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Vicky van der Togt

@vickyvdtogt.bsky.social
1.7K followers 152 following 156 posts

Facilitator | Researcher | Advocate

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Reposted by Vicky van der Togt
The Guardian @theguardian.com · 29/06/2026
‘We’re up against forces that have all the money in the world’: Erin Brockovich on her battle against AI datacentres
theguardian.com
‘We’re up against forces that have all the money in the world’: Erin Brockovich on her battle against AI datacentres
In 1993, she squeezed a $333m settlement from a Californian energy company in a scandal over contaminated water. Three decades later, she has a new target in her sights – and it’s global
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Vicky van der Togt @vickyvdtogt.bsky.social · 26/06/2026
Nieuw artikel: Nederland verdient een betere corona-enquête Geschreven door Mick Blok en mij www.frontaalnaakt.nl/archives/ned...
frontaalnaakt.nl
Nederland verdient een betere corona-enquête - Frontaal Naakt
Michael Blok en Vicky van der Togt De Parlementaire Enquêtecommissie Corona is geen diepe en brede waarheidsvinding over de moeilijkste periode in ons land sinds de oorlog. Michael Blok en Vicky van d...
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Reposted by Vicky van der Togt
The Guardian @theguardian.com · 06/05/2026
World’s most powerful are suing media outlets before stories are even published, says editor
theguardian.com
World’s most powerful are suing media outlets before stories are even published, says editor
Editor-in-chief of Wall Street Journal says those with deep pockets launching legal challenges as a PR strategy Powerful figures are increasingly suing media outlets before they have even published a story, the editor of the Wall Street Journal has said. Emma Tucker, whose title is being sued by Donald Trump over its reporting of his relationship with the late child sex offender Jeffrey Epstein, said the act of reporting itself was now under threat from the use of “lawfare”. Continue reading...
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Reposted by Vicky van der Togt
The Washington Post @washingtonpost.com · 22/04/2026
A report showing the efficacy of the covid-19 vaccine that was previously delayed by the head of the CDC has been blocked from being published in the agency’s flagship scientific journal, according to people familiar with the decision.
washingtonpost.com
CDC won’t publish report showing covid shots cut likelihood of hospital visits
The report, which had cleared the agency’s scientific-review process, had been delayed. It now won’t be published at all, people familiar with the decision told The Post.
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Reposted by Vicky van der Togt
Dez Fenton @butisitart.bsky.social · 22/03/2026
You know how in a library no one’s trying to sell you anything? That’s how the internet was.
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Reposted by Vicky van der Togt
Jeff Sharlet @jeffsharlet.bsky.social · 21/02/2026
NH state house passes "CHARLIE Act," which bans teaching, I kid you not, "critical consciousness" & "prohibited world-views," such as that queer people exist, or that slavery involved race, or, implicitly, that the Nazis murdered Jews based on identity. newhampshirebulletin.com/2026/02/19/h...
newhampshirebulletin.com
House passes bill banning ‘leftist indoctrination’ and LGBTQ+ teaching in public schools • New Hampshire Bulletin
New Hampshire House Republicans are moving forward with a new attempt to regulate teaching on race, history, and LGTBQ+ issues in public schools. On Thursday, the chamber passed a bill that would ban ...
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Reposted by Vicky van der Togt
Democracy Now! @democracynow.org · 20/02/2026
Donald Trump, now chairing a so-called Board of Peace, has offered a dystopian vision for Gaza that leaves Palestinians under permanent Israeli occupation. www.democracynow.org/2026/2/20/trum…
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Reposted by Vicky van der Togt
Kirsten Verdel @locuta.bsky.social · 21/01/2026
Kijk deze speech! Ik weet het, niemand heeft tijd, maar kijk dit. Dit is waar het nu over gaat in de wereld.
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Vicky van der Togt @vickyvdtogt.bsky.social · 31/10/2025
This week, the Long Covid Symptom Diary was published in French, with the help of @longcovidbelgium.bsky.social The French version of the diary, titled 'Journal de bord des Symptômes du Covid Long' is now available in all Amazon stores worldwide.
An image showing the cover of Journal de bord des Symptômes du Covid Long in the center, with examples of the symptom tracking pages in French on either side. On the top of the image are 2 circles, one with the DDx Publishing logo and one with the Long Covid Belgium logo. At the there are multiple hands in blue and green visible, of which one is holding a Belgian flag.
