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northernsi.bsky.social

@northernsi.bsky.social
927 followers 2.5K following 367 posts

Design. Longhauler.

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Alex Andreou @sturdyalex.bsky.social · 30/09/2026
Burnham on Social Care in July: "I ask the media, can we not let the country look at this in a clear-eyed way without all of the overwriting? On this issue, please, can we not have a factual debate? Allow people to weigh up the options and come to a considered view based on the facts?" The media:
Daily Mail: BURNHAM'S TRIPLE SHOCKThe Daily Telegraph: TRIPLE LOCK SCRAPPED BY 2030 (with a monstering photo of Burnham)Daily Express: IT'S A CRYING SHAME FOR OUR NATIONThe Sun: LOCKY HORROR SHOW
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
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Nicolas Hénin @nicolashenin.net · 17/09/2026
Nice campaign by the Norwegian Consumer Council about the declining lifespan of products. Enjoy!
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David Widdick @davidwiddick.bsky.social · 08/09/2026
I love pew end carvings in churches. I try not to post too many to avoid being a bore but I’d be interested in peoples opinions on what these might represent. They’re both from Cley-Next-the-Sea. Please retweet because I’d like to get as many ideas as possible.
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Count Binface @countbinface.bsky.social · 11/08/2026
An American interviewer asked me about my political beliefs. #VoteBinface
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Steve Bullock @guitarmoog.bsky.social · 02/08/2026
Well, today was irksome. Except for all of the people who were kind about Long Covid or infuriated on behalf of its sufferers in my replies and in their replies to others. That was very heartening. I, and I’m sure many others, are grateful for the support. Very genuinely.
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Tube Mapper- Luke Agbaimoni @tubemapper.bsky.social · 31/07/2026
I love capturing those moments where London Underground trains line up perfectly with station posters. With a little patience and a bit of luck, you can end up with some wonderfully amusing and unexpected shots.
Poster looks like it's pointing a gun at a train Spiderman poster looks like it's riding on a train Dancer on a pister looks like she is running away from a train Witch looks like she is reaching out to a train
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Dorian Lynskey @dorianlynskey.bsky.social · 21/07/2026
All you can do with the right-wing press is ignore it and get on with the job. Never try to appease these ghouls and their sundowning readership. They’re the people who thought Liz Truss was a good idea
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northernsi.bsky.social @northernsi.bsky.social · 17/07/2026
#TOTP
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Jim Pickard @pickardje.bsky.social · 14/07/2026
The UK squandered £10bn on personal protective equipment during the Covid-19 pandemic, a public inquiry has said, as it hit out at the contentious “VIP lane” for procuring masks and gowns as “unfair” and “inherently biased” www.ft.com/content/2a56...
ft.com
UK ‘wasted’ nearly £10bn on PPE during pandemic, inquiry says
‘Vast’ sums squandered in health crisis, report finds, as it criticises so-called VIP lane for procurement
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Naomi Smith @pimlicat.bsky.social · 12/07/2026
Very important thread about ME and NHS continued failings
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 25/06/2026
Climate scientists will recognize this playbook. Controversialize science that isn’t controversial by platforming a small group of “skeptics” who generally have little to no expertise in the subject, in order to delay necessary action at the price of countless lives.
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Emily Johnson @emilyrj.bsky.social · 25/06/2026
Patients, clinicians and researchers have called out media outlets for years for hiring writers with little to no experience in #LongCovid using pseudoscience to push harmful pet biases and misinfo (even when presented with expert research debunking their claims) Must read ⬇️
