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April Smith | The Thriving Spoonie

@thethrivingspoonie.com
133 followers 36 following 317 posts

Sharing practical tools and real talk about adapting to chronic illness. Building community along the way. 👉 Learn more at www.thethrivingspoonie.com

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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 29/09/2026
Traditional work wasn't built for people with #disabilities — rigid schedules, inaccessible workplaces, and zero flexibility make "just get a job" advice land hard. This guest post on Life's a Polyp breaks down 8 realistic side gig options for disabled parents . buff.ly/xzknRtn
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https://lifesapolyp.blogspot.com/2026/09/how-parents-with-disabilities-can-start.html
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 25/09/2026
"Just go for a walk" — if only it were that simple. #Endometriosis makes exercise complicated in ways nobody prepares you for. This post from My Rockin' Disabled Life tells it straight. buff.ly/sWdyExq
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What People Do Not Tell You About Exercise With Endometriosis
When you have endometriosis or any kind of chronic pain, doctors often recommend that you do some kind of exercise because movement can help improve pain levels. Exercise is important when you live…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 24/09/2026
"The sea has never promised certainty. Neither has my body." Rhiann Johns at Brain Lesion & Me draws a beautiful and quietly devastating parallel between #ChronicIllness and life at sea. buff.ly/tuL5WvN
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Chronic Illness: Finding Hope on an Unpredictable Journey
Living with chronic illness has taught me that life can change without warning. Cruising has taught me to find hope in the unexpected.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 22/09/2026
"How do you do it?" — it's a question Sheryl Chan gets asked a lot. In this deeply thoughtful post, she shares the personal philosophy that keeps her going through nearly 30 years of #ChronicIllness. buff.ly/CzI7Wcl
achronicvoice.com
How to Live with Chronic Illness (My Personal Approaches)
People often ask me how to live with chronic illness, especially when chronic pain seems endless. Here are my personal approaches I use to thrive.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 18/09/2026
Your doctor will tell you the positives of # StomaSurgery — but they won't tell you everything. This post from My Rockin' Disabled Life shares the honest, patient-perspective advice she wishes she'd had before going under the knife. buff.ly/CCgdab7
myrockindisabledlife.com
What I Would Tell Someone Thinking About Stoma Surgery
When you have Spina Bifida, often it is more difficult to go to the bathroom because most a lot of the time your bladder and bowel muscles are affected and don’t work properly. I have two sto…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 17/09/2026
#ChronicPain isn't just physical — P also stands for pacing, payback, poor sleep, priorities, problematic digestion, and the very real financial price of it all. Liz at Despite Pain breaks down everything that comes along for the ride in this honest post for Pain Awareness Month. buff.ly/1y3vLML
despitepain.com
What's it Like to Live With Pain — With a Capital P - Despite Pain
In this post, I explain what it's really like to live with pain. It's more than the physical pain because pain brings a lot of other issues.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 15/09/2026
#BedRest sounds restful until you're actually in it for months. This post from My Rockin' Disabled Life goes beyond "watch TV" with practical ideas for staying sane and entertained during post-surgery recovery or high pain days — from blogging to podcasts to learning a new skill. buff.ly/iGBK6uH
myrockindisabledlife.com
What To Do When You Are Stuck In Bed
Disabled and chronically ill people often spend more time in bed than someone who is not disabled, because sometimes we need a lot of surgeries to manage our health or live with chronic pain, and a…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 15/09/2026
"Just do what you love" assumes your interests and your energy are two separate things. Chronic illness makes that untrue. New post on why finding identity outside your diagnosis is so hard, and small ways to start anyway: www.thethrivingspoonie.com/who-are-you-...
thethrivingspoonie.com
Who Are You Outside Chronic Illness? Finding Identity
Chronic illness changes what you can do, not who you are. Here's why finding identity outside your diagnosis is so hard.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 11/09/2026
The September #WritingPrompts are live at A Chronic Voice! This month's themes — asking, overthinking, humbling, valuing, and reclaiming — feel especially fitting for life with chronic illness. Come share your story with the community. buff.ly/YMqXRxy
achronicvoice.com
September Writing Prompts for People with Chronic Illness & Disability (2026 Edition)
Join us in the 2026 September writing prompts, where people with chronic illness and disability share about their lives using 5 shared prompts.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 10/09/2026
#HipReplacement surgery is a big deal — and it comes with real risks and a tough recovery. But this post from My Rockin' Disabled Life looks at the other side: the genuine positives that made it worth it for her, written from lived experience rather than a medical brochure. buff.ly/1f1BTWa
myrockindisabledlife.com
What Are The Positives Of Hip Replacement Surgery?
