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Cranky Queer Guide to Chronic Illness

@crankyqueer.bsky.social
1.3K followers 1.2K following 540 posts

#Queer and #trans #disabled people have always had to find new paths for our survival #Illder storyteller and strategist: thecrankyqueer.substack.com #PandemicsAreChronic ❤️T4T❤️Mask4Mask❤️ #FBLC

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Long COVID Justice @longcovidjustice.org · 05/06/2026
(Illder = elders who are chronically ill & disabled. This term was coined by our co-founder @crankyqueer.bsky.social This reel features clips from our recent webinar on HIV Complexities, disability justice, and mutual aid. Learn more & get the link to the full video at longcovidjustice.org/hcp
longcovidjustice.org
HIV Complexities Project - Long COVID Justice
The HIV Complexities Project is led by and for people living with HIV (PLHIV) and complex chronic conditions. The project has a broad reach, and includes: An online support group for PLHIV with comple...
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Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 23/05/2026
Being in grad school is an incredible stroke of good fortune in a time in which much of what I have worked for – global HIV treatment, trans liberation, public health – is being destroyed & my childhood fears in a family wracked by Holocaust-survivor-guilt are rapidly becoming realities.
open.substack.com
When One Hand Wants Adventure, and The Other Just Wants to be Loved
There's 2 possible paths for life writers of troubled pasts: some write their hearts out as if their life depended on it. Others, like myself, kept the secrets inside as if airing them would kill us.
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Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 16/05/2026
Ik vind deze campagne erg belangrijk - doe je ook mee? actie.degoedezaak.org/petitions/st...
actie.degoedezaak.org
Stop de afschaffing van de zorgkostenaftrek!
1. Weerleg het misleidende "39%-frame" De coalitie rechtvaardigt de afschaffing met de claim dat 39% van de aangiften 'onrechtmatig' zou zijn. In correspondentie stelt de VVD op 26 februari 2026 lette...
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Allison Gill @muellershewrote.com · 14/05/2026
This is pretty amazing.
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Celeste Ng @pronounced-ing.bsky.social · 08/05/2026
Had convos w/ multiple people in the past 4 days who DID NOT KNOW that 1. AI doesn't "think" or know anything; it's a probability machine 2. It was created using massive amounts of work stolen from actual people including me 3. The environmental costs are astronomical Spread the word, every time!
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Ida B Wells' Winchester Rifle @dytsras.bsky.social · 14/05/2026
👇🏾
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Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 21/04/2026
New event for QTIBIPOC at Samakaya Backcare Collective, where I have had great experiences! ONLINE ONLY: QTIBIPOC Back Care 101: Iyengar Yoga Foundations for Spinal Health with Jushin Misia Denéa Saturday April 25 1-3pm ET $50* *Sliding Scale available www.samamkayabackcare.com/workshops/on...
samamkayabackcare.com
ONLINE ONLY: QTIBIPOC Back Care 101: Iyengar Yoga Foundations for Spinal Health with Jushin Misia Denéa — SAMAMKAYA
Saturday April 25 2026 | 10am to 12 noon pst /1pm to 3pm est $50* *get 10% off by using the code EARLYBIRD by 4/13 *Sliding Scale available for those who need it This workshop offers a safe, affirmin...
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Jews For Racial & Economic Justice Action @jfrejnyc.bsky.social · 07/04/2026
ICE KIDNAPS, PALANTIR PROFITS. JEWISH NEW YORKERS ARE RISKING ARREST ON PASSOVER TO SAY: LET OUR PEOPLE GO!
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Jews For Racial & Economic Justice Action @jfrejnyc.bsky.social · 06/04/2026
🚨 BREAKING: Two dozen Jewish New Yorkers were just arrested at Palantir’s West 18th Street office during Passover for protesting the company’s collaboration with ICE. We will not celebrate the Jewish holiday of liberation quietly while Palantir profits from ICE kidnapping our neighbors.
