Sign in

Ooma Verse UK

@oomaverse.bsky.social
176 followers 356 following 88 posts

pwME. Disabled. Slightly anonymous in order to be free. Midlands, UK Previously troevs at the other place

PostsRepliesMedia
Reposted by Ooma Verse UK
Katy B @katybrc.bsky.social · 28/09/2026
It doesn't get easier, being so completely dependent on others for one's survival after losing one's health & independence. I'm endlessly grateful to family & friends but I so wish they were spared the impact of this terrible illness. 💙 #ME #pwME #GreatestMedicalScandal
0142
Reposted by Ooma Verse UK
Circ @tinyicecat.bsky.social · 24/09/2026
This news is important because all the fucks out there actively attempting to wreck the world want you to think that the work is hopeless and just mitigating the worst case scenario. It's not. Fucking keep going.
2675814491
Reposted by Ooma Verse UK
The Guardian @theguardian.com · 27/09/2026
Houses can be built on floodplains despite failing safety test, says high court
theguardian.com
Houses can be built on floodplains despite failing safety test, says high court
Decision to allow development of 190 new homes in north Somerset sparks campaign for change in the law Houses can be built on floodplains even if they fail a crucial safety test, according to a high court judgment that will be of “immense interest” to developers across England and Wales. The ruling clears the way for a highly controversial development of 190 new homes on north Somerset’s floodplains, despite the site being in “flood zone 3a”, the highest level of flood risk before land is considered a functional floodplain. Continue reading...
304817
Reposted by Ooma Verse UK
Roland Smith @rolandmcs.bsky.social · 24/09/2026
These guys are protesting about 'groups of fighting age men threatening local areas'. You've got to admire the irony.
481118302
Reposted by Ooma Verse UK
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
17925291730
Reposted by Ooma Verse UK
Mark Faghy @profmarkfaghy.bsky.social · 22/09/2026
Our short animation to descirbe the results and findings.
45220
Reposted by Ooma Verse UK
Tom Kindlon @tomkindlon.bsky.social · 21/09/2026
People with ME/CFS are harmed not only by the disease itself, but also by the repeated demand to justify and defend their lived experience of the physical illness, and emotionally manage other people’s disbelief, finds paper by Sven Walter. Read more: bit.ly/4h5GsH5 #mecfs #cfs #pwme
K 
Epistemic and affective injustice in ME/CFS 
Epistemic injustice  When people with with ME/CFS describe their symptoms, they are all too often not believed, or medicine and society lack the right concepts to understand their experience. 
For example, for those with ME/CFS, symptoms worsen after exertion, but instead of being taken seriously, they may be wrongly told they are anxious, inactive, or not trying hard enough. 

r 
Affective injustice  This is the harm done when a person's anger, grief, fear, or frustration is dismissed as inappropriate, exaggerated, or unreliable, rather than understood as a reasonable response to their situation. o Here, people with ME/CFS can be harmed not only when their symptoms are doubted, but also when their emotional responses to that doubt are judged or controlled by others. 



INFORM. INFLUENCE. INVEST. RESEARCH UK SCO36942 
Walter S. Medicine, Health Care and Philosophy. (2026)
14726
Reposted by Ooma Verse UK
Tom Kindlon @tomkindlon.bsky.social · 21/09/2026
Zoe Sirotiak – a person with ME/CFS, researcher, and physical therapist – has published a paper on how the societal expectation for people who are unwell to “get better” can create harm for people with chronic diseases, like ME/CFS. Read more: bit.ly/4irwxOp #mecfs #cfs #pwme
CHow societal expectations of recovery an lead to harm for people with ME/CFS 
Zoe Sirotiak, who lives with ME/CFS and is also a researcher and physical therapist, wrote a paper about how the expectation that people with an illness should get better, return to their normal lives, or grow from the experience can be harmful to people with ME/CFS. 
Notably, this "myth of recovery" can: 

