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Reposted by Chloé de Canson

George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Chloé de Canson @chloedecanson.bsky.social · 06/08/2026

Kathleen Stock rehashing the old myth that ME is deconditioning just days after the publication in a Nature journal of a major study showing that mobile people with ME have muscle abnormalities that even people on strict 60-day bedrest don't www.nature.com/articles/s41...

These feelings may be frightening; but they also make you different, special, excused from the pressures of life, pleasingly fussed over by strangers. And if a person then spends a lot of time sitting or lying down, she will naturally become unfit, so that the next time she stands up or walks any distance she will feel even worse; and the cycle of confused self-interpretation will continue.

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Nick Barlow @nickbwalking.bsky.social · 06/08/2026

In a move that will surprise absolutely no one who's been paying attention, Stock has decided that women with disabilities are suffering from "social contagion"

A times column header beneath a picture of Kathleen Stock: " KATHLEEN STOCK
Why are young women using walking sticks?
A disproportionate number of Gen Z females are affected by vague syndromes and may be victims of social contagion"

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Chloé de Canson @chloedecanson.bsky.social · 10/07/2026

Proust on the impossibility of intelligible experience without the application of the concept of cause: “it appeared a thing without cause, incomprehensible, a thing truly dark”

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Emily Herring @emilyherring.bsky.social · 11/10/2023

Marcel Proust playing air guitar on a tennis racket appreciation moment

A black and white photo from the early 20th century with a group of people smiling and taking various silly poses, holding tennis rackets and hockey sticks. Marcel Proust is in the middle of the photo on his knees holding a tennis racket like a guitar. He is smiling with a smile of pure silliness.

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Chloé de Canson @chloedecanson.bsky.social · 21/06/2026

What it feels like trying to do history of philosophy

Blurred photo of Obama on the left which reads “original”, and non blurred photo of a generic white guy on the right which reads “result”. The implication is that some computer programme has “recovered” or “unblurred” the photo of Obama, but they have clearly missed the point

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Lola Germs @lolagerms.bsky.social · 17/06/2026

We would all be better off if infrastructure was updated to provide cleaner indoor air in public places, using technology that is already well understood and known to be safe-- it's just not happening.

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Chloé de Canson @chloedecanson.bsky.social · 13/06/2026

My brilliant friend Lola Germs has created a truly exceptional video essay on the history of the science of airborne disease transmission The video has it all: extremely rigorous science studies, bizarre and enthralling visuals, and a strong case for using existing technology to clean indoor air

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C.H. Romatowski @chromatowski.bsky.social · 30/05/2026

#MECFS question: Does anyone know of any document by an ME charity/organization/clinic that mentions the fact that people often already experience some symptoms before they fully develop ME? This could include the 'multiple hit' theory for instance.

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Chloé de Canson @chloedecanson.bsky.social · 25/05/2026

I’ve reached the three year mark since the last time I was able to stand up. Three years fully bedbound. Hard to put into words how profoundly long COVID and ME have altered my life

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Reposted by Chloé de Canson

British Journal for the Philosophy of Science @thebjps.bsky.social · 12/05/2026

Some stats from 2025. Average number of invites issued per paper was 6. The highest number of invites per paper was 17 (down on previous years, where it usually strays into the 20s). Securing referees takes about as long as referees take writing their reports.

Average number of referee invitations per paper: 6

Average time for referees to return a report: 33 days

Average days from first referee invitation to receipt of both referee reports: 60 days

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Chloé de Canson @chloedecanson.bsky.social · 07/05/2026

Public health officials and the media are communicating as if there were only two possible outcomes to hantavirus infection: death and full recovery. This is despite already existing evidence that hantavirus, like many other viruses including COVID, has severe post-acute sequelae.

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Tom Kindlon @tomkindlon.bsky.social · 02/05/2026

The case for routine patient review in long COVID research www.thelancet.com/journals/lan... Screenshot from latest Science for ME weekly update #LongCovid

The case for routine patient review in long COVID research — Soares et al
"Clear designation that a manuscript has undergone patient review would function as an additional signal of quality, and publication of patient reviews alongside the manuscript would amplify the contents of patient expertise to the broader scientific community."

