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Matt Lazell-Fairman

@mfairma.bsky.social
1.4K followers 1.6K following 318 posts

ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.

PostsRepliesMedia
Reposted by Matt Lazell-Fairman
Aaron Reichlin-Melnick @reichlinmelnick.bsky.social · 02/10/2026
Last year not a single refugee fleeing religious persecution was admitted to the US.
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Reposted by Matt Lazell-Fairman
CREW @citizensforethics.org · 01/10/2026
As the Trump admin continues its attacks on voting rights, the OMB now wants to change spending rules to prohibit federal grant money from being spent on voter registration drives, which could compromise disabled and elderly Americans' ability to vote.
propublica.org
This White House Plan Threatens Funding That Helps Disabled Americans Vote
A new rule from the Office of Management and Budget would prohibit anyone from using federal grant money for voter registration drives. It’s part of the Trump administration’s broader efforts to…
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Reposted by Matt Lazell-Fairman
sarah boothby @swastrosarah.bsky.social · 30/09/2026
I support this campaign because nobody knows when hospital treatment may be needed, and nobody should be afraid to seek medical attention simply because NICE guidance is unclear and clinics do not understand how to manage risk. @england.nhs.uk refused to adopt the rduh clinical guidance x3 2022-2024
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Reposted by Matt Lazell-Fairman
ME/CFS San Diego @mecfssd.bsky.social · 24/09/2026
Medicaid Work Requirements Interview: Journalist seeking rural residents willing to discuss how they are affected. wildmimosatrees@proton.me for details.
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Reposted by Matt Lazell-Fairman
#MEAction Network @meactnet.bsky.social · 24/09/2026
"We need to ask why so many patients have been abandoned, why discredited and dangerous treatments continue to be prescribed and why ignorance and neglect still dominate, in the health system and beyond. In other words, there has seldom been a stronger case for a public inquiry." #MECFS #pwME
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Reposted by Matt Lazell-Fairman
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Reposted by Matt Lazell-Fairman
Alem Matthees @alemmatthees.bsky.social · 24/09/2026
(1/3) I would not repeat years of very severe #MECFS again for billions of dollars. Not just because of the ongoing difficulties, but also the risk of not surviving. Just one single day would wipe the smug and doubt off the faces of those who disbelieve. Just one single day, but there is a catch.
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Reposted by Matt Lazell-Fairman
keri @keristars.bsky.social · 23/09/2026
hey PBS nerds, it's new tonight on NOVA! "For millennia, Indigenous communities in North America have practiced a unique form of science. From navigating the featureless Arctic to building energy-efficient homes in the desert, see how cultural traditions have led to remarkable innovations."
pbs.org
NOVA | Knowledge Keepers | Season 53 | Episode 10
Witness how Native North Americans have generated scientific knowledge over thousands of years.
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Reposted by Matt Lazell-Fairman
Erin Biba @erinbiba.bsky.social · 23/09/2026
Hey so uhhhhh that Boston Globe story about the lesbian bar relaxing its covid rules is an *absolute fucking hit piece* targeting the disabled, chronically ill, and covid-conscious and it would be great if folks sharing and joking about it could recognize that framing.
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Reposted by Matt Lazell-Fairman
Erin Biba @erinbiba.bsky.social · 23/09/2026
Ableism is so acceptable on the left(s) dem members of Congress feel perfectly comfortable making fun of masking. bsky.app/profile/tekn...
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Reposted by Matt Lazell-Fairman
Wilhelmina Jenkins @wilhelminaj.bsky.social · 24/08/2026
Thanks to Matthew, Alexander, and Denise Lopez-Majano for their insightful statements on being a family living with ME/CFS.