Hip replacement surgery is one of the hardest surgeries I have ever had to go through, which is saying a lot because I have had dozens of surgeries, but sometimes it is necessary for less pain. Whe…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 08/09/2026
18 practical tips for living with #ChronicIllness and pain — from someone who actually lives it. Caz at Invisibly Me covers everything from pacing and rest to self-advocacy and managing the emotional side of it all. A solid bookmark for the hard days and the okay ones too. buff.ly/D6J5rlq
invisiblyme.com
18 Tips For Living With Chronic Illness, Pain & Disability - Invisibly Me
Living with chronic illness, pain or other disability is an ongoing learning curve. Here are 18 tips for life with chronic conditions.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 04/09/2026
Knee surgery recovery comes with a to-do list nobody prepares you for — including figuring out how to get dressed. Sheryl Chan at A Chronic Voice shares what #WoundCare actually looked like day to day, and the clothing solutions that made the hardest weeks a little more manageable. buff.ly/iV7qALd
achronicvoice.com
Wound Care & What to Wear After Knee Surgery (Part 5/6)
Resources and tips on how and what to wear after knee surgery, as well as wound care. Part of a series on my knee injury recovery process.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 11/08/2026
No packing. No passport. No jetlag. And the dog gets to come too. 🐾 When #ChronicPain makes real travel impossible, Liz at Despite Pain has found a surprisingly lovely alternative — and this post might just inspire your next rainy afternoon adventure. buff.ly/7K2gUwa
despitepain.com
Travel Without the Hassle...No Packing Required - Despite Pain
Summer is upon us here in sunny Scotland. Except, it’s not very sunny. There’s been a heatwave south of the border, but most days it’s actually quite wet, and dreich here in Scotland. Perhaps it’s…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 07/08/2026
What if the #Odyssey isn't just an ancient epic — but a mirror for everyone navigating chronic illness? After seeing the movie, Zebras Underground wrote about the striking parallels between Odysseus's journey and the one so many zebras live every day. Free and open to all. buff.ly/pm3sqSR
zebras.substack.com
Every Zebra Has an Odyssey. More Than a Movie, A Mirror
Sometimes the longest journey isn’t across oceans. It’s finding your way back to yourself after illness, trauma, and the stories you’ve come to believe about who you are.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 06/08/2026
When you're disabled or chronically ill, hospital stays aren't a rare occurrence — they're part of life. This post from My Rockin' Disabled Life shares exactly what she packs for an overnight #HospitalStay, informed by years of surgeries and long admissions. buff.ly/BVN0tkJ
myrockindisabledlife.com
What Is In My Hospital Bag?
When you are disabled or chronically ill, sometimes you have to go to the doctor or hospital more often than non-disabled people because sometimes you have health issues that require a surgery or t…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 05/08/2026
Every August, the internet tells you to fix your #morningroutine. Most morning routine advice assumes a body that gets to choose what happens next. #Chronicillness doesn't work that way. What does your actual morning look like?
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 04/08/2026
The August prompts are live in this post from Sheryl Chan at A Chronic Voice — this month's theme is #Pacing & self-care. "What was the most recent big change in your life? How did it impact your life journey subsequently?" buff.ly/HdZOjsW
achronicvoice.com
365 Mindfulness Journaling Prompts for Self-Improvement
Here are 365 mindfulness journaling prompts for self-improvement, self-care and personal growth. Plus some bonus journal prompts as well!
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 04/08/2026
Most #morningroutine advice assumes a body that gets to choose what happens next. #chronicillness doesn't work that way. New post on what actually helps instead: www.thethrivingspoonie.com/you-dont-nee...
thethrivingspoonie.com
Why Standard Morning Routines Don't Work With Chronic Illness
Most morning routine advice assumes a body that gets to choose what happens next. Here's why that model doesn't fit chronic illness.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 21/07/2026
Do non-disabled people truly have #DisabilityPride, or do they just think they do? This post from My Rockin' Disabled Life makes the case that pride isn't something you claim because you know a disabled person. It shows up in how you treat disabled people every day. buff.ly/ywYK7Mp
myrockindisabledlife.com
Do You Have Disability Pride?
