Sign in

OcreJulia

@ocrejulia.bsky.social
934 followers 732 following 214 posts

Teenagers, dog, chickens MS and Coeliacs

PostsRepliesMedia
Reposted by OcreJulia
Anne Silver @annesilver7.bsky.social · 19/09/2026
021
Reposted by OcreJulia
Dr Joanne Williams @jowilliams.bsky.social · 10/09/2026
Oh this is a great idea for an 18th or graduation cake though
1105
Reposted by OcreJulia
Hannah Fearn @hannahfearn.bsky.social · 11/08/2026
You don’t realise until you have a child with sensory issues that in childhood there are stickers everywhere. Everything involves stickers. Who is controlling Big Sticker?
2131
Reposted by OcreJulia
Gavin Esler @gavinesler.bsky.social · 25/07/2026
Worth a read
19942
Reposted by OcreJulia
Sean Jones KC @seanjones.org · 21/06/2026
Traditionally on Father’s Day I have posted about my own father, but today I am going to post instead about becoming one. /1
51709157
Reposted by OcreJulia
Ailsa Jane @ailsajanepodmed.bsky.social · 06/04/2026
I really hate AI! It seems that every image online is fake. Just leave the cute animal pictures alone… stop messing with everything 😡
media.tenor.com
a little girl in a red and purple dress is brushing her hair with a brush .
ALT: a little girl in a red and purple dress is brushing her hair with a brush .
031
Reposted by OcreJulia
Samantha @otters72.bsky.social · 04/03/2026
Has anyone else got a thoracic syrinx in the spinal cord? #MS
011
Reposted by OcreJulia
Anne Silver @annesilver7.bsky.social · 21/01/2026
Epstein Files Illegally Withheld: Day 33
052
Reposted by OcreJulia
Anne Silver @annesilver7.bsky.social · 16/09/2025
Multiple Sclerosis R&R in Taos,NM. Magical. MS MSDinosaurs
041
Reposted by OcreJulia
Samantha @otters72.bsky.social · 09/09/2025
😍 BBC News - Children's TV favourite Bagpuss to reawaken for new film - BBC News www.bbc.co.uk/news/article...
bbc.co.uk
Children's TV favourite Bagpuss to reawaken for new film
It will be the first new official Bagpuss production since the original beloved 1974 series.
011
Reposted by OcreJulia
Marie Le Conte @youngvulgarian.marieleconte.com · 07/07/2025
(have quite a bit of free time this week and next before being busy again, should anyone be in need of some words - I can do columns/features/profiles/book reviews/basically everything but news stories, and can be found on marie.s.leconte@gmail.com)
34116
Reposted by OcreJulia
Anne Silver @annesilver7.bsky.social · 02/07/2025
MS DINOSAURS Multiple Sclerosis My brain on MS I am so excited to post a picture of the artwork by Santa Fe community college student art exhibit Artist Richelle Elder. She made it in the wood, Turning Class from Osage Orange, Maclura pomifera, wood. Title: Mourning Burl
Osage Orange, Maclura pomifera, is a beautiful wood from the southern Midwest! The heartwood is golden to bright yellow, which usually ages to a darker medium brown with time, primarily due to exposure to UV light. Osage Orange is extremely durable and is considered to be one of the mo
031
Reposted by OcreJulia
Clare Hadley @feltwright.bsky.social · 10/06/2025
Squirrel walk on Brownsea Island
021
Reposted by OcreJulia
Laura Kate Dale - LauraKBuzz @laurakbuzz.bsky.social · 31/05/2025
So, I think it's time I begin, in detailed specifics, talking about the mess that is Unbound / Boundless as a book publisher, in essence stealing most of a years royalties from me and many other authors, as a result of poor financial decisions, and legal BS. Please read and share this thread.
9853362631
Reposted by OcreJulia
Anne Silver @annesilver7.bsky.social · 20/05/2025
Good new for Vets / Veterans!
011
OcreJulia @ocrejulia.bsky.social · 14/05/2025
Has anybody else spotted David in a bit part in Andor? #TheArchers
230
Reposted by OcreJulia
Prof G @gavingiovannoni.bsky.social · 09/05/2025
#MS_Selfie Vidofludimus - a Slam Dunk, or not? Many will say there is no place for teriflunomide me-too in the MS therapeutic landscape. Do you agree? Would you participate in the iVido study? => buff.ly/yABfmU6
gavingiovannoni.substack.com
Vidofludimus - a Slam Dunk, or not?
Many will say there is no place for teriflunomide me-too in the MS therapeutic landscape. Do you agree?
011
Reposted by OcreJulia
Straight Outta Yankton @somehooplehead.bsky.social · 09/05/2025
Friends living with #MS. Does anybody else find that if they start shivering at all, it becomes a rib-shattering endeavor that lasts several minutes? Its like a Charley-horse from my shoulders to my hips, and its just indesctibable. Anybody experience similar? Anything help? Struggling here.