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Vicky van der Togt @vickyvdtogt.bsky.social · 21/07/2025
I recently discussed my book, the Long Covid Symptom Diary, with Gez Medinger, for his educative, long-running YouTube series on everything #LongCovid. 🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary Watch it here: youtu.be/VCkh1WRiaAk?...
youtu.be
Why Old School is Best | The Long Covid Symptom Diary
YouTube video by Gez Medinger
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Reposted by Vicky van der Togt
Prof Danny Altmann @daltmann.bsky.social · 19/06/2025
www.theguardian.com/society/2025... Ondine did such a huge job to get recognition for all with Long Covid👇
theguardian.com
Ondine Sherwood obituary
Other lives: Founder of a group campaigning for the recognition of Long Covid
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Reposted by Vicky van der Togt
Research-Aid Networks @researchaidnet.bsky.social · 07/04/2025
This April, the world has one more chance to finalize a pandemic accord that could shape global health security for decades. But we can’t just plan for a next pandemic. We must also reckon with this one. But recovery is still missing from the draft accord. 🧵
telegraph.co.uk
Why we need a pandemic treaty now
The consequences of failing to strike a deal extend well beyond how the world will grapple with health emergencies
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Vicky van der Togt @vickyvdtogt.bsky.social · 01/04/2025
Navigating the current political situation in the United States while working remotely for a US-based research-focused organization from the Netherlands is a bit of a nightmare, to put it mildly.. 👀
A screenshot of a message om the Leiden University website which states: Researchers advised not to respond to US questionnaire
19 March 2025

Researchers who have received a questionnaire containing political questions from the United States Geological Survey (USGS) or other American government funders such as NIH or ARPA are advised not to respond.

An email with 36 intrusive questions has been received by researchers from organisations including Wageningen University & Research (WUR). Various media have reported on this recently.
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Vicky van der Togt @vickyvdtogt.bsky.social · 30/03/2025
Last Thursday, I gave a presentation for the Engagement & Inclusion focal area at CWTS | Leiden University about Patient and Public Involvement (PPI) in research, and the topic of accessibility in research overall.
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
As mentioned before, the Long Covid Symptom Diary is created by and for patients, and this includes the translations of the book. I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
🫴 For every Spanish edition of the diary sold, €1 will be donated to Long Covid associations supporting Spanish-speaking communities.
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
On this #LongCovidAwarenessDay, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.
A photo of a close up of my upper body, showing a Long Covid Awareness pin pinned to my (faux) leather jacket. The pin reads 'Long covid sos'
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
En este #LongCovidAwarenessDay, me complace anunciar la publicación de la versión en español de The Long Covid Symptom Diary: Diario de Síntomas de #CovidPersistente 🇪🇸
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
On this #LongCovidAwarenessDay, we are excited to announce the publication of the Spanish version of The Long Covid Diary, Diario de Síntomas de #CovidPersistente 🇪🇸
An image of a hand holding the Spanish version of the book, against a beige background. The title of the book reads 'Diario de Síntomas de Covid Persistente'
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Vicky van der Togt @vickyvdtogt.bsky.social · 12/03/2025
Due to the passing of my dear friend Ondine, I’ve decided to cancel my participation in the 'Confronting Injustice Through Open Science' conference. I was looking forward to speaking at the conference, but right now, taking the time to grieve with loved ones is more important 💔
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Reposted by Vicky van der Togt
Long Covid SOS @longcovidsos.bsky.social · 12/03/2025
We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sherwood
A black background with centered white text. The heading reads, “In Honour of Ondine Sherwood.” The message states that Long Covid SOS is heartbroken to share the loss of their co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday, 11th March. It expresses love and condolences to her family. A small horizontal line is placed at the bottom.A black background with centered white text. The message describes Ondine as the driving force and heartbeat of the Long Covid SOS team, a dear friend, and a profound loss to the community. It expresses devastation at her passing but also a commitment to continuing her legacy. The final line states, “We will miss her every day.” A small horizontal line is placed at the bottom.
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
The #LongCovid Symptom Diary was created to support patients in tracking all aspects of their disease, and this includes keeping track of the use of medication, supplements, and treatments.
A photo of a page of the symptom diary that reads 'medication list', with different lines that can be filled out, such as 'name + type of medication, start date and stop date, the dose and the effects.
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
Will you join us at the 'Confronting Injustice Through Open Science' conference this Thursday? You can either join in person (free) or online! I'll be speaking about my approach to doing research on the panel 'How to place marginalized forms of knowledge production in the center'.
