Reposted by Elke Hausmann
📢 Important Update from the APPG on Long Covid:
Following Jo Platt MP stepping down from her role as Chair, the APPG on Long Covid will hold an Extraordinary General Meeting (EGM) to elect a new Chair on Tuesday 20 October at 2pm.
![My story is common. Many people — particularly women — had underlying issues like EDS and mild POTS, but lived normal lives until a SARS-CoV-2 infection surfaced those issues, collapsing the facade of "normalcy" they'd been able to build. My POTS became extremely severe. I also developed moderate-severe ME [myalgic encephalomyelitis], leaving me homebound and mostly bedbound, as well as a chronic migraine disorder.
Other people developed POTS and/or ME after being infected, or only identified their connective tissue disorder after developing Long COVID.
It's very telling that POTS, ME, and EDS are all listed as common "sickfluencer"
diagnoses. These are all associated with Long COVID and were considered relatively rare prior to COVID-19.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:zuo7ttfhdguujnpx22nctb7a/bafkreicdj6vx3z6rkbqdjquyrxg7kniwuvnnjhdoxpu4exnpwxrv3kuu5e)
