025

People like this author always treat people who take Covid precautions seriously with such suspicion, meanwhile everyone quoted in this article seems normal and grounded, if not outright cool as hell.

“There are some things that I miss,” Tess told me. “I miss a good punk-rock show where we’re all sweaty in the pit and that kind of stuff. That’s not necessarily something I’m gonna do now, but I have an approximation of it when I go to an outdoor punk show and I let everybody else go in the pit.” Nancy told me the at she and her husband still have active social lives. They converse with neighbors from a distance: “we just holler and say hi to each other. It’s not like we’re living as monks or something, in total isolation.” And then she has all the people from her Zoom groups. “I think I have more friends now than I’ve ever had in my life,” she said.

Politics present another potent source of conflict. Many COVID-conscious people are progressives and identify as advocates for those with disabilities. In Instagram, calls for staying COVID safe may be tethered to appeals to anti-racism, anti-capitalism, and anti-Zionism. For a set of people who feel a broader sense of crisis in America and despair at recent actions of the U.S. government, these concerns are additive. Having to accept the risk of getting COVID, Wilde told me, is just one more way “to feel like someone is trying to force something on you that you don’t want.”

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Rebecca Nagle @rebeccanagle.bsky.social · 01/04/2025

(1/4) Long COVID showed me the bottom of American healthcare. My reporting for The Atlantic is out today. www.theatlantic.com/health/archi...

theatlantic.com

Long COVID Showed Me the Bottom of American Health Care

Access to clinics has only gotten patchier as attention to the disease has faded.

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Danielle Beckman @daniellebeckman.bsky.social · 02/04/2025

"Sick and disabled people have been pushed to the margins of our society for a long time. There was a moment during the pandemic when I saw our collective concern focused on the ill. Living with long COVID, I sometimes wonder where that concern went." #LongCovid at @theatlantic.com

Long COVID Showed Me the Bottom of American Health Care
Access to clinics has only gotten patchier as attention to the disease has faded.

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jamelle @jamellebouie.net · 28/03/2025

RFK is a eugenics freak first and foremost and everything falls downstream from that. he *wants* excess deaths. he thinks that only the "fit" should survive.

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#9 Dream @gayfabfourfan.bsky.social · 31/03/2025

⬇️ Must-read interview with Dr. Špela Šalamon, MD, a physician and biomedical scientist specializing in the genetics of complex and degenerative diseases. “Organ and vascular damage without obvious symptoms…affects more than 50% of those infected.” whn.global/five-years-o...

whn.global

Five Years of COVID: What Comes Next, Dr. Šalamon? - WHN

Originally published by Christian Klosz on Das Medium, this interview has been translated and republished with permission. Five years into the COVID-19 pandemic: What are the current challenges, what ...

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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · 14/11/2024

Postscript. A laissez-faire approach to pandemic management contributed to the Biden-Harris loss to Trump. The latter's pandemic supports were cut, austerity measures artificially being imposed by pretending COVID was over, causing further economic damage. newrepublic.com/article/1881...

newrepublic.com

Ignoring Public Health May Have Cost Democrats the Election

The Biden administration cut pandemic-era health benefits, and the Harris campaign failed to present any comprehensive health care reform policies. This was not an inspiring message for voters.

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Dr. Katja Thieme (she/they) @katjathieme.bsky.social · 29/03/2025

“I struggle to help students revise AI generated text because there aren’t promising ideas in AI sentences. AI sentences, rather, are banal because these technologies select from the middle of the statistical distribution. These bots write in distinctly average ways.”

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PolyBio Research Foundation @polybiorf.bsky.social · 28/03/2025

BREAKING: Development of a spike protein-specific radiolabeled antibody used with PET imaging shows presence of spike in brain & lungs of macaque monkeys 3 months post-COVID; provides new viral reservoir detection opportunity for long COVID: www.nature.com/articles/s41...

nature.com

Whole-body visualization of SARS-CoV-2 biodistribution in vivo by immunoPET imaging in non-human primates - Nature Communications

There are limited approaches to monitor virus spread in vivo. Here, the authors report PET/CT-based in vivo imaging to track SARS-CoV-2 biodistribution in a COVID-19 non-human primate model using a ra...

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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · 04/11/2023

The Central Error of the Pandemic… Is that of running pandemic management by laissez-faire socioeconomic principles. If you grasp this, all the other errors fall into place as the inevitable consequence of following that line of thought. 🧵 1/x

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Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 29/03/2025

Funny... I've been saying for 4 years ☠️ Dead people don't shop ☠️ Sick people cannot work. Someone on Twitter suggested it should be a t-shirt 🙄

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C Has Long-Covid @cocdcy-health.bsky.social · 29/03/2025

I've been building a graph of issues in (American) society I've been observing, and child labor has been on it since very early on. Between mass disablement from Covid and immigrant workers being scared or detained/deported, the labor landscape in America is going to be bleak.

