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Pam Bishop, PhD

@pamelarbishop.bsky.social
1.6K followers 1.9K following 36 posts

Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.

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Reposted by Pam Bishop, PhD
C.H. Romatowski @chromatowski.bsky.social · 31/01/2025
Resonant, painful essay about the way internalized ableism even more than Long Covid threatened this person’s marriage. I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance. Gift link: www.nytimes.com/2025/01/31/s...
nytimes.com
I Love You. Please Find Someone Else. (Gift Article)
“In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness.
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Reposted by Pam Bishop, PhD
Eric Topol @erictopol.bsky.social · 24/01/2025
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉) "Bluesky is much better for science. There is much less toxicity, misinformation, and distractions." www.nature.com/articles/d41...
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Reposted by Pam Bishop, PhD
Jon Douglas @atranscendedman.bsky.social · 24/01/2025
A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns. Early results suggest it could guide tailored treatments, but larger trials are needed. www.bbc.com/news/article...
bbc.com
Exeter firm excited over long Covid test breakthrough
The firm says for some people it can confirm the existence of long Covid and help treatment.
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Reposted by Pam Bishop, PhD
Katharina 🦋🍋🍀 @katha1970.bsky.social · 18/01/2025
Please help spread the word 👇 @putrinolab.bsky.social @daltmann.bsky.social @sunny-rae1.bsky.social @sunsopeningband.bsky.social @binitakane.bsky.social @davidjoffe64.bsky.social @drannanz.bsky.social @johanvawe.bsky.social @pamelarbishop.bsky.social @oonaghcousins.bsky.social @cureid.bsky.social
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Reposted by Pam Bishop, PhD
Billy Hanlon @bhanlon15.bsky.social · 21/01/2025
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals' 'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)' www.sciencealert.com/chronic-fati...
sciencealert.com
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS).
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Reposted by Pam Bishop, PhD
Billy Hanlon @bhanlon15.bsky.social · 14/01/2025
The Sick Times: “Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels” “The reality of Long COVID is also often erased or minimized” thesicktimes.org/2025/01/14/i...
thesicktimes.org
Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels - The Sick Times
Lymphopenia is a health condition in which people have low white blood cell count in their blood. Without these cells, the body is unable to defend itself effectively against pathogens. Lymphopenia is...
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Reposted by Pam Bishop, PhD
Billy Hanlon @bhanlon15.bsky.social · 09/12/2024
I just wrote a @C19LH_Advocacy letter: Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24) Write one here: actionnetwork.org/letters/urge...
actionnetwork.org
Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)
The Telehealth Modernization Act of 2024 offers a critical opportunity to secure life-saving healthcare access for millions of Americans, particularly those with Long COVID, infection-associated chron...
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Pam Bishop, PhD @pamelarbishop.bsky.social · 07/12/2024
Hearing music when there is no sound. But I also have trouble identifying sounds as what they are.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 07/12/2024
Today is my 4 year COVIDversary. I didn't dread it this yr as in previous yrs. I don't want to b sick but have accepted this is my life. I'm one of the unlucky ones whose health has been in steady decline since day 1. But each day w my family is a precious gift now. #LongCovid
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Pam Bishop, PhD @pamelarbishop.bsky.social · 05/12/2024
Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
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Reposted by Pam Bishop, PhD
Celly-Blue @cellyblue.bsky.social · 04/12/2024
Passing it on
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Pam Bishop, PhD @pamelarbishop.bsky.social · 03/12/2024
Hooray! I'm not on social media all that much in general these days due to massive fatigue, but I do check in from time to time.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 03/12/2024
Thank you!
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Pam Bishop, PhD @pamelarbishop.bsky.social · 03/12/2024
I've sent message to my contact at the CDC to find out if they would be willing to have a virtual option for patient reps. Will post an update when I hear back.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 03/12/2024
Here is the online form to apply: cmss.jotform.com/243085747246...
cmss.jotform.com
CMSS Long COVID Expert Panel Application
Please click the link to complete this form.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 03/12/2024
I don't have the energy for this, so passing on info. CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID. acrobat.adobe.com/id/urn:aaid:...
acrobat.adobe.com
Adobe Acrobat
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
Ty has joined the chat! @seekingboston.bsky.social
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
THC makes my brain fog much more horrid. Barely functional as it is, but it does help with the pain. I can't manage that trade off with having my kids, though. I need to be present.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
I would 💯 try this if I had medical professional who could monitor it. Which will likely never happen. Ugh.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
Ah interesting!