Exclude people who remain ill 


Wrongly Distract from suggest gaps in recovery is research, about attitude healthcare and or effort social support 
INFORM. INFLUENCE. INVEST. RESEARCH UK SC0.942 
Sirotaik Z. Disability & Illness (2026)
03816
Reposted by Ooma Verse UK
Dr Ian McCormick @wokestudies.bsky.social · 22/09/2026
Another reason not to rely on these global corporations to build a small business or a social media presence: "Facebook tests £9.99 monthly subscription for sharing more than two links" www.bbc.co.uk/news/article...
bbc.co.uk
Facebook tests £9.99 monthly subscription for sharing more than two links
Meta is encouraging users to verify themselves to unlock more features or engagement with their posts.
11910
Reposted by Ooma Verse UK
MwahahahahahadScientist @mads100tist.bsky.social · 22/09/2026
This thread is superb 🧪
24414
Reposted by Ooma Verse UK
Andrew Couts @couts.bsky.social · 22/09/2026
NEW: If you wanted to design a system for monetizing people’s secrets, you’d be hard pressed to make something better than an AI chatbot. Here’s how to use these tools without giving up the intimate details of you life. @agreenberg.bsky.social reports: www.wired.com/story/how-to...
wired.com
How to Use AI With Your Privacy Intact
Your conversations with AI chatbots are both highly personal and deeply vulnerable to surveillance. Here’s how you can protect yourself.
33513
Reposted by Ooma Verse UK
Four Thieves Vinegar Collective @4thievesvinegar.bsky.social · 22/09/2026
We wrote this book for every person who has been fucked over by the medical system. Everyone who has been told that their symptoms are "all in your head", or been told they had ailments they did not. Everyone who has ever been scared to quit their jobs for fear of losing health insurance.
172
Reposted by Ooma Verse UK
Miles W. Griffis @mileswgriffis.bsky.social · 22/09/2026
Over 1,700 people have signed a petition calling on McMaster University to review a Long COVID clinical trial evaluating a pseudoscientific "mind body" program. "It seems like we're in the dark ages," the petition author told @spichaksimon.bsky.social thesicktimes.org/2026/09/22/p...
thesicktimes.org
People with Long COVID demand pause of McMaster University clinical trial - The Sick Times
The trial, run by researchers at McMaster University in Canada, is testing the Lightning Process, a pseudoscientific mind-body program that outside experts have heavily criticized.
37732
Reposted by Ooma Verse UK
Plashing Vole @plashingvole.bsky.social · 19/09/2026
I’ve suddenly realised what actually happened in my workload meeting yesterday. My head of dept offered me hourly-paid teaching on top of the proposed 0.5 role *to cover the shortfall caused by my own half-sacking*. (I said no - it’s a proper job or nothing).
3418419
Reposted by Ooma Verse UK
Andrew @andrewt.net · 18/09/2026
Are they selling the Hitler tote?
yahoo.com
Why Does This Bag Say My Favorite Color Is Hitler?
What an unfortunate font selection...
0133
Reposted by Ooma Verse UK
Alem Matthees @alemmatthees.bsky.social · 17/09/2026
I was forced to do absolutely nothing because of very severe #MECFS for 9 years, but at least now I can read and write a little. People with ME/CFS have their boundaries tested constantly just trying to live and we naturally do more when we are able to. Activity phobia in ME/CFS is BPS folklore.
1586
Reposted by Ooma Verse UK
Dr. Damien P. Williams, dread portent down from a mountain cave @wolven.blacksky.app · 17/09/2026
Read the words of disabled experts— journalists, tech and disability scholars, technology policy experts— on why Meta's "crip washing" of their surveillance tech pervert glasses is, in fact, bad for us all.
3285139
Ooma Verse UK @oomaverse.bsky.social · 17/09/2026
Straightforward survey
000
Reposted by Ooma Verse UK
Andrew Gifford @andrewgiffordphoto.bsky.social · 16/09/2026
Any spare Oxaloacetate I can buy from you? It's currently on back order due to demand. Thanks! #Oxaloacetate
113
Reposted by Ooma Verse UK
Kelly @broadwaybabyto.bsky.social · 06/09/2026
This is shameful discriminatory and misogynistic reporting. People aren’t choosing disability to be “cool”. Young women don’t have to “prove” to you that they’re sick. Disability rates are skyrocketing because we’ve left a disabling virus rip through the population for over 6 years.
Photo from the telegraph. Red background with a roll of wheelchair stickers on white paper. Text reads “how having a disability became cool”
1142733796
Reposted by Ooma Verse UK
Sam Bright @writesbright.bsky.social · 04/09/2026
Reform’s response to the Channel 4 doc: “Reform UK has a robust vetting process for prospective donors approved by the Electoral Commission.” The Electoral Commission’s riposte: “The Electoral Commission has not approved the donor vetting process for Reform, or any other party.”