A graph with red lines linking fascism, the covid-19 pandemic, worker shortages, anti-immigrant sentiment, children's rights, and mass disabling events to child labor

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Walker Bragman @walkerbragman.bsky.social · 29/03/2025

We have COVID minimizers in charge of key public health agencies. We have cut COVID research. We never put any infrastructure or rules in place to mitigate risk of infection in the workplace. We’re pretending the crisis is over. Millions aren’t vaccinated. And yet…

nytimes.com

A Clearer Picture of Covid’s Lasting Effects on the Body

Five years on, scientists are starting to understand how the virus can lead to long-term, sometimes invisible changes.

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Jess Calarco @jessicacalarco.com · 28/03/2025

Despite its falsity, RFK Jr's message resonates with many Americans. Because it gives them a sense of protection against the risks they face and a sense of permission to not feel bad for others who do experience harm.

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C.H. Romatowski @chromatowski.bsky.social · 29/03/2025

This is why we say that popping on a mask when you go to the grocery store is a chance to resist creeping fascism. It’s a simple way to refuse this training to abandon others.

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Dan Diamond @ddiamond.bsky.social · 29/03/2025

Breaking: RFK Jr. has forced out PETER MARKS, the nation’s top vaccine regulator. In his resignation letter, obtained by the Post, Marks said he was willing to work with RFK Jr on his vaccine concerns — but said Kennedy wishes “subservient confirmation of his misinformation and lies.”

washingtonpost.com

RFK Jr. forces out Peter Marks, FDA’s top vaccine scientist

Marks, an architect of Operation Warp Speed, warned that a recent measles outbreak shows how confidence in science and public health is being “undermined.”

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Dave Levitan @davelevitan.bsky.social · 28/03/2025

NEW: Per a source with knowledge, the entire HHS Office of Infectious Disease and HIV/AIDS Policy, or OIDP, was just fired.

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Dr. Nicole Lee Schroeder @nicole-lee-sch.bsky.social · 26/03/2025

The govt will force you to catch covid at work, then deny you SSDI when youre disabled from it, and it wont invest in your cure. We MUST resist, complain, and protest. You are not fodder for billionaires. You deserve the tools to preserve your health

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Patient-Led Research Collaborative @patientled.bsky.social · 27/03/2025

The elimination of: grants to study #LongCovid, the Office of LC, & Advisory Committee on LC — have sent a chilling signal. We encourage folks to take the following action led by our partners: 1. Call your reps: win.newmode.net/longcovidcam... 2. Email your reps: actionnetwork.org/letters/long...

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loscharlos @loscharlos.bsky.social · 27/03/2025

🚨ACTION: #LongCovid research funding is on track to be fully eliminated & could mean the difference between treatments in our lifetime or not. If you care about that — please take action & share this! 1. Call: win.newmode.net/longcovidcam... 2. Email: actionnetwork.org/letters/long...

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Guiness Pig @guinesspig.bsky.social · 26/03/2025

'The Giving Tree' by Shel Silverstein is a horror story about exploitation, abuse, and the inevitable harm that comes from a lack of boundaries. It's also a cautionary tale for the Covid-Cautious. guinesspig.ghost.io/for-the-covi...

guinesspig.ghost.io

For the Covid-Conscious, Our Fundamental Weakness Isn’t Empathy. It’s Enabling.

In the children’s book ‘The Giving Tree’ by Shel Silverstein, a tree loves a boy. She gives him shade. She gives him apples. She lets him swing from her branches. Eventually the boy grows up and want...

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Danielle Beckman @daniellebeckman.bsky.social · 26/03/2025

“Now that the pandemic is over, the grant funds are no longer necessary,” NIH says. Remember when Onion articles were intended to be satire, not real life? Not anymore.

The onion: We Are Post-Pandemic. We Are Immortal. Those Still Alive Cannot Die.

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Dr. Lucky Tran @luckytran.com · 26/03/2025

Trump’s NIH is instructing staff to identify studies they claim are “attempts to manipulate public opinion.” They are targeting studies that include words such as: Vaccine uptake Media literacy Disinformation Social media Misinformation Social distancing Lockdown Masks

Subject: URGENT DATA CALL: FW: Other unrelated data call - due today: Contracts regarding censorship
Importance: High
Dear CORs,
Please review the highlighted text and indicate whether you have any contracts that fall within its scope that I administer for you. Please respond to me and not reply all. Please respond by noon today.
Negative responses required.
Thank you,
Scope:
Any contract support that "may be related to any form of censorship at all or directing people to believe one idea over another related to health outcomes - this could in particular include COVID prevention (masking) or COVID vaccine usage - but is not limited to COVID. So for example, any kind of contract with a media or social media organization to take down information off websites or social media. Any advertising for COVID vaccine uptake, or public health messages about dangers of COVID or not wearing masks, etc. Any contracts to promote COVID vaccine uptake. Any such contracts or grants to fight misinformation or disinformation in general. Please check for keyword media literacy, 'disinformation', 'social media, misinformation, social distancing. "lockdown' masks, etc. This should address any contract that could be used to "censor Americans" not just on COVID, but in general. "

