iiinova — where your digital self keeps evolving

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OxfamBE @oxfam.be · 05/06/2025

"Maar de dag dat de hoop er niet meer is, stopt alles." 📅 Kom daarom 15 juni om 14u, in het rood, naar de Rode Lijn actie in Brussel! 📅 17 juni in KVS om 19u organiseren we ook een solidaire #SpeakUpForPalestine avond met o.a. Tom Lannoye. oxfambelgie.be/activiteiten... @11.be

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Progressief Nederland @progressiefned.bsky.social · 12/06/2025

Trek opnieuw de rode lijn! Het is nu belangrijker dan ooit om onze stem te laten horen en druk uit te oefenen op de Nederlandse regering om haar verantwoordelijkheid te nemen. Trek iets roods aan, sluit je aan bij de demonstratie voor Gaza, en trek samen met ons op 15 juni de Rode Lijn.

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Christine Kliphuis @christinec.bsky.social · 18/05/2025

Wat een geweldige opkomst in Den Haag, 100.000 mensen! Plus de mensen die hetzelfde vinden maar er niet zelf bij kunnen zijn, zoals ik. Mijn Joodse voorouders zouden trots zijn, want kritiek op Israels genocidale gedrag is geen antisemitisme maar menselijkheid. #RodeLijn #Gaza

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Be Kho @bekhonl.bsky.social · 18/05/2025

Ik kon er helaas niet in den lijve bij zijn door #PAIS Maar paste op de honden vd buurvrouw zodat zij er wel heen kon. 100.000 mensen in DenHaag! #RodeLijn #StopTheKilling #WaarIsOnzeMenselijkheid?

A black page on which is written “ Rode Lijn” : an invitation to demonstrate

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Esther @thelifeofesther.bsky.social · 18/05/2025

100.000 mensen in Den Haag. Ik moet er een traantje bij laten. Eindelijk! Eindelijk komt iedereen bij elkaar om een DIKKE VETTE STREEP te trekken onder het laffe beleid van onze ‘leiders’. Ik ben zo trots op iedereen die er is. Zo fucking trots❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ FREE PALESTINE🇵🇸🇵🇸🇵🇸

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Neurologist Mom @neurologistmom.bsky.social · 21/04/2025

I’ve received 20 reports so far, and what I’ve read is unbelievable! These serious reactions should’ve been in the drug info long ago. Yet there’s not a single case report about this dangerous sleep deprivation. Here we are, creating our own data, open to scientists.

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Esther @elhopkins.bsky.social · 31/03/2025

Everyone is at risk from #Longcovid. @ashleydaltonmp.bsky.social We should be treating this infection like TB.

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Patient-Led Research Collaborative @patientled.bsky.social · 27/03/2025

More information from @lccampaign.bsky.social on call action: bsky.app/profile/lcca...

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Neurologist Mom @neurologistmom.bsky.social · 15/03/2025

“Long COVID is not psychogenic, not psychiatric, not somatization, not FND, not caused by fear, not from your tears, not because you’re weak and yes you really are that sick” Svetlana Blitshteyn has a message for us. Well said, my dear friend! 👏🏻👏🏻👏🏻 #longcovidawarenessday2025 youtu.be/SxEkqT31TFs?...

youtu.be

A message from Svetlana Blitshteyn on Long COVID Awareness Day 2025

YouTube video by NeurologistMom

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Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social · 15/03/2025

The stupid thing is that on a #LongCovidAwarenessDay words simply fail me. I cannot describe the loss of life we experienced as a family, the loss of my child's childhood, her lack of friends, her loneliness and suffering. Nor can I express my struggle: working whilst

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Long Covid Advocacy @longcovidadvoc.com · 15/03/2025

💌 Will you be a voice of reason for #LongCovidAwareness? @ashleydaltonmp.bsky.social @england.nhs.uk @nihr.bsky.social We urgently need funding for: ⭐ biomarkers ⭐ pathophysiology ⭐ treatments #LongCovidAwarenessDay

Digital graphic. Centered text in magenta headline "What would House say?" with a navy background. The page includes hashtags and motivational text with website link to advocate for LongCovid. A portrait of actor Hugh Laurie in a suit is on the lower right within a gradient purple circle. The overall visual is designed to draw attention to the cause and encourage participation.

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Guus @guusontheinternet.bsky.social · 15/03/2025

#5YearsOfLongCovid Today on #LongCovidAwarenessDay2025 many people will be speaking out about their lives and experiences with Long Covid. For many, from one day to another their lives were never the same. #LongCovid #HalfADecadeOfNeglect🧵

Guus is a woman with long brown hair and glasses. She is lying in a hospital bed with a purple sheet and a pink-orange blanket in a living room. A small black dog is resting beside her on the bed. She has a serious expression and holds a protest sign in front of her face that reads: “Long Covid is a mass disabling event. We need help now”. The room has multiple posters and signs on the walls, written in Dutch, advocating for awareness and stronger policies for Long COVID patients. One of the posters says, “Ik ben al 1521 dagen ziek. Hoe lang nog?” (I have been sick for 1521 days. How much longer?). Another sign on the bedside table reads, “5 jaar Long COVID. Nog steeds geen beleid” (5 years of Long COVID. Still no policy). There is a wooden cabinet in the background.