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ME/CFS Science @mecfsscience.org · 23/04/2026

1) Trigger warning: suicide This paper analyzed 505 entries on the National CFIDS Foundation memorial list. These were people with ME/CFS who passed away. The messages summarize their life, illness and struggles. The researchers grouped these into several recurring themes.

A paper analyzing memorial entries of ME/CFS patients

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 16/04/2026

“There is a city nearby that we hide from view. Its people are of all ages, ethnicities & classes. What unites them is a disease: all are diagnosed w/ myalgic encephalomyelitis. We hide them there because we don’t know where else to put them. Like a plague village, we have no plans to treat them…”

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Julia MV @julialmv.bsky.social · 02/04/2026

"Long COVID received 14% of its disability commensurate funding... ME/CFS is the most under-funded condition, receiving <1% of its YLD [years lived with disability] proportionate funding." Plus the LC disability weight of 0.21 likely underestimates its burden. www.nature.com/articles/s43...

nature.com

Long COVID disability burden in US adults - Communications Medicine

Bonuck et al. quantified the disability burden of Long COVID in U.S. adults using years lived with disability and compared its NIH funding to that of 68 other conditions by sex predominance. Long COVI...

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Margaret O’Hara @margaretohara.bsky.social · 02/04/2026

Those researchers who routinely do patient involvement know the value of the insights of the people who actually have the disease To enable involvement of pwLC at all stages of research @longcovidsupport.bsky.social offer a Research Involvement Consultancy service. www.longcovid.org/research/res...

longcovidsupport.bsky.social

Long Covid Support (@longcovidsupport.bsky.social)

UK charity dedicated to supporting people with Long Covid • Support • Research • Advocacy • Education • www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org

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C.H. Romatowski @chromatowski.bsky.social · 02/04/2026

Thrilled we have this new Comment out in @thelancetinfdis.bsky.social, arguing that to give Long COVID scientists more incentive to incorporate patient expertise throughout the research process, LC papers should all be subject to pre-publication review by patients. Free to read w/registration!

thelancet.com

The case for routine patient review in long COVID research

Long COVID is an infection-associated chronic condition that occurs after SARS-CoV-2 infection and can lead to sometimes severe disability.1–3 In early 2024, long COVID had already affected 400 millio...

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Chloé de Canson @chloedecanson.bsky.social · 01/04/2026

Many Long COVID scientists fail to meaningfully draw on the insights of patient-researchers. In our Comment for @thelancetinfdis.bsky.social, we propose a solution: make all Long COVID papers undergo pre-publication patient review. 1/

THE LANCET
Infectious Diseases
COMMENT • Online first, March 31, 2026
The case for routine patient review in long COVID research
Letícia Soares . CH Romatowski . Gina Assaf . Chloé de Canson

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Chloé de Canson @chloedecanson.bsky.social · 15/03/2026

Today is Long COVID awareness day. What does the data show about Long COVID in 2026? How common is it, how bad is it, what does it consist in? The Patient-Led Research Collaborative has put together a fact sheet based on the most recent data. Cannot recommend highly enough!

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PhilSci-Archive @philsci-archive.bsky.social · 08/03/2026

New on the Archive: de Canson, Chloé (2026) Diseases as Homeostatic Property Clusters. [Preprint] philsci-archive.pitt.edu/28478

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Chloé de Canson @chloedecanson.bsky.social · 04/03/2026

My paper on disease has been accepted at Philosophy of Medicine! I argue that diseases form homeostatic property clusters: their underlying pathomechanisms cause clustering in their symptomatology, biological signature, response to treatments, and prognosis philpapers.org/rec/CANDAH

philpapers.org

Chloé de Canson, Diseases as Homeostatic Property Clusters - PhilPapers

Several philosophers have recently drawn on property cluster accounts of natural kinds to argue that individual diseases form natural kinds. According to them, diseases have a super-explanatory proper...

