iiinova — where your digital self keeps evolving

Wheelie Out There @wheelieoutthere.bsky.social · 03/10/2026

Does anyone else do this too?: "For the sake of others,…I pretend everything is OK, even when it’s not. Sometimes I find it easier to edit my truth rather than" explain how I am. The writer finds she's gotten good at the art of pretending — even to herself. tinyurl.com/3smkb4xn #MultipleSclerosis

tinyurl.com

I do a lot of pretending while living with MS

Columnist Desiree Lama says that sometimes it's easier to convince herself that living with MS is all rainbows and butterflies.

000

Wheelie Out There @wheelieoutthere.bsky.social · 01/10/2026

Tomorrow at Noon ET — "Ask an MS Expert: Open Enrollment for #Medicare" Find the best, most affordable drug coverage for you. Featuring Beth Scott of the nonprofit Patient Advocate Foundation, an expert at helping people find the health care they need. Link: tinyurl.com/5f7vpndu #MultipleSclerosis

000

Wheelie Out There @wheelieoutthere.bsky.social · 26/09/2026

The people who create #access for us also need our support. Nancy and her #disability rights advocacy group ADAPT are raising funds starting today. Our rights are under attack like never before. #ADAPT fights for us. tinyurl.com/2wdefhwa

tinyurl.com

They're fighting for us!

Here's a chance to give back to those who create access. For over 45 years, disability rights advocates like Nancy Crowther have changed the...

000

Wheelie Out There @wheelieoutthere.bsky.social · 24/09/2026

FIGHTING FOR US! Nancy Crowther & ADAPT are raising money to keep their grassroots #disability advocacy alive. Nancy was chaining herself to transit buses 40 yrs ago to get them accessible. Now she's making sure #ADAPT is ready to fight attacks on rights coming from this govt. tinyurl.com/4sttj85c

000

Wheelie Out There @wheelieoutthere.bsky.social · 24/09/2026

Every autumn I used to get an enormous burst of energy. Now I just get chilly (but it's still beautiful). #MultipleSclerosis #MightyTogether

000

Wheelie Out There @wheelieoutthere.bsky.social · 23/09/2026

TDo you need a computer? The National MS Society, in partnership with Human-I-T, can help! To get more information or get signed up, contact an MS Navigator by calling 1-800-344-4867 or go to www.nationalmssociety.org/resources/ge... #MultipleSclerosis #MightyTogether

001

Wheelie Out There @wheelieoutthere.bsky.social · 19/09/2026

If you're a #wheelchair user, have use of 1 hand, or have trouble standing, you can play pinball w everyone else w the Adaptive Flipper Control. Designed by a stroke survivor, it costs only $35, or play #accessiblepinball at The Game Preserve arcades in Houston. #Disability tinyurl.com/3av859h4

tinyurl.com

Making Pinball Accessible for Everyone

Man, it's hot out here, and a good time to hang out in an air-conditioned arcade. Who doesn't like playing some old-school pinball? The only...

010

Wheelie Out There @wheelieoutthere.bsky.social · 18/09/2026

Tracey W. of Mount Vernon, NY, had never seen people living with #MultipleSclerosis represented onstage. So, she wrote and staged a play doing just that. UNBROKEN VOICES shares authentic stories and people living with MS, raising awareness and helping audiences better understand life with MS.

010

Wheelie Out There @wheelieoutthere.bsky.social · 17/09/2026

Thurs. 9/16/26 : Ask an MS Expert: The Importance of Diet and Nutrition for MS (Spanish Program) :12-12:30 PM ET Nutritionist Wanda González talks about impact of diet on #MultipleSclerosis. She discusses recent studies, and improving the health of racial & ethnic minorities. tinyurl.com/3tp7hjxv

000

Wheelie Out There @wheelieoutthere.bsky.social · 14/09/2026

"If it were possible, I think I’d tell my past self not to be caught off guard by #depression." #MultipleSclerosis #disability

011

Wheelie Out There @wheelieoutthere.bsky.social · 08/09/2026

Bob Wagner is hearing impaired. His wife Kristen has #multiplesclerosis. Their marketing agency Doable is the 1st led by & centering people w #disabilities. “We...help consumers w disabilities have a voice." Doable's work shows businesses the diversity & creativity of the disabled community. 1/2

120

Wheelie Out There @wheelieoutthere.bsky.social · 04/09/2026

Diagnosed with #MultipleSclerosis in high school, now Stacy is starting med school on her way to becoming a neurologist. Someday she'll be treating others with MS. Read her powerful article, "Turning a diagnosis in high school into a career." tinyurl.com/mpedj6rs #caregiver 2/2

nationalmssociety.org

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.

041

Wheelie Out There @wheelieoutthere.bsky.social · 04/09/2026

Kids get MS too — Pediatric MS resources "Once I educated myself about MS, my fears lessened, and I knew I could turn my diagnosis into something positive." Stacy Hirsch, dxed in high school. MS Society offers info, coping resources & connections: tinyurl.com/4xetpbju #MultipleSclerosis 1/2

011

Wheelie Out There @wheelieoutthere.bsky.social · 03/09/2026

PRO: Helps me relax and sleep soundly at night with MS. CON: A disaster any other time of day. The tiniest dose sends me to Couchlock Land. #MultipleSclerosis #marijuana #disability

120

Wheelie Out There @wheelieoutthere.bsky.social · 27/08/2026

You are not alone. Come find community and support. 8/27/26 @ 8 PM ET Email newtoms at nmss.org for details. Share common experiences and concerns. Get info on ways to live well with #MultipleSclerosis. #Caregivers and friends welcome too.

020

Wheelie Out There @wheelieoutthere.bsky.social · 26/08/2026

Women With MS in the Workplace: the next Ask an #MultipleSclerosis Expert, 8/27/26, 12:30 PM ET Dana Foote of KPMG US tells her story & the realities of women navigating career + chronic illness. Also lessons learned on resilience, self-advocacy & more. Connect: tinyurl.com/mhm7bya4 #disability

010

Wheelie Out There @wheelieoutthere.bsky.social · 20/08/2026

8/20/26 12p.m. ET Ask a #MultipleSclerosis Expert (in Spanish) — Managing 'Invisible' Symptoms People like my friend Diane, who has worsening icy feeling on her face/hands, get pushback from those around her, healthcare professionals and even others with MS. … 1/2

tinyurl.com

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.

110

Wheelie Out There @wheelieoutthere.bsky.social · 20/08/2026

Spider-Man: BND & The Odyssey: big movies on big IMAX screens = big summer fun, right? Unless you're a #wheelchair user & the "accessible" seats are more like a big pain in the neck, literally. My experience: tinyurl.com/4zrrf85z #disability

tinyurl.com

A pain in the neck: The odyssey for decent, comfortable IMAX ADA seats

Last week my friends and I went to the show. When the movie let out, the lobby was swamped with people. They were lined up everywhere. At fi...

000

Wheelie Out There @wheelieoutthere.bsky.social · 19/08/2026

Hispanic MS Summit, 8/19/26 1 PM ET — Diversity in Research: Why It Matters & How to Get Involved #multiplesclerosis research is important to the #Hispanic community. You can make a difference. Program can be viewed later online. Sign up: tinyurl.com/3rf