1313862
Reposted by Ooma Verse UK
Tuta @tuta.com · 31/08/2026
If you have a Gmail account, you need to read this. Google's AI now scans your emails and attachments, bank statements, tax files, medical letters, all of it. It turned on by default, and there's a class-action lawsuit over how. Here are 5 moves to shut it off, the switch is hidden in two places:
Image of Sundar Pichai and the Gmail logo
1521465310124
Reposted by Ooma Verse UK
Mike Masnick @masnick.com · 27/08/2026
In case you wanted about 3,700 words on the problems with today's "settlement" that gives Meta way more power over how the internet works than it should have.
121536642
Reposted by Ooma Verse UK
Dr Nicola Clague-Baker @claguenjc36.bsky.social · 27/08/2026
Pw severe #ME do you get episodes of severe paralysis where your body cannot move but you are aware of what's happening but can't speak? Sometimes being aware that your breathing is reducing and you can't do anything about it? Trying to support a friend in hospital thanks
184
Reposted by Ooma Verse UK
onion person @junlper.beer · 26/08/2026
people who use ai for businesses baffle me. do they not read what these produce? do they not think this is decieving customers? it makes tou look lazy and i think you deserve to fail as a business
1665236886
Reposted by Ooma Verse UK
Katiesaurus @katiesaurusseven.bsky.social · 25/08/2026
"The hip fracture that shortens a woman’s life at 80 often has its invoice dated decades earlier, accumulated interest on a debt incurred when she was learning, at 11 or 22 or 35, that her body’s smallness was worth more than its strength."
110851
Reposted by Ooma Verse UK
C. Robert Cargill @crobertcargill.bsky.social · 15/08/2026
Ai is amazing, everyone wants it, and you're a Luddite decel for complaining about it, but now that they are letting people know that the things I make with Ai is actually made by Ai and not me, I have a problem. If I can't hide my lack of talent or effort, what even in the point?
734973
Reposted by Ooma Verse UK
Captain Haddock @realcaptainhaddock.bsky.social · 16/08/2026
The BBC has now had to revise this headline 3 times to try and get something approaching impartiality I am incredulous as to what is going on there
51708214
Reposted by Ooma Verse UK
OneOffDave @oneoffdave.bsky.social · 16/08/2026
Four times this month I've had to explain to medics that BMI is totally useless as a measure for people like me. Because of my spinal defect I was already disproportionate before my amputations. Should I count my height with or without prostheses? They need better training
011
Reposted by Ooma Verse UK
Laura Phillips @lauraphillips.bsky.social · 12/08/2026
BBC PM: There have been 966 wild fires across England and Wales this year. 185 of them were in the first 10 days of August. Figures from National Fire Chiefs Council.
013
Reposted by Ooma Verse UK
Holly Casio @hollycasio.bsky.social · 04/08/2026
Here a compilation of stupid things library consultants have said to me in solidarity with library pals at Lambeth Libraries where genius consultants has decided that a qualified head of library service post isn't really essential.
12433223
Reposted by Ooma Verse UK
Eliot Higgins @eliothiggins.bsky.social · 31/07/2026
Google Earth, a tool often used as a source of satellite imagery to verify photos and videos, has added a feature that allows you to alter satellite imagery with AI, for reasons. blog.google/products-and...
blog.google
Transform any place with Nano Banana in Google Earth
Custom images — generated from Google Earth satellite, aerial, and 3D imagery — help you redesign any location.
671667580
Reposted by Ooma Verse UK
Judd Legum @juddlegum.bsky.social · 30/07/2026
Meta is spending $600 billion+ to build out its AI model. That model is being aggressively integrated into platforms used by 3.9 billion people. This week, Meta announced its AI will be trained on content from Newsmax, the far-right website with a history of promoting pro-Trump conspiracy theories.
43646333
Reposted by Ooma Verse UK
Raphael Satter @raphae.li · 30/07/2026
The longer you look at the map the worse it gets. www.reuters.com/world/africa...
reuters.com
US government map of Africa mislabels every country at global conference
A U.S. government map of Africa mislabeled every country during a State Department presentation at ‌a global conference taking place in Brazil this week, causing a stir among attendees who took screen...
1155
Reposted by Ooma Verse UK
Kirstie Sivapalan @kirsties.bsky.social · 30/07/2026
I wanted to share a beautiful artistic advocacy project created by a talented friend who lives with Severe M.E. bringing awareness to the lack of care and understanding for people with Very Severe M.E. in medical settings. This is an example. More information below #SevereME #VerySevereME