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Chloé de Canson @chloedecanson.bsky.social · 20/02/2026

Charles S. Peirce on William James: “he so concrete, so living; I a mere table of contents, so abstract, a very snarl of twine”

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Patient-Led Research Collaborative @patientled.bsky.social · 12/02/2026

“HIV taught us how chronic viral infections can affect the body long after initial illness, and how important it is to involve patients in that research,” said @michaelpelusomd.bsky.social. “Applying those lessons to #LongCovid has helped us accelerate discovery” www.ucsf.edu/news/2026/01...

ucsf.edu

Solving Long COVID: How Decades of HIV Research Paved the Way

Discover how UCSF is leading the charge in Long COVID research, uncovering key findings that advance our understanding of the condition. UCSF researchers have adapted innovative tools and methodologie...

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Chloé de Canson @chloedecanson.bsky.social · 12/02/2026

Alice James’s diary entries on the suicides of random people

A man has committed suicide in St. Paul's which I allow is inexcusably sloppy of him but it has caused a delicious fuss and fluster among the shovel hats. The Cathedral will have to be re-consecrated, they fear, but perhaps they may be able with their highly developed muscles of evasion to wash out the stain of blood by an "Act of Reconciliation!" I can never accustom

January 21st
How picturesque and instructive of the Duke of Bedford33 to commit suicide at this moment of frozen misery, showing his destitution, before the affluence of the slums, of that apparently inextinguishable animal appetite for simple respiration, without which all power and splendour are inoperative against the canker of weariness. It makes it a more perfect whole, that,

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Grumpy Philosopher @stevecooke.org · 11/02/2026

The meaning of words is to be decided not by their use, usefulness, or history, but by their commercial benefit to the most powerful lobby groups. I have a recipe for almond milk in a cookbook from 1226. It has been used as a term in English for hundreds of years. www.theguardian.com/business/202...

theguardian.com

Oatly banned from using word ‘milk’ to market plant-based products in UK

Supreme court makes ruling after Swedish firm’s long-running battle with trade association Dairy UK

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Ryan Briggs @ryancbriggs.net · 11/02/2026

It's ironic to see a discipline care **so much** about unbiasedness (causal inference!) at the level of a single test but then have a research production system and culture that is basically a ferocious bias generation machine. This is not good.

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Chloé de Canson @chloedecanson.bsky.social · 11/02/2026

Alice James told her brother Henry James that, could she have her close friend Katherine Loring “quietly and uninterruptedly for a year to relieve her of all responsibility, she would get well”. Alice was diagnosed with hysteria and Henry cruelly surmised that her illness was a ploy to keep K close

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Chloé de Canson @chloedecanson.bsky.social · 10/02/2026

It’s an honour to have joined the @patientled.bsky.social as a contributor. The PLRC published the first study on long COVID, establishing the phenotypic characteristics of the disease doi.org/10.1016/j.ec..., and the most cited paper on LC, outlining its biomedical features doi.org/10.1038/s415...

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Chloé de Canson @chloedecanson.bsky.social · 09/02/2026

Out of over half a million healthcare providers in the UK, thirty-three have viewed the module on managing severe ME that was touted as the solution to the ME crisis. This leads to people like Savannah currently being detained and tortured in NHS hospitals

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Alex Ip 葉清霖 @alexip718.com · 29/01/2026

Not just any journalist, she won the goddamn Triple Crown of broadcast journalism (an Emmy, a Peabody, and a Murrow) in 2024 for her reporting on Gaza. This is textbook censorship of the highest degree

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The Jack of Kingfield @thejackofkingfield.bsky.social · 24/01/2026

Mood in minneapolis right now

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Margaret Killjoy @margaret.bsky.social · 23/01/2026

Another question I came here with was: how effective are the whistles and honking? Does it stop abductions? And the answer is, surprisingly to my cynical self, yes, and often. I have talked to so many people who have successfully interrupted kidnappings.

