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Marrok Sedgwick

@ms-pats-anmls.bsky.social
171 followers 479 following 148 posts

Learning scientist/ethnographic filmmaker. Rather be outside. I will pat any animal that likes pats. Wildlife rehab and HQHVSN volunteer. WFR. Creative writing on the side! Opinions my own.

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Marrok Sedgwick @ms-pats-anmls.bsky.social · 28/09/2026
#Academia friends in fields that do books (eg ethnographers, political scientists), do you get paid similarly to fiction/non fiction authors? (I think they get paid like $1/copy sold beyond the equivalent amount of their advance.) my field doesn’t really do books so have no prior info (just curious)
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CommunicationFIRST @communicationfirst.bsky.social · 03/09/2026
In U.S. v. Florida, #DOJ won protections for children with complex medical needs from unnecessary #institutionalization. We are alarmed that it is now trying to undo this decision. It may lead to life-altering outcomes for children with #disabilities. lnk.to/USvFL 📸 Image Credit: #VisibleAAC…
[Image: A young boy wearing a mask holds up a speech generating device with the sentence, "I want family."]
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 02/09/2026
Ultra wealthy ppl literally think they’re better than everyone else based on eugenics ideas
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CommunicationFIRST @communicationfirst.bsky.social · 26/08/2026
CommunicationFIRST is joining a community call to make sure our voices are listened to: lnk.to/CTAIACC. Last week, we submitted comments on the Interagency Autism Coordinating Committee (IACC)’s Strategic Plan, including detailed, constructive feedback on communication- & AAC-related research. 1/5
[Image: Flyer titled: Community Calls on IACC to Review All Public Input Before Strategic Plan Vote. It features the logos of Autistic Self Advocacy Network, CommunicationFIRST, Autism Science Foundation, Autism Speaks, Autism Society of America, Profound Autism Alliance, Autistic Women & Nonbinary Network, Autistic People of Color Fund, Institute for Exceptional Care, and Coalition of Autism Scientists.]
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CommunicationFIRST @communicationfirst.bsky.social · 26/08/2026
We're endorsing the HCBS #Access Act. The act will make sure every state offers home & community-based services without waiting lists. It will protect our right to live in the #community! Tell your senators to vote YES on #HCBS. We want it to become law. lnk.to/HCBSAA 📸Image Credit: Disabled & Here
[Image: Two disabled friends meet up at a restaurant. One friend holds their phone and sits at a table with menus. The other stands while using a black and gold cane.]
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CommunicationFIRST @communicationfirst.bsky.social · 22/08/2026
Help protect our right to live in the #community! Ask your Governor and State Attorney General to sign the Commitment to #CommunityIntegration for People with #Disabilities. It’s a commitment to defend and follow the integration mandate. More info here: lnk.to/defOI. @bazeloncenter.bsky.social
[Image: Defend Olmstead and integration is written in large white lettering over a blue background. Below it is the CommunicationFIRST logo and the tagline: Access. Opportunity. Justice.]
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Yell In a War @jelenawoehr.bsky.social · 21/08/2026
scientists finally found the cause of male loneliness it’s male unpleasantness
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CommunicationFIRST @communicationfirst.bsky.social · 16/08/2026
The Interagency Autism Coordinating Committee, #IACC, advises the government on #autism research & funding. They drafted a Strategic Plan that got some things right & some things wrong. Submit a comment to improve their plan before Thursday, August 20. lnk.to/IACCcmt 📸 Photo Credit: Disabled & Here
[Image: An autistic woman is shown from the back as she uses her popsocket fidget stim and sits on a park bench.]
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Malaclypse the Middle @malaclypse.bsky.social · 29/07/2026
A couple of weeks ago I rode to Newburyport MA and saw this COVID memorial and realized this is the only one I have ever seen anywhere. And the fact that I nearly broke down seeing it is something I still think about.
For those who died and those who survived and all we list during the COVID-19 pandemic.
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Alt National Park Service @altnps.bsky.social · 06/08/2026
A shout out to everyone defending the last ancient cottonwood in Arizona. 💚✊
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Shepherd @neolithicsheep.bsky.social · 06/08/2026
Look all I know is that they're driving environmental harm and I don't really care how much help anyone thinks they are at coding, data centers are sucking up water and power at a rate that is harming actual human beings and the world around us and therefore LLMs can get fucked.
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CommunicationFIRST @communicationfirst.bsky.social · 02/08/2026
Push back on the narrative of Medicaid being fraudulent or wasteful! Share your experiences with #Medicaid & #HCBS to inform the upcoming Senate Budget Committee Hearing. Email your statement for the record to Anirudh_Srirangam@budget.senate.gov by Wednesday, August 5 @ 12pm ET. [Image: A close-up…
[Image: A close-up of the palm of a person's hand. "No" is written on their palm in bold letters.]
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 02/08/2026
I saw a leopard shark in the wild today. 10/10 stars. Highly recommend.