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
Interesting. I did metformin a year or two ago, but I don't think the dose was that high. It didn't seem to help my LC sxs and destroyed my stomach, so I stopped.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
Sorry you are suffering with it also. Thanks for the recs.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
I actually have one, but just the ear clip. Maybe I'll look into the pads for it, thanks! Hadn't thought of that. Would probably help the neck pain at the very least.
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Reposted by Pam Bishop, PhD
Danielle Beckman @daniellebeckman.bsky.social · 25/11/2024
“It took a while for scientists to discover COVID was entering the brain. We know – the literature shows – from cases in the past that these viruses [H5Nx variants] like to hide in the brain,” Beckman said. My short interview with The Front about #H5N1 is out www.thefrontonline.com/article/2024...
thefrontonline.com
Whatcom County reports its first flock infected with Avian influenza
A teenager was hospitalized in critical condition on Nov. 9 in Vancouver, B.C. after contracting the first recorded human case of bird flu in Canada, according to Canadian health officials. 
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
Thanks. I guess so should say what I've tried: menthol cream, lidocaine, heat, acupressure, ice, OTC pain meds, magnesium oil (topical), neck brace.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 26/11/2024
Tell me your most effective non-opioid ways to manage pain. Neck and spine pain specifically, but also other joint pain. It's just out of control lately. #LongCovid
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Reposted by Pam Bishop, PhD
Danielle Beckman @daniellebeckman.bsky.social · 23/11/2024
You may think that neurological symptoms in #LongCovid are for old people, but it is the opposite. Young adults (18–44 years) and middle-aged (45–64 years) with mild acute #COVID cases (non-hospitalized), represent 90% of the cases of #NeuroCovid. Read here: onlinelibrary.wiley.com/doi/10.1002/...
Screenshot of the study published yesterday Annals of Neurology. Title: Neurologic Manifestations of Long COVID Disproportionately Affect Young and Middle-Age Adults. Interpretation: Younger and middle-age individuals are disproportionally affected by post-acute sequelae of SARS-CoV-2 infection (Neuro-PASC) regardless of acute COVID-19 severity. Although older people more frequently have abnormal neurologic findings and comorbidities, younger and middle-age patients suffer from a higher burden of Neuro-PASC symptoms and cognitive dysfunction contributing to decreased QoL. Neuro-PASC principally affects adults in their prime, contributing to profound public health and socioeconomic impacts warranting dedicated resources for prevention, diagnosis and interventions. ANN NEUROL 2024
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Reposted by Pam Bishop, PhD
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 22/11/2024
New research shows younger and middle-aged adults have worse long COVID symptoms than older adults "On an average of 10 months after COVID-19 onset, younger (ages 18-44) and middle-aged (ages 45-64) adults had worse neurologic symptoms of long COVID than adults 65 and older." #LongCOVID
news.nm.org
New research shows younger and middle-aged adults have worse long COVID symptoms than older adults
New study from Northwestern Medicine finds symptoms occurred regardless of mild or severe COVID-19 infection
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Pam Bishop, PhD @pamelarbishop.bsky.social · 19/11/2024
Anyone with #EBV reactivation taking Acyclovir? I've been on it for two weeks and my knee joints are absolutely killing me. Just wondering if it's another weird #LongCovid phase or common side effect. TIA (Knee joint pain is one of my LC symptoms, but this is intense)
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Pam Bishop, PhD @pamelarbishop.bsky.social · 19/11/2024
I agree. It at least says that filtering fibrinogen and inflammatory molecules from the plasma can be helpful in the short term. But without addressing the upstream problem l, it's just a band-aid. One that I would absolutely accept, though, if it were available and affordable.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 19/11/2024
I know! Time flies when you're...stuck in bed(?) I can't believe it has been two years since that big experiment. And yes, such a disappointment after all that hope, time, and money spent.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 19/11/2024
😞
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Pam Bishop, PhD @pamelarbishop.bsky.social · 19/11/2024
Oh how I hoped it would. 😞
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Pam Bishop, PhD @pamelarbishop.bsky.social · 18/11/2024
It's been two years now since I felt human after HELP apheresis. It only lasted two weeks, but it was glorious. Wish it was available & affordable to do weekly. It is the ONLY trt that has made me feel well in 4 yrs. 2 weeks in 4 years of being sick. #LongCOVID
Woman lying in bed with rosy cheeks and a smile. Grey eye mask on forehead.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 18/11/2024
I haven't heard of that one, sorry! And so sorry for your loss.
