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Rose Mary

@rose-mary-x.bsky.social
519 followers 1.7K following 192 posts

She/her | UK | Covid conscious | Disabled | ME/CFS | Long Covid | Vaccine Injured | Climate aware | Free Palestine | Socialist | Human rights | Sisters, not cis-ters

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Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 07/10/2026
Some items available in my POD shop at the moment. New cormorant motif on T-shirts, stickers etc. My designs are all human-made digital illustration. Only 79 more sleeps until Christmas 🎄 🎁 😅 #RedbubbleShop #Tshirts #Stickers #GiftIdeas #design #illustration www.redbubble.com/i/t-shirt/Co...
Illustration of a cormorant on a yellow oval shape with a grey backgroundAutumn leaves stickersSay the word disabled message on a jade around background displayed on a mugTotal bedass T-Shirt white typographical design on a burgundy background
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greenhealthpolicy.bsky.social @greenhealthpolicy.bsky.social · 27/09/2026
What does the Green Party proposed new health policy say about #infectious disease? @greenparty.org.uk
White background. Green party world sunflower logo top left. Text below: Green Party Health Policy. Main heading: The Green Way to Health. Vote for B03 at conference.

Key text: What does the Green Party proposed new health policy say about infectious disease?

Subtext: Promoted by the Health Policy Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.White background. Green party world sunflower logo top left. Text below: Green Party Health Policy. Main heading: The Green Way to Health. Vote for B03 at conference.

Key text: An "Always On" approach ensures continuous investment in health education, research, and evidence-based transmission prevention

Subtext: Promoted by the Health Policy Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.White background. Green party world sunflower logo top left. Text below: Green Party Health Policy. Main heading: The Green Way to Health. Vote for B03 at conference.

Key text: Infectious disease support will prioritise prevention, protection for vulnerable groups and long-term care for lasting health effects, alongside plans for managing healthcare capacity surges