The media tendency to ignore, deny and/or psychologize Long Covid causes significant harm to both patients and the general public, who are not being warned of the risk. Patients face disbelief and bigotry from families, workplaces and even doctors, who often get more information from the media than from journals. The gulf between medical research and practice is estimated to be 17 years on average.
Prejudices against patients are reinforced when a news outlet's most in-depth, academic-sounding articles on Long Covid attempt to undermine the reality of the disease.
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Mark Faghy @profmarkfaghy.bsky.social · 29/04/2026
Our new paper is here: Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID www.nature.com/articles/s43...
nature.com
Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID - Communications Medicine
Faghy et al., review the current literature on Long COVID pathophysiology, linking immune dysregulation, viral persistence, and vascular injury to enduring symptoms. They highlight evidence to guide f...
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Will Jennings📉🗳️ @drjennings.bsky.social · 10/06/2026
A reminder that Brazil banned Twitter for failing to stop the spreading of disinformation. There is nothing stopping the British government from doing the same.
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SlenderSherbet @slendersherbet.bsky.social · 08/06/2026
"FOR THE LOVE OF GOD SLOW DOWN ALAN THIS IS MADNESS"
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Tube Mapper- Luke Agbaimoni @tubemapper.bsky.social · 07/06/2026
Southgate Enterprise I always think about Star Trek when I visit Southgate London Underground station. The station building and the outside benches remind me of the Starship Enterprise. The cut out design didn't work with the main station which already looks like a classic flying saucer.
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Blue Tapes @bluetapes.bsky.social · 03/06/2026
Art of the day Guim Tió Zarraluki
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Ian Dunt @iandunt.bsky.social · 02/06/2026
What Reform did today was an incitement to rioting and an insult to a grieving family. This bloke should have hung his goddamn head in shame.
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Daniel Sugarman @danielsugarman.bsky.social · 02/06/2026
When the father of a murdered son makes a public statement saying "we do not want his death to be used to create further division, hatred or tension", then I believe it's incumbent on any news outlet reporting on Farage's comments to ensure people know he has chosen to disregard the family's wishes.
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northernsi.bsky.social @northernsi.bsky.social · 24/05/2026
Incredible result! Championship! 🙌#BWFC
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Karen Hargrave @karenlhargrave.bsky.social · 24/05/2026
I spoke to @theipaper.com recently about the battle I’ve faced the past two years covering the spiralling costs of James’ care. Since the interview our local authority has offered a new care package that will take the pressure off - but still doesn’t reflect James’ 24/7 needs.
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northernsi.bsky.social @northernsi.bsky.social · 05/05/2026
Half. A. Decade. Not a milestone I wanted, but today marks my 5 year Long Covidversary 🎂😔 #LongCovid
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Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 25/04/2026
A reminder that the best way to not get long Covid is not get covid but if (when) you do, make sure you rest even if feel ok - don’t push through. You’re risking the living nightmare that is ME
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Adam @abrokenbattery.bsky.social · 12/04/2026
Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed their minds” Clip from Hope 4 ME & Fibro NI Collaboration
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Adam @abrokenbattery.bsky.social · 16/04/2026
Helen Gibson and Edward Monroe on BBC Radio 4’s Feedback challenge Suzanne O’Sullivan’s claims that #LongCovid is largely psychosomatic when she was interviewed on Amol Rajan’s podcast. Mentions #MECFS, NICE’s 2021 guidance and DecodeME genetic findings.
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Lucibee @lucibee.bsky.social · 16/04/2026
Important post from Dr Todd Davenport about PEM. likeannopeningbandforthesun.substack.com/p/in-pursuit...
likeannopeningbandforthesun.substack.com
In Pursuit of Understanding the Crash
What Post-Exertional Physiology Tells Us About ME/CFS