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 01/03/2025
For years, I have worked to improve care, research, and support for people with Long Covid. Now, I am introducing a project that brings all of this work together into a practical tool: The Long Covid Symptom Diary
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
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Vicky van der Togt @vickyvdtogt.bsky.social · 01/03/2025
For years, I have worked to improve care, research, and support for people with Long Covid. Now, I am introducing a project that brings all of this work together into a practical tool: The Long Covid Symptom Diary
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 26/02/2025
I’m looking forward to sharing my perspective on what needs to change and learning from others working in this space. If you’re interested in these topics, I’d love for you to join. The event is free to attend, both in person at Vrije Universiteit Amsterdam (@vuamsterdam.bsky.social) and online.
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Vicky van der Togt @vickyvdtogt.bsky.social · 26/02/2025
I’ve spent the past few years working on the topics of accessibility and inclusion, particularly in the context of patient-informed Long Covid studies and community-driven advocacy. 🧵
eventbrite.co.uk
Confronting injustice through Open Science
Centering justice, equity, and decolonial approaches in research.
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Reposted by Vicky van der Togt
Clean Air Classrooms #CleanAirForLife @cleanairclassrm.bsky.social · 27/12/2024
As the World Health Organization @who.int begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jeremy S Rossman and Vicky van der Togt
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Reposted by Vicky van der Togt
Research-Aid Networks @researchaidnet.bsky.social · 23/12/2024
Without addressing pandemic recovery, we risk ongoing societal harm and reduced readiness for future crises. That's why recovery must be a central part of the treaty.
bmj.com
Recovery is missing in the pandemic treaty
As the World Health Organization begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jere...
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Vicky van der Togt @vickyvdtogt.bsky.social · 23/12/2024
A pandemic treaty that excludes recovery overlooks the essential process of addressing long-term impacts, rebuilding systems, and learning from past crises. Recovery should, therefore, be a cornerstone of the pandemic treaty. Read our latest article, published in @bmj.com 👇
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Vicky van der Togt @vickyvdtogt.bsky.social · 18/12/2024
Good to see that this paper has been retracted, although it's unfortunate that it took this long. In NL, @misterblok.bsky.social & I had to take legal steps (in 2021) to get the recommendation for the use of hydroxychloroquine as a treatment for #COVID-19 removed from government websites.
eu.usatoday.com
Study retracted years after it set off an infamous COVID-19 treatment scandal
In 2020, then-President Donald Trump said he had been taking hydroxychloroquine to prevent a COVID-19 infection despite warnings over side effects.
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Prof Nisreen Alwan @nisreenalwan.bsky.social · 07/11/2024
Here's our pitch in the Lancet (with @zalaly.bsky.social) on shifting the paradigm on infection-induced/associated NCDs. www.thelancet.com/journals/lan... "Governments must face the reality that some infections which are largely regarded as only acute cause a substantial burden of chronic illnesses"
thelancet.com
Learning from long COVID: conceptualising action to tackle infection-associated non-communicable diseases
SARS-CoV-2—initially thought of as an acute respiratory virus—can lead to post-COVID-19 condition (also known as long COVID), a chronic multisystemic illness that develops in some people who have been...
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Vicky van der Togt @vickyvdtogt.bsky.social · 31/10/2024
📢 Join Long Covid SOS as the new Chair of the Board of Trustees! We're seeking a strategic leader with governance experience to guide our mission in advocating for and supporting those affected by Long Covid.
jobs.theguardian.com
Chair of the Board of Trustees - Remote job with Long Covid SOS | 9307895
Chair of the Board of Trustees About us: Long Covid SOS is a registered charity dedicated to throwing a lifeline to people living with the impact o...
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Research-Aid Networks @researchaidnet.bsky.social · 31/10/2024
With H5N1 flu spreading across US dairy herds and at least 30 human infections linked to cattle, there's a pressing need for enhanced surveillance and containment efforts. Could this virus evolve to spread between people? Taking preventative measures now is more crucial than ever.
researchaidnetworks.org
Research update: H5N1 in cattle and acidosis in Long Covid
With H5N1 flu spreading across US dairy herds and over 30 human infections linked to cattle, there's a pressing need for enhanced surveillance and containment efforts. Could this virus evolve to sprea...
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Reposted by Vicky van der Togt
Prof Nisreen Alwan @nisreenalwan.bsky.social · 23/10/2024
We met back in 2023, talked about #LongCovid and health inequalities & then we wrote this paper with a call to action. I’m particularly proud of this work because it's an example of what happens when folk collaborate rather than compete towards better science! onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com
Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?
Introduction Organised by the ‘Qualitative Long Covid Network’, a workshop for qualitative Long COVID (LC) researchers, LC charity representatives and people with LC took place in June 2023, where r.....
