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marydimmock.bsky.social

@marydimmock.bsky.social
1.2K followers 214 following 48 posts

US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming

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Reposted by @marydimmock.bsky.social
Eric Lipton NYT @ericlipton.nytimes.com · 08/09/2026
OpenAI’s top scientist, in a blog post on Sunday, warns that artificial intelligence is evolving so rapidly that it is becoming increasingly difficult for humans to understand and control it. Here is the post: openai.com/index/an-ali... And a couple of small excerpts--clear warnings.
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Wilhelmina Jenkins @wilhelminaj.bsky.social · 04/09/2026
Friends, a major problem in the demographics of ME/CFS studies is the absence of Black participants. If you know of any Black adults with ME/CFS, please suggest that they complete this survey. I have completed it and it is relatively untaxing. Thanks!
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marydimmock.bsky.social @marydimmock.bsky.social · 03/09/2026
Israel's far right has a plan to remove 250,000 Palestinians from Gaza in year 1 and the rest of roughly 2 million over the next six years. Forced removal of civilians in occupied territory is a war crime. How can the US support this? www.theguardian.com/world/2026/s...
theguardian.com
Far-right Israeli minister outlines plan for removal of all Palestinians from Gaza
Itamar Ben-Gvir claims proposal for illegal forced displacement of 2 million people is ‘realistic’ and ‘concrete’
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jamelle @jamellebouie.net · 03/09/2026
the literal position of the trump administration is that any school that has any more than a smattering of black students is engaged in illegal racial discrimination against whites www.nytimes.com/2026/09/03/b...
nytimes.com
Trump Moves to Strip Tax Exemption From Schools That Aid Minority Students (Gift Article)
The Treasury Department released rules that would prevent schools with race-based programs from qualifying for tax-exempt status, a threat to both higher education and other private schools.
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marydimmock.bsky.social @marydimmock.bsky.social · 22/08/2026
Trump et al have not only mistreated those on the aircraft carrier. They've also stranded families of soldiers who had to leave US mideast bases under attack. And the rest of the story? The reporter who wrote this article has now been fired for "insubordination." www.stripes.com/branches/nav...
stripes.com
Navy families evacuated from Bahrain face ‘uncharted territory’ amid bureaucratic confusion
The evacuation has left families in limbo and forced military officials to improvise solutions for support programs.
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C.H. Romatowski @chromatowski.bsky.social · 22/08/2026
Stanford is hosting its annual conference on the molecular basis of ME/CFS and there will be one day (Sept 11) open to the public. Register here: stanford.zoom.us/webinar/regi...
Facebook post from Ronald W. Davis
6h 

2026 Community Symposium on the Molecular Basis of ME/CFS

I am pleased to announce that this year's 10th Annual Stanford Working Group Meeting on the Molecular Basis of ME/CFS will include a virtual Community Symposium again this year, in which patients, caregivers, doctors, and any other interested parties are invited to attend. The closed portion of the meeting will be held September 8 - 10, and the last day, September 11, will be open to the public. It will be held on zoom starting at 8 am PST.

*You must register to be sent a link to gain entrance to the meeting.* The link you are sent can only be used by the email you register with, and cannot be shared.
There is limited capacity so please be sure to register ahead. The agenda will be announced soon. I am excited to be hosting this again, and look forward to seeing you there!
Here is the registration link: 