Subtext: Promoted by the Health Policy Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
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Greens Against Covid @greensagainstcovid.bsky.social · 26/09/2026
We'd love to see conference made safe for all, but conditions could be ideal for the spread of Covid and Flu, etc. However, some precautions can really reduce that risk. #ventilation #ffp3mask @greenparty.org.uk #greenpartyconference
Top left: Green party logo with virus crossed out. Green text: GREENS AGAINST COVID. Key text: Heading off to conference soon?Subtext: promoted by covid and long covid campaign working group (green party), c/o PO box 78066 London SE16 9GQTop left: Green party logo with virus crossed out. Green text: GREENS AGAINST COVID. Key text: Be aware that covid and flu levels are rising rapidly (graph shows covid levels rising)Subtext: promoted by covid and long covid campaign working group (green party), c/o PO box 78066 London SE16 9GQTop left: Green party logo with virus crossed out. Green text: GREENS AGAINST COVID. Key text: buds estimates covid prevalence at around 1/306 as of 20/9/26 (graphic from BuDS shows covid wave rapidly rising, Influenza on the rise; risk level remains moderately high at 1 in 306) Subtext: promoted by covid and long covid campaign working group (green party), c/o PO box 78066 London SE16 9GQTop left: Green party logo with virus crossed out. Green text: GREENS AGAINST COVID. Key text: Remember, covid influenza, rsv, rhinovirus and measles are all transmitted at distance through the air anc can hang in the air like smokeSubtext: promoted by covid and long covid campaign working group (green party), c/o PO box 78066 London SE16 9GQ
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Ed Poole @edpoole1975.bsky.social · 20/09/2026
I spoke to Dr Christelle Blunden from the Green party Health Policy Working Group about B03 A Green way to health, the new healthcare policy chapter for the Green Party. @greenhealthpolicy.bsky.social youtu.be/Yn2nDXdK47E
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Rose Mary @rose-mary-x.bsky.social · 26/09/2026
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier. This clip is from his closing comments, which I thought were very powerful. Actually, I burst into tears 😭 Thank you both 💙 #MyalgicEncephalomyelitis #GreatestMEdicalScandal #LongCovid
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Long Covid Advocacy @longcovidadvoc.com · 26/09/2026
📻 Superb @georgemonbiot.bsky.social Interview on LBC with Natasha Devon. "A long & vicious history in this country of dismissing predominantly female diseases & calling them hysterical." 🔥 Thank you George & Natasha 🙏
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Adam @abrokenbattery.bsky.social · 26/09/2026
Full interview (9 mins): youtu.be/H2rRf_f2hJs George’s recent article www.theguardian.com/commentisfre...
youtu.be
LBC | Natasha Devon interview with George Monbiot
YouTube video by Broken Battery
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Adam @abrokenbattery.bsky.social · 26/09/2026
Symptoms are “horrible” and severe cases are a “living nightmare.” @georgemonbiot.bsky.social speaks to @natashadevon.bsky.social on LBC about ME/CFS, its long history of being dismissed and psychologised, and the role of governments and insurers.
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Long Covid Advocacy @longcovidadvoc.com · 26/09/2026
The George Monbiot LBC interview with Natasha Devon is EXCELLENT! It's on at 7.33 pm. Can't record it due to DRM capture. BUT will keep an eye out for the recording. share-gp.globalplayer.com/live/lbc/uk/
globalplayer.com
LBC UK - Listen Live | Global Player
Leading Britain's Conversation. Access your favourite LBC shows now!
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Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 26/09/2026
@georgemonbiot.bsky.social was on top form tallking about ME on @natashadevon.bsky.social Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is. Listen back! #MEcfs #MyalgicEncephalomyelitis
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Rose Mary @rose-mary-x.bsky.social · 26/09/2026
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier. This clip is from his closing comments, which I thought were very powerful. Actually, I burst into tears 😭 Thank you both 💙 #MyalgicEncephalomyelitis #GreatestMEdicalScandal #LongCovid
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Tessa Munt MP 🔶 @tessamunt.bsky.social · 24/09/2026
Thank you so much, George! Your conclusion speaks volumes, reflecting so much that I hear from #pwME.
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Natasha Devon @natashadevon.bsky.social · 24/09/2026
George will be coming on my show this weekend to discuss this very important article.
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Lucy Seton-Watson @lucysetonw.bsky.social · 24/09/2026
On ME. This shocked me: “A freedom of information request to NHS England found that, of the tens of thousands of practitioners who would benefit from it, after a year, only 74 had completed the new learning module on ME/CFS guidance.”
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS
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Rose Mary @rose-mary-x.bsky.social · 21/09/2026
‼️ #MECFS #pwME #MyalgicEncephalomyelitis
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Greens Against Covid @greensagainstcovid.bsky.social · 04/09/2026