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The Sick Times @thesicktimes.org · 26/03/2025

Without numbers to show that a crisis is real, it’s harder to argue for solutions, and thus, the crisis continues. The lack of comprehensive #LongCOVID case counts may be considered one of public health’s greatest failures. Read more from @betsyladyzhets.bsky.social: bit.ly/4iHQhug

graphic showing a computer keyboard with the “Delete” key highlighted in red, overlaid with an image of the coronavirus SARS-CoV-2. Black text on a graph paper background reads, “The Sick Times. Long COVID data are being erased, again. By Betsy Ladyzhets.”

In that vein, the lack of comprehensive Long COVID case counts may be considered one of public health’s greatest failures. But as we enter the sixth year of this ongoing pandemic, U.S. institutions are sweeping this mass disabling event under the rug perhaps more than ever before. We can’t let them get away with it. - Betsy Ladyzhets, The Sick Times co-founder + managing editor

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Eric Topol @erictopol.bsky.social · 25/03/2025

In <24 hours, Covid funding is DOGEd across HHS, CDC, NIH as if it and Long Covid didn't exist and there is no worry for future pandemics www.science.org/content/arti... www.nbcnews.com/health/healt... www.science.org/content/arti...

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Tania J. Spencer @taniaspencer.bsky.social · 22/03/2025

"There is no such thing as a COVID infection without consequence" - David Putrino, Long COVID researcher

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Shematologist, MD @shematologist.medsky.social · 24/03/2025

One of the smartest people I know received a top score on a big NIH grant that was so good it was converted to an even bigger grant to do super important work on earlier cancer detection. But she’s not going to see a dime because they don’t actually want to make America healthier at all.

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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 24/03/2025

RFK Jr. claims he wants to study chronic disease. RFK Jr. dismantles the Office of Long COVID Research and Practice less than 2 years after it was implemented by Biden. RFK Jr. is a liar and a fraud with zero knowledge or understanding of science or medicine.

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Billy Hanlon @bhanlon15.bsky.social · 23/03/2025

Chronicle Live: 'I've had Long Covid for five years - and it's not getting any better' 'A Northumberland Park man is still struggling to do day-to-day tasks and said Long Covid had been life-altering' www.chroniclelive.co.uk/news/north-e...

chroniclelive.co.uk

'I've had Long Covid for five years - and it's not getting any better'

A Northumberland Park man is still struggling to do day-to-day tasks and said Long Covid had been life-altering.

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Deborah Holloway @debholloway.bsky.social · 24/03/2025

Here's the least of my #LongCovid problems but one I haven't talked about much. During the acute phase of the infection I lost my hearing in my left ear completely (although it came back suddenly after my first Pfizer booster in 2021, weirdly.) /1

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T. Ryan Gregory 🇨🇦 @tryangregory.bsky.social · 23/03/2025

COVID has killed more Americans in 5 years than all their combat deaths in all of their many, many (so many) wars since 1776 combined.

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Billy Hanlon @bhanlon15.bsky.social · 22/03/2025

BBC: 'Long Covid stole the life I had' 'A seventeen-year-old who has weekly oxygen therapy in a tank says she has "been left behind" and her dreams taken by her chronic condition' www.bbc.com/news/videos/...

bbc.com

'Long covid stole the life I had'

Kaylee says she has hated having long Covid and just wants to get her life to living her life.

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Gerry Canavan @gerrycanavan.bsky.social · 22/03/2025

every college, corporate, and nonprofit president right now

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JPWeiland @jpweiland.bsky.social · 22/03/2025

March 21st update: The decline has stuttered over the past couple weeks, and NWSS also re-adjusted a couple of the past values upwards. South and Midwest both at medium levels, W/NE are low. Latest WW estimates: 🔸328,000 new infections/day 🔸~1 in 100 currently infected

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Chantzy @chantzy.bsky.social · 15/03/2025

Thank you @rollingstone.com for the front page coverage Make the invisible visible. Long Covid is REAL and a growing crisis

Rolling stone front page - caption: five years of pain, fatigue, and gaslighting: life with long covid

Pictured: activists in respirators protesting with signs in front of White House

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Jeremy Berg @jeremymberg.bsky.social · 21/03/2025

ATTENTION If you are someone (or know someone) who is enrolled in an NIH-funded clinical trial that has been disrupted by grant uncertainties or terminations, please DM me. THANK YOU!

media.tenor.com

stan marsh from south park says see that 's what happened to me !

ALT: stan marsh from south park says see that 's what happened to me !

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