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Naomi Harvey PhD

@naomidharvey.bsky.social
3.8K followers 989 following 1K posts

Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.

PostsRepliesMedia
Reposted by Naomi Harvey PhD
George Monbiot @georgemonbiot.bsky.social · 08/10/2025
On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.
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George Monbiot @georgemonbiot.bsky.social · 08/10/2025
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...
theguardian.com
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
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Rose Mary @rose-mary-x.bsky.social · 09/08/2025
🚨!!PLS SHARE & TAG #pwME !!🚨 @natashadevon.bsky.social TONIGHT on @LBC 7-8pm Re: @decodemestudy.bsky.social asking; 'Were you told it was in your head, and if so what do these findings mean to you?' Tel/WhatsApp 0345 606 0973 SMS 84850 #MECFS #MyalgicEncephalomyelitis #SevereMEDay #LongCovid
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Naomi Harvey PhD @naomidharvey.bsky.social · 09/08/2025
I finally checked the DecodeME preprint to verify the ‘no overlap with LC’ claim: 1) DecodeME only had 462 people with C19 caused ME 2) they did not run a separate GWAS on the LC cohort (it’s too small) 3) this is the piece of text people are referring to: it’s just a reference to another study
Long COVID, a condition with similar symptoms and starting, like most cases of ME/CFS, after an infection, has one genetic association near FOXP4 (72), but this was not shared with
ME/CFS (p = 0.59 for rs9367106).
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 08/08/2025
Today, on Severe ME Awareness Day, @thesicktimes.org is proud to publish this piece by @naomiwhitt.bsky.social sharing the story of singer Kara Jane and her new album, released posthumously by her family. thesicktimes.org/2025/08/08/p...
thesicktimes.org
Posthumous album of singer Kara Jane released on Severe ME Awareness Day - The Sick Times
This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her...
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Naomi Harvey PhD @naomidharvey.bsky.social · 07/08/2025
Huge thank you to Chris Ponting and the @decodemestudy.bsky.social team for all their work on this project, and the work still to come. These results are a great foundation and provide a lot of validation for patients across the world 🩵
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Naomi Harvey PhD @naomidharvey.bsky.social · 07/08/2025
Look 👀 at this - five of the news outlets are actually using ‘ME’ in their headline, and four of those are using it exclusively, without CFS!! That’s real change right there.
A screenshot of Google news results showing headlines from 7 different news sources about the latest DecodeME results,

Google
me cfs news
4- Channel 4
ME linked to your genetics - early study indicates
1 hour ago

The Guardian
Scientists find link between genes and
ME/chronic fatigue syndrome
1 hour ago

The Times
Breakthrough genetic study offers treatment hope for ME
patients
1 hour ago

The Independent
The key genetic difference
ME sufferers have from others - and what it means
1 hour ago

New Scientist
Key genetic differences found in people with chronic fatigue syndrome
1 hour ago

The Telegraph
ME is a real illness, genetic study shows
1 hour ago

Financial Times
Chronic fatigue sufferers have different genes, study finds
1 hour ago
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Naomi Harvey PhD @naomidharvey.bsky.social · 07/08/2025
I’m seeing a lot of confusion about ‘risk’ versus cause. The DecodeME results do NOT show that ME is a genetically caused disease. There is no gene that causes ME. They do show certain genes can increases our chances of developing ME. 🧵
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DecodeME @decodemestudy.bsky.social · 07/08/2025
After the release of our initial DNA results last night, Nicky Campbell's Five Live radio programme will cover ME/CFS this morning, we expect around 10am www.bbc.co.uk/programmes/m...
bbc.co.uk
BBC Radio 5 Live - Nicky Campbell
Nicky Campbell takes your calls on the day's talking points.
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Reposted by Naomi Harvey PhD
Michiel @murtoz.bsky.social · 31/07/2025
Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!
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Reposted by Naomi Harvey PhD
Michiel @murtoz.bsky.social · 31/07/2025
Read her words. Isla was already suffering age 8 at the hand of the UK health care systems. Last year, she died from ME, despite her parents best efforts to protect her from this system. So now the system has arrested Isla's mum... @ashleydaltonmp.bsky.social your plan is not fit for purpose.
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sarah boothby @swastrosarah.bsky.social · 31/07/2025
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear. #MEKills #HumanRights
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sarah boothby @swastrosarah.bsky.social · 31/07/2025
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
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Naomi Harvey PhD @naomidharvey.bsky.social · 11/06/2025
@chronically2784.bsky.social i can’t send you images here in DM but I saw this on the other place and wanted to share with you x
Screenshot of a paper and abstract saying:
Effects of coenzyme Q,10 on health-related quality of life, clinical disease activity and blood pressure in patients with mild to moderate ulcerative colitis: a randomized clinical trial