011
Reposted by OcreJulia
Dr Stephanie Zihms @acwristeph.bsky.social · 08/05/2025
#MSers in or able to travel to London this trial might be for you bepartofresearch.nihr.ac.uk/trial-detail... #MS
bepartofresearch.nihr.ac.uk
Be Part of Research - Trial Details - SETTLE
${dotPageContent.seodescription}
021
Reposted by OcreJulia
Clare Hadley @feltwright.bsky.social · 04/05/2025
Amazing what turns up when you start clearing out the garage 🤣🤣🤣
011
Reposted by OcreJulia
Jules Charrington (#MKHG) @juleschao.bsky.social · 01/05/2025
A very merry Beltane to you all
A tree trunk surrounded by bluebells with dappled sunlight
1262
Reposted by OcreJulia
Clare Hadley @feltwright.bsky.social · 30/04/2025
Back out in my happy place, paddle boarding by Brownsea Island This is what you can do when MS is playing nicely - grabbing every opportunity, use it or lose it! #MSAwarenessWeek
Clare sitting smiling on her paddle board View across Poole HarbourView across Poole HarbourView across Poole Harbour
031
Reposted by OcreJulia
theMSguide.com @themsguide.com · 30/04/2025
ALL WELCOME - THE CHALLENGE STARTS TOMORROW!! youtube.com/shorts/4VKEw...
youtube.com
ALL WELCOME - THE CHALLENGE STARTS TOMORROW!!
YouTube video by theMSguide | Riding Canada 4 MS
011
Reposted by OcreJulia
Jacqui Martin @jacquimartin75.bsky.social · 29/04/2025
Fellow MSers! Does anyone have any experience with a Dictus band, or similar, to help with foot drop? Any advice and reviews greatly appreciated, thank you 🧡
141
Reposted by OcreJulia
Clare Hadley @feltwright.bsky.social · 28/04/2025
Over 150,000 of us in the UK live with MS but most people don't know anything about the disease or what life with MS is like. It's MS Awareness week, time to find out more & talk about MS.
002
Reposted by OcreJulia
Lomelindi12 @lomelindi12.bsky.social · 22/04/2025
@feargalsharkey.bsky.social
222
Reposted by OcreJulia
Jonn Elledge @jonnelledge.bsky.social · 16/04/2025
anyone want a gift sub? enquire below
033
Reposted by OcreJulia
Prof G @gavingiovannoni.bsky.social · 14/04/2025
Q&A 85: RIS or RRMS? What about PPMS? Please tell her that both tolebrutinib and fenebrutinib, two new-generation BTK inhibitors, are in trials to treat primary progressive MS. buff.ly/NsuRLbx
141
Reposted by OcreJulia
Lomelindi12 @lomelindi12.bsky.social · 12/04/2025
Beautiful
0182
Reposted by OcreJulia
theMSguide.com @themsguide.com · 09/04/2025
The BBC are coming! RC4MS share share share youtube.com/shorts/ihI8y...
youtube.com
The BBC are coming! RC4MS share share share
YouTube video by theMSguide | Riding Canada 4 MS
011
Reposted by OcreJulia
Prof G @gavingiovannoni.bsky.social · 09/04/2025
#MS_Selfie News: good and bad The tolebrutinib results have now been published. High-dose ocrelizumab in relapsing MS is a no. =>
gavingiovannoni.substack.com
News: good and bad
The tolebrutinib results have now been published. High-dose ocrelizumab in relapsing MS is a no.
063
Reposted by OcreJulia
Trish Greenhalgh @trishgreenhalgh.bsky.social · 08/04/2025
Hey, these guys need money to continue their fight for patient safety. Link below.
13722
Reposted by OcreJulia
Dorian Lynskey @dorianlynskey.bsky.social · 05/04/2025
Do it motherfucker. Do it now
1934040
Reposted by OcreJulia
Kate Devlin @drkatedevlin.bsky.social · 01/04/2025
ICYMI: King’s College London is hiring 20 open-ended posts at L/SL level (Asst/Assoc Prof level) in AI + any subject. (Yes, that includes critical studies.) It’s 3 years of 80% “protected” research time, then 2 years to the standard requirements for an open-ended post. www.kcl.ac.uk/jobs/role/ki...
kcl.ac.uk
King's AI+ Academic Fellowships (leading to an open-ended academic post)
King’s is making a major strategic investment into driving AI activity across our nine academic Faculties. Our ambition is to accelerate growth in Artificial Intelligence (AI) and data-driven research...
11516
Reposted by OcreJulia
Frances Ryan @francesryan.bsky.social · 18/03/2025
I know coverage of disability benefits can be very distressing. So, I’ve worked with colleagues to make a range of support visible on The Guardian’s site. If you click on a relevant news story, you’ll see a “drop box” of signposted mental health help as well as benefits advice.
