valebodi.bsky.social @valebodi.bsky.social · 10hinherent within itself. The numbers at play baffle the mind. 100
valebodi.bsky.social @valebodi.bsky.social · 10hSo much happens in 1 minute, at both the macro level (the Universe) and the micro level (within the human body). The fact that all this happens in 1 minute is nothing short of a miracle. The Earth moves around without any commotion. The human body works far too quietly for all the complexitiespmc.ncbi.nlm.nih.govJust a minute: incredible numbers at play at the macro and micro level 110
Reposted by @valebodi.bsky.socialME/CFS Science @mecfsscience.org · 06/10/20268) Here's the link to the paper, it's open access and includes quotes from many prominent advocates from the ME/CFS community: Canson 2026. Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis.sciencedirect.comPatient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitisIt is usually assumed that patient and doctor know strictly different things: the patient knows the phenomenological aspects of their illness, and the… 3285
Reposted by @valebodi.bsky.socialME/CFS Science @mecfsscience.org · 06/10/20261) "... the medical aspects of the illness are on the whole better understood by sick people than by their doctors..." In this new paper, philosopher Chloé De Canson details how the ME/CFS community shares and produces scientific knowledge. 17926
Reposted by @valebodi.bsky.socialThe Sick Times @thesicktimes.org · 05/10/2026Newly knighted ME advocate Anil van der Zee discusses his royal honor with @davetuller1.bsky.social: thesicktimes.org/2026/10/02/a... 02910
Reposted by @valebodi.bsky.socialbetsy ladyzhets 😷 @betsyladyzhets.bsky.social · 05/10/2026Today @thesicktimes.org: @heatherhogan.bsky.social reviews a new comic book developed by children with Long COVID. "These superheroes showcase bravery by asking for help, resting, and being compassionate with themselves and others."thesicktimes.orgKids with Long COVID co-created their own superhero comic book - The Sick TimesLong Covid Superheroes showcases the bravery of asking for help, resting, and being compassionate with yourself and others. 05022
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026Photograph 49 is the Key to Understanding the History of Rosalind Franklin’s DNA Photograph 51 🧬 link.springer.com/article/10.1...link.springer.comPhotograph 49 is the Key to Understanding the History of Rosalind Franklin’s DNA Photograph 51 - Journal of the History of BiologyThis essay, co-authored by a historian of science and an X-ray crystallographer, sheds new light on Rosalind Franklin’s Photograph 51. We refute the infamous claim that, unlike James Watson, Franklin ... 000
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026How did Rosalind Franklin miss the helix in her iconic DNA image? She didn’t 🧬science.orgHow did Rosalind Franklin miss the helix in her iconic DNA image? She didn’tNew analysis refutes James Watson’s claim he was first to recognize significance of famed photograph 51 000
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026Self-management support needs for individuals with Myalgic Encephalomyelitis and their next of kin – a qualitative study 🇳🇴 #ME/CFS #pwMElink.springer.comSelf-management support needs for individuals with Myalgic Encephalomyelitis and their next of kin – a qualitative study - BMC Health Services ResearchBackground Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, disabling condition with limited evidence-based treatment options. Self-management support is recommended to improv... 020
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026Thank you Chloé, looks like a very important paper which I’ll read asap (able). 💙💙💙🫂💙💙💙 160
Reposted by @valebodi.bsky.socialChloé de Canson @chloedecanson.bsky.social · 05/10/2026You can read the paper (open access) here: www.sciencedirect.com/science/arti...sciencedirect.com 0174
Reposted by @valebodi.bsky.socialChloé de Canson @chloedecanson.bsky.social · 05/10/2026Why do people with ME claim to know more about the medical aspects of their disease than their doctors? Because the mechanisms that usually ensure doctors' knowledge fail in the case of ME, and sick people have created mechanisms of knowledge production and dissemination to pick up the slack. 814058
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026have been shared with Dr Francisco Westermeier (Austria) to support further international collaboration. 012