stanford.zoom.us
Welcome! You are invited to join a webinar: Community Symposium on the Molecular Basis of ME/CFS. Af...
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Max Kozlov @maxkozlov.bsky.social · 11/08/2026
NEW: The NIH is quietly restricting funding for research that evaluates how public policy impacts human health. According to internal documents I obtained, the agency no longer considers policymakers "mission relevant" — a massive shift for the biomedical funder. My latest for @nature.com:
nature.com
NIH limits funding for research on the health effects of public policy
US biomedical agency no longer considers policymakers as ‘mission relevant’, leaving dozens of grants in limbo.
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marydimmock.bsky.social @marydimmock.bsky.social · 10/08/2026
Much needed video on managing post-exertional malaise www.youtube.com/watch?v=Na5z...
youtube.com
How to Manage and Treat Post-Exertional Malaise (PEM)
YouTube video by RTHM Health
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marydimmock.bsky.social @marydimmock.bsky.social · 31/07/2026
Clinicians lacks reliable information on caring for the severe #MECFS patient, leading to misguided and too often devastatingly harmful care. While directed to home care, this guidance should help to educate those working in healthcare facilities to not only do no harm but actually help.
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Alex Ip 葉清霖 @alexip718.com · 07/07/2026
BREAKING: in June 2026, *every single one* of the 1,062 refugees admitted in the U.S. were white South Africans. In FY 2026, the U.S. has admitted a total of 7,727 white South Africans, three Afghans (back in November), and nobody else. For reference, the U.S. admitted 100,060 refugees in 2024.
rpc.state.gov
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Colette Delawalla, PhD @cdelawalla.bsky.social · 27/06/2026
Folks can register to volunteer with @standupforscience.net! We are organizing in specific districts that are flippable, phone banking, wheatpasting, GOTV-ing, and organizing Congressional meetings! Standupforscience.net/take-action
standupforscience.net
Take Action NOW — STAND UP FOR SCIENCE
"Get in dorks!" is our shared battle cry for joining the fight by signing our petitions, working on the ground to turn back Trump and donating to support our work of saving American science and health...
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Tom Kindlon @tomkindlon.bsky.social · 20/06/2026
"Being Informed: Understanding Treatment Pathways" emerge.org.au/starting-a-n... "Emerge Australia suggests before starting any treatment, including those claiming to cure or provide a pathway to recovery for ME/CFS or long COVID, consider asking the following ten questions..." #MEcfs #LongCovid
Being Informed: Understanding Treatment Pathwaysemerge.org.au/starting-a-new-treatment
emerge Australia logo
Making informed decisions about your care and management is important becausethere are no cures, evidence-based treatments, or any medications theTherapeutic Goods Administration has approved for ME/CFS or long COVID. 
Recommended management involves:
pacing and rest to manage energy,
and stepwise-symptom management to address symptoms and manage co-occurring conditions. 

Many people want to know how a treatment might help and whether it’s the rightoption for them. People with ME/CFS and long COVID can respond differently totherapies that aim to manage symptoms. What works well for one person may notwork the same for another. 