We are aware that Covid levels are rising again in the UK (and elsewhere). We would remind you that an infection is not inevitable. Limit risk by ensuring that indoor spaces are well-ventilated. Unventilated spaces are best avoided. Wear a well-fitting FFP3 mask in shared air.
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Tessa Munt MP 🔶 @tessamunt.bsky.social · 04/09/2026
Too many #pwME tell me of NHS services where there is no accommodation for their ME related needs, and engagement sets them back rather than helping. I’ve written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs - a sensible low cost measure
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greenhealthpolicy.bsky.social @greenhealthpolicy.bsky.social · 28/08/2026
Looking forward to discussing The Green Way to Health, motion A68 at Conference. This is our proposed new health policy, based on the values of the Green Party, centring justice and health over profit. We’ll be sharing highlights in the run up to conference. @greenparty.org.uk
A green poster showing a cartoon of a family cycling up a path on a hill. A sign says Vote for motion A63. The title of the poster is The green way to health. subtitle a healthier future for us all. 1. End health inequity. Address the large and widening health gap between the least and most disadvantaged. 2. Think health. Think health in all decision making using a health in all policies approach to apply the joined-up thinking needed to enable a healthy society. 3. Deliver a real NHS. Public not proveate, properly funded, focussed on health not just sickness and with a properly planned and valued workforce empowered to deliver qualityservices for all. 4. Prevent avoidable illness. Tackle the major risk factors driving the crisis in non-communicable diseases; prevent hte spread of infectious diseases and prepare for climate-related health risks. 5. Health before profits. Safeguard against undue commercial influence on decision making and be bold in addressing negative commercial determinants of health. At the bottom the green party logo of a world with sunflower and the Words Green Party. Promoted by the Health Policy Working Group (Green Party) c/o PO Box 78066 London SE16 9GO
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Smart Air @smartairfilters.bsky.social · 21/08/2026
Ruth (@ruthbrooker.bsky.social) is a mom from Bristol. She built a DIY air purifier to help keep her son safe at school. Now she is asking for cleaner air in UK schools. Full interview: smartairfilters.com/en/blog/how-...
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Rose Mary @rose-mary-x.bsky.social · 18/08/2026
I really need @zackpolanski.bsky.social & the Greens to speak up for disability benefits loudly & often. The relentless hate & disinformation requires a response of equal magnitude. I’m terrified & exhausted. @rachelmillward.bsky.social @mothinali.bsky.social @nataliegreenpeer.bsky.social #PIP #UC
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Tessa Munt MP 🔶 @tessamunt.bsky.social · 15/08/2026
Congrats to James Frith MP, newly appointed as the Minister for Health Innovation, with responsibility for ME. I’ve written to him on ME emphasising that given the numbers, and the length and extent of suffering, ME represents a significant burden at personal level, to society and to our economy.
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Tessa Munt MP 🔶 @tessamunt.bsky.social · 08/08/2026
Thanks to everyone who contributed to such a powerful account. @andyburnham.bsky.social spoke of govt investing in people’s success rather than paying for failure. A year on from #DecodeME results it’s time for serious investment in the research to address the cost to us all of #SevereME. #MECFS
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Chris Ponting @cgatist.bsky.social · 06/08/2026
Today is the 1-year anniversary of the #DecodeME genetics preprint. It was an emotional day for many including everyone in the team that delivered the project #pwME #MEcfs @actionforme.bsky.social institute-genetics-cancer.ed.ac.uk/sites/defaul...
institute-genetics-cancer.ed.ac.uk
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Long Covid Kids @longcovidkids.bsky.social · 01/08/2026
Five years on. Children and young people are still living with Long Covid. As Samir says at the end of this report: "That we're still here." Thank you to everyone who shared their story, and to Ruth Liptrot and @channel5news.bsky.social . 🎥⬇️ youtu.be/FZp32EIppZ8 #LongCovidKids #ChildHealth
youtu.be
Five Years On: Children and Young People Still Living with Long Covid | Channel 5 News
YouTube video by Long Covid Kids
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sarah boothby @swastrosarah.bsky.social · 20/06/2026
Imho, having been part of this process since it was announced in 2022, it is far worse than a failed government initiative, though of course that is bad. Things are worse now than they were before it began.
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Baby octopus @mancalled.horse · 10/06/2026
6 Music news described them as "demonstrators". In my experience demonstrators wave placards and banners and have speeches. When people go door to door dragging anyone with brown or black skin out of their homes there are other words historically used to describe them
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RNIB @rnib.bsky.social · 10/06/2026
Alt text.
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Prof Nisreen Alwan @nisreenalwan.bsky.social · 10/06/2026
Every policy passed should have a declaration of interests attached to it just like we do for research outputs.