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026provided to Sophie Hicks at the UK Dementia Research Institute, University College London (UCL), Dr Sarah Annesley at La Trobe University, Melbourne, Australia, Dr Robert Baldock, Professor Kempuraj Duraisamy (USA), and Dr Dmitry Pzhezhetskiy(UEA). In addition, more than 100,000 clinical data points 112
valebodi.bsky.social @valebodi.bsky.social · 05/10/2026UK #ME/CFS Biobank Continues to Drive International Research Over the past six months, the UK ME/CFS Biobank has distributed more than 1,300 biological samples to research groups across the world, supporting a diverse range of studies aimed at improving our understanding of ME/CFS. Samples have beenus7.campaign-archive.comhttps://us7.campaign-archive.com/?u=d5cd5b59c73011a4ce28bf62f ____ / ___M ]__ C{ ( o o )} { •• \___ ––––´ You probably found this page because one of our subscribers used Mailchimp to send you an email campaign and you traced a link in th... 132
Reposted by @valebodi.bsky.socialJon Douglas @atranscendedman.bsky.social · 06/02/2026Würzburg researchers analyzed IgG from 106 people and found that antibodies from post-infectious ME/CFS patients, including post-COVID cases, disrupt mitochondrial structure in cells and alter inflammation signaling, even without lowering ATP production. www.sciencedirect.com/science/arti...sciencedirect.comImmunoglobulin G Complexes from Post-infectious ME/CFS, including post-COVID ME/CFS Disrupt Cellular Energetics and Alter Inflammatory Marker SecretionAutoimmunity is a key clinical feature in both post-infectious Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and Post-Acute Sequelae o… 13716
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026multiple different ways that psychologists can potentially give that support and help people with ME/CFS: meassociation.org.uk/wp-content/u...meassociation.org.uk 020
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026psychologists to know to support both the guidelines and a planned research paper. Participants have said very clearly that the guidelines must recognise ME/CFS is a biological illness that cannot be cured by psychological methods. The role of psychology is support. The survey has identified 130
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026British Psychological Society #ME/CFS Guidelines September 2026 Update by volunteer Katherine Langford Welcome to the third British Psychological Society ME/CFS Guidelines update. We have been carrying out further analysis of the responses to our survey about what people with ME/CFS want 140
Reposted by @valebodi.bsky.socialScience for ME (S4ME) @s4me.info · 04/10/2026Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 28 - Oct 4: s4me.info/threads/news... #MEcfs #PwME #LongCovid #PwLCs4me.infoNews in Brief - September 2026This thread has a Science for ME 'News in Brief' post for each week in September 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news. 0137
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026The fact that we have to keep on repeating this, makes pwME’s lives beyond difficult Reframing beliefs about their illness does not lead to recovery of tube-fed patients with very severe #ME/CFS. Analysis of the BMJ article by Miller et al. Mark Vink F. Vink-Niese Date Written: June 06, 2025papers.ssrn.comReframing beliefs about their illness does not lead to recovery of tube-fed patients with very severe ME/CFS. Analysis of the BMJ article by Miller et al.<p><span>The narrative which is presented by Miller et al. as new, has dominated the field of ME/CFS for the last 35 years. It has been tested by numerous studi 0102
Reposted by @valebodi.bsky.socialAstrid Meyer-Knutsen @astridmeyerknutsen.bsky.social · 04/10/2026- The authors emphasised the potential public health burden and the importance of monitoring for allergic conditions after infection to support prompt intervention. They also suggested a possible mechanistic link between COVID-19 and type two inflammation. www.emjreviews.com/allergy-immu...emjreviews.comCOVID-19 Linked to Increased Risk of Six Allergic ConditionsCOVID-19 was associated with increased allergic disease risk over 18 months, with differing findings in children and service members. 064
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026All the Tired Horses Bob Dylan Self Portraityoutube.comAll the Tired HorsesYouTube video by Bob Dylan - Topic 010
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026of the disease – and he has a remarkable message for those suffering from it. @cgatist.bsky.social @decodemestudy.bsky.social #pwME #ME/CFS #Genetics 110