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Jews For Racial & Economic Justice Action @jfrejnyc.bsky.social · 30/03/2026
“Goldman’s record neatly illustrates a particular kind of Democrat: one who leverages credibility earned through articulate attacks on Donald Trump while declining to challenge the policies that gave Trump fodder to begin with.” NY10 deserves better. That’s why we support @bradlander.bsky.social.
theguardian.com
For Democrats, fighting Trump isn’t enough anymore
A New York congressional primary is exposing the gap between Democrats who want to fight Trump and Democrats who want to fight for something
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Ryan Hisner @ryanhisner.bsky.social · 24/03/2026
Someone suggested BA.3.2 might preferentially infect kids. I think they're right. Ages of SARS-2 sequences since Dec 1 in Ireland: non-BA.3.2 6/66 (9.1%) age 0-19, (0/1 hospital tests) BA.3.2 43/91 (47.3%) age 0-19 (1/3 hospital tests) 1/4
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Eniko Fox @enikofox.com · 27/03/2026
i'm sure repeatedly giving the next generations a virus that provably causes brain damage and letting them outsource all their learning and thinking to the slop machine will not have deleterious long term effects on civilization
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Jodi Jacobson @jljacobson.bsky.social · 18/03/2026
The movement is the hero. Every single person who puts themselves on the line and stands up for others is the hero. Dolores Huerta is a fucking hero. I personally stand by that. At 96 years old, she is still fighting for people and for justice. She may be petite but she is a giant of history.
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#MEAction Network @meactnet.bsky.social · 15/03/2026
Lots of great resources gathered here! Our Pacing and Management Guides have been helpful! We have our original pacing guide, the pediatric pacing guide (with @longcovidfam.bsky.social) and clinician pacing guide (with @patientled.bsky.social). + Support resources for #pwME #pwLC & caregivers.
Screenshot of list of several files of resources and what organization that came from.
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Carol @tickedoffcodess.bsky.social · 15/03/2026
People say "you don't look sick." That's because you don't see the 23.5 hours I spend in bed to get those 30 minutes sitting. Long COVID isn't invisible. You're just not looking. #LongCOVID #InvisibleIllness #ChronicIllness
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 13/03/2026
6 year Covidversary. The guy at the bakery thought this was a joke but it’s not 💔 #LongCovid took everything. My career, marriage, ability to stand, move, think, make art, maintain friendships, be an aunt/daughter/mother, my beloved forests & mountains & waters, my faith in humans, every last dream
A chocolate mocha cake with “6 years of hell” written in cursive script
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Lauren Flans @laurenflans.bsky.social · 15/03/2026
Today is Long Covid Awareness Day. If this video doesn't break your heart and make you want to do EVERYTHING you can to avoid giving #covid to someone else or getting it yourself, I truly do not know how to reach you. Please wear a mask, at least in essential public places. It's the least we can do.
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PhillyPhile215 @phillyphile215.bsky.social · 15/03/2026
Philly Philly representin’ this weekend! 👏👏👏International LC Awareness Day (March 15th) scrolling atop the @pecoconnect.bsky.social building! Check it out, if you are local.
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Air Budd Dwyer @airbudddwyer.bsky.social · 15/03/2026
senators gotta stop doing posts that are like "this is a huge problem. act like it." dude I know it's a huge problem. that's what I elect you to deal with. I'm a guy in a used hoodie and costco pants, you're a senator.
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Michael Sieverts @yogafogie.bsky.social · 14/03/2026
For #LongCovid Awareness Day, @patientled.bsky.social has released the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks. #LongCOVID patientresearchcovid19.com/2026-long-co...
patientresearchcovid19.com
2026 Long COVID Fact Sheet – Patient Led Research Collaborative
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Beck Andoff @andoff.bsky.social · 13/03/2026
It is so refreshing to see this messaging coming from an actual public health unit!!