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northernsi.bsky.social @northernsi.bsky.social · 11/04/2026
@johnrain.co.uk just realised what your profile pic reminded me of… Are there any more Columbo eps in the podcast pipeline btw? 🤞
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The Museum of English Rural Life (MERL) @themerl.bsky.social · 09/04/2026
Happy 8th anniversary to the tweet that changed us forever. Look at this absolute unit.
A very stocky Exmoor Horn ram.
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northernsi.bsky.social @northernsi.bsky.social · 09/04/2026
@syskpodcast.bsky.social Stuff You Should Know: How to pronounce Rochdale 😂 The cooperative idea wasn’t about building utopia, mill owners in the 1800s trapped workers in debt, paying them in tokens that could only be used in the mill owner’s expensive shops. Co-op was a way to help those workers
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Seeking Boston Marathon @seekingboston.bsky.social · 29/03/2026
The last couple of days of Long Covid Awareness Month. Was fortunate to have Dr David Putrino on The Butterfly Pavilion Podcast. "The Long Covid Kaleidoscope" podcasts.apple.com/us/podcast/t... 👀 @mileswgriffis.bsky.social #LongCovid #LongCovidAwareness #podcast #cancer
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northernsi.bsky.social @northernsi.bsky.social · 28/03/2026
Thank you @mrkennycampbell.bsky.social for a superb, well-informed episode. Claire was utterly brilliant. Thank you @quietriotpod.bsky.social @pimlicat.bsky.social and @sturdyalex.bsky.social for highlighting this important issue, it means a lot — sufferers have largely been forgotten & abandoned 🙏🙌
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Long Covid UK @longcoviduk.bsky.social · 15/03/2026
❤️‍🩹 A THANK YOU TO OUR COMMUNITY ❤️‍🩹 Today is Long Covid Awareness Day. Around the world, people will be talking about Long Covid, learning more about what it is, and hearing about its impact. 1/3
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ME Association @meassociation.org.uk · 15/03/2026
Long Covid awareness Day (March 15) aims to raise awareness of the long-term health problems people may experience after a COVID-19 infection. You can find out more about Long Covid and the symptoms here: meassociation.org.uk/vqei #LongCovid #LongCovidAwareness #LongCovidAwarenessDay2026
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Cognitive dysfunction/brain fog, Pain, Headaches, Pins and needles/paraesthesiae, Sleep disturbances.IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Loss of taste and/or smell, Breathlessness, Cough.
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Fatigue and PEM, Hair loss, Skin rash, Nausea, stomach pain and diarrhoea.IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Chest pain, Palpitations, PoTS
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northernsi.bsky.social @northernsi.bsky.social · 13/03/2026
@alexlowe1.bsky.social Great show, the spirits in Derby were strong tonight! Just wanted to say thanks for saying hello when I was waiting outside for my mate to arrive — you made my day x
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Neil Norman And His Cosmic Orchestra @fubsyshabaroon.bsky.social · 03/03/2026
Best appreciated whilst watching it with this as the soundtrack:
youtu.be
Qatar Philharmonic Orchestra | Henry Mancini - Peter Gunn Theme
YouTube video by Qatar Philharmonic
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northernsi.bsky.social @northernsi.bsky.social · 17/02/2026
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Adam @abrokenbattery.bsky.social · 30/01/2026
“Is it any wonder that people in this room, people who are watching at home get so angry with GPs who dismiss it, with people who say it's psychiatric… they don’t want to be ill” Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s.
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Adam @abrokenbattery.bsky.social · 31/01/2026
Dr. Anne MacIntyre speaks about the importance of early diagnosis of #MECFS so patients can get appropriate rest. She also raises concerns about children being forced into things such as exercise programmes. Clip from Kilroy, early 1990s.
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Katie J. @kjohnstone.bsky.social · 24/01/2026
I've sent an email, I used the one from the Canary article and changed it a bit. This is so heartbreaking. 💔💔💔
A screenshot, just black text on a white background.