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Artie Vierkant @avierkant.bsky.social · 24/01/2026

It seems clear Alex Pretti, a healthcare worker, was murdered for engaging in the exact kind of community care we hope all care workers to embody: the kind that doesn’t stop at the threshold of the hospital, the clinic, but that aims to care for and support the community where and how they can

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Chloé de Canson @chloedecanson.bsky.social · 25/01/2026

Completing a review in four days to manifest reviews for the paper I submitted six months ago

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max nesterak @maxnesterak.bsky.social · 23/01/2026

It’s -9 degrees. Downtown Minneapolis is packed for the anti-ICE rally and the crowd keeps growing

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Chloé de Canson @chloedecanson.bsky.social · 23/01/2026

Charles S. Peirce and Simone Weil

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rthm_health @rthm.bsky.social · 15/01/2026

Recent research shows blood from people with ME/CFS and Long COVID directly harms healthy muscle, reducing force, stressing mitochondria, and causing structural breakdown. Results implicate blood-borne drivers of muscle weakness, exertion intolerance, and PEM. 🔗 doi.org/10.1088/1758...

Recent Study: Muscle tissue exposed to blood from ME/CFS & Long COVID patients leads to severe muscular and mitochondrial deterioration

Source citation and arrow pointing right

Images of muscle tissue deteriorating in the background.

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Chloé de Canson @chloedecanson.bsky.social · 16/01/2026

I saw someone argue for eliminating R&Rs, so that journals either accept or reject papers. Is that a popular view? Most of my papers have been made much stronger by R&Rs, even when they had been presented, received feedback from colleagues, etc. Sth abt anonymity makes ppl more critical?

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Death Panel @deathpanel.bsky.social · 13/01/2026

Now unlocked: Death Panel Presents: Health Fascism and the Anti-State State. A close analysis of the first year of Trump and RFK’s pledge to “Make America Healthy Again,” the damage it’s caused, and how to stop it (link and transcripts in next posts)

blue, white and black text based graphic. deep blue background. white layer on top reading “death panel presents” at the top. below that is a larger “death panel” that is mostly obscured by white mark-making. on the very top is the black layer which reads “health fascism and the anti-state state.”

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Chloé de Canson @chloedecanson.bsky.social · 13/01/2026

“In genetics and complex disease research, scientists often apply what is known as the extreme phenotype strategy … Studying those at the farthest ends of the spectrum amplifies biological signals and accelerates the discovery of causal pathways and potential drug targets.”

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Chloé de Canson @chloedecanson.bsky.social · 11/01/2026

Ramsey: “I don't feel the least humble before the vastness of the heavens. … My picture of the world is drawn in perspective, and not like a model to scale. The foreground is occupied by human beings and the stars are all as small as threepenny bits.”

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Emma Smith @3mm4sm1th.bsky.social · 09/01/2026

Long COVID clinics are quietly closing, leaving thousands of patients without specialized care via @scienceline.org scienceline.org/2026/01/long... Thank you to the people living with Long COVID who shared their stories and to the healthcare providers and advocates for sharing their insights.

scienceline.org

Long COVID clinics are quietly closing, leaving thousands of patients without specialized care - Scienceline

Long COVID clinics began opening in swaths across the country in 2020 to provide specialty care for patients living with this chronic condition, which occurs following a COVID infection. As of March 2...

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baharsh.bsky.social @baharsh.bsky.social · 10/01/2026

„This is why the chant “Death to the tyrant, whether king or [supreme] leader” resonates so powerfully. Iranians are rejecting the Islamic Republic, but also foreign-backed alternatives such as Reza Pahlavi, who asks the protesters to fight to the end from the comfort of his home near Washington.“

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Chloé de Canson @chloedecanson.bsky.social · 09/01/2026

“Do we doubt that each of us encounters reality not directly, but through the thicket of our individual psychic realities, with their stubborn frames and secret desires, the vast sediment of our past histories?”

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