July is Disability Pride Month. During the month of July, we celebrate Disability Pride Month, which is an opportunity to break barriers, educate people on ableism, and celebrate the uniqueness and…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 17/07/2026
#DisabilityPride isn't about loving your disability, it's about understanding your body, adapting when you need to, and remembering that your worth isn't measured by your productivity. Beverley at Blooming Mindfulness writes about what pride has looked like for her in this post. buff.ly/g8qWoBj
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 16/07/2026
The July prompts are live in this post from Sheryl Chan at A Chronic Voice — this month's theme is #Freedom, creativity & self-expression. "What is one creative way you can practise self-care today?" is just one of the prompts waiting for you. buff.ly/vundMqd
achronicvoice.com
365 Mindfulness Journaling Prompts for Self-Improvement
Here are 365 mindfulness journaling prompts for self-improvement, self-care and personal growth. Plus some bonus journal prompts as well!
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 14/07/2026
Nobody warns you that being chronically ill comes with an unpaid second job: tracking your own history, translating it between providers, chasing results nobody sends. New post on why that administrative and emotional load is so exhausting, and why it's not in your head:
thethrivingspoonie.com
The Exhausting Math of Managing Your Own Chronic Illness
The Exhausting Math of Managing Your Own Chronic Illness Care
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 14/07/2026
#ParentGuilt over a child's disability is real. This post from My Rockin' Disabled Life offers a perspective you don't often hear: what a disabled person actually wishes their parents knew, and how to start letting go of blame and focusing on what matters most. buff.ly/60W4RyL
myrockindisabledlife.com
How Parents Can Feel Less Guilty About Their Child’s Disability
Disabled people sometimes struggle to accept their disability because we live in a society where disability is something bad that needs to be fixed. Disability acceptance isn’t something only…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 10/07/2026
most. 1:47 PM #Routines are supposed to make life easier — but when you live with chronic illness, they can quietly become another energy drain. Beverley at Blooming Mindfulness shares how she's learned to adapt routines to work with her body instead of against it. buff.ly/H1miRvi
bloomingmindfulness.co.uk
Changing Routines So They Don't Tire You Out -
I love routine and having set things at set times but changing routines so they don’t tire you out is important too.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 09/07/2026
Men with #fibromyalgia wait an average of 6.5 years for a diagnosis — and face a double stigma on top of it. Stephen White shares his story in this guest post on A Chronic Voice, and it's exactly the kind of male voice the #chronicillness community needs more of. buff.ly/vcE1QMI
achronicvoice.com
Men with Fibromyalgia & the Unique Challenges They Face
Read as Stephen White shares more about the unique challenges that men with fibromyalgia face, in addition to being undiagnosed as a young adult.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 08/07/2026
Advocating for yourself at appointments isn't one task, it's several running at once. New post on why that's exhausting even when it "looks like" a normal conversation, and how to spend less of yourself doing it. www.thethrivingspoonie.com/chronic-illn...
thethrivingspoonie.com
Chronic Illness: How to Advocate for Yourself & Not Burnout
Speaking up at appointments costs real energy. Here's how to advocate for yourself without losing the rest of your week to recovery.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 07/07/2026
#Accessibility isn't just a disabled person's issue — it's everyone's issue. This post from My Rockin' Disabled Life makes a compelling case for why non-disabled people should care too, because an accessible world benefits all of us, and anyone can become #disabled at any time. buff.ly/h0e7zkj
myrockindisabledlife.com
Why Should You Care About Accessibility?