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Pam Bishop, PhD @pamelarbishop.bsky.social · 18/11/2024
😞
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Pam Bishop, PhD @pamelarbishop.bsky.social · 18/11/2024
No, I've been in steady decline for almost 4 years aside from the short reprieve from apheresis. Wish is was available here.
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Reposted by Pam Bishop, PhD
Ror Preston @rorpreston.bsky.social · 14/11/2024
Welcome to my Bluesky feed - I mostly post about science, tech and advocacy related to solving infection-associated chronic illnesses, like ME/CFS, Long Covid and Chronic Lyme 💙🦋 Please give me a follow! #MECFS #LongCovid
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Reposted by Pam Bishop, PhD
The Sick Times @thesicktimes.org · 15/11/2024
🧪 Here’s what’s happening this week in #LongCOVID research: bit.ly/3UVJt2j 💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
THE SICK TIMES: Two new studies increase our understanding of the consequences of SARS-CoV-2 infection during pregnancy. One study found that maternal COVID-19 increases the incidence of neurodevelopmental disorders in children. “Our findings support a model where the maternal COVID-19 infection changed the levels of CD4 proliferating T cells, leading to the alterations of astrocytes, endothelial cells, and excitatory neurons in offspring,” the authors wrote. 

Another study found an increased risk of fetal situs inversus, a congenital heart abnormality, after SARS-C0V-2 infection during the early weeks of pregnancy (4-6 weeks).THE SICK TIMES: More evidence has emerged that COVID-19 can trigger autoimmune diseases. A retrospective cohort study of nearly seven million people concluded that COVID-19 increased the risk and incidence of autoimmune and autoinflammatory connective tissue disorders, including Lupus, Rheumatoid Arthritis, and Sjögren’s. Severe COVID-19 and being unvaccinated increased the risk. 
THE SICK TIMES: A Mount Sinai CoRe clinical trial has just started recruiting to test the fibrinolytic enzyme, Lumbrokinase. The trial is currently recruiting people with Long COVID, Myalgic Encephalomyelitis (ME), and Lyme to test the brand ​​Boluoke®’s supplement daily for six weeks at 300,000 functional units (FUs.) 

The study is based in New York City; to inquire about enrolling contact: CoreResearch@mountsinai.org. You can find more clinical trials at LongCovidStudies.net.
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Reposted by Pam Bishop, PhD
Dame Sa @damesa.bsky.social · 17/11/2024
Study: “The COVID-19 group had a significantly higher rates of bacterial infections, influenza virus infections, and mycoplasma infections” Just like Spanish Flu, Covid is increasing the risk of bacterial infections. #MycoplasmaPneumonia #Pneumonia #LongCovid www.thelancet.com/journals/lan...
thelancet.com
Long COVID facts and findings: a large-scale online survey in 74,075 Chinese participants
This survey provides valuable insights into long COVID situation among Chinese residents, with 10%–30% (including repeated infection) reporting symptoms. Monitoring at-risk individuals based on identi...