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026People with #ME/CFS have been misunderstood for decades: reputable researcher offers surprising advice to those struggling with the illness Myalgic Encephalomyelitis aka ME/CFS has often been overlooked by doctors and researchers. Geneticist Chris Ponting has revolutionised our understandingscienceillustrated.comPeople with chronic fatigue have been misunderstood for decades: reputable researcher offers surprising advice to those struggling with the illnessChronic fatigue syndrome has often been overlooked by doctors and researchers. Geneticist Chris Ponting has revolutionised our understanding of the disease – and he has a remarkable message for those ... 172
Reposted by @valebodi.bsky.socialElke Hausmann @drelke.bsky.social · 04/10/2026Yes - we‘ve gone from only a tiny minority of HCPs having heard of the term PEM, to many more referencing it - but without really understanding what it is and what it means to live with PEM. I don’t know what’s worse… #LongCovid #ME 0112
valebodi.bsky.social @valebodi.bsky.social · 04/10/2026www.ama-assn.org/amaone/vacci...ama-assn.orgVaccine recommendationsFind the latest respiratory virus season immunization recommendations and resources from leading medical organizations. 000
Reposted by @valebodi.bsky.socialDavid Tuller @davetuller1.bsky.social · 02/10/2026This interview with @georgemonbiot.bsky.social has had almost 5,000 views since I posted it yesterday: www.youtube.com/watch?v=Maae...youtube.comInterview with George Monbiot about Guardian column on ME/CFSYouTube video by David M Tuller 16632
Reposted by @valebodi.bsky.socialCIDRAP @cidrap.bsky.social · 02/10/2026Measles outbreaks could leave thousands vulnerable to infectious diseases for years The measles virus kills crucial immune cells, putting survivors at risk of being reinfected with diseases they’ve already had. Read more: bit.ly/4diczSQ 13522
Reposted by @valebodi.bsky.socialDorit Reiss @doritreiss.bsky.social · 03/10/2026The 5th Measles Death Was a 20-Year-Old Newly Wed With Leukemia who could not get the vaccine becuase of cancer treatment. open.substack.com/pub/stopanti... via @aboutpediatrics.bsky.socialopen.substack.comThe 5th Measles Death Was a 20-Year-Old Newly Wed With LeukemiaThe 5th measles death was an unvaccinated 20-year-old with leukemia who had just gotten married last year. 53214
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026barriers causing underdeveloped therapeutics in this field. 000
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026Furthermore, we discuss the role of endothelial dysfunction as a pathogenic mechanism in muscular dystrophies, diabetes, peripheral artery disease (PAD), and sarcopenia. We also overview current therapeutic approaches targeting endothelial cells in the muscle and highlight biological and research 100
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026regeneration and growth. The current review article provides a broad overview of the crucial role of the endothelial cells during muscle health and growth, their expansion and interaction with key muscle cell types, governing signaling pathways, and their role in metabolism. 100
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026cells play a central role not only by regulating blood and nutrient flow to support metabolic and regenerative needs, but also by directly interacting with muscle stem cells and fibro-adipogenic progenitors to regulate stem cell quiescence or activation, and muscle tissue remodeling during its 100
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026Myovascular Niche: The Role of Endothelial Cells in Skeletal Muscle Health and Disease Abstract Skeletal muscle health and regeneration is a highly orchestrated process governed by a complex interplay of muscle stem cells (MuSCs), fibro-adipogenic progenitors (FAPs), immune cells, and endothelialpmc.ncbi.nlm.nih.govPreparing to download ... 100
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026Neuromuscular Disorders Volume 67, Supplement 1, October 2026, 106984 3.14P Evidence for transcriptomic changes impacting muscle contraction in patients with post-acute COVID-19 #ME/CFS #PEM www.sciencedirect.com/science/arti...sciencedirect.com 050
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026in patients with post-acute COVID-19 syndrome www.sciencedirect.com/science/arti...sciencedirect.com 010