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CommunicationFIRST @communicationfirst.bsky.social · 29/07/2026
Our partners at DREDF and AAPD released a new report on barriers to #DisabilityBenefits. They found more barriers came about as the government cut staff and regional offices, replacing some with #AI: lnk.to/barrier. @dredf.bsky.social @aapd.com 📸 Photo Credit: @affecttheverb.com/Disabled and Here…
[Image: While sharing a picnic blanket outside, a young autistic couple uses pens and notepads as AAC tools. On the left, a woman lays on her stomach and writes. On the right, a non-binary person sits and writes.]
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CommunicationFIRST @communicationfirst.bsky.social · 21/07/2026
With George Washington University’s handy new tool, keep track of, and submit your own updates on how federal policy changes are impacting home and community-based services for disabled people: lnk.to/trackHCBS. #HCBS @milkeninstitute.org 📸 Photo Credit: @affecttheverb.com/Disabled and Here 1/2
[Image: A disabled genderfluid person types on a laptop while wearing compression gloves. The hands and keyboard are the focal point.]
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essencesimmone.blacksky.app @essencesimmone.blacksky.app · 07/07/2026
YO TEACH YALL CHILDREN TO COVER THEY MOUTH WHEN THEY COUGH!!!!
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 04/07/2026
Finally found my children’s book collection in storage and gave the (replaceable) books to my 1-yr-old nephew and his new fav book is “the hips on the drag queen go swish, swish, swish” and now all the cishets in my family have to read it to him 5Xs/day. He has excellent taste.
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Cheryl Lynn Eaton @cheryllynneaton.bsky.social · 03/07/2026
Not gonna lie, the fact that AI data centers are being cooled while Americans die in the street from heat stoke is really pissing me off.
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Anna Holmes @annabookwriter.bsky.social · 04/07/2026
Yes, there are always ableists, but when the general language shifts from curiosity or mild irritation to straight up eugenicist propaganda people really need to be paying attention.
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John Delmenico @thebigjohnnyd.bsky.social · 14/03/2026
Tech CEOs in 2026: ‘We spent billions to hopefully one day have an ai that can make people feel like it’s portraying real emotions for tv, but we need way more money to do it’ Jim Henson in 1955: ‘yeah so I stuck some ping pong balls to a bit of old felt and called it Kermit’
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Ryan Brook, PhD. Chairman of the Boar @ryankbrook.bsky.social · 24/06/2026
I am seeking an Indigenous student to do an MSc or PhD with me at the University of Saskatchewan looking at elk, wild pigs, or caribou.
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CommunicationFIRST @communicationfirst.bsky.social · 17/06/2026
We helped create plain-language versions of articles published in the Journal of #AAC. Articles drew from the Future of AAC Research Summit we organized in May 2024 with the RERC on AAC. Authors include #AliceWong: lnk.to/nwacs. Thanks to NWACS for leading this effort! [Video: Alice Wong with… 1/3
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 14/06/2026
Seeking recs for bicycle theft insurance from folks who’ve had good experiences if you’ve made a claim. I have 2 bikes, not that fancy but I had a bike stolen in 2017 and ever since try to insure. Renters insurance usually covers it but has gotten pricey and won’t cover if stolen off property
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Linda Holmes @lindaholmes.bsky.social · 13/06/2026
I wonder if this is the most popular livestream of scaffolding construction of all time
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Brian Gaar @briangaar.bsky.social · 12/06/2026
Very cool that we as a society have made a Lex Luthor without Superman existing
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Jess McLaughlin, PhD (they/them) @jfmclaughlin92.bsky.social · 10/06/2026
Gotta say, "the American Medical Association is running ads begging people not to use genAI for medical advice" is going to be hard to beat for the pure essence of 2026
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CommunicationFIRST @communicationfirst.bsky.social · 09/06/2026
Congrats to our friends Samuel & Dan Habib on winning the Emmy Award for Outstanding #SocialIssue Documentary! Watch their film #TheRideAhead on 6/30 at 1pm PT/4pm ET. CommunicationFIRST Board Member Judy Heumann & co-founder Bob Williams are interviewed! lnk.to/rascreen [Image: Co-directors… 1/2
[Image: Co-directors Samuel & Dan Habib & co-producer Erica Lupinacci smile while Dan holds up an Emmy statue.]
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Ketan Joshi @ketanjoshi.co · 03/06/2026
I will obviously do a proper thread later of the big new UN report into AI environmental impacts but here is the link if anyone wants to have a look unu.edu/inweh/collec...
unu.edu
The Environmental Cost of Artificial Intelligence: Carbon, Water, and Land Footprints
AI’s rapid growth drives huge energy, water, and land use, raising environmental and equity challenges across its global infrastructure.
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End of Century Boy @beefstrokemoff.bsky.social · 28/05/2026
I've never seen a brand do more irreparable damage to themselves than @patagonia.com who somehow think their brand (named after a real geographical place) needs "protecting" from an environmentalist drag queen. Have fun trying to recapture the lgbt market for the next decade losers.
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 20/05/2026
If the capitalists are gonna starve us all while terraforming the planet into something that supports their world view of scarcity at least let me be with beautiful animals
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 20/05/2026
I did a year of grad school at CalArts and loved many things about it (especially the philosophical training on how to be a good manager/leader). I hope they get their union.