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Reposted by Pam Bishop, PhD
Tatiana Prowell, MD @tmprowell.bsky.social · 16/11/2024
Researchers exposed skeletal muscle to serum of ppl w/ #MECFS or #LongCovid @48 hrs: contractile profile severely compromised, shift to glycolysis @ 96-144 hrs: high fatiguability, fragile tissue, fragmented mitochondria Postexertional malaise is very real. www.sciencedirect.com/science/arti...
sciencedirect.com
571P Muscular metabolic plasticity in 3D in vitro models against systemic stress factors in ME/CFS and long COVID-19
Myalgic encephalomyelities/ chronic fatigue syndrome and long COVID-19 are clinically challenging, multi-symptomatic conditions with multiple overlapp…
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Reposted by Pam Bishop, PhD
Tatiana Prowell, MD @tmprowell.bsky.social · 16/11/2024
#MedSky, Pause & check out symptoms of #LongCovid from Nat’l Academy (#NASEM). LC is not rare, & clinicians of all kinds are caring for ppl w/ it, whether they know it or not. As the #MedEd saying goes: you may not have seen it, but it has seen you. 👀 #MedTwitter www.nejm.org/doi/full/10....
nejm.org
Long Covid Defined | NEJM
Members of the National Academies of Sciences, Engineering, and Medicine describe the process and rationale for the development of the 2024 definition of persistent Covid-19 symptoms (long Covid).
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Long Covid Advocacy @longcovidadvoc.com · 16/11/2024
📺A Start-up Guide in less than 10 mins. This is predominantly for people who haven't moved over (but is also has some handy tips)! We have a Bluesky playlist on YouTube too with shorts & vids to help the community #longcovid #mecfs #chronicillness #disability youtu.be/aY8mYN7_ufs?...
youtu.be
Set up Bluesky Guide - in less than 10 mins
YouTube video by Long Covid Advocacy
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Pam Bishop, PhD @pamelarbishop.bsky.social · 17/11/2024
Many long COVID patients adjust to slim recovery odds as world moves on #LongCovid www.reuters.com/business/hea...
reuters.com
Many long COVID patients adjust to slim recovery odds as world moves on
There are certain phrases that Wachuka Gichohi finds difficult to hear after enduring four years of living with long COVID, marked by debilitating fatigue, pain, panic attacks and other symptoms so severe she feared she would die overnight.
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Reposted by Pam Bishop, PhD
Billy Hanlon @bhanlon15.bsky.social · 14/11/2024
11/13/24, Science: 'Animal models of Long Covid: A hit-and-run disease' www.science.org/doi/10.1126/...
science.org
Animal models of Long Covid: A hit-and-run disease
Animal models will inform our understanding of Long Covid and will aid in identifying therapeutic targets.
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Reposted by Pam Bishop, PhD
Miles W. Griffis @mileswgriffis.bsky.social · 14/11/2024
"Journalists may want to be done with COVID-19, but the virus isn’t done with us — or the communities we live in and report on. It is a disservice to people’s health and lives to mischaracterize or inaccurately report on COVID-19.” - @hashtagjames.bsky.social rjionline.org/news/breakin...
rjionline.org
Breaking down myths of progressing “post-pandemic:” Careful COVID-19 reporting is still crucial
Here’s how to debunk common perceptions of the virus, where to find data, and why it remains an important equity issue.
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Reposted by Pam Bishop, PhD
Pam Bishop, PhD @pamelarbishop.bsky.social · 14/11/2024
Update on my #LongCovid journey since it's been a while. I continue to decline physically and cognitively, albeit slowly (thankfully). Last 6-8 months have seen more rapid decline in energy and cog abilities. Trying Prodrome Glia again 4 brain fog & Acyclovir 4 EBV reactivation. Here's to hoping 🤞
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Reposted by Pam Bishop, PhD
Pam Bishop, PhD @pamelarbishop.bsky.social · 13/11/2024
My #LongCovid story, for those I haven't met yet on this app. youtu.be/b2xW38dbI2U?...
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Pam Bishop, PhD @pamelarbishop.bsky.social · 14/11/2024
Update on my #LongCovid journey since it's been a while. I continue to decline physically and cognitively, albeit slowly (thankfully). Last 6-8 months have seen more rapid decline in energy and cog abilities. Trying Prodrome Glia again 4 brain fog & Acyclovir 4 EBV reactivation. Here's to hoping 🤞
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Reposted by Pam Bishop, PhD
Ron Chusid @rchusid.bsky.social · 14/11/2024
Covid is not over. Tips for journalists writing about Covid and Long Covid Medsky
rjionline.org
Breaking down myths of progressing “post-pandemic:” Careful COVID-19 reporting is still crucial
Here’s how to debunk common perceptions of the virus, where to find data, and why it remains an important equity issue.
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