Abstract
Background: Ulcerative colitis (UC) is specified by a chronic mucosal inflammation that has a deleterious impact on the quality of life (QoL). Coenzyme Q10 (CoQ10) appears to influence disease activity by its obvious properties. Therefore, the current research intends to assess the impacts of CoQ10 on QoL, discase activity, and blood pressure in UC patients
Methods: This clinical trial performed on men and women with UC in 2017 who were attended the gastrointestinal center of Hazrat Rasool Akram Hospital and private clinic. Eighty-eight UC patients were randomly allocated to receive either CoQ10 (200 mg/day) or placebo for 8 weeks. The anthropometric parameters, blood pressure, inflammatory bowel disease questionnaire-32 (IBDQ-32) score, and the Simple Clinical Colitis Activity Index (SCCAl) score were measured pre and post-intervention. P-value <0.05 was considered to be statistically significant. All statistical analysis was done using SPSS software version 24.
Results: Eighty-six UC patients (44 males) with a mean age of 39.29 (10.19) years completed the trial. The results of between- and within-group analysis revealed that the SCCAl soore (p<0.001 and p<0.001, respectively), diastolic blood pressure (p=0.025 and p=0.001, respectively), and systolic blood pressure (p=0.00l and p«0.001, respectively) decremented significantly, while, the mean IBDQ-32 (p<0.001 and p=0.001, respectively) increased substantially in the CoQ10 group; whereas there was no significant difference in anthropometric indices in both groups.
Conclusion: Findings suggest that CoQ10 can be used as a potential intervention for diminishing the disease severity and blood pressure and may improve Qol. and UC patients.
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Tom Kindlon @tomkindlon.bsky.social · 15/05/2025
Evaluating the Causal Role of Genetically Inferred Immune Cells and Inflammatory Cytokines on ME/CFS www.mdpi.com/2227-9059/13... "These data are supportive of the causality that immune system dysfunction & inflammatory variables play a pivotal role in the development of ME/CFS" #MEcfs #CFS
Screenshot of abstract
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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2025
Great response from @naomidharvey.bsky.social www.bmj.com/content/383/...
bmj.com
Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis
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#MillionsMissing Aus @mmissingaus.bsky.social · 20/05/2025
Excellent piece by Aussie husband, father & carer of a mother & daughter with #MyalgicEncephalomyelitis #mecfs 😊 Also on the SBS program Insight at 8.30 tonight, or on the SBS app. (Might be geoblocked.) 🧵 www.sbs.com.au/news/insight...
sbs.com.au
My wife has largely been bedbound for decades. Then our child joined her in isolation
Peter McCluskey's wife Jenny and their daughter live with the same invisible illness. A syndrome that Peter likens to living in "lockdown" and believes medical professionals downplay.
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Naomi Harvey PhD @naomidharvey.bsky.social · 12/05/2025
This is my SOS 🆘 I’ve had ME/CFS since I was 15 and since 2022 I have been Severe, in the 25% who are house or bedbound. It’s frightening and awful and we have no help or dedicated medical care. We need help, this is my SOS 🆘 #DisabilitySOS #MillionsMissing @meactnet.bsky.social