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Science Magazine @science.org · 15/03/2025

A #SciencePerspective by @zalaly.bsky.social and @erictopol.bsky.social identifies key issues that need to be prioritized in the study of #LongCovid. Learn more on #LongCovidAwarenessDay: scim.ag/3XKbds3

Many forms of Long Covid: Long Covid is a multisystemic disease with sequelae that affect almost all organ systems. Various putative mechanisms that underlie these sequelae are not mutually exclusive and may explain the myriad health effects seen in Long Covid. Therapeutics that target these pathways, such as antivirals, anti-inflammatory agents, microbiome restoration, and anticoagulant drugs, may ameliorate symptoms.

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ilikebigb00ks.bsky.social @ilikebigb00ks.bsky.social · 15/03/2025

I'm 3 years in to living with Long Covid. Cognitive impairment, post extertional symptom exacerbation, headaches, immune system dysfunction, cardiac issues, a TIA/ministroke, extreme fatigue. I miss my life. Im sad that my kids are having to grow up with my limitations. #longcovidawarenessday

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Ida Bromberg @idabrom.bsky.social · 15/03/2025

Gisteren teveel gedaan, vandaag voor Pampus, morgen weer een dag. #LongCovidAwarenessDay #NietHersteld

#NIETHERSTELD
Investeer in onderzoek & behandeling.
Nu.
#5JAARLONGCOViD
+ BERLIN BUYERS CLUB +

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Kin @kinlovesmusic.bsky.social · 15/03/2025

Bound to my bed and sofa on #LongCovidAwarenessDay Stuck at home while people go out to work and play

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Richard Vallée @richardvallee.bsky.social · 15/03/2025

Years of Long Covid: 5 Progress made during those years: 0 Evidence of interest and motivation within the medical profession to work the problem and solve it: N/A #LongCovidAwarenessDay

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Jan Jupiter @janjupiter.bsky.social · 15/03/2025

Ik heb puur geluk gehad dat ik aan geen van mijn infecties Long Covid heb overgehouden. Investeer in onderzoek en behandeling van Post Acuut Infectieus Syndromen zoals Long Covid. #5JaarLongCovid

een poster van de Berlin Buyers Club, de poster is rood en er staat met dikke witte letters op: “Investeer in onderzoek & behandeling. Nu.” ook staat er in zwarte letters #5JaarLongCovid

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Ruth Machen @ruthmachen.bsky.social · 15/03/2025

“You’re only ever one step away from disability” (Stephanie Swanson) On Long Covid Awareness Day, please hear the voices of the 2 million (and counting) who have never been able to ‘move on’ from Covid …insight here into the worlds of some of us in UK with Long Covid www.bigissue.com/news/social-...

bigissue.com

Five years on: How Covid forced people out of work and onto benefits

As the government seeks to crack down on worklessness in the UK, perhaps ministers need to consider the people suffering with long-Covid.

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Darren Parkinson @greendarrenshipley.bsky.social · 23/02/2025

How I'm trying to adapt to my new, smaller life with #LongCovid. I lost my job. I lost my role as a local councillor. I'm housebound. I can't do much with my kids & partner. And I can't do many of the things I love due to the constant fatigue. But I have to try and carry on🧵

Photo of Darren in kitchen resting his head on his hand looking exhausted. Cups in foreground

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Saf @safkempers.bsky.social · 15/03/2025

#NietHersteld #5jaarLongCovid #5YearsLongCovid #LongCovidAwarenessDay2025 Het maken van deze post kost mij een week aan energie. Als de politiek en de gezondheidszorg 50 jaar geleden PAIS patiënten hadden geloofd, was dit niet nodig geweest. Dan was ik waarschijnlijk minder ziek geweest,

Persoon (ik) met kort, blond haar ligt in bed met bloemetjesdekbed. Houdt bord vast met tekst 'ik ben ziek, ik zou niet moeten hoeven protesteren!'

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Tove Harris @toveharris.bsky.social · 15/03/2025

Long COVID Awareness Day #ILCAD2025 #COVID is not a minor inconvenience! Five Years of Pain, Fatigue, and Gaslighting: Life With #LongCOVID "We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget" www.rollingstone.com/culture/cult...

rollingstone.com

Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid

People with Long Covid are still sick from a pandemic the rest of the world would rather forget.

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KBaby @choirchic.bsky.social · 15/03/2025

#LongCovidAwarenessDay - I’m one of the lucky ones. I’m now thriving while others can’t. I dealt with pain, PEM, fatigue, brain fog, and have had to have treatment for dysautonomic cardiac symptoms. I take tons of supplements to function. This is life now. We deserve better. We deserve to be heard.