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Rose Mary @rose-mary-x.bsky.social · 26/05/2026
@nataliegreenpeer.bsky.social it would be great if you could attend this!
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Adam @abrokenbattery.bsky.social · 25/05/2026
“The injustice of it, I couldn’t believe it.” Former Team GB rower @oonaghcousins.bsky.social talking about the #MECFS “scandal” where patients were told they were deconditioned and needed Graded Exercise and CBT. It is the “opposite of what they needed” and that legacy still runs “super deep”.
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Ed Poole @edpoole1975.bsky.social · 14/05/2026
One of the things turned up to 11 during the pandemic was the idea that being an utterly selfish and dangerous scumbag, willing to risk other people's lives for the slightest reason was acceptable.
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Rose Mary @rose-mary-x.bsky.social · 10/05/2026
👀
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Action for ME @actionforme.bsky.social · 26/04/2026
1/2 🚨 Our BBC Lifeline Appeal video is live! Missed the screening earlier on BBC One? Head over to our BBC Lifeline Appeal page to watch it and don't forget to share 👇 www.bbc.co.uk/iplayer/epis... #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #BBCLifelineAppeal ⬇️
bbc.co.uk
Lifeline - Action for ME
Montell Douglas presents an appeal on behalf of Action for ME, a charity that provides support and advocacy for people of all ages affected by ME.
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Action for ME @actionforme.bsky.social · 20/04/2026
1/6 🚨 ME on the BBC We are delighted to have been selected for a BBC Lifeline Appeal - a unique opportunity to increase understanding of ME and share the voices of the ME community across national TV! #pwME ⬇️
Poster showing a video camera on a tripod with text “BBC Lifeline Appeal – Airing Sunday 26 April.” The Action for ME logo appears in the top right, and a Lifeline logo with two reaching hands is at the bottom.
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sarah boothby @swastrosarah.bsky.social · 12/04/2026
justice4me.uk call for evidence - time sensitive!! If you know anyone who has severe/very severe ME, or severe/very severe Long Covid, in England or Wales please ask them to fill out the form and send it back to admin@justice4me.uk by Friday 17 April 2026. 1/3
justice4me.uk
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
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The Canary @thecanaryuk.bsky.social · 11/04/2026
People have accused Reform of giving two of their members a handout, and now the police are looking into the raffle
thecanary.co
The police are probing Reform's scandal-struck raffle
People have accused Reform of giving two of their members a handout, and now the police are looking into the raffle
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The Irish Times @irishtimes.com · 08/04/2026
Long Covid to cost OECD economies up to €115bn a year
irishtimes.com
Long Covid to cost OECD economies up to €115bn a year
New research predicts impact of lower productivity and workers quitting because of long-term illness after Covid-19
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Rose Mary @rose-mary-x.bsky.social · 09/04/2026
“We need to talk a lot more about #LongCovid” - @nataliegreenpeer.bsky.social We sure do. @zackpolanski.bsky.social @boldpolitics.bsky.social @garyseconomics.bsky.social @adrianramsay.bsky.social @natashadevon.bsky.social
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Natalie Bennett @nataliegreenpeer.bsky.social · 23/03/2026
Such a powerful account I heard at the weekend about a young woman bedridden with very severe Myalgic Encephalomyelitis following Covid-19 in 2021. We need to talk a lot more about #LongCovid www.theredtreeandme.com/p/red-leaves...
theredtreeandme.com
Red Leaves of Solidarity
Long Covid Awareness month landed at a time when the UK Covid-19 Inquiry is laying bare just how little attention was given to the long- term consequences of Covid infection for children and adults.
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Prof. Catherine Rowett, ex MEP @catherinerowett.bsky.social · 21/03/2026
It looks like they're repeating the same mistakes as with covid. "Oh no it's not spread by aerosols. Just wash your hands. No need for masks." Why do they do this? People will die.
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Greens Against Covid @greensagainstcovid.bsky.social · 20/03/2026
We're appreciative of Zack's understanding, as shown in his interview on #BoldPolitics with Dr Khan. #GreenParty policy calls for funding and prevention. Not engaging with the harms of Covid is a #PoliticalChoice #ventilation #Covid #LongCovid #LongCovidAwareness #HopeNotHate
Key text: "Lots of people who do have Long Covid just feel they kind of have been left behind. There’s nothing for them and they’re not in the public discourse.  It feels like my obvious first step is to argue for more funding -  to look at more steps for prevention - to make sure there’s proper ventilation in buildings, etc.   But it also feels like the decision makers very often, unless they've got someone in their family or have been personally been affected by it, there seems to be almost a psychological thing of, 'Oh it won't happen to me but that's unfortunate for that group of people...'" Zack Polanksi - Green Party Leader. Sidebar Images: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) . Photo of Zack against a teal backtround with 'Zack Polanski' just visible behind him. He is looking serious and there is a microphone. The Long Covid Awareness ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. #LongCovidAwareness. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