An SOS drawn with a finger on a white background using a paint App on a phone with an image saying #MillionsMissing udnerneath
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Steve Fifield @stevefifield.bsky.social · 12/05/2025
#pwME #pwLC #MEAwarenessDay HT @naomidharvey.bsky.social
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Naomi Harvey PhD @naomidharvey.bsky.social · 21/04/2025
“This survey aims to collect information from individuals experiencing Long COVID who have had adverse reactions to CT or MRI contrast agents”
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PhillyPhile215 @phillyphile215.bsky.social · 20/04/2025
#pwLC #pwME #NEISVoid please response and reshare
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Naomi Harvey PhD @naomidharvey.bsky.social · 13/04/2025
For everyone having a hard time (or harder time) right now 🫂
Close up on a closed purple tulip flower nestled amongst green leaves. Behind it and out of focus is a cream tulip.
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Naomi Harvey PhD @naomidharvey.bsky.social · 12/04/2025
In chronic venous insufficiency, combining oxerutin with Calcium dobesilate, works with oxerutin to further improve venous issues and provide additional symptom relief t.co/hCDg9wak4j This seems like an excellent drug target for #LongCovid #MEcfs etc @exceedhergrasp1.bsky.social
t.co
https://pubmed.ncbi.nlm.nih.gov/20348452/
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Naomi Harvey PhD @naomidharvey.bsky.social · 12/04/2025
Has anyone here tried oxerutins (Paroven and Venoruton are two brand names) for POTS, ME, LC etc? It’s a synthetic form of rutin used for venous insufficiency. It reduces blood vessel permeability and improves small vessel blood flow. One pwME on Twitter reports reduced PEM with it.
1. WHAT PAROVEN CAPSULES ARE AND WHAT THEY ARE USED FOR
Paroven Capsules contain oxerutins as the active ingredient, which belongs to a group of medicines which act on small blood vessels (systemic vasoprotectors).
Paroven Capsules stabilise the vascular wall, which lead to a reduction in the permeability of the vessels and subsequently to a diminution of swelling (oedema).
Paroven Capsules relieve ankle swelling (oedema) due to chronic venous insufficiency (CVI). In patients with varicose veins and some other diseases of the leg veins, these small vessels have an excessive leakage which cause swelling of the ankles. Paroven Capsules also reduce this swelling and relieve the associated common symptoms such as aching, tired, heavy, swollen, painful and restless legs, pins and needles and night cramps.
It is recommended that such patients also wear elastic support (usually compression stockings) in CVI; in these cases, Paroven Capsules have been shown to produce additional benefit.
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Tom Kindlon @tomkindlon.bsky.social · 12/04/2025
(Worcester, Massachusetts) Healthy Controls and people aged 12+ with ME/CFS, #POTS, #EDS, long Covid, etc sought for research study Image is from MassME @massmecfs.bsky.social April Newsletter www.massmecfs.org/newsletters/... #MEcfs #LongCovid
RECLAIM Study seeking participants