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Annemiek van der Doe-Janse @mamayacaprice.eurosky.social · 15/03/2025

Vandaag laten we ons horen om zowel alle Long Covid-patiënten een hart onder de riem te steken als onze overheid nog maar weer eens op hun verantwoordelijkheid te wijzen 💪

Zwarte actieposter van de Berlin Buyers Club met in witte letters de tekst: " Hoe onze overheid omgaat met PAIS is niet NICE."
Daaronder een getekend gezichtje waarvan de ogen kruisjes zijn en de
mond gekarteld.
De afkorting PAIS staat voor Post Acute Infectieuze Syndromen.
De afkorting NICE staat voor de Engelse overheidsinstituut dat de
Engelse richtlijn voor artsen heeft opgesteld hoe om te gaan met deze
syndromen.

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Long Covid Kids @longcovidkids.bsky.social · 15/03/2025

How it feels to have been living with #LongCovid for three years (Image by teen member of our support group aged 15) #LongCovidAwarenessDay #LongCovidKeys #EmptyBattery #AllOutOfSpoons

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Arlette @arlette.bsky.social · 15/03/2025

Als we PAIS (Post Acuut Infectieus Syndroom) serieus hadden genomen hadden we nu niet zo'n groot probleem. Als PAIS als een reële mogelijkheid werd gezien na een infectie, hadden we de pandemie anders aangepakt en waren er minder chronisch zieken. #LongCovidAwarenessDay2025

Afbeelding van Berlin Buyers vertaald door #NietHersteld
"Hoe onze overheid omgaat met PAIS is niet nice."

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Be Kho @bekhonl.bsky.social · 15/03/2025

“Als we PAIS (Post Acuut Infectieus Syndroom) serieus hadden genomen hadden we nu niet zo'n groot probleem. “ & Als mijn beroepsgroep (GGZ/ CGT) PAIS niet had gepsychologiseerd was er meer onderzoek gedaan & nu medicatie geweest. Daarom: investeer in Bio medisch onderzoek #LongCovidAwarenessDay

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Be Kho @bekhonl.bsky.social · 15/03/2025

herkenbaar 🫂. Mijn mini-actie =borden hangen, klein stukje buiten zitten met een jas behangen #NietHersteld borden & sociale media posten➡️ teveel voor #PAIS. Kortsluiting in mijn hoofd: koortsig, spier & zenuwpijn, hartslag 140. #LongCovidAwarenessDay2025

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Inge 🏳️‍🌈 @pluizigeboterham.nl · 15/03/2025

#NietHersteld #5JaarLongCovid #5YearsLongCovid #LongCovidAwarenessDay2025 Oudjaarsdag 2021, ik ga het denk ik nooit vergeten. Ik had regelmatig keelontstekingen en ik dacht dat het weer zover was. Twee dagen later benauwd, hoge koorts, hoofdpijn, etc. Ik testte positief op Covid19. Drie weken 1/6

Protestbord:
5 jaar
long covid
nog steeds
#NietHersteld

Selfie terwijl ik in bed lig met twee protestborden
'Hoe onze overheid omgaat met PAIS is niet nice'
'Ik ben ziek, ik zou niet moeten hoeven protesteren!'

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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025

On this #LongCovidAwarenessDay, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.

A photo of a close up of my upper body, showing a Long Covid Awareness pin pinned to my (faux) leather jacket. The pin reads 'Long covid sos'

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Darren Parkinson @greendarrenshipley.bsky.social · 15/03/2025

We follow the advice. We pace, we rest. We try supplements. We meditate. We seek tests and trials... But none of this is enough. We can't do this on our own. On #LongCovidAwarenessDay the government must commit to properly investing in finding treatments for #LongCovid.

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Long Covid UK @longcoviduk.bsky.social · 15/03/2025

📣 🎬 Our second video message on #LongCovidAwarenessDay is from the brilliant Catherine Heymans - Astronomer Royal for Scotland. Thank you for speaking out @astroroyalscot.bsky.social, it means a huge amount to the #LongCovid community! 🙏

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Long Covid Kids @longcovidkids.bsky.social · 14/03/2025

'UK doctor says Britain is failing children with #LongCovid' @emmabatha.bsky.social Pulmonologist @binitakane.bsky.social helped set up a Long Covid clinic after struggling to get treatment for her daughter. www.context.news/socioeconomi... #LongCovidAwareness #LongCovidKids #PaediatricLongCovid

'UK doctor says Britain is failing children with Long Covid' a mother and daughter sit at a table holding mugs of tea.

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Darren Parkinson @greendarrenshipley.bsky.social · 11/03/2025

Late last year I lost my job to #LongCovid. 20 yrs working for the #NHS. I'm too ill to work so I'm reliant on benefits. To get me well enough to work I need the government to invest in finding treatments for #LongCovid. Cutting my benefits won't get me back to work.

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Be Kho @bekhonl.bsky.social · 15/03/2025

On this #LongCovidAwarenessDay I am grateful for all the PAIS -researchers & doctors that are making change possible 🙏. We can do this. With More funding and global awareness this life shattering disease can be stopped.

Person lying with billboard investeer in onderzoek & behandeling along Covid

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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 11/03/2025

USA: I'm a doctor studying devastating effects of long Covid. Now it's ruining my life too. "Dr Cohen and up to 17 million Americans with the condition, every task—showering, chores, work, socializing—drains energy." #LongCOVID Source: archive.md/DGqnk

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