Collage with a light blue marbled background. Two hands reaching out, one from bottom left the other bottom right. The bottom right hand wearing a medical bracelet. 3 accounts from people with severe ME of experience of NHS care
1128
Reposted by Ooma Verse UK
Lucibee @lucibee.bsky.social · 30/07/2026
I'll say it again: Someone really needs to ask DHSC exactly *what* steps they *are* taking, because it's clear that hardly anyone has seen these modules. There was *supposed* to be an "awareness campaign" in place by May this year. That hasn't happened. bsky.app/profile/luci...
024
Reposted by Ooma Verse UK
Resolution Foundation @resolutionfoundation.org · 26/07/2026
Is welfare spending ''out of control''? It's estimated to be 11.1 per cent of GDP this financial year. That's just 1.1 per cent of GDP higher than in 2007-08, and total welfare spending has actually fallen by 0.9 per cent of GDP since 2012-13 ⤵️
chart showing Social security spending as a proportion of GDP, by category: GB
213293
Reposted by Ooma Verse UK
Evan Greer @evangreer.bsky.social · 24/07/2026
NEW: I wrote for MSNBC about how Madison Square Garden turning off their facial recognition cameras for Taylor Swift is a perfect encapsulation of our dystopian present: where the wealthy can use surveillance to consolidate power, and the rest of us live in a privately owned panopticon.
ms.now
Taylor Swift and Travis Kelce got to buy MSG's privacy. Her fans aren't so lucky.
Reports that Madison Square Garden temporarily shut off its facial recognition system for Swift’s wedding expose a glaring problem with how the elite wield and control mass surveillance.
232284772
Reposted by Ooma Verse UK
Dave Vetter @davidrvetter.bsky.social · 25/07/2026
I join you from the Blaenavon wildfire in Southeast Wales, brought to you by BP, Shell and Equinor. Though it does not look dramatic, the fire has been out of control for days - for a very particular reason. 🧵
A photograph of multiple fire service vehicles parked on moorland. In the background, white smoke from multiple fires is rising.
231247680
Reposted by Ooma Verse UK
Brian Tyler Cohen @briantylercohen.bsky.social · 25/07/2026
"I understand journalists want to be neutral. But if you're a journalist in the US, you have an obligation to be biased— in favor of democracy. And Trump is anti-democratic... The longer the press pretends that Trump is not an enemy of their profession, the more runway he has to undermine them."
open.substack.com
When Will Legacy Media Finally Learn Who Trump Is?
There were no winners at the reconvened White House Correspondents Dinner
1572328653
Reposted by Ooma Verse UK
victoria @vashetc.blacksky.app · 25/07/2026
anyone with tips on resolving the burning/nailing down cause, would love
111
Reposted by Ooma Verse UK
Draculosity Jones: Ghost Skeleton @brainmage.bsky.social · 23/07/2026
Between this, and pausing a film on Amazon turning your whole TV into a gambling ad, I might go back to a CRT with a hammer next to it in case it starts getting any ideas.
67419
Reposted by Ooma Verse UK
George Monbiot @georgemonbiot.bsky.social · 22/07/2026
Genuinely terrifying. And remarkably similar to how the Nazis began their criminalisation of dissent and their dehumanisation of any who resisted. It's happening. In the US. Right now. www.theguardian.com/commentisfre...
theguardian.com
Three speeches on a single day signaled a dying American democracy | Robert Shpiner
Stephen Miller warned of a leftwing ‘cancer’ threatening civilization. As a critical care doctor, I have a response to his diagnosis
35846453
Reposted by Ooma Verse UK
Richard M. Nixon @dicknixon.bsky.social · 22/07/2026
Larry laid his mouse in front of the press to be photographed. Lest you ask, this is a real photograph via the Press Association.
15568192026
Reposted by Ooma Verse UK
Resolution Foundation @resolutionfoundation.org · 20/07/2026
Is welfare spending ''out of control''? It's estimated to be 11.1 per cent of GDP this financial year. That's just 1.1 per cent of GDP higher than in 2007-08, and total welfare spending has actually fallen by 0.9 per cent of GDP since 2012-13 ⤵️
chart showing Social security spending as a proportion of GDP, by category: GB
25129
Reposted by Ooma Verse UK
Disablement, Free Time & Work Under Capitalism @disprecwork.bsky.social · 20/07/2026
Bread & Roses: Rest, Free Time & Disability - seeking participants for: * a questionnaire (in different formats) * group discussions/focus groups (to start in autumn '26) If interested in sharing your insights on rest & free time in the UK please visit breadrosesdisability.uk @johnpring.bsky.social
Bread & Roses: The Politics of Rest & Free Time in, against, and beyond Disabling Capitalism