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Sage Deviant 🏳️‍⚧️ @trans.bsky.social · 08/03/2026
If it’s not too early to talk about presidential candidates 2 years before the primaries even happen, then I am going to proudly announce that I should be president. I will also claim to be the frontrunner, just like Gavin Newsom keeps doing. SAGE 4 PREZ 2028
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Sarah Churchwell @sarahchurchwell.bsky.social · 13/03/2026
This is the company the UK government has embedded in the nation’s services. Seriously, fuck everyone who is excusing this.
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local margin scribbler @stealmyposts.bsky.social · 11/03/2026
In our new unit of Medicare spending per day, this war has cost 3.5 days of Medicare. bsky.app/profile/beij...
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Helios Mithras @heliosmithras.bsky.social · 11/03/2026
Real talk, I can't be a firefighter anymore because of complications from a bad round of Covid-19. It reduced my lung capacity and essentially gave me exercise induced asthma. We are just now starting to come to terms with the long term consequences of this illness. "It's just a cold" nah dawg
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Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 12/03/2026
Reminder
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victoria @vashetc.blacksky.app · 16/02/2026
www.gofundme.com/f/severemerg...
gofundme.com
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
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Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 11/03/2026
This is part of my grad program and seems like great news
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Miranda 🌸 @crookedneighbor.bsky.social · 07/03/2026
There is no acknowledgment of the collective trauma many adult children of antivaxxers have faced, or how that ties in with other issues like abuse and neglect in homeschooling. I'm not here to tell anyone else how they should feel about their own experience or the morality of their own parents.
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Patient-Led Research Collaborative @patientled.bsky.social · 11/03/2026
We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1
rthm.com
Long COVID Treatment Guide
An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...
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Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 09/03/2026
🔈 Join us on April 20, 2026 at Columbia University (in-person and virtually) for a free and public one-day symposium on #LongCovid and Society. 🔗 Learn more and register: longcov.id/society
longcov.id
Long Covid & Society
A conference website for the Long Covid and Society Symposium, providing information about the event schedule, speaker biographies, live stream access, registration, and details about the symposium…
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Kevin Gannon (now a Moo Deng fan account) @thetattooedprof.bsky.social · 08/03/2026
we have saved daylight but at what cost
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Jonathan Howard @joho.bsky.social · 07/03/2026
January 2021 was the deadliest month of the pandemic. 3000 Americans died daily, 95,000 in total. And Prasad was *mocking* people for avoiding COVID. Shame on anyone who treated him as a good faith actor or serious thinker. Let’s be honest about his record.
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Chantal James @chantalalive.blacksky.app · 05/03/2026
When people say cities like Baltimore & DC are rundown shitholes the quiet part is that they’re mad so many Black people are there in those cities going about their daily lives as regular & you have to see them in those cities. That’s pretty much it.
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Elana Levin @levin.bsky.social · 05/03/2026
really tired of conversations about how we need to get people to spend more time offline that don't acknowledge that one of the reasons people ARE online is their access needs aren't being met in physical spaces. This is especially true for queer people and disabled people.
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Scribbler Pen @scribblerpen.bsky.social · 02/03/2026
A major UK study has found what disabled people knew: remote and hybrid working arrangements boost the health, wellbeing and job retention of Disabled workers. It warns that declining availability of such jobs threaten this. www.disabilityrightsuk.org/news/study-f... Via @disrightsuk.bsky.social
disabilityrightsuk.org
Study Finds Remote and Hybrid Working Boosts Disabled Workers’ Health
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Kelly @broadwaybabyto.bsky.social · 04/03/2026
A woman with Long Covid won almost one million dollars in a lawsuit against her employer who refused to allow her work from home accommodations. May this set a precedent. Remote work should be accessible to all who need it. It’s a game changer for people with disabilities.
law.com
Long-COVID Sufferer Awarded Nearly $1M After Employer Refused to Let Her Work From Home | Law.com
A jury in Nassau County awarded $954,000 to a longtime employee of Stony Brook University Hospital Blood Bank.