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Reposted by Matt Lazell-Fairman
#MEAction Network @meactnet.bsky.social · 22/09/2026
The ME/CFS Exchange Webinar Series launches next month. 1st webinar in the quarterly series will focus on post-acute infection symptoms. October 8th from 1 pm to 3 pm ET via Zoom. Registration required: ow.ly/2ABp50ZOPKP Hosted by NINDS in partnership with MECFSnet. #NIH #PwME #MECFS
MEAction shares that NIH announces ME/CFS Exchange webinar series starting October 8. Hosted by NINDS in partnership with MECFSnet. Text: Moderator and 4 speakers are listed.  October 8th at 1 to 3 pm ET. virtual.
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Reposted by Matt Lazell-Fairman
Mike Elk @mikeelk.bsky.social · 23/09/2026
In 2018, my college classmate, Marielle Franco, a socialist Rio de Janeiro city councilwoman, was assassinated. For the past 4 years, I've worked on this documentary about how her assassination inspired a movement. Watch our trailer and share. www.youtube.com/watch?v=AkxK...
youtube.com
Trailer: "Marielle Vive! How an Assassination Changed Brasil & Inspired a Movement"
YouTube video by Payday Report
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I Scare You Like Sound Dog @chadstanton.blacksky.app · 23/09/2026
“The Department of Health and Human Services informed congressional appropriators earlier this year that it was moving about $12 million from its Office of Minority Health to help cover the ballooning cost of security for Health Secretary Robert F. Kennedy Jr.” www.wsj.com/politics/pol...
wsj.com
Exclusive | RFK Jr.’s Enhanced Security Was Funded With Money From Minority Health Office
The cost of the health secretary’s security grew from roughly $10 million in fiscal year 2025 to $17 million in fiscal year 2026.
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Liz Szabo @lizszabo.bsky.social · 23/09/2026
Free COVID vaccines for the most vulnerable kids--including uninsured kids--have not yet been delivered to states. Vaccines for privately insured kids have already shipped. "We want all parents and children to have access to the vaccine at the same time––as soon as it is approved and available."
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Adam @abrokenbattery.bsky.social · 15/08/2026
“It feels like I’m on an island by myself, on a different planet, because no one seems to understand.” Emily developed #LongCovid aged 9. Now 14, she lives with constant pain and struggles to fit in at school because she uses a walking stick. Clip from Channel 5 News.
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Karen “the good kind” @kpsinging.bsky.social · 13/09/2026
Today would have been my brother David's 60th birthday. We lost him in late 2021 to Covid. He had Down Syndrome and had developed dementia. One exposure to Covid and he passed within days. Whenever I read "yes but they had comorbidities" I want to scream because those are also people we loved.💔
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Reposted by Matt Lazell-Fairman
Kategod 🐉🧿🦑𓅛🪬 @kategodart.northsky.social · 20/09/2026
so it turns out that miners actually liked the canaries (have you met one, they are cute little individuals) and didn't want them to die maybe there's a lesson to be learned here idk
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Reposted by Matt Lazell-Fairman
Cliff PervoSCARY @pervocracy.bsky.social · 20/09/2026
This is a canary resuscitator, which miners would use to revive canaries that had passed out from toxic gas, because ideally not only do you care, you don't even leave the bird behind. just a little mining history and not at all a furious scream
A canary in a sealed box attached to an oxygen tank
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Reposted by Matt Lazell-Fairman
Liz Szabo @lizszabo.bsky.social · 21/09/2026
“We saw a huge drop off in people getting vaccinated,” Pannaraj told CIDRAP News. Many immigrant parents are afraid of being detained or arrested by ICE, she said. “It’s a valid fear.” www.cidrap.umn.edu/public-healt...
cidrap.umn.edu
US pediatricians report seeing fewer patients because of immigration enforcement worries
Doctors also note that their patients hesitate to apply for government benefits and often keep their children home from school.