Accessibility is important for disabled people because we can’t function without it, but it’s not just for disabled people and everyone benefits from a more accessible world.. Everyone should…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 03/07/2026
#Pacing is supposed to help — so why does it so often leave us still crashing? This post is a thoughtful, evidence-based look at why pacing doesn't work the way we've been taught, and what's missing from the picture. buff.ly/Talfat7
sarahwellslifecoach.com
Why Pacing Doesn't Work the Way You've Been Taught • Sarah Wells
Pacing doesn't work the way you have been taught, this post examines the evidence and looks at why, because energy isn't just physical.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 02/07/2026
"I appreciate help — but please ask first." #PhysicalDisability doesn't mean incapable, and this post from My Rockin' Disabled Life breaks down what friends and family often get wrong, even when they mean well. buff.ly/360iXOC
myrockindisabledlife.com
What People With Physical Disabilities Wish Their Friends Understood
When you have a physical disability, simple tasks that come easily to most people can be more challenging because you don’t have as much stability as everyone else. It is frustrating to have …
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 30/06/2026
Her psychologist asked her to write a diary entry titled "Grieving The Life I Will Never Have", and Sheryl Chan at A Chronic Voice actually did it. The career, the family, the person she thought she'd become. Deeply relatable for anyone navigating #chronicillness and identity. buff.ly/mkXhLc0
achronicvoice.com
Grieving the Life That I Will Never Have (Due to Chronic Illness & Disability)
My psychologist asked me to write a diary entry, “Grieving the Life That I Will Never Have”, as a person with chronic illness. Here's what I wrote.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 30/06/2026
If you've ever left a doctor's appointment feeling like the problem was you — not your symptoms — this post is for you. Medical gaslighting in chronic illness is common, and it's not in your head. New post on what it actually looks like and what you can do.
thethrivingspoonie.com
How to Cope With Medical Gaslighting When Chronically Ill
Medical gaslighting is real, it's common in chronic illness, and it's not your fault. Here's what it looks like and what you can do about it.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 26/06/2026
Managing #SpinaBifida means managing a whole team of specialists. This post from My Rockin' Disabled Life walks through each one and why they matter, which is a really useful read for anyone navigating complex, multi-system health conditions. buff.ly/M7tDVz9
myrockindisabledlife.com
Specialists That I See As A Disabled Person
Disabled people sometimes need to see more doctors than non-disabled people because a lot of the time, we have very complex medical issues that require more specialized training than your primary c…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 25/06/2026
#AntiphospholipidSyndrome doesn't just affect clotting — it complicates nearly everything else too, from other treatments to travel to diet. Sheryl Chan at @achronicvoice shares what living with APS is actually like from a patient perspective. buff.ly/X8Qwpig
achronicvoice.com
The Annoying Thing About Living with Antiphospholipid Syndrome (My Personal Experiences)
Here's what it's like living with Antiphospholipid Syndrome from a patient's perspective. APS can interfere with many foods and treatments.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 23/06/2026
Needing help doesn't make you a burden. Your illnesses are not something to be put up with. #YouAreWorthyOfLove — and Beverley at Blooming Mindfulness writes about this with such honesty and warmth, including what it took her to finally believe it herself. buff.ly/BHFPMgq
bloomingmindfulness.co.uk
You Are Worthy of Love -
You are worthy of love when you are disabled, so many of us struggle to realise or believe this, but I think we need to change that
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 19/06/2026
#AccessibleFitness isn't just a nice-to-have — it's a barrier that stops a lot of disabled people from exercising at all. This post from My Rockin' Disabled Life breaks down exactly what needs to change, from better workout modifications to more affordable apps. buff.ly/ryKOkwm
myrockindisabledlife.com
How Can You Make Fitness More Accessible For Disabled People?
Exercise is just as important for disabled people as it is for non-disabled people, but it is more difficult when you are disabled because you have limitations and fitness is not accessible. Disabl…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 18/06/2026
Officially off my PPI for #hiatalhernia management after tapering for weeks. My stomach has opinions about this. The acid reflux I'd forgotten about has made a very unwelcome comeback. I know it's temporary. That doesn't make it less annoying.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 18/06/2026
Being on a #restricteddiet because of a #hiatalhernia and #gastritis is already a lot. Having to restrict even further during a transition period — when you already miss food you love — is a different kind of hard. Food is joy. Losing access to it, even temporarily, is a real loss.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 18/06/2026
On difficult days, #joy looks less like achievement and more like listening to your body, resting before you need to, and #slowingdown. Beverley at Blooming Mindfulness writes about the quiet shift that happens when you stop fighting and start finding the small moments instead. buff.ly/ymYx0cE
bloomingmindfulness.co.uk
Finding Small Joys on Difficult Days -
finding joys on difficult days is so important, joy looks less like achievement, and more like listening, resting, and slowing down.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 17/06/2026
The signals your body sends before a flare rarely feel like symptoms. They feel like it's just a bad day. That's the whole problem. New post: www.thethrivingspoonie.com/the-body-sig...