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Boo-tros Boo-tros Ghoulish @dlbowman76.com · 20/05/2026
I am an extremely angry man. • Basic education should not be a luxury good. • Health care should not be a luxury good. • Your teeth should not be a luxury good. • Child care should not be a luxury good. • Potable water SHOULD NOT BE A FUCKING LUXURY GOOD.
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🎃 Killy Witches 👻 @tillybridges.bsky.social · 19/05/2026
CIS PEOPLE TIME TO STEP UP it’s once again time to yell at our bad government via online comment form the FCC is trying to make trans and nonbinary content require special ratings on shows GLAAD has a good writeup on it below TELL ‘EM NO direct link to comment form: www.fcc.gov/ecfs/filings...
glaad.org
Tell the FCC that LGBTQ Stories Don’t Need a Warning Label | GLAAD
The Federal Communications Commission (FCC) is targeting LGBTQ stories. They are trying to control what you see on television. This government overreach is dangerous...
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Drake, Gender Thief🏳️‍⚧️ @drakegenderthief.bsky.social · 12/05/2026
I think a US president stating intent to murder American citizens is an impeachable offense but what do I know
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Evan Urquhart @evanurquhart.bsky.social · 12/05/2026
The way trans youth and their families have just been allowed to be targeted and harassed and harried by Republicans by the American public makes me very angry.
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Stoner Philly Fan @stonerphillyfan.bsky.social · 06/05/2026
Democracy is not just the right to cast a ballot. It is the right to live with dignity: a decent job, healthcare, housing, education, free speech, and freedom from exploitation, war, and poverty. Democracy has to exist in everyday life
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Ashley Zacharias @ashleyzacharias.bsky.social · 05/05/2026
I love living in a country where I can criticize the leader without wondering if he's going to put me in jail for speaking out.
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 25/04/2026
I was a TA for a class called “Monsters” at UC Santa Cruz. Counted for Gen Ed if I recall. Each unit was a different flavor of critical theory applied through studying a monster (eg Frankenstein, witches, etc) from a play. Truly excellent. I submit versions of this that don’t all have to be theater.
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Matthew Kirschenbaum @mkirschenbaum.bsky.social · 24/04/2026
Counter proposal: humanities basics STEM majors need to have some sense of.
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David Zoltan (he/they) @wonkicorn.bsky.social · 14/04/2026
Airbnb needs to be banned. As long as there are homeless people, there's no reason we, as a society, should be enabling landlords to become ersatz hospitality businesses. We could house everybody if we actually used all the vacant units and Airbnbs for housing. There wouldn't be a "supply problem".
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s. e. smith @sesmith.lol · 07/04/2026
Anyway, we have ample research on how living under a state of sustained terror and stress causes life-long health problems as well as intergenerational epigenetic effects. This feels like it's making you sick because it actually is making you sick.
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Rabbi Sara Zober @rebbesmz.bsky.social · 07/04/2026
Israel bombing a synagogue in Tehran is the kind of symbolism that would feel too heavy-handed in a work of fiction. But yeah. That tracks in this ridiculous timeline. May God bring comfort and safety to the Tehran Jewish community.
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Sheryl Weikal says Prosecute ICE @leftistlawyer.com · 04/04/2026
Actually we should just give citizenship to every undocumented person in the United States who wants it. Walking over an imaginary line isn't some great moral atrocity. Making people live in the shadows as a permanent underclass absolutely IS.
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 03/04/2026
Chag sameach! I didn’t get to a seder tonight but does giving sick sea lions meds and fluids feel like a seder? Yes. Yes it does. And that’s what I did instead.
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 02/04/2026
Gotta ask whether the use for AI that you think is so helpful is worth the cost. Every once in awhile there’s probably a reason to use it that is worth this level of harm to communities but making a funny meme so you don’t need to learn to draw and don’t need to hire a human isn’t one of them.
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Jessica Drew Quiroga @jqnotjq.lol · 31/03/2026
I don’t want visibility, I want to know that my health care is safe. I would like to be able to use bathrooms when I travel without worrying if I’m breaking a bullshit law. I want my goddamn right to exist to be a given rather than something that comes and goes with the political winds.
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Marrok Sedgwick @ms-pats-anmls.bsky.social · 31/03/2026
I think I’m connected to some Alaskans here, please consider asking your attorney gen to protect disability rights (also FL, IN, KS, LA, MO, MT, SD, TX): autisticadvocacy.org/2026/02/take...
autisticadvocacy.org
Take action to protect disability rights!
This is an Action Alert about how you can help protect important rights for people with disabilities. It is about a lawsuit called Texas v Kennedy.
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Arctic Velocipedist @arcticvelocipedist.bsky.social · 31/03/2026
Your occasional reminder that no party or politician “gave” you anything, especially not your rights. A lot of working class people fought, bled, and died for them. A lot of powerful people, including your “party,” fought against them until they saw a personal advantage.
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Jess McLaughlin, PhD (they/them) @jfmclaughlin92.bsky.social · 29/03/2026
One aspect of bathroom bans I don't see discussed much is how they disproportionately impact trans folks with disabilities/chronic illness. Just a heads up, we've gotta talk poop. And in particular, diarrhea.
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