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Kirsty 🌻 @kirstysmestory.bsky.social · 21/09/2026
Thank you for your work. If you ever want to write about systemic abuse of ME patients I was one of several minors who were institutionalised and abused. I have many documents of this happening in 2013. They repeatedly locked me up in solitary confinement as punishment for “sickness behaviour”
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Matt Lazell-Fairman @mfairma.bsky.social · 21/09/2026
Dreading a virtual appt. next month with a university covid clinic and came across this hilarious, shattering meme on CFS subreddit. Things may be changing, but clinical care is still so so bad. #MECFS #LongCovid
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Matt Lazell-Fairman @mfairma.bsky.social · 21/09/2026
Now that I’m housebound, I’ve been researching home care. Both local hospitals offer it. One is perfect, but refuses pts under 50. The other requires a referral and 1.5 hr in-person health assessment every time I need care, which I can‘t do. Travesty that you can be too sick to get medical care.
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Matt Lazell-Fairman @mfairma.bsky.social · 21/09/2026
Another friend has fallen sick with post-viral illness. That makes 8 ppl we knew before Covid (incl. my wife) that were generally healthy and working and now live with a profound disability. Of the 8, only 3 can work even part-time. Only 1 is past retirement age. Such a tragedy. #LongCovid #MECFS
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Reposted by Matt Lazell-Fairman
Alem Matthees @alemmatthees.bsky.social · 17/09/2026
I am going to have a go at social media. I do not know if it will be successful or if anyone will be interested. I would rather avoid the topic of #MECFS and focus on other interests, but it continues to destroy my life and if I can help raise awareness then perhaps the suffering is not for nothing.
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Reposted by Matt Lazell-Fairman
George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
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Reposted by Matt Lazell-Fairman
Alem Matthees @alemmatthees.bsky.social · 21/09/2026
(2/3) Whitney Dafoe's #MECFS severity scale reveals the many layers of severe ME/CFS, which are usually merged together or excluded from research and surveys. It may not be obvious to outsiders, but the abyss of very severe ME/CFS has many levels too. Disability is not linear but exponential.
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#MEAction Network @meactnet.bsky.social · 20/09/2026
We are honored to share an amazing poem sent in for our Severe ME Artists Project. We are featuring “In a Room I Lie (For Rachel)” by Adrian Bagley. Adrian, if I can tag you, let me know! All art: www.meaction.net/severe-me-artists-… Thanks to CoRy Wysz 💤 for the video.
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Reposted by Matt Lazell-Fairman
Ethan Sacks @ethansacks.bsky.social · 18/09/2026
This coupled with the CNN story about the A.I. mistake that sparked a close call between the U.S. and China is terrifying.
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Matt Novak @paleofuture.bsky.social · 18/09/2026
“The report, according to one of the sources, was ‘entirely false.’ But it also ‘almost started a war,’ the source said. Any US operation against a Chinese vessel could have risked spiraling into an armed conflict between the two nations.”
cnn.com
Exclusive: US military had close call after using AI for false intelligence report, sources say | CNN Politics
The episode shows the risks of using this new, relatively poorly understood technology in the middle of the Iran war
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 14/09/2026
Article incoming from #MEAction on this, but for now I need y'all to know that while the comment box isn't marked at all, it has a character or word limit: about 4000 characters (or 525 words) seems to be it. Just so you don't write a huge thing and end up chopping it down, like I did.
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Reposted by Matt Lazell-Fairman
Julia Métraux @juliametraux.bsky.social · 01/09/2026
"The work and everyday labor of living with ME/CFS contains this recursive loop of everyday labor of being ill." For @motherjones.com, I interviewed @elimrogers.bsky.social on her book tracing the history of ME/CFS and what it's like to be exhausted in America. www.motherjones.com/media/2026/0...
motherjones.com
The relentless work of being sick
A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.
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Mari Ness, writer of things @mariness.bsky.social · 30/08/2026
....the ongoing delights of being both a Hugo finalist and a wheelchair user. "The backstage is for walking participants," said directly to my face, as a wheelchair user.
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ME/CFS Science @mecfsscience.org · 30/08/2026
1) 🇳🇱 In the Netherlands, ME/CFS patient and advocate Anil Van Der Zee was appointed Knight in the Order of Orange-Nassau. It's an recognition of his outstanding contribution to society, a very high honour.