thethrivingspoonie.com
The Body Signals Chronic Illness Taught Me to Stop Ignoring
Your body sends early warning signals before a flare, but chronic illness makes them easy to miss and hard to trust. Here's what to look for.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 16/06/2026
#AntiphospholipidSyndrome affects women in ways that go far beyond clotting — pregnancy, miscarriage, birth control, menstruation, menopause. Sheryl Chan at A Chronic Voice has researched it all and written a thorough, patient-perspective guide that covers it from every angle. buff.ly/9c5OxXQ
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Pregnancy, Miscarriage & Women's Health in Antiphospholipid Syndrome
Learn all about women's health in Antiphospholipid Syndrome, from pregnancy to miscarriage, birth control, menstruation, menopause and more.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 12/06/2026
Whether you're brand new to #blogging or looking to level up, this post from Kate Mitchell at Kate the (Almost) Great walks through her whole process for writing a blog post — including why health bloggers do things differently than most. buff.ly/qvryAQ0
katethealmostgreat.com
Writing a Blog Post: Tips You Need
Obviously, an important part of being a blogger is writing a blog post. Whether you’re a brand new blogger or an expert one looking to improve your skills, this post will help you better understand…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 11/06/2026
"You're so lucky — I wish I were always on vacation." 😤 If you're #disabled, you've probably heard this one. My Rockin' Disabled Life breaks down exactly why disability and vacation couldn't be more different. buff.ly/Iox4Ozf
myrockindisabledlife.com
Is Disability Like Being On Vacation?
When you are disabled, you are constantly learning how to navigate ableist comments because non-disabled people are always saying, and most of the time I don’t think it’s intentional. O…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 09/06/2026
Summer and chronic illness: the heat drains you before the day starts, the social calendar fills up while your capacity doesn't, and the comparison is everywhere. You're not failing at summer. Check out this week's post:
thethrivingspoonie.com
Summer With Chronic Illness: When You Have No Energy
Chronic illness summer fatigue is real. Here's what it feels like when everyone else has energy you don't — and what actually helps.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 09/06/2026
A good day with #chronicillness doesn't mean symptoms disappear — it means they're quieter. Beverley at Blooming Mindfulness captures exactly what that feels like, and why "you seem well today" misses the point entirely. buff.ly/3YffhnM
bloomingmindfulness.co.uk
What a “Good Day” Really Means With Chronic Illness -
As someone who has lived with chronic illnesses for over twenty years, I know that ‘good days’ often come with people assuming I am well. People saying I am looking better, or I seem well today do…
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 05/06/2026
Hard weeks are allowed to just be hard. You don't have to reframe it, find the lesson, or bounce back faster. Sometimes #rest and #recovery is the whole plan.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 05/06/2026
#Fibromyalgia is already hard to get diagnosed, and for men, there's a double layer of stigma on top of it. This guest post on A Chronic Voice features Stephen White sharing his experience and the unique challenges men with fibromyalgia face that don't get talked about nearly enough. buff.ly/fKgAWbj
achronicvoice.com
Men with Fibromyalgia & the Unique Challenges They Face
Read as Stephen White shares more about the unique challenges that men with fibromyalgia face, in addition to being undiagnosed as a young adult.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 04/06/2026
Navigating get-togethers with a #chronicillness that has dietary restrictions and zero control over the food is its own kind of exhausting. You want to be present. You're also running a silent risk assessment on every dish at the table. Both things at once, always.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 04/06/2026
#SelfCare doesn't have to be expensive, aesthetic, or aspirational — especially on low spoon days. Beverley at Blooming Mindfulness makes the case for a softer version: less fixing ourselves, more just being gentle with what we have left. buff.ly/dgowaFq
bloomingmindfulness.co.uk
The Softest Version of Self-Care on Low Energy Days -
It's often presented as something productive, aesthetic, or aspirational, but let’s try the softest version of self-care on low energy days.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 03/06/2026
Woke up in the middle of the night with a #gastritis flare with no idea what triggered it. This is the part nobody talks about — when you've done everything right, and your body does whatever it wants anyway. Chronic illness doesn't always follow the rules.
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April Smith | The Thriving Spoonie @thethrivingspoonie.com · 02/06/2026
#Burnout in a chronically ill body doesn't come with a dramatic crash. It's quieter — less than usual, rest that doesn't help, no flare to explain it. New post on what it actually looks like and why it's so easy to miss. www.thethrivingspoonie.com/how-burnout-...
thethrivingspoonie.com
How Burnout Looks Different When You Have a Chronic Illness
Burnout looks different when you have a chronic illness. Here's what it actually looks like — and why it's so easy to miss.
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