 Emerge Australia suggests that before starting any treatment, including thoseclaiming to cure or provide a pathway to recovery for ME/CFS or long COVID,consider asking the following ten questions:
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Jennifer C @thejenniwren.teamlh.social · 14/06/2026
Trump used the Armed Forces Full Honor Cordon — soldiers who escort fallen heroes and heads of state — to usher UFC fighters past Abraham Lincoln’s statue like they’re celebrities on a red carpet. I am LIVID.
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marydimmock.bsky.social @marydimmock.bsky.social · 13/06/2026
Such a spoiled child - putting up a tarp so we can't see the letters being taken down? MSNOW Livestream 1:45 am
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Rebecca E ❌👑 @spoutiblegirl.bsky.social · 29/05/2026
The prisoners at for profit Delaney Hall Torture Center are living in horrendous, subhuman conditions. Protesters are being beaten, pepper sprayed and more. Help get out the word #CLOSEDELANEYHALLFREETHEMALL #CLOSEDELANEYHALLTORTURECENTER #CLOSETHECAMPS #SHUTDOWNDELANEY #ICECAMPSKILL"
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marydimmock.bsky.social @marydimmock.bsky.social · 12/05/2026
"Whatever our views of the Middle East conflict, we should be able to unite in condemning rape." Palestinians have reported "pattern of widespread Israeli sexual violence against men, women and even children — by soldiers, settlers, interrogators" and prison guards. www.nytimes.com/2026/05/11/o...
nytimes.com
Opinion | The Silence That Meets the Rape of Palestinians
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Michael Li (李之樸) @mcpli.bsky.social · 30/04/2026
The front page of today’s New York Times.
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marydimmock.bsky.social @marydimmock.bsky.social · 28/03/2026
For those who want to go to a No Kings protest tomorrow but can't make it...
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Ryan Marino, MD @ryanmarino.bsky.social · 28/03/2026
If you don’t care about this now, you will when you’re dying from a disease that would have been treatable
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Rowan Cardosa @rowanberry333.bsky.social · 27/03/2026
theonion.com/it-is-journa...
theonion.com
It Is Journalism’s Sacred Duty To Endanger The Lives Of As Many Trans People As Possible
The task of reporting is not a simple one. Each and every day, reporters and editors at publications like The Onion make difficult decisions about which issues should receive attention, knowing that o...
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Indivisible ❌👑 @indivisible.org · 26/03/2026
No ICE. No wars. No Kings. Find your local protest and join us on Saturday. 👇
nokings.org
No Kings
As the president escalates his authoritarian power grab, the NO KINGS non-violent movement continues to rise stronger. We are united once again to remind the world: America has No Kings and the power ...
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Eric Topol @erictopol.bsky.social · 26/03/2026
Title: "The United States is Driving a Public Heath Emergency of International Concern" www.bmj.com/content/392/...
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marydimmock.bsky.social @marydimmock.bsky.social · 17/03/2026
NIH went from 756 funding announcements (NOFO) in 2024 to 120 in 2025 to just 14 so far this year. Reports this collapse due to number of policy changes including requiring every NOFO be approved by political appointees and now also by the Office of Management and Budget. The full impact is vast
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Eileen Clancy 🧿 @clancyny.bsky.social · 16/03/2026
A total collapse. The National Institutes of Health went from 756 funding announcements published to 14 in two years. One example of the effects: emerging threats will become harder to address quickly. Response to future health emergencies (like Covid) will be slower and less coordinated.
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Long COVID Physio @longcovidphysio.bsky.social · 16/03/2026
LongCovid Physio, together with LongCovid Kids, LongCovid SOS and LongCovid Support were core participants in Module 3 of the Covid Inquiry The report will be released on Thursday 19th March Please see our press release ahead of this day Thanks to LCS for posting 🙏
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Aaron Rupar @atrupar.com · 17/03/2026
Hassett: "If the war were to be extended, it wouldn't really disrupt the US economy very much at all. It would hurt consumers, and we'd have to think about what we'd have to do about that, but that's really the last of our concerns right now."
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Sen. Adam Schiff @schiff.senate.gov · 10/03/2026
Another alarm bell in this five alarm fire. Donald Trump is still trying to relitigate the 2020 election six years later. He wants to scare election officials and election workers ahead of the midterms. And he’s using the FBI to do it.
politico.com
Trump administration subpoenaing Arizona 2020 voting records, as Trump pushes to consolidate election power
The administration has also obtained records from Fulton County, Georgia, as Trump continues to focus on the 2020 election he lost.
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Rachel Maddow @maddow.bsky.social · 08/03/2026
www.wsj.com/us-news/immi...
wsj.com
Americans Are Now a Target in Trump’s Immigration Crackdown
A WSJ investigation tracked the U.S. citizens caught in the crosshairs of an aggressive federal campaign to detain and demonize dissenters.
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Olga Nesterova @onestpress.onestnetwork.com · 07/03/2026
WH official: “We want to seize all the oil from Iran. The long-term benefit is getting massive oil reserves out of the hands of terrorists.”
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Jonathan Cohn @jonathancohn.bsky.social · 05/03/2026
It is so damning of US news media that so many outlets refuse to just straight up say that Senator Tim Sheehy assaulted an activist. He did not "help" Capitol police. They did not need his help. He wanted to assault the guy and did. He should resign.
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hana martin @nitramanah.bsky.social · 02/03/2026
"The answer is not to dehumanize us." -- Judge Salas
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Ben “James Hell Brooks” Jay 🦇 @benjayingly.com · 25/02/2026
Richmond County’s own Nicole Malliotakis giving off the same energy as one of the white people protesting southern school integration in photos from the 50s
Nicole Malliotakis laughing and pointing towards the exit and she jeers a somber Al Green as he holds a sign that reads “BLACK PEOPLE AREN’T APES”
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marydimmock.bsky.social @marydimmock.bsky.social · 13/02/2026
Trump is pulling out all the stops for fossil fuel - revoking EPA's determination that greenhouse gases threaten public health & welfare. And here, ordering the Pentagon to buy coal fired electricity. Meanwhile, the Chinese are kicking are butts on clean energy. www.nytimes.com/2026/02/11/c...
nytimes.com
Trump Orders the Pentagon to Buy More Coal-Fired Electricity
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marydimmock.bsky.social @marydimmock.bsky.social · 12/02/2026
This!
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Tom Kindlon @tomkindlon.bsky.social · 07/02/2026
(US) Protect Medicaid access for people with ME/CFS and Long COVID www.meaction.net/freakin-frail Screenshot from February 2026 AMMES newsletter #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @meactnet.bsky.social
Photo of US Congress building
Protect Medicaid access for people with ME/CFS and Long COVID

Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail,” or risk losing their Medicaid. Attempting to meet an 80‑hour work requirement for most people with ME/CFS and Long COVID will only worsen their illness, and may cause permanent harm.
Before states start enforcing these new work rules, the HHS Secretary must issue guidance that will shape how states decide who counts as "medically frail." Join us in demanding that people with ME/CFS and Long COVID are fully protected. Please sign the petition today!
Read more here>>
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/02/2026
The Wayback is now so load-bearing we should be protecting it with our actual lives
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Eric Feigl-Ding @drericding.bsky.social · 03/02/2026
2) How the Pentagon is Quietly Building Trump’s Concentration Camps SCOOP: A repurposed Navy contract to funnel tens of billions to ICE for a nationwide "ghost network” of concentration camps—just got a lot bigger. migrantinsider.com/p/how-the-pe...
migrantinsider.com
How the Pentagon is Quietly Building Trump’s Concentration Camps
SCOOP: A repurposed Navy contract is funneling tens of billions into a "ghost network" of detention camps that can materialize anywhere in America overnight.
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Clara Jeffery @clarajeffery.bsky.social · 31/01/2026
Just after Trump “pivoted”, his former personal lawyer now Deputy head of DOJ granted ICE extraordinarily sewping powers to arrest people without warrants www.nytimes.com/2026/01/30/u...
nytimes.com
ICE Expands Power of Agents to Arrest People Without Warrants
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G. Willow Wilson @gwillow.me · 30/01/2026
Younger kid's whole middle school walked out today in solidarity with Minnesota. Apparently there were 13 year olds getting up and making impromptu speeches. They didn't prep a chant in advance, so they settled on "F*ck ICE"
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Asher Langton @asherlangton.bsky.social · 31/01/2026
lol, they’re trying to flood the ratings
Rotten Tomatoes for Melania: 8% tomatometer, 99% popcornmeterA fantastic flick, our theater was sold out and erupted in applause and cheers at the end of the show. Melania is a wonderful human, a class act and America is blessed she is once again our First Lady. This behind the scenes sneak peek was so well done and such a wonderful watch. A must see.
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More Perfect Union @moreperfectunion.bsky.social · 30/01/2026
BREAKING: Bernie Sanders is introducing an amendment to cut ICE’s $75 billion funding increase, and to use those funds to restore the federal cuts to health care.
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David Dayen @ddayen.bsky.social · 30/01/2026
Very important vote. It makes repealing ICE surge funding the mainstream position in the party, with bipartisan support.
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Billy Hanlon @bhanlon15.bsky.social · 24/01/2026
AP News: 'Man shot during Minneapolis immigration crackdown has died, hospital record shows' "One officer responded mockingly as he walked away, telling them: “Boo hoo.” Agents elsewhere shoved a yelling protester into a car." apnews.com/article/immi...
apnews.com
Man shot during Minneapolis immigration crackdown has died, hospital record shows
A 51-year-old man shot by federal immigration officers in Minneapolis has died, a hospital record obtained by The Associated Press shows. Gov.
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Rachel Maddow @maddow.bsky.social · 24/01/2026
www.nytimes.com/2026/01/23/u...
nytimes.com
Demonstrators Flood Minneapolis Streets as Hundreds of Businesses Close to Protest ICE
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Indivisible ❌👑 @indivisible.org · 23/01/2026
Every Senate Democrat should unite against this bill, and Senate leadership should make sure they do. Now our job is to flood the Senate with calls demanding ICE Out For Good. Or you can send an email to your senators: act.indivisible.org/sign/ice-out...
indivisible.org
Tell the Senate: Not a penny more for ICE brutality | Indivisible
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Dr. Lucky Tran @luckytran.com · 23/01/2026
The United States has officially withdrawn from the World Health Organization. This is a shameful move that puts both Americans and people all over the world at greater risk from disease outbreaks, which require international collaboration to contain.
United States Completes WHO Withdrawal        
          WASHINGTON —  January 22, 2026 — The U.S. Department of Health and Human Services and the U.S. Department of State today announced the United States’ completion of its withdrawal from the World Health Organization (WHO) due to the organization's mishandling of the COVID-19 pandemic that arose out of Wuhan, China, its failure to adopt urgently needed reforms, and its inability to demonstrate independence from the inappropriate political influence of WHO member states.
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In These Times @inthesetimes.com · 23/01/2026
“No work. No spending.” Minnesota workers strike tomorrow to protest ICE. @maximillianalvarez.bsky.social with the Working People Podcast hosted a critical conversation with union leaders on the eve of a massive general strike. inthesetimes.com/article/work...
Protesters in Minneapolis rallying against ICE and the abductions of residents.
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Charlie Sykes @sykescharlie.bsky.social · 22/01/2026
As it absorbs the scene from Davos yesterday, the world seems to be asking two questions: “What is wrong with Donald Trump?” And, “What is wrong with America?” open.substack.com/pub/charlies...
open.substack.com
Trump's Davos Dump
As it absorbs the scene from Davos yesterday, the world seems to be asking two questions: “What is wrong with Donald Trump?” And, “What is wrong with America?”
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Anne Applebaum @anneapplebaum.wsocial.eu · 22/01/2026
US law requires 2/3 Senate approval for international treaties
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