Sign in

miss_malingerer

@missmalingerer.bsky.social
231 followers 574 following 168 posts

absolutely zonked on the ‘oids 🥳 95% Bedbound ME/CFS/Long Covid

PostsRepliesMedia
Reposted by miss_malingerer
Dr. Lucky Tran @luckytran.com · 30/07/2026
Let’s be clear here, when scientists say mistakes were made at the start of the pandemic, we DO NOT mean that we did too much. We mean not socially distancing quickly enough, not making tests widely available, and not acknowledging COVID is airborne and distributing N95 masks to everyone.
23895462536
Reposted by miss_malingerer
Stellbound: Stellraiser II @antlervel.vet · 09/06/2026
They force-feminized all the World Cup players and now it’s called the Girled Cup. They did this due to woke and gender. The sport is called footovary now too sorry. Girled Cup
895708826
Reposted by miss_malingerer
Ari Berman @ariberman.bsky.social · 07/05/2026
Breaking: Tennessee Republicans pass new 9-0 gerrymander after SCOTUS destruction of Voting Rights Act eliminating state’s only majority-Black district & last Democratic seat. Splits Memphis, which is 63% Black, into 3 districts to disenfranchise Black voters. Quite literally a return to Jim Crow
20073043068
Reposted by miss_malingerer
e.w. niedermeyer @niedermeyer.online · 25/04/2026
u never see this on a tradlife mood board
An simple white tombstone in an old Willamette Valley graveyard that simply reads "BABY"
10192331497
Reposted by miss_malingerer
Puget Sound Whale Sightings @pugetsoundwhales.bsky.social · 18/04/2026
🍃🏔️ Sat, Apr 18 Fills up our senses when sunshine hovers over this beautiful place we live, that & whales. Yesterday: 💚T65A3 Amir traveling in North Puget Sound; T419s moving down W Whidbey; grays around the Whidbey Basin, W Whidbey & Bremerton. 📷 Iconic Seattle scene - Audrey Gao, Jan 9. #psws
361854220
miss_malingerer @missmalingerer.bsky.social · 17/04/2026
i am a machine for cats to lay on
000
Reposted by miss_malingerer
ME/CFS San Diego @mecfssd.bsky.social · 21/03/2026
A joint ME/CFS study of 9,000+ patients across 10 European countries finds a bimodal onset: adolescence (~16 yrs) & early middle age (~36.6 yrs). Early-onset cases are often infection-triggered, more severe, & linked to affected relatives. UK data validated academic.oup.com/ooim/advance...
academic.oup.com
Incidence age is bimodal for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, with higher severity burden for early onset disease
Abstract. Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome (ME/CFS), is a disease of uncertain origin. Studies of Norwegian health records have sugge
0169
Reposted by miss_malingerer
Casey Doherty @caseydoherty.bsky.social · 13/03/2026
It's International Long COVID Awareness Day. I feel so many things. I mourn those we have lost. I mourn those of us who are bedbound or housebound and pushed from society. I mourn the lifeline research, funding, and services that have been cut by this administration.
220267
miss_malingerer @missmalingerer.bsky.social · 10/03/2026
After a little over a year completely bedbound by #ME/CFS and #LongCovid, I am now officially able to stand up (for a few seconds), transfer myself to the wheelchair, and even spend some time in the living room instead of only my bed!!! 6 months ago this was my dream, and now it’s real! 💚💚💚
160
Reposted by miss_malingerer
Chronos' Weave @fuckmelikea.dog · 25/02/2026
my roommate had to literally shout at me to put down reddit and start fucking helping him with the dishes after i nearly died laughing so hard at this single image of james hurley from twin peaks
james hurley from twin peaks in that scene from the pilot where he looks at donna but his forehead is enlarged again but now he's balder with split hair in cat air shape with a claw poking out to make him wolverine with the post saying "marvel has found their next wolverine"
095
Reposted by miss_malingerer
Crystal Fincher @finchfrii.bsky.social · 26/02/2026
Rainier Beach High School confirms active tuberculosis case, 130 people possibly exposed
komonews.com
Rainier Beach High School confirms active tuberculosis case, 130 people possibly exposed
As a precaution, Public Health is recommending that about 130 people associated with the school be evaluated for TB.
44451208
Reposted by miss_malingerer
David Roberts @volts.wtf · 22/02/2026
I feel this so strongly. Covid was a test of our moral integrity & decency -- *not just elites, but all of us* -- and we failed. I genuinely think one reason Covid has been memory-holed so hard, & so crusted w/ myths & conspiracy theories, is that on some level we know this & are ashamed.
1002341525
Reposted by miss_malingerer
Martha Crawford @whatashrinkthinks.com · 18/02/2026
I absolutely know cancer patients who lost opportunities to stay in curative care because of covid infections that they caught on unmasked inpatient oncology units and derailed their treatment
26120
Reposted by miss_malingerer
daily bunnies 🐇✨ @dailybunnies.bsky.social · 18/02/2026
Two brown bunnies touch noses while sitting on a beige rug.
202310433
Reposted by miss_malingerer
It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/02/2026
The Wayback is now so load-bearing we should be protecting it with our actual lives
203632911
miss_malingerer @missmalingerer.bsky.social · 03/02/2026
me in 2022 when I moved to a wonderful location in New Orleans just as I became moderate-severe #ME/CFS / #LongCovid
010
Reposted by miss_malingerer
⛰️ kir [he/him] @butchgeared.bsky.social · 28/01/2026
Four days to raise $1k, and then some. ...I need yall to not give up, OK? Dont deny a share just because you're SO certain your followers wouldn't share, too. Yall need to allow this to circulate. Black survival crowdfunds NEED you to do your part / duty. Mem need food support, big aid. Show up.
01010
Reposted by miss_malingerer
Long Covid Advocacy @longcovidadvoc.com · 19/01/2026
1/ In response to Emily Mendenhall’s recent Substack on critiques of her book Invisible Illness by the community & Wessely's legal threats. Anthropology is often open to dialogue & critique, so let’s situate this moment historically & structurally. 🧵 open.substack.com/pub/emilymen...
open.substack.com
Bluesky Blowup
How the ME/CFS patient community is reading Invisible Illness
44719
Reposted by miss_malingerer
tern @1goodtern.bsky.social · 15/01/2026