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J. Offir, PhD @joffirphd.bsky.social · 22/08/2026
A summary about why this dating app is so important: "The stigma [against disabled people in romantic relationships] is real....Data shows individuals with disabilities are less likely to marry than people without [them]. And in surveys, young adults have... 🧵 1/7 www.nytimes.com/2026/08/20/w...
nytimes.com
The App Bringing Disabled Daters Together (Gift Article)
Many Dateability users said they were drawn to the app after negative experiences on mainstream platforms.
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Julia Métraux @juliametraux.bsky.social · 19/08/2026
An ICE agent directed Emilio, a Venezuelan Deaf man, to get onto a bus. He asked for an interpreter and didn’t get one. When he saw a Mexican flag, he realized he was being deported to Mexico, sans passport. My latest for @motherjones.com. www.motherjones.com/politics/202...
motherjones.com
How Trump’s deportation machine deprives Deaf people of their humanity
An extra layer of cruelty is added by limiting communication access for Deaf people.
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Phil Lewis @phillewis.bsky.social · 10/08/2026
Taylor Farms said it was recalling more than a dozen prepared food items containing jalapeños, including salsas and guacamole, from retailers over concerns about potential salmonella contamination
huffpost.com
Taylor Farms Recalls Salsa, Guacamole Over Salmonella Risk
Salmonella infections can cause diarrhea, fever and stomach cramps and can be particularly severe in young children, older adults and people with weakened immune systems.
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Alex Wellerstein @wellerstein.bsky.social · 09/08/2026
81 years ago today, on August 9, 1945, an atomic bomb was dropped upon the city of Nagasaki, Japan, by the United States. This was 3 days after the first atomic attack on Hiroshima.
Nagasaki, bomber's eye view: Close-up view of the head of the mushroom cloud at the Nagasaki explosion, as seen from either the bomber or the observation plane.Nagasaki, distant ground view: Photo of the Nagasaki cloud taken ~15 minutes after the atomic bomb detonation, by Hiromichi Matsuda, stationed at Koyagi-jima Island, some 5 miles / 8 km away.Nagasaki, before and after, aerial views. Nagasaki, ground view, some weeks after the attack.
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David Dayen @ddayen.bsky.social · 31/07/2026
Today is the last day of public comment on a rule that would force cancer and HIV patients to prove "significant impairment" so they can keep their exemption to Medicaid work requirements. This "will kill people, I’m literally living proof of that," said one patient with a brain tumor.
prospect.org
Trump to HIV and Cancer Patients: Get Back to Work - The American Prospect
A surprise rule added to the Big Beautiful Bill could disrupt access to Medicaid for people with serious illnesses who thought they were exempted from work requirements.
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Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social · 29/07/2026
We're pleased to announce the English version of our transdisciplinary care guide for people with severe #MECFS. We hope it will help family caregivers, healthcare professionals, and policymakers improve care for one of the world's most underserved patient populations.
https://rdcu.be/fwCA7
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Adam @abrokenbattery.bsky.social · 25/07/2026
Arguments for a biological cause are “mocked” and “overwhelmed”, science is “ignored”, and clinicians with success treating ME are “hounded out of business”. The Countess of Mar speaking about a “school of psychiatry” in the House of Lords, 2010. #MECFS
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Prof. Stefan Rahmstorf @rahmstorf.bsky.social · 24/07/2026
Holiday in the climate emergency. No that’s not AI or edited, just a snapshot I just took with my phone on Lacanau beach in France. What future will this boy grow up in? It is in our hands, but time is running out.
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Chris Ponting @cgatist.bsky.social · 24/07/2026
UK people with Long Covid or ME/CFS: please consider helping the HERITAGE project. They need to recruit 1,000 people who have not accessed an NHS specialist service within the last 3 years. heritage.leeds.ac.uk/join/
Are you someone with Long Covid or ME/CFS lasting at least 2 years? Are you not currently receiving specialist NHS Long Covid or ME/CFS case? Then consider joining the UK HERITAGE study by visiting the University of Leeds website https://heritage.leeds.ac.uk/join/ or call 0113 3924 734.