RECLAIM is still recruiting participants — adults and children aged 12-17 — who self-report with ME/CFS, Long COVID, and other IACCIs.

 

The Sluss Lab at UMass Chan Medical School is investigating how oxidative stress influences chronic conditions such as Ehlers-Danlos Syndrome (EDS), ME/CFS, and other IACCIs. Adult study participants can expect three 30-minute in-person visits, and child participants will have two in-person visits with the option to join a follow-up study.
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Oregon 🕎🎲 @oregonthedm.bsky.social · 09/04/2025
Biggest commitment to a 3 second joke I've ever seen
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Steve Bullock @guitarmoog.bsky.social · 08/04/2025
I’d avoid it if possible. My specialist refused to diagnose POTS without it and: 1. Was already close to a crash by the time I got there and waited. 2. Being strapped to a gurney is a bit, you know, executiony. 3. Sudden, rapid unconsciousness due to lack of blood flow to the brain is very nasty.
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Naomi Harvey PhD @naomidharvey.bsky.social · 08/04/2025
I’m quoted in this important piece. I really hope that more patients can avoid unnecessary tilt table testing if they can take articles like this to their doctors. Many ppl warned me of the risks, but I didn’t feel like I could decline my doctors request for the test. I’ve not been the same since 💔
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 08/04/2025
Today @thesicktimes.bsky.social: really important story by @jewstein3000.bsky.social about how the tilt table test, commonly used to diagnose POTS, can be dangerous for people with Long COVID and ME. thesicktimes.org/2025/04/08/i...
thesicktimes.org
“It’s like torture”: The tilt table test could be risky for many people with Long COVID - The Sick Times
“The tilt table test is likely to be contraindicated in people with severe ME/CFS and related conditions,” Harvey said. Studies show about half of all Long COVID patients meet the diagnostic criteria ...
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Kirsty Short @krenfreeshort.bsky.social · 07/04/2025
People of Brisbane and Melbourne we need your help! We are trying to develop a new diagnostic for Long Covid and so we are asking people with Long Covid to kindly join our study - please DM me if you have any questions about the study or Long Covid in general! Please repost!
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Naomi Harvey PhD @naomidharvey.bsky.social · 06/04/2025
The pot of bulbs my husband planted in the autumn is putting on quite a show 🌷🌷🌷 #TimelineCleanse
Close together green stems topped with open yellow daffodils, closed buds and red tulip flowers. The sun is shining on them and a blurry house wall is in the background.
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Naomi Harvey PhD @naomidharvey.bsky.social · 04/04/2025
This is an important finding for both the impact of viral infection & vaccination. Many were spike pos but nucleocapsid neg, even with known previous infection & NO vaccination. But further study of brain tissue samples from 3 cases showed presence of both vaccine & viral spike in brain arteries.
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Naomi Harvey PhD @naomidharvey.bsky.social · 04/04/2025
Well that’s just peachy Confirmation that vaccine derived spike protein can persist for at least 17 months in brain artery tissue and, icing on the cake: women are shat on again “Notably, spike protein positivity was observed exclusively in female patients” www.sciencedirect.com/science/arti...
Screenshot from the paper abstract saying:

A total of 19 cases of hemorrhagic stroke from 2023 to 2024 were retrospectively analyzed.
Immunohistochemical staining for SARS-CoV-2 spike protein and nucleocapsid protein was performed on tissue samples. In situ hybridization was conducted in selected cases to confirm the origin of spike protein expression (vaccine or viral infection).
Vaccination history and SARS-CoV-2 infection status were documented for all cases.
Results
Spike protein expression was detected in 43.8% of vaccinated patients, predominantly localized to the intima of cerebral arteries,
even up to 17 months post-vaccination. While no active inflammatory changes were identified, infiltration of CD4-, CD8- and CD68- positive cells was observed in the spike protein positive vessels. In situ hybridization confirmed the presence of both vaccine-derived mRNA and SARS-CoV-2 virus-derived
mRNA, which encod the spike protein, In select cases. Notably, spike protein positivity was observed exclusively in female patients = 0.015). None of the cases showed nucleocapsid protein positivity, supporting the absence of active viral infection.
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Vagina Museum @vaginamuseum.bsky.social · 04/04/2025
And finally, if you're assigned male at birth, you can't say with certainty that you don't have a uterus. There's been multiple case studies of cis men who have fathered multiple children turning out to have had a uterus in there. Seriously. masto.ai/@vagina_muse...
masto.ai
Vagina Museum (@vagina_museum@masto.ai)
In 2014, a 70 year old cis man who had fathered four children went to hospital in Kashmir with an inguinal hernia. Everything about him and his life had so far been ordinary - except that the hernia t...
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Naomi Harvey PhD @naomidharvey.bsky.social · 04/04/2025
Preliminary findings from Simmaron Research’s Rapamycin trial in ME/CFS - result from the first 40 participants who completed 3 months on it - improvements seen in *every* symptom scoring scale
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Naomi Harvey PhD @naomidharvey.bsky.social · 03/04/2025
I figured that 10% of people with ME/CFS do not have ME (thanks to old diagnostic criteria that don’t require PEM), but this suggests it’s more like 22%. Really is no wonder so many report things like the lightning process helping them 😕 bmjopen.bmj.com/content/15/4...
bmjopen.bmj.com
Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK
Objectives This study aims to provide an in-depth analysis of the symptoms, coexisting conditions and service utilisation among people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) ...
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Rene Sugar @renesugar.bsky.social · 29/03/2025
Blood Vessels Sense Chemicals from Vegetables to Protect Gut Health #AhR #MECFS #LongCovid lms.mrc.ac.uk/blood-vessel...
lms.mrc.ac.uk
Blood Vessels Sense Chemicals from Vegetables to Protect Gut Health
LMS researchers have uncovered a new connection between the blood vessels and our diet in maintaining a healthy gut.
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Naomi Harvey PhD @naomidharvey.bsky.social · 26/03/2025
When taking my choline for the last two days, my brain has decided it needs to recite Dolly Parton’s Jolene chorus but using ‘choline’ instead 🫣 it does this in my head for the next few hours.
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valebodi.bsky.social @valebodi.bsky.social · 23/03/2025
The Latest Research on Mitochondrial Dysfunction in Long COVID & #ME/CFS Interview #47 Prof. Klaus Wirth youtube.com/watch?v=9gwM... Gez Medinger 💪🏻💪🏻🔥🔥🧠🪫🪫
youtube.com
The Latest Research on Mitochondrial Dysfunction in Long Covid & ME/CFS | With Prof. Klaus Wirth
YouTube video by Gez Medinger
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ThereForME @thereforme.bsky.social · 19/03/2025
Great to hear our @oonagh_cousins and #ThereForME Ambassador @binitakane.bsky.social on @bbc5live.bsky.social this morning! Clip here courtesy of @abrokenbattery.bsky.social👇 youtu.be/9Wh6lIEYZcg?...
youtu.be
BBC 5 Live - Long COVID 5 years on
YouTube video by Broken Battery
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Putrino Lab @putrinolab.bsky.social · 15/03/2025
Two steps forward, one step back. For #LongCOVID awareness day today I had the honor of joining thousands of other New Yorkers in a peaceful protest to stand against many of the current administration’s recent damaging and thoughtless policies and executive orders. Let there 1/
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Naomi Harvey PhD @naomidharvey.bsky.social · 16/03/2025
All my followers in #science and #research please 🙏🏻 pay attention to this as an example of why you *must* check original sources before citing something. As this is an excellent example of how badly out of hand it can get when people trust a second hand reference, without checking the first paper.
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Naomi Harvey PhD @naomidharvey.bsky.social · 16/03/2025
Wow. Important Letter here: It seems *every* source (from charities to governments) has wrongly cited a figure from a paper on the global prevalence of #MEcfs which was actually citing a paper about MS not ME 🫣 translational-medicine.biomedcentral.com/articles/10....
Section of the letter saying:

A global ME/CFS population of 17 to 24 million people is reported in articles such as those published in BMC Medicine [2] and Science [3], all referencing Lim et al. The same range of numbers is also easy to find in patient advocacy websites and news reports, such as those of the American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society [4] and CNN [5], all updated after Lim et al.’s article was published. However, this figure is drawn from the Background section of Lim et al.’s article, where they state, “In worldwide statistics, approximately 1% of the population, 17 to 24 million people, suffer from this condition [14], which is likely to be as common as rheumatoid arthritis” [1]. The cited reference (reference [14]) is an article about the global burden of multiple sclerosis, and is not relevant to the global ME/CFS population.
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Open Medicine Foundation (OMF) @openmedf.bsky.social · 12/03/2025
🧬Science Wednesdays: Peer Reviewed Publications “When will we see results from this study?” This is one of the most common questions we get. While many portions of the research process can take a long time, the publication portion of the process is an unpredictable component of that timeline. (1/3)
The image shows a scientist reviewing scientific research with a blue pen in hand. Pastel-colored sticky notes help organize information. An open laptop suggests the use of digital tools alongside printed materials. The image includes the OMF logo and the phrase "Science Wednesdays."
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Darren Parkinson @greendarrenshipley.bsky.social · 14/03/2025
“At the moment, I can’t see how I will be able to work, unless there’s some treatment around the corner. The government must invest in research to get treatments." Me in @bigissue.com about the need for #LongCovid treatments, being too ill to work & benefit cuts. www.bigissue.com/news/social-...
bigissue.com
Five years on: How Covid forced people out of work and onto benefits
As the government seeks to crack down on worklessness in the UK, perhaps ministers need to consider the people suffering with long-Covid.
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lifeatthewindow.bsky.social @lifeatthewindow.bsky.social · 13/03/2025
Benefits cuts UK - another easy way to get in touch with your MP. A super simple form to fill out. Now is the time to act, stop this in its tracks. Make sure your MP is hearing from us, and getting the message. #DisabilityRights #BenefitsCuts
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Naomi Harvey PhD @naomidharvey.bsky.social · 13/03/2025
There’s a good form here to use to email your MP and ask them to stand against disability benefits cuts It’s quick to do and helps them to know how many people are against this, so please complete it if you can 🩵 #DisabilityBenefits action.sense.org.uk/page/167765/...
action.sense.org.uk
Stop disability benefit cuts
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Naomi Harvey PhD @naomidharvey.bsky.social · 13/03/2025
Newly opened camellia flower, our first flower this #Spring #photography
A thick gathering of creamy white petals of a camellia flower are folded like petals of silk around a collection of deep gold coloured pollen anthers.
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Tom Kindlon @tomkindlon.bsky.social · 13/03/2025
(Australia) New post today on NCNED's Facebook page looking for participants for this trial: 𝗟𝗼𝘄-𝗗𝗼𝘀𝗲 𝗡𝗮𝗹𝘁𝗿𝗲𝘅𝗼𝗻𝗲 𝗖𝗹𝗶𝗻𝗶𝗰𝗮𝗹 𝗧𝗿𝗶𝗮𝗹 𝗳𝗼𝗿 𝗹𝗼𝗻𝗴 𝗖𝗢𝗩𝗜𝗗 People can participate remotely without attending trial site #LongCovid #PASC

NATIONAL CENTRE FOR NEUROIMMUNOLOGY AND
EMERGING DISEASES
LOW DOSE NALTREXONE FOR THE TREATMENT OF POST COVID-19 CONDITION
Project Overview
Long COVID describes the presence of various COVID-19 symptoms three months after infection lasting for at least two months. To date, there is no evidence-based treatment for Long COVID. Naltrexone (NTX) is an opioid receptor blocker commonly used to treat opioid withdrawal. However, since the mid-1980s, low dose NTX (LDN) has been used off-label due to improvements in chronic pain, stamina, cognition, fatigue, and inflammation. LDN has since been used for many autoimmune disorders, chronic pain syndromes, malignancies, and mental health disorders to target symptoms overlapping with Long COVID.This project aims to determine if treatment with LDN improves fatigue, cognitive and health-related quality-of-life (HRQOL) in adults with Post COVID Condition (PCC). If this is the case, LDN may offer a safe and cost- effective treatment for PCC and potentially similar disorders.
We are recruiting the following participants:
Diagnosed with Long COVID according to WHO working case definition and present with the following symptoms: cognitive disturbances otherwise known as brain fog, sleep disturbances and/or body pain.
The inclusion criteria are as follows:
•
Aged between 18 and 65 years of age
• BMI between 18.5 and 29.9
•
Not pregnant or breastfeeding
Not taking routine medications including opioids or substitution therapy, DMARDS, steroids, minocycline, and metformin.
• No previous diagnoses of ME/CFS
The Study Involves:
•
Completion of a series of online questionnaires
• Trial period of 13 weeks
• Randomised placebo-controlled trial with dose escalation
Appointments between research staff and participants will be via phone or virtual video conference platforms, such as Teams or Zoom. LDN will be distributed monthly via registered post, so there is no need to travel to a research site.
There is no incentive from completing this trial;…
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Naomi Harvey PhD @naomidharvey.bsky.social · 13/03/2025
When you see a government minister saying that spending on disability benefits is increasing & they don’t have the money for it - it’s a lie 🚨 Yes, spending on disability benefits is increasing, but other spending is declining, & the overall trend means costs are NOT going up overall.
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