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Vicky van der Togt @vickyvdtogt.bsky.social · 22/10/2024
'Inside the Bungled Bird Flu Response, Where Profits Collide With Public Health'
vanityfair.com
Inside the Bungled Bird Flu Response, Where Profits Collide With Public Health
When dairy cows in Texas began falling ill with H5N1, alarmed veterinarians expected a fierce response to contain an outbreak with pandemic-sparking potential. Then politics—and, critics say, a key ag...
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Vicky van der Togt @vickyvdtogt.bsky.social · 31/07/2024
#Olympics2024 really gives us a front-row seat to witnessing the consequences of every public health issue that's been swept under the rug for too long: Uncontrolled COVID infections, dangerously high temperatures, extreme water pollution, to name a few. Go team! 🥲
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Vicky van der Togt @vickyvdtogt.bsky.social · 31/07/2024
'... More than four years since the pandemic hit it was another sign that old habits — and bad science — dies hard.' www.abc.net.au/news/2024-07...
abc.net.au
We've cleaned our drinking water for decades. Why don't we do the same with the air we breathe?
The Pathway to Clean Indoor Air in Victoria could speed up the end of the current pandemic and help us prepare for the next one. But improving indoor air quality won't just bring health benefits — it ...
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/07/2024
Have you ever had one of those moments when all the brainstorming comes together and all the projects kind of fall into place? That's today for me 🚀
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/07/2024
I celebrated a milestone yesterday! Announcement coming soon.. 📖
A photo of a cocktail standing on a table
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Reposted by Vicky van der Togt
Research-Aid Networks @researchaidnet.bsky.social · 08/06/2024
UPDATE: New developments on the H5N1 outbreak in the United States.
researchaidnetworks.org
New developments on the H5N1 outbreak in the United States
It’s been about two months since we last updated you, and the H5N1 situation in the United States has continued to develop. We’ve seen further spread of the virus in cattle, with outbreaks now confirm...
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Vicky van der Togt @vickyvdtogt.bsky.social · 11/04/2024
'Before 2020, 1 million to 3 million people suffered from POTS in the United States, researchers estimate.' 'Recent studies suggest 2 to 14 percent of people infected with the coronavirus may go on to develop #POTS.'
washingtonpost.com
They’re young and athletic. They’re also ill with a condition called POTS.
The syndrome tends to strike suddenly, leaving previously healthy people unable to function, with no clear cause.
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Vicky van der Togt @vickyvdtogt.bsky.social · 02/04/2024
📢 MEDIA CALL for admins of Long Covid support groups around the world. For an investigative radio documentary (BBC) I'm looking for admins of support groups who are willing to talk about the sharing of medical and scientific info in their support groups. Interested? 👇 vicky@researchaidnetworks.org
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Vicky van der Togt @vickyvdtogt.bsky.social · 26/03/2024
Zogeheten 'vaccine hesitancy' is één van de vele problemen waar @researchaidnet.bsky.social zich over buigt. Wij zien vaak dat mensen vragen hebben over vaccinatie, en niemand om ze aan te stellen, waardoor hun zorgen blijven bestaan en soms zelfs groeien.
trouw.nl
Vaccinatiedwang kan averechts uitpakken
Wie sinds corona ook de kindervaccins wantrouwt, komt door dreigingen niet alsnog met zijn kind opdagen. Dat schrijven Rogier Simons, Corrette Ploem en Johan Legemaate. Ze zijn respectievelijk onderzo...
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Vicky van der Togt @vickyvdtogt.bsky.social · 25/03/2024
'Bond roept op om leerkrachten met long covid langer in dienst te houden' Preventie? Met preventie voorkom je de ziekte zelf. Dat werkt een stuk beter om uitstroom te voorkomen.
nu.nl
DPG Media Privacy Gate
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Vicky van der Togt @vickyvdtogt.bsky.social · 22/03/2024
Yesterday, I gave my first guest lecture for students of the University of Derby on my work in Applied Clinical Science. An exciting 'first' for me 🙌 It was great to talk to (and hopefully inspire!) the next generation of researchers, and I hope I get the chance to do this more often.
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Vicky van der Togt @vickyvdtogt.bsky.social · 16/03/2024
Years ago, when I was still with the group, I created this logo and decided on these colors as the brand identity for Long Covid Netherlands. I realized yesterday that I couldn't have picked a better color scheme as it perfectly matches the #LongCovidAwarenessDay colors 👌
A screenshot of the header of the @LongCovidNL Twitter account, showing part of the header, the logo, their name and the bio. It shows the logo in teal, light and dark Grey, with white accents.
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