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David Tuller @davetuller1.bsky.social · 23/07/2026
Many multidisciplinary/rehabilitation studies for ME/CFS, Long Covid, etc. pretend to have meaningful positive results. Here's one that clearly states the intervention didn't work: virology.ws/2026/07/23/t...
virology.ws
Trial By Error: No Benefits for Multidisciplinary Rehabilitation in New ME/CFS Study | Virology Blog
By David Tuller, DrPH It is refreshing to read a study about a rehabilitative intervention for ME/CFS or Long Covid or so-called “medically unexplained symp ...
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Kai Kupferschmidt @kakape.bsky.social · 23/07/2026
“Seven days after the girl’s medical team infused trillions of viruses carrying the recipe for the base editor into her spinal fluid, she died of a severe immune reaction linked to the therapy…” This, in @science.org, is an important and tragic story. (It’s also an incredibly well reported one.) 🧪
science.org
Exclusive: Death of girl in Chinese gene-editing trial was never made public
Parents want accountability after study went disastrously wrong, Science and Retraction Watch investigation reveals
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Charlotte Clymer @charlotteclymer.bsky.social · 22/07/2026
This story is crazy. It would appear Trump admin officials rigged their nationally televised high school civics contest to keep a young man from a Sikh family out of the finalists. www.notus.org/national/ame...
notus.org
Suspicion and Doubt at the National Civics Contest
America’s finest young scholars competed to mark their country's birthday. It led to a disputed finish in the age of mistrust.
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ME Association @meassociation.org.uk · 17/07/2026
The UK ME/CFS Biobank (UKMEB) is looking for healthy control volunteers for a study looking at virus reactivation in ME/CFS/LC The UKMEB is still looking for women aged between 31–50 and men between 31-40 who can visit LSTHM or who live in the catchment area. meassociation.org.uk/narr
meassociation.org.uk
The UK ME/CFS Biobank is looking for healthy control volunteers for a study looking at virus reactivation in ME/CFS/LC - The ME Association
The CureME Team at the London School of Hygiene and […]
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ME/CFS Science @mecfsscience.org · 21/07/2026
1) We wrote a new article on cell and tissue analysis using genetic data. For ME/CFS, the results strongly point to neurons. One of the top hits is the medium spiny neuron, located in a region deep inside the brain called the striatum.
mecfsscience.org
Cell and tissue enrichment in ME/CFS - ME/CFS Science
By matching DNA results with gene expression databases researchers can determine the tissues and cellContinue readingCell and tissue enrichment in ME/CFS
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Nate O @nateo.bsky.social · 18/07/2026
Straightforward fascist ideology running throughout, as illustrated by this passage
It’s not a coincidence that when you look at these violent antifa demonstrations and you see any photograph of those who were assembled – to be blunt, not one of the people that is demonstrating looks like a normal person.  Not one looks normal.  They’re all deformed in some way – in their appearance, in their dress, in their mannerism.  Why is that?  Why?  If you look at two photographs and you see a normal American in the street and you see an Antifa protest, why do the people that are violently demonstrating – why is there not one normal-looking person among them?  Every one of them, through the course of their life and their decisions, has scarred their body and their appearance in many different ways, to the point in which their outer appearance becomes a manifestation of their inner hatred.

Trust your instincts to all people and across all civilizations.  You know what normal is.  You know what beautiful is.  You know what good is.  You know that families are right.  You know that children are precious and beautiful and must be protected.  You know that the criminal and the junkie and the predator is a threat to normal, healthy living.  This so much deeper than issues about taxation and regulation, although they’re incredibly important.  It’s about normal, healthy, ordered living.
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anti-zionist dog 🇵🇸 @puppydoggaming.bsky.social · 12/07/2026
i will say lindsey graham being asked by a reporter how mitch mcconnell is doing, answering “i don’t know, i’m going to check right now” and then dying is hilarious
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