I find it really really hard to keep up with more than one social media site... I have a full time job, a family, and, you know, a life, so I don't post here much... but I'm going to try to share a bit more. Also posting here too: youtu.be/8cJggmt_CB4
youtu.be
Sickness Absence Rates in *Young* Doctors
YouTube video by tern
4939967
Reposted by miss_malingerer
jamelle @jamellebouie.net · 10/01/2026
rare to see an american politician speak in these terms and it rocks
168191833059
Reposted by miss_malingerer
Sophie Carr @sophiecarr.bsky.social · 09/01/2026
A rainy night. #iphone15pro #Berkhamsted
Black and white iPhone photo of a street light with visible rain by the light. In the distance are some silhouetted houses and lights from houses on the other side of the hill
1813
Reposted by miss_malingerer
⛰️ kir [he/him] @butchgeared.bsky.social · 06/01/2026
PLEASE YALL WE'VE BEEN BEGGING SINCE OCTOBER. CAR WOULD PROVIDE A LOT OF HELP. THEY NEED THIS.
065
miss_malingerer @missmalingerer.bsky.social · 05/01/2026
really paying for 9 years of crimes against myself
010
miss_malingerer @missmalingerer.bsky.social · 04/01/2026
#mecfs win: I am now able to watch a movie all the way through in one sitting!! god are you there?? i’ve entered the kingdom of heaven 🕊️🕊️🕊️
1101
Reposted by miss_malingerer
ChronicallyILL MEM 📌 =🆘 @memwho2.bsky.social · 31/12/2025
im hungry, cold. asthma, wheezing. AUDHD, MECFS. fatigue. stiff neck. raising $260 for rent, all i have. 4 ssri left have to telehealth uninsured to refill or risk my household to viruses that can kill us. and while immunocompromised already, have maimed us. no car. linktr.ee/torqu111 to help pls
$1,000 RENT
DUE JAN 1ST
ATTENTION
kir [he/him]
@butchgeared.bsky.social
I won't speak in vague words.
being Black = people dont care about you.
Raffles, prizes, gifts, goods, etc, consumerism is how we try to subvert blatant neglect & antiBlackness.
For those who *do* care: we need yalls earnest boost & support for this to work.
They need food & aid to survive.
CA/VEN: MEMWHO
PP: XOMEMEREYTWOD
KO-FI.COM/MEMWHO/TIERS$1,000 RENT DUE JAN 1ST
RAFFLE ENTRY
MULTIPLIER ACTIVATED!
ATTENTION
2 ENTRIES PER $1 SENT! to help push this, raffle entries will be doubled until their rent goal is met! raised: $220/1,000!
to enter, sent $1 or more with the memo,
"for raffle and your username" to:
ca: vaporwaveeee ven: cr34tur333
pp: vaporwavee
3913
miss_malingerer @missmalingerer.bsky.social · 25/12/2025
merry christmas to all #me/cfs havers from me, my cats, and my black void
1111
Reposted by miss_malingerer
Sleestak @sleestak.bsky.social · 25/12/2025
Soviet New Year's card from the World War II showing Ded Moroz (Santa Claus) decorating his tree with Nazis, 1942
Soviet New Year's card from the World War II showing Ded Moroz (Santa Claus) decorating his tree with Nazis, 1942
11486149
Reposted by miss_malingerer
Emma™ @cockremover.bsky.social · 24/12/2025
an AI that kills itself for you
4454
Reposted by miss_malingerer
⛰️ kir [he/him] @butchgeared.bsky.social · 23/12/2025
Raffle full of handmade goods is also full of possibilities to support Mems chronically ill household needing food tn. And bills paid. 🥲 pls enter!!!! Please!! Each $1 = 1 entry, winner is chosen at 2000 entries! Memo: "raffle" P: vaporwavee C: vaporwaveeee (4 e's) V: cr34tur33
044
Reposted by miss_malingerer
jenny tightpants @jtp.bsky.social · 14/12/2025
4263771424
miss_malingerer @missmalingerer.bsky.social · 14/12/2025
Portrait: Bedbound in the Dark w/ Wuthering Heights
0122
Reposted by miss_malingerer
Blake Murdoch @blakemurdoch.bsky.social · 13/12/2025
Reddit: "The people who are studying the impact of COVID literally talk about it in the past tense, as if we are building monuments to some past event. Like “wow we should learn from COVID to listen to disabled people” you mean the disabled people trying to tell you covid is still ongoing??!"
17216
Reposted by miss_malingerer
The Sick Times @thesicktimes.org · 12/12/2025
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters. The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
Purple background with white text reads: New donations (followed by a thermometer reaching $60K). New monthly supporters (followed by a thermometer reaching 200). Text reads, "The Long COVID community needs us. We need you." Four testimonials from Sick Times readers in speech bubbles: “I desperately need the information you publish and can find it nowhere else.” “The Sick Times does essential work for the Long COVID community.” “You're indispensable and genuine. I trust your dedication to our community.” “I appreciate everything all of you do to keep publishing the truth in a world that cares little for it.”
15963
Reposted by miss_malingerer
alsopharmb.bsky.social @alsopharmb.bsky.social · 12/12/2025
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
8361148
Reposted by miss_malingerer
Zsaffryn Terra @zsaffrynterra.bsky.social · 08/12/2025
I was outlining a new short story and the words were flowing, character-specific quotes were plopping on the page, my typing fingers were tingling with delight! And I ended up plotting a novel. 🙄 #5amwritersclub #writingcommunity #writesky
35105340
Reposted by miss_malingerer
Waldo Jaquith @waldo.net · 08/12/2025
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
nature.com
The relative contribution of close-proximity contacts, shared classroom exposure and indoor air quality to respiratory virus transmission in schools - Nature Communications
The relative importance of close-proximity interactions, shared space and air quality to the transmission of respiratory viruses is not well understood. Here, the authors investigate this question by ...
7540591450
miss_malingerer @missmalingerer.bsky.social · 07/12/2025
honestly some of the best framing/explanation i’ve seen so far #chronicillness #disability #mecfs
1142
miss_malingerer @missmalingerer.bsky.social · 07/12/2025
a perk about being bedbound: i get to be really delusional about what clothes i could theoretically pull off since i haven’t glimpsed my own reflection in almost a year
161
miss_malingerer @missmalingerer.bsky.social · 03/12/2025
I Vaxxed my kid but she didn’t get autism (sad emoji) now i can’t relate to this bitch at ALL
010
Reposted by miss_malingerer
Chronic Illness Humor @chronicillness.bsky.social · 26/11/2025
When Your 90 year old grandma is doing better than you are...      

picture of link from legend of zelda with his hands up to his face and a pop up says 'warp to the graveyard? - ok or no (ok is selected)
1423
miss_malingerer @missmalingerer.bsky.social · 22/11/2025
sample of what it’s like to sit on my front porch every weekend (as filmed by my husband)
130
Reposted by miss_malingerer
Open Medicine Foundation (OMF) @openmedf.bsky.social · 18/11/2025
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION! Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Clean white graphic announcing a fundraising match. Centered is an off‑white note card taped on with beige masking tape (top right and bottom left). The card says “EXCITING NEWS” and, in handwritten script, “We’re now matching gifts up to $1 MILLION!” with “MILLION!” circled in red and underlined.
1238
Reposted by miss_malingerer
Bodega Cats @bodegacats.bsky.social · 18/11/2025
293471707
miss_malingerer @missmalingerer.bsky.social · 16/11/2025
absolutely zonked on the ‘oids 🥳
000
Reposted by miss_malingerer
Kristin Houlihan, Writer @kristinwrites.bsky.social · 10/11/2025
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
1368
Reposted by miss_malingerer
Elea Chang @elea.fyi · 15/11/2025
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed. Here are the words she left behind: www.instagram.com/p/DREMDNBjnq...
instagram.com
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
13836491399
Reposted by miss_malingerer
Misa on Wheels @misaonwheels.bsky.social · 14/11/2025
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
224597
Reposted by miss_malingerer
Tom Kindlon @tomkindlon.bsky.social · 14/11/2025
New from the Maureen Hanson team in the US Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion www.mcponline.org/article/S153... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME 1/
Highlights
•	
Plasma profiling of 7,288 proteins during post-exertional malaise in ME/CFS.
•	
ME/CFS participants show sustained immune, metabolic, and neuromuscular dysregulation during post-exercise recovery.
•	
Exertion disrupts T and B cell signaling, IL-17 pathways, and mitochondrial metabolism.
•	
Protein signatures correlate with symptom severity and impaired exercise performance in ME/CFS subjects.
•	
Sex-stratified analysis reveals distinct molecular responses, underscoring the importance of sex in ME/CFS pathophysiology.
34116
Reposted by miss_malingerer
Beatrice Adler-Bolton @reallandsend.bsky.social · 14/11/2025
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
813367