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Bowling Shane @bowlingshane.bsky.social · 20/03/2026
Millions of people in the UK including myself have had their long term health impacted by COVID infections and @zackpolanski.bsky.social is the only political leader talking about it. We need treatments and indoor clean air policies to protect the public's health.
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Rose Mary @rose-mary-x.bsky.social · 15/03/2026
#LongCovidAwarenessDay
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Rose Mary @rose-mary-x.bsky.social · 15/03/2026
#LongCovidAwarenessDay
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Kelly @broadwaybabyto.bsky.social · 14/03/2026
It’s been six years since Covid was declared a global pandemic. Most people moved on years ago. Decided to go “back to normal” whether it was safe or not. They left people like me by the wayside. They abandoned the vulnerable. They embraced the comfortable lie.
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Greens Against Covid @greensagainstcovid.bsky.social · 08/03/2026
Thanks @elliechowns.bsky.social , @greenparty.org.uk MP for this reflection and the understanding that the harms are ongoing. #Covid-19DayOfReflection #CovidIsNotOver
Ellie Chowns MP + photo of Ellie, a woman with brown bobbed hair, in white top and teal green jacket with a hedge behind her. Greens Against Covid logo.  "Today I am taking time to remember the hundreds of thousands of people in Britain who lost their lives in the pandemic, and to pay tribute to all those in the NHS and public health fields who worked tirelessly to manage the disease and save lives. I also want to draw attention to the may ways Covid is still affecting us today - from effects on health such as Long Covid to lasting financial and emotional strain, the impact of the pandemic is still being felt by many. If we are to prevent another devastating pandemic, the government must act. Implement the recommendations of the Covid Inquiry, invest much more into our NHS and pandemic preparedness, and ensure corruption and private profit do not stand in the way of public health." #COVID-19DayofReflection Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
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Greens Against Covid @greensagainstcovid.bsky.social · 08/03/2026
On #Covid19DayofReflection2026 we think of all who have been harmed by the virus and we acknowledge the ongoing pandemic. We call for action on #Covid and #LongCovid to prevent further harm from Covid infection. #ffp3 #n95 #Ventilation #MasksInHealthcare #IndoorAirQuality
A faded background of the Covid memorial wall. The Greens Against Covid logo (green party green suflower with a white crossed out virus in the middle) in the top left. A green heart in the middle with the words COVID-19 DAY OF REFLECTION 2026 in black capitals. At the bottom, in green GreensAgainstCovid. At the very bottom in small black lettering: promoted by covid and long covid campaign working group (Green Party) c/o po box 78066 london SE 16 9GQ. Below this the words photo by andy kennedy on unsplashA faded Green background. The Greens Against Covid logo (green party green suflower with a white crossed out virus in the middle) in the top left. A green heart in the middle with the words WE REMEMBER in black capitals. At the bottom, in green GreensAgainstCovid. At the very bottom in small black lettering: promoted by covid and long covid campaign working group (Green Party) c/o po box 78066 london SE 16 9GQA faded Green background. The Greens Against Covid logo (green party green suflower with a white crossed out virus in the middle) in the top left. A green heart in the middle with the words THE LIVES LOST in black capitals. At the bottom, in green GreensAgainstCovid. At the very bottom in small black lettering: promoted by covid and long covid campaign working group (Green Party) c/o po box 78066 london SE 16 9GQA faded Green background. The Greens Against Covid logo (green party green suflower with a white crossed out virus in the middle) in the top left. A green heart in the middle with the words THE BRAVERY AND THE SACRIFICE in black capitals. At the bottom, in green GreensAgainstCovid. At the very bottom in small black lettering: promoted by covid and long covid campaign working group (Green Party) c/o po box 78066 london SE 16 9GQ
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Sian Berry MP @sianberry.bsky.social · 06/03/2026
Ella’s Law has been published 👏 No child should have the growth of their lungs stunted because of dirty air where they live and play, yet this is the reality of air pollution in England. Ella’s Law would change this. My thanks to Rosamund and all the hard-working campaigners demanding change.
Image shows Sian Berry stood to the left of campaigner Rosamund Adoo-Kissi-Debrah, and surrounded by a group of clean air campaigners. All of them are smiling and holding a copy of Ella's Law - the Clean Air (Human Rights Bill).Image shows Rosamund Adoo-Kiss-Debrah sat next to Sian with a copy of Ella's Law on the table in front of them. They are both reading the Bill that is named in memory of Rosamund's daughter Ella who died aged nine due to exposure to air pollution.
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