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Laura Lee @lauraleeactor.bsky.social · 02/03/2026
Way to go, antivaxxers! 🙌
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nickforbrains 🏳️‍🌈 @nickforbrains.bsky.social · 28/02/2026
Yeah the war isn’t a distraction from the Epstein files, it’s a continuation of them
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Sage Deviant 🏳️‍⚧️ @trans.bsky.social · 01/03/2026
yesterday the United States bombed a grade school & murdered school kids. today the United Stated bombed a children's hospital & murdered injured kids. nothing makes this okay. the purpose of a system is what it does. no war with Iran.
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Billy Hanlon @bhanlon15.bsky.social · 01/03/2026
BBC: “Long Covid patients are forgotten, ex-GP says” ‘A doctor whose career was ended by long Covid said living victims of the virus were being forgotten by politicians and the NHS’ www.bbc.com/news/article...
bbc.com
Blyth ex-GP says long Covid patients are being forgotten
The NHS in the North East and Cumbria is closing its last dedicated long Covid clinics this month.
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Michelle @michelleroy78.bsky.social · 01/03/2026
I hate how accurate this tweet is.
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Joshua Erlich @joshuaerlich.bsky.social · 01/03/2026
there is no metric by which this is true. even 2028 primary polling (which is meaningless in general but seems like a fair yardstick here) doesn’t have him on top. just a brazen attempt to impose him on us by the rich and the commentariat.
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damniel spookradski @self.agency · 01/03/2026
breaking from every other major american jewish institution, the jcpa, which is the only democratically-run establishment umbrella organization in american jewish life, says fuck iran, but also this is an illegal war.
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Vagabonding 🇨🇦🇩🇰🇸🇪🇺🇸 @vagabonding.bsky.social · 01/03/2026
www.advocate.com/news/florida...
advocate.com
Florida suddenly cuts off 12,000 people from receiving their HIV meds
In a shocking move, the state’s Department of Health utilized its “11th hour” emergency rule just one day ahead of a lawsuit hearing.
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🎃 Killy Witches 👻 @tillybridges.bsky.social · 26/02/2026
if you think these kinds of ultra harmful media tropes about trans women aren’t part of the political violence being enacted on trans people right now… i have some news for you
Poker Face s2 - 2*
In one episode a guy calls a cis woman, "Dude," and she later says "I'm a grown-ass man." Not counting the
"dude" as an intentional misgendering (it's just societal sexism in language), but her misgendering herself for humor is certainly a joke at our expense.
Nonbinary actor Nicole Orabona plays a bartender in an episode, but the character's gender isn't mentioned.
Trans woman Patti Harrison plays Alex, a recurring role that is... somewhat problematic. Her character is not mentioned as trans.
In one episode she joins a gym with a cis lady, and calls the two of them "gym bros." Weird thing to make a trans lady say, effectively misgendering herself, even if the character isn't trans.
In the finale it's revealed that her character Alex is a killer, but that's not all. She goes by "Iguana" and is so good at disguises that she can look like anyone.
Everyone also thinks Iguana is a guy, but surprise! It's the trans woman. In this episode she says she "choked off all her humanity," and "I don't really do physical pleasure."Despite the character never being mentioned as trans, they hit multiple harmful trans tropes: the "Surprise, my gender is different than you thought" trope, the "trans people aren't human" trope, the "trans people as tricksters" trope, and the "trans people can't experience physical pleasure after transition" trope. All of them are bullshit, dehumanizing propaganda about us.
So while the character of Alex wasn't mentioned as trans, it sure as hell feels like the show itself treats her like she was... and punished her, and all the rest of us, for it. Supremely uncool.
And I'm not saying trans people can't be assassins or serial killers in stories, we can and should play evil and bad characters too. But if that's all we are, and along the way you reconfirm and perpetuate a ton of false bullshit about us... we'd be better off if you never added us to your show at all.
First do no harm, damn.
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Nome @nome.bsky.social · 28/02/2026
I cannot process the scale of the evil we commit. How many times in my life should I wake up to the news that we're killing children?
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Ursula @ladyofsardines.bsky.social · 28/02/2026
“How many of these gentle people have I helped to kill just by paying my taxes?" June Jordan, 1984
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