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026But the phenotype is unusually clear: these are rigorously defined #ME/CFS post COVID-19 patients whose standard neuromuscular tests largely say "normal," while molecular profiling says the contractile system itself may not be. 3.14P Evidence for transcriptomic changes impacting muscle contraction 141
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026The work is still forthcoming, and the conference abstract does not yet disclose the exact transcriptomic sample size or individual genes. Those are the things to watch when the full data appear, along with whether these changes replicate after exertion and track #PEM severity. 100
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026force. So this is not simply "inflammation in muscle." It points toward remodeling of the machinery by which muscle senses load, organizes itself and contracts. 120
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026tropomyosin complex were upregulated, while genes involved in actin-bundle formation, Z-disc stabilization and mechanical signaling were downregulated. Troponin and tropomyosin control whether calcium allows myosin to pull on actin, while the Z-disc anchors the contractile apparatus and transmits 120
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026The deeper measurements looked different. Brain FDG-PET/MRI showed posterior hypometabolism in 8/14. Muscle biopsy found moderate dysimmune changes in only 2/7, but exploratory transcriptomics picked up altered cytokine and autophagy pathways plus something more intriguing: genes of the troponin- 120
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026Henri Mondor neuromuscular group report 27 Long COVID patients with >6 of PEM and cognitive impairment, and all 27 met CDC, ICC, IOM and NICE ME/CFS criteria. CK, neurological examination and electrophysiology were normal. Yet 18/27 were unable to work. www.sciencedirect.com/science/arti...sciencedirect.com 130
valebodi.bsky.social @valebodi.bsky.social · 03/10/2026What if the muscles of people with #PEM can look normal on routine testing while the machinery that actually produces force is being transcriptionally rewritten? At the 2026 World Muscle Society congress, Guillaume Severa, François-Jérôme Authier and colleagues from the Paris Est Créteil/x.comLawrence (@Deep_Chora) on XWhat if the muscles of people with PEM can look normal on routine testing while the machinery that actually produces force is being transcriptionally rewritten? At the 2026 World Muscle Society congr... 182
Reposted by @valebodi.bsky.socialDarren Parkinson @greendarrenshipley.bsky.social · 01/10/2026I am no longer a registered nurse. Not through any choice, but because I got #LongCovid. 2 years ago I lost my nursing job because I'm too ill too work. Today my nursing registration expired. 20+ yrs given to the NHS. Ended by getting a disease without a cure. 1012735
Reposted by @valebodi.bsky.socialEric Topol @erictopol.bsky.social · 01/10/2026In the new @science.org special issue on women's health, a 5★ review of menopause hormone therapy to promote healthy aging science.org/doi/10.1126/...science.orgReframing menopause and menopause hormone therapy as opportunities for healthy agingMenopause is an important biological transition with up to 72 symptoms that shapes aging trajectories across organs and encompasses ~40% of the female lifespan. Although menopause awareness is increas... 216562
valebodi.bsky.social @valebodi.bsky.social · 02/10/2026I wish that they also got the COV 2026-2027 vaccine, at the same time. Then it would have really been mind blowing. 1340
Reposted by @valebodi.bsky.socialEurosurveillance journal @eurosurveillance.org · 02/10/2026#SARSCoV2 is, currently, not a winter virus - based on the findings from a comprehensive atlas of the 18 main respiratory viruses circulating in Catalonia Thanks to @oriolguell.bsky.social for picking up on the recently published paper ⤵️ www.eurosurveillance.org/content/10.2... #MedSky #IDsky 🛟🧪english.elpais.comNew ‘atlas’ of respiratory infections suggests Covid is no longer just a winter virusA comprehensive study of the circulation of 18 pathogens, conducted in Spain’s Catalonia region, shows clear peaks during the spring and summer 0116
valebodi.bsky.social @valebodi.bsky.social · 02/10/2026clearing the debris and ashes On the subject please see @marydimmock.bsky.social @mfairma.bsky.social Thirty Years of Disdain me-pedia.org/wiki/Thirty_... As well as M. Hooper & M. Williams www.investinme.org/Article400%2...me-pedia.orgThirty Years of Disdain 120