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Limberation - Limber Up To Live Life

@limberation.com
408 followers 372 following 1.4K posts

Otherwise known as @KoparaFallsKid.bsky.social Movement As Medicine advocate. Follow my writing on Limberation.com Rheumatoid Arthritis patient. Previously diagnosed Psoriatic Arthritis patient. Probably both. Two titantium knees. Two fused ankles.

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Limberation - Limber Up To Live Life @limberation.com · 27/09/2026
I'm sorry I've been quiet. I upset a compressed nerve in my lumber spine while standing doing food prep a couple of wks ago. Have been concentrating on rehab stuff. Walking is fine. Standing is hell, sitting & laying down are not great. Osteopath & exercise physiologist are in full swing. 🧵 1
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Susan Brown @sactowngrandma.bsky.social · 26/09/2026
YES! I remember my physician sister telling me years ago she didn’t believe in ME/CFS because nothing was showing up on tests. What a stupid thing to say. Viral diseases and bacterial infections existed long before those causes were even imagined, let alone able to be tested for.
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Penncat @pennicat.bsky.social · 26/09/2026
I wish every doctor had to live a week in the body of a chronically ill person told they’re fine.
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Limberation - Limber Up To Live Life @limberation.com · 27/09/2026
In other #health news, this coming Wed I have an hours long (not sure how many hours) pre-op appt at the hospital re the kidney stone. Still no date for the actual op! Given the time specified, had to move dental appt. I think this is an "all surgery type template", seems complicated for a stone!
Extract from letter re Wednesday's appt. Weill see: nurse, pharmacist, abaethetics, surical tems and co-ordinator.
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Limberation - Limber Up To Live Life @limberation.com · 27/09/2026
As my eyes progress on the recovery journey from the caract surgery, my close vision is steadily improving. I may end up not needing even the magnifiers, I think. ☺️
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The Guardian @theguardian.com · 18/09/2026
Twenty women had breasts removed unnecessarily during NHS cancer care
theguardian.com
Twenty women had breasts removed unnecessarily during NHS cancer care
Patients among hundreds who suffered harm at County Durham and Darlington foundation trust’s breast unit Twenty women had their breasts removed unnecessarily while being treated for cancer at an NHS trust in north-east England. The County Durham and Darlington foundation trust (CDDFT) told the BBC that the women were among hundreds of patients who came to harm during treatment at its breast unit. Continue reading...
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A Chronic Voice @achronicvoice.com · 18/09/2026
"Understanding each condition individually (what makes it flare, how it responds to #treatment, where it overlaps with yr other #diagnoses) gives u something to work with. Without that #baseline,u r just reacting to whatever’s loudest.": buff.ly/q9rCQJr by @thethrivingspoonie.com #ChronicPain
thethrivingspoonie.com
Managing Multiple Chronic Conditions: What Actually Helps
Managing multiple chronic conditions isn't just harder than managing one — it's a different kind of problem. When your diagnoses interact and your baseline shifts depending on which thing is loudest…
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A Chronic Voice @achronicvoice.com · 16/09/2026
"It can be easy to #overthink when you're in the throes of a severe #PainFlare ..u might feel like u r a burden to others, engage in #negative #SelfTalk, or reinforce defeating thoughts. What are your strategies to deal with such rumination?": buff.ly/FXLXYLZ #ChronicPain #ChronicIllness #NEisVoid
September Prompts: Asking, Overthinking, Humbling, Valuing, and Reclaiming. Visit: A Chronic Voice .com
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Dalal F. S. A. Alhabad @dalalalhabad.bsky.social · 16/09/2026
Hello, Bluesky! I’m Dalal, a PhD candidate in bioinformatics at La Trobe University. My research explores HPV-associated cervical cancer through multi-omics and cancer genomics. I’m here to connect, learn and share insights on computational oncology and open science. 🧬 #Bioinformatics #CancerGenomic
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Dr Howard Smith Reports @drhowardsmith.bsky.social · 16/09/2026
A Compound in Healthy Foods May Exacerbate Inflammatory Bowel Disease. A compound naturally found in foods like spinach, almonds and sweet potatoes may unexpectedly worsen the intestinal inflammation. #IBD #CrohnsDisease #UlcerativeColitis #GutHealth #MedicalResearch
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A Chronic Voice @achronicvoice.com · 15/09/2026
" #medications cost more than all the food I consume every month. For 1, the meds we need are non-standard, which tend to cost more. Many drugs are also used #OffLabel, which means that there is less or no subsidy for them.": buff.ly/2sEHiV8 #ChronicIllness #MondayBlogs #healthcare #PublicHealth
Chronic Illness is Expensive, but Here’s the Real Reason Why. Read more.
