While there are no data sources on Long COVID in prison, experts suspect rates of the disease may be higher there than in the general population. They face high reinfection risks and poor access to me...

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

The last couple of weeks my social media has had a lot more traffic. Partly due to my own story in the media, but also because other people with (very) severe ME or infectious associated chronic illne...

A special moment during the 2026 Amsterdam ISLC-PAIS Conference Patient Recap Session. Fred Verdult shares the news that Anil van der Zee has received a Royal Honour from the Mayor of Amsterdam, recog...

Wij lopen voor onderzoek naar ME/CVS ❤️ Hoi! Wij zijn Ties en Siem en wij doen mee aan de Dam tot Damloop om geld in te zamelen voor de Amsterdam UMC Foundation. Met onze actie willen we helpen om ...

YouTube video by Anil about ME

Zucht, weer een ongefundeerd stressmodel… Het rattenmodel dat Keppel Hesselink aanhaalt laat misschien zien dat langdurige, milde stress neuro inflammatoire veranderingen kan veroorzaken. Dat is inte...

Nature - Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.

By David Tuller, DrPHLast month, I was delighted to hear that my friend Anil van der Zee, who has been bed bound with ME/CFS for years, had been selected to ...

Heb je al van ‘PAIS’ gehoord? Je spreekt het uit als ‘mais’, maar dan met een p. PAIS staat voor post-acute infectie syndromen. Denk daarbij aan aandoeningen die langdurige klachten kunnen veroorzaken...

YouTube video by Anil about ME

Anil van der Zee krijgt een lintje voor zijn aanhoudende inzet voor patiënten met slecht begrepen ziektes als ME en long covid.

I'm not a patient advocate. I'm not an activist. I'm just a patient that shares out of sheer desperation as much about my disease, or rather the whole shit show circus surrounding it, so I can hopeful...

L'Assurance maladie ne relie donc plus l'encéphalomyélite myalgique à un trouble psychiatrique ou psychologique, rapporte vendredi France Inter. Une reconnaissance "institutionnelle" qualifiée "d'étap...

To mark Severe ME Day 2026, the Dutch ME-info channel ME Centraal asked several national and international bloggers to contribute a piece in honor of the day. Dutch blogger Anil van der Zee respond…

Fibromyalgia (FM) remains difficult to manage due to a highly variable symptom profile. The “FINAL” randomized, placebo-controlled trial examined the efficacy of low-dose naltrexone (LDN) on pain in w...

Infection - Autoantibodies against β-adrenergic and muscarinic acetylcholine receptors are said to play a role in the pathophysiology of post-COVID syndrome. To date, only a limited number of...

Long COVID Patients Deserve Better: Pause McMaster’s FALCON Lightning Process Trial

Virus reactivations by SARS-CoV-2 could worsen initial symptoms and increase risk of Long Covid

To clearly name the problem: The term is accepted in medicine as a common-sense position that on the surface makes a great deal of sense. Yet, there is often a hidden psychosomatic interpretation that...

deconditionering bij ME/cvs

Being ill is hard.  What an obvious thing to say – and yet how often it goes unspoken.  I’ve written about many aspects of life with long-term illness: from the grief of dreams shat…

By matching DNA results with gene expression databases researchers can determine the tissues and cellContinue readingCell and tissue enrichment in ME/CFS

Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection is increasingly associated with long-term biological perturbations that persist beyond the acute phase of the disease. In this re...

The post COVID-19 condition (PCC) is a disabling condition with urgent need for effective treatments. This pilot randomized controlled trial examined …

By David Tuller, DrPH Cognitive dysfunction, also known as “brain fog,” is among the most disabling aspects of Long Covid—and investigators have struggled t ...

Neue Befunde aus den Niederlanden rücken den Hypothalamus ins Zentrum der Erkrankung ME/CFS, das Myalgische Enzephalomyelitis/Chronische Fatigue-Syndrom, ge