Mental health support
• Mind runs a support line on 0300 102 1234 as a safe and confidential place to talk openly. It also has an information line, on 0300 123 3393, for details of where to get help near you. And its welfare benefits line – 0300 222 5782 – supports anyone with mental health problems who is navigating the benefits system.
• Samaritans is there to talk to you for free 24 hours a day, 365 days a year. Call them on 116 123 or email jo@samaritans.org.
• The disability charity Scope has a forum where you can chat in a supportive atmosphere to people going through the same experiences.
• NHS England has an online mental health triage service.Benefits support
• The Trussell Trust's Help through Hardship helpline, on 0808 208 2138, is a free and confidential phone service offered alongside Citizens Advice that provides advice to people experiencing hardship. You can also find your local Trussell Trust food bank here.
• Benefits and Work provides guides, forums and newsletters to help people navigate the benefits system and get the support they are entitled to. This includes benefit applications and appeals.
• Turn2Us provides a free benefits calculator to help you find out what benefits you can claim, as well as a grants search service and a Pip Helper to assist you in applying for the benefit.
• The Law Centres website helps people find their local service for benefits support and more, while Advicelocal provides a search directory tool to find your local advice provider.
11295149
Reposted by OcreJulia
Gerri @gerbelean.bsky.social · 17/03/2025
Can someone with knowledge of the water industry please help. This reservoir is owned by the council and liable for the costs for flood mitigation in case of a breach, but Anglian Water uses it to supply the area and doesn't have any responsibility to pay. www.northamptonchron.co.uk/news/environ...
northamptonchron.co.uk
£1.1m cost to taxpayer to make reservoir safe
North Northamptonshire Council has agreed to approve a £1.18m budget to improve the Sywell Country Park reservior in case of emergency
031
Reposted by OcreJulia
Abi B @abudd.bsky.social · 17/03/2025
Also, what about #Disabled people who are in work who rely on #PIP or #DLA ? I pay tax and NI contributions FFS!
031
Reposted by OcreJulia
Chiara Merritt Linden @chiaraml.bsky.social · 24/02/2025
#MS #multiplesclerosis
001
Reposted by OcreJulia
Abi B @abudd.bsky.social · 24/02/2025
www.theguardian.com/society/2025... #MultipleSclerosis
theguardian.com
MS patients suffer side-effects after NHS England switches to cheaper drug
Scores of people experience complications after change from Tysabri to Tyruko as part of NHS drive to save money
021
OcreJulia @ocrejulia.bsky.social · 22/02/2025
Pro G needs us to share our stories on conflicting advice (healthcare providers vs AI) #MS #MultipleSclerosis #MSDinosaurs
010
Reposted by OcreJulia
Butser Ancient Farm @butserancientfarm.co.uk · 21/02/2025
This youth volunteering day wouldn't have been possible without the generous support of the East Hamsphire District Council. Our next council-funded event is an exclusive tour with our archaeologist, coming up on March 1st! Some places still available 👀 buff.ly/41dmHFw
buff.ly
Exclusive Archaeology Tour — Butser Ancient Farm
Discover how we turn archaeological evidence into award-winning reconstructions on this exclusive two-hour tour with our experimental archaeologist.
0254
Reposted by OcreJulia
Butser Ancient Farm @butserancientfarm.co.uk · 21/02/2025
Yesterday we hosted the very bravest and hardiest of local teens... Through one of the wettest, muddiest days yet this year, they managed to plant over 100 native trees, build a wattle fence, landscape our new Saxon garden, and start work on a woven Mesolithic shelter!
111414
Reposted by OcreJulia
Julie Gould @grumpyoldgould.bsky.social · 20/02/2025
Our car front number plate is cracked & MOT advisory issued. I just ordered & bought a replacement from #Ebay with zero proof of ownership! Very worrying. No wonder criminals find it so easy to 'clone' cars to avoid #Ulez or parking tickets.
011
Reposted by OcreJulia
Chris Bridges @chrisbridgeswriter.bsky.social · 20/02/2025
Here's the proper link to the review of SICK TO DEATH in the Guardian: www.theguardian.com/books/2025/f...
032
Reposted by OcreJulia
Dmitry Grozoubinski @explaintrade.com · 19/02/2025
This is a starter salad and it's obscenely good. This is now exclusively a Lviv Tourism Board promotion account. Russia needs to be defeated so you can all come enjoy this.
A Georgian salad on a beautiful plate.
216710
Reposted by OcreJulia
badly drawn boo! 🎃👻🧛🏼‍♀️ @soapachu.bsky.social · 04/02/2025
Just passed George Osborne outside Farringdon Station and I think he was startled by the nicely dressed middle aged lady hissing at him.
191545
Reposted by OcreJulia
Geoff Allix @allix.net · 29/01/2025
Great video from @aaronbostermd.bsky.social about how food affects #MS #MultipleSclerosis youtu.be/_sMMBvCwxi0?...
youtu.be
You're Eating Foods that Worsen Multiple Sclerosis.
YouTube video by Aaron Boster MD
082