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A Chronic Voice @achronicvoice.com · 15/09/2026
"My #body has been opened, stitched, sedated & measured more times than I can count. It has been judged & doubted. & yet, it continues to move. I no longer resent its #limitations. I respect its #endurance.": buff.ly/4kdK2f4 via tinybuddha #SelfWorth #ChronicPain #disability #ChronicIllness
tinybuddha.com
What My Body Taught Me: 13 Surgeries, One Coma, Countless Powerful Lessons - Tiny Buddha
The body is not fragile simply because it has scars. Scars are evidence of repair. They are proof that something was damaged and healed.
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Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com · 15/09/2026
"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com 🔗 www.achronicvoice.com/2018/05/13/y... #ChronicPain
achronicvoice.com
You Don't Have to be Strong, Just a Little Stronger Than Before
Sometimes telling ourselves to be brave invokes fear. Here's why you don't have to be strong, just a little stronger than before.
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lars-o-matic @lars-o-matic.bsky.social · 15/09/2026
Death-avoidance and wellbeing is a full-time job!
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Limberation - Limber Up To Live Life @limberation.com · 14/09/2026
#InvisibleIllness Sometimes we just need a lift! Yesterday I shocked myself - I bought a new liptick. That isn't the shock! The shock was the price. NEVER in my life have I spent $95 on a lipstick. Yesterday I did. Here's my thoughts on Invisible Illness ftom 2022. limberation.com/2022/09/13/w...
New nail polish & lipstick
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Limberation - Limber Up To Live Life @limberation.com · 14/09/2026
#ChronicIllness Anyone else just get sick of constant damn appts? Yesterday was osteopath & 2nd eye 2nd post-op, plus running (not litetally) around to get some magnifying glasses for reading, my injections from the pharmacy etc. Today is podiatrist & GP. Thursday pneumonia vax. It's neverending!
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Chronic Illness Humor @chronicillness.bsky.social · 12/09/2026
journal with the prompt "Describe time you pretended when when you weren't"

Sometimes when I say "I'm okay", I want someone to look me in the eyes, hug me tight, and say, "I know you're not."
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ABarrelOfPepper-TheWordWiseProject @abarrelofpepper.bsky.social · 12/09/2026
What’s one thing you wish others could understand about life with chronic illness/chronic pain? #chronicillness #chronicpain
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Limberation - Limber Up To Live Life @limberation.com · 12/09/2026
I'm about to embark on an experiment. I'm not allowed to wash my hair at home to protect the operated eye. I can go to the hairdresser. Having taoed my ankle casts in plastic to shower, I figure I can tape my eye in plastic with the same tape. Will add a pic and update later. Wish me luck! 🤣🤣
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Dr Mel T @drmel.bsky.social · 09/09/2026
AND YET THE ZUCKBOT BANNED MY MUSEUM TOURIST PICS OF A TOPLESS GOLDEN STATUE OF DIANA BECAUSE OF NIPPLES
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JustAnne @smartpatient.bsky.social · 09/09/2026
When tracking medication, the context matters too. Note timing, food, sleep, stress, and side effects so the log tells the full story. #MedicationTracking #HealthTracking #PatientAdvocacy #InvisibleIllness
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Limberation - Limber Up To Live Life @limberation.com · 08/09/2026
Yesterday was rough. Could not see phone screen at all, today is much better. Also the eye was "scratchy", but not painful. This eye is much more bloodshot than the first one, i have attached a pic from yesterday but labelled it so don't look if you are squeamish!
My eye 24 hours after the op
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Limberation - Limber Up To Live Life @limberation.com · 06/09/2026
Today's the day! I'll have two fixed eyes by this evening! Very happy! Just started fasting, got the eye drops yesterday, will have a shower shortly, book taxi to surgery, check neighbour still OK to collect me. Went to gym yesterday as now I have to "not do anything strenuous" for a few days.