Phase 1 (open now!): Questionnaires 
Questionnaire link: bit.ly/BreadRosesDisability
From autumn 2026: Group discussions - email ioana.chis@glasgow.ac.uk if interested

About the research:
At a time when disabled people are doing more (paid and unpaid) activities than ever before, while access to meaningful rest and free time is increasingly denied and scrutinised, this study explores the experiences of rest and free time in the lives of disabled people in the UK. One of the publications of this project will be a Manifesto for Rest and Free Time from a disability politics perspective.


Researcher: Ioana Cerasella Chis
Email: ioana.chis@glasgow.ac.uk
Website: breadrosesdisability.uk

2026-2028 project funded through The Leverhulme Trust Early Career Fellowship & The University of Glasgow LKAS Fellowship
034
Reposted by Ooma Verse UK
Franchesca Ramsey @chescaleigh.bsky.social · 11/07/2026
where have all the captions gone?
301248425
Reposted by Ooma Verse UK
James Ball @jamesrball.com · 09/07/2026
🎵He sees you when you're sleeping / he knows when you're awake 🎵
A pale mark Zuckerberg stares intensely at you, into your soul. WHAT DOES HE SEE? WHO WILL HE TELL?(Advertisers. He will tell advertisers.)
910844
Reposted by Ooma Verse UK
Olga Nesterova @onestpress.onestnetwork.com · 11/07/2026
🚨 Meta is rolling out new AI image generator that allows anyone to create AI images with your photos TURN IT OFF: Open IG - tap 3 lines on top right corner to open settings Select Sharing and Reuse In section "Allow people to use your content on Instagram and …" turn off "Posts" & "Reels."
54464300
Reposted by Ooma Verse UK
Robert Chapman @drrobertchapman.bsky.social · 09/07/2026
Boring but important question - Do I know any UK soliciter or lawer with knowledge of contract law who would consider looking at a lease contract pro bono for a radical bookshop?
0416