TO  ben.travis@nhs.net
SUBJECT  Urgent: Savannah Victora-May

Dear Mr Travis,

I'm writing to ask you to take urgent action to save a patient in your care at Queen Elizabeth Hospital, Savannah Victora-May. Savannah has very severe myalgic encephalomyelitis (ME), a chronic neuro-immune disease. Sadly, although ME is both very common and very serious, patients face stigma and are often dismissed and disbelieved, sometimes with tragic consequences.

Please act immediately to ensure Savannah receives intravenous fluids. Without these she may die.

Please engage with experts in ME to find the best care plan for Savannah. I understand that NHS hospitals generally do not work with private doctors. However as there are currently no ME specialists working within the NHS, you should make an exception in this case.

Most importantly, please acknowledge that Savannah's lived experience makes her an expert in her own condition. Your staff must respect her agency to refuse treatments which she knows will cause her to deteriorate further. They must listen to her and respect her wishes when she communicates the care she needs.

Unfortunately, in the past the lack of medical knowledge and training on ME has led to dangerous relapse and even death. The death of Maeve Boothby O'Neil a few years ago led to a great deal of media attention and an inquiry which recognized that hospitals do not provide adequate care to these patients. Please do not allow a repeat of such tragedies.

Yours sincerely,
Katie Johnstone
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Billy Hanlon @bhanlon15.bsky.social · 09/01/2026
Medscape: 'Multiple Abnormal Responses to Exertion Seen in ME/CFS' 'The new plasma profiling study focused on PEM..6361 unique proteins with patient-reported symptom data gathered before, during & after 2 days of maximal cardiopulmonary exercise testing..' www.medscape.com/viewarticle/...
medscape.com
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
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Putrino Lab @putrinolab.bsky.social · 29/12/2025
Respectfully Jon Stewart, you were wrong on the @weeklyshowpodcast.bsky.social to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further 1/
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Jay Hulme @jayhulmepoet.bsky.social · 23/12/2025
Was at a Christmas party with a load of clergy last night and as some people were leaving they found a person collapsed on the street outside so the Verger took over and called an ambulance and sent all the clergy away because "if they wake up surrounded by priests that'll just make things worse"
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Seeking Boston Marathon @seekingboston.bsky.social · 18/12/2025
Appreciate all the new follows but have been low on energy to catch up. If you haven't caught the latest podcast, I'd encourage a listen and share. Akiko Iwasaki talks long Covid and stage IV cancer with us on The Butterfly Pavilion Podcast. podcasts.apple.com/us/podcast/a...
podcasts.apple.com
Akiko Iwasaki: Finding Light in Darkness
Podcast Episode · The Butterfly Pavilion Podcast · 12/05/2025 · 50m
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Andboo Haunton 😷🎃 @andrewhinton.bsky.social · 16/12/2025
Why do I wear an N95 mask? Bc Covid will happily destroy your immune system, more each time you get it. It can give you a whole new syndrome and/or awaken & worsen dormant viruses+syndromes. You do not want a mystery disease like my loved one has now. Our system does not know what to do with you.
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Alistair Coleman @alistaircoleman.bsky.social · 13/11/2025
Happy Fenton Day to all who celebrate. Jesus Christ, fourteen years. youtu.be/3GRSbr0EYYU
youtu.be
JESUS CHRIST IN RICHMOND PARK: ORIGINAL UPLOAD
YouTube video by JAGGL113
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James O’Brien @mrjamesob.bsky.social · 05/11/2025
School pupils are to be taught how to tackle conspiracy theories, spot 'fake news' & root out misinformation. The Daily Mail, ajudged by Wikipedia to be an unreliable new source, is furious. You don't have to be Sherlock Holmes to work out why.
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Mark Faghy @profmarkfaghy.bsky.social · 20/10/2025
Sorry for the silence: The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.
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Billy Hanlon @bhanlon15.bsky.social · 22/10/2025
Mirror: “Covid Inquiry reveals ‘forgotten’ children left disabled by Long Covid” www.mirror.co.uk/news/uk-news...
mirror.co.uk
Covid Inquiry uncovers ‘forgotten’ children left disabled by Long Covid
Long Covid Kids supports over 11,000 children whose parents say they have been 'gas lit' by NHS, schools and social services, as the inquiry uncovered pandemic-era advice against diagnosing the condit...
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