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Limberation - Limber Up To Live Life @limberation.com · 05/09/2026
Heads up #Australia re #pathology billing. When the whole kidney stone saga started, I went to my local Urgent Care Clinic. They took a urine sample for testing. I then got an invoice via SMS. Yeah, nuh, something's not right I thought. Then forgot about it given the 2 trips to ED etc. 🧵 1
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Wheelie Out There @wheelieoutthere.bsky.social · 04/09/2026
Diagnosed with #MultipleSclerosis in high school, now Stacy is starting med school on her way to becoming a neurologist. Someday she'll be treating others with MS. Read her powerful article, "Turning a diagnosis in high school into a career." tinyurl.com/mpedj6rs #caregiver 2/2
nationalmssociety.org
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Mark @ferl67.bsky.social · 04/09/2026
Alcohol-related cancer deaths in US have more than doubled over three decades www.theguardian.com/society/2026/se… #USA #Science #Health #Cancer #MedicalResearch
theguardian.com
Alcohol-related cancer deaths in US have more than doubled over three decades
Study finds just one drink per day could raise risk of disease with impacts extending far beyond liver cancer
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Limberation - Limber Up To Live Life @limberation.com · 04/09/2026
Well, this ain't over, sadly. Had (pre-booked) telehealth with hospital yesterday, they aren't of the opinion the kidney stone has escaped sooooo..... I will be going in for a procedure to remove it. Don't know when yet, they will notify me, but I am Cat 1, which means soon-ish. #ItNeverEnds
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Limberation - Limber Up To Live Life @limberation.com · 03/09/2026
#Sinus #surgery update 2nd post-op this morning. All good! Another follow-up in March and ENT surgeon is keeping my rheumatologist in the loop as my inflammatory #arthritis can make sinusitis worst so they both need to keep an eye on it. Flush 1 p/d for life now, + Nasonex spray. #ChronicIllness
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Limberation - Limber Up To Live Life @limberation.com · 02/09/2026
So last night the temporarily cemented-back-in-tooth/crown fell out again. Scored a cacellation slot at 2:45 today, nearly fell over! Not sure they'll try cementing it back in temporarily again, but will see. A bit over the whole teeth complications on top of all the other #ChronicIllness stuff.
Rogue crown
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Limberation - Limber Up To Live Life @limberation.com · 01/09/2026
#surgery Some of you may remember my 2nd eye surgery got cancelled at the last minute when the surgeon's father unexoectedly & sadly passed away. Yesterday I was rescheduled for mid-October. Today I was offered & grabbed a cancellation slot!! 🎉🎉 Surgery is now on Monday next week! 💃💃
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Limberation - Limber Up To Live Life @limberation.com · 01/09/2026
#ChronicIllness Yet another blood test. 6 weeks after my last rheumatologist aopt. Given I had to drop one med due my neutrophils, need to check situation. Not feeling great, I have to say, so hopefully the tests will show something. May be able to go back on lower dose of withheld med? No idea yet
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Limberation - Limber Up To Live Life @limberation.com · 28/08/2026
Not exactly a major illness issue, I admit, but let's face it, painting one's nails with A) Arthritic fingers that don't want to bend the right way And B) One good eye and one eye not yet operated on Is not the easiest thing I've ever done!
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Limberation - Limber Up To Live Life @limberation.com · 28/08/2026
Hamstring stretches done. Pelvic tilts done. Now for a walk.
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Limberation - Limber Up To Live Life @limberation.com · 27/08/2026
The kidney stone saga contines. 🙄 BUT should be/may be over as I write. Had my 3rd CT scan yesterday to check progress. Darn thing was FINALLY about to enter the bladder at 4 pm. At least I've not had another pain attack since Aug 19, so fingers crossed. First "event" was Aug 4th. 🧵 1
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Limberation - Limber Up To Live Life @limberation.com · 25/08/2026
#ChronicIllness #MyAgedCare #NDIS #InflammatoryDiseases Just a heads up if you are a My Aged Care or NDIS client with an inflammatory chronic illness you MAY qualify to have your dietary protein supplements covered. If you are unaware, you may need extra protein.
pubmed.ncbi.nlm.nih.gov
Effects of inflammation and/or inactivity on the need for dietary protein - PubMed
In inflammation and/or inactivity a relatively high protein intake may be required to promote synthesis of specific proteins, prevent depletion of selected amino acids (e.g., glutamine or arginine), modulate immune functions, counteract insulin resistance and redox unbalance. Thus, an optimal protei …
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Princess in the Tower @apainprincess.bsky.social · 25/08/2026
“Being more honest and realistic about my limitations with #chronicillness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” buff.ly/W7IZIiT @carriekellenberger.bsky.social #MentalHealthMatters #YouAreNotAlone
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Meowloween @queerkitty.bsky.social · 24/08/2026
#ChronicIllness talk: get your random symptoms checked out by a doctor even if you assume it’s part of another condition. I’ve been dealing w/a very disruptive symptom I thought was part of one diagnosis; it can be, but it turns out nope! caused by something else and there’s an easy-ish treatment.
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Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com · 23/08/2026
@achronicvoice.com writes about her life w. #ChronicIllness & #disability "To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
buff.ly
Why I Write, Even Though it Makes Me Uncomfortable
Revealing so much about my private life and chronic illnesses through my writing actually makes me uncomfortable — but here's why I write anyway.
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Soumya Rangarajan, MD, MPP @soumya-goblue.bsky.social · 23/08/2026
To show how little we learn about #perimenopause - #boardreview question, 49 yo woman, never been pregnant, has irregular bleeding (extended duration, 3 months apart), and the correct answer is...she probably has #cancer? needs an #endometrial biopsy? Huh? (only 29% got this right)
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Limberation - Limber Up To Live Life @limberation.com · 16/08/2026
I have noticed over the years some of the post-operative instructions given to patients could be improved. I'm going to cite a couple of recent examples and why they could be misleading to patients. #Surgery #ChronicIllness
limberation.com
About Those Post-Op Instructions….
have noticed over the years some of the post-operative instructions given to patients could be improved. I'm going to cite a couple of recent examples and why they could be misleading to patients.
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Limberation - Limber Up To Live Life @limberation.com · 20/08/2026
I spent Tuesday quite wary - after all, both weeks before (hospital trip each time) the pain attacks had started Tuesday evening. This Tuesday passed without incident! Yay, maybe I'd passed the damn stone? No. Last night all hell broke loose again. This time I managed to manage it at home. 🧵 1
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A Chronic Voice @achronicvoice.com · 19/08/2026
"#Pacing through a #workday when u have a #ChronicIllness involves more concealment than most people realize. Calibrating how much #energy to spend before a meeting. Building #RecoveryTime around tasks that other people don’t need to recover from..": buff.ly/u8FYz8Q by @thethrivingspoonie.com
buff.ly
Good Enough Is the Goal: What Pacing With Chronic Illness Really Looks Like
If you've ever made it through a hard day and still felt like you failed at pacing, this post is for you. Real pacing doesn't look like the ideal version — it looks like the backup dinner, the one…
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Irish ME/CFS Association @irishmecfsassoc.bsky.social · 18/08/2026
We don’t have a Facebook webpage but Tom has been posting our messages to his page that has 30,000 followers. #MEcfs #PwME
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Tom Kindlon @tomkindlon.bsky.social · 17/08/2026
FB changes grumble: I can now only include two links per month (!) to posts. Also links I post in the comments won’t be clickable either. To get clickable links, I would have to pay €169 per month!! #MEcfs #LongCovid 1/
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Prof Naomi Priest PhD @naomipriest.bsky.social · 18/08/2026
great piece @cgatist.bsky.social thanks for writing, i have been thinking for a while that an epi primer on disease causation, individual and population health determinants etc in this space is much needed
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A Chronic Voice @achronicvoice.com · 18/08/2026
"A more #sustainable alternative uses flexible #priorities. #Tasks are grouped by impact & #energy demand, not just urgency. Some things genuinely need attention soon. Others can remain incomplete without causing harm.": buff.ly/DqvZ3yW by @thethrivingspoonie.com #ChronicIllness #ChronicPain #goals
buff.ly
A Better Alternative to “Catching Up” When You Have Chronic Illness
Catch-up days often do more harm than good with chronic illness. Learn a more sustainable alternative built around consistency, flexibility, and realistic planning.
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Limberation - Limber Up To Live Life @limberation.com · 18/08/2026
3km!! A couple of pics from my walk. I love the bushland. While not the same as NZ, it lets me escape from the city for a while. #ChronicIllness #InvisibleIllness
Austrakian Wattke is full bloomBushland in the middle of the city. Love it.
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Limberation - Limber Up To Live Life @limberation.com · 18/08/2026
#ChronicIllness I've showered, washed my hair, dressed, been to the supermarhet & pharmacy, shouted myself a coffe and an apple twist (very nice it was too) and now about to do first walk of the day. I like my new sinuses!! 😂
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✨ Soft Grit Spoonie ✨ @softgritspoonie.bsky.social · 17/08/2026
#chronicillness #spoonie #invisibleillness #medsky #spooniesky
Imagine living in a body that never lets you forget you’re sick, while living in world that keeps asking to prove it
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Rush @rushmedical.bsky.social · 17/08/2026
Eczema and #psoriasis may look alike, but they have different causes, symptoms and risks. Here’s how to spot the difference.
rush.edu
Eczema or Psoriasis: How to Tell Which One You May Have
Eczema and psoriasis may look similar and have some symptoms in common, but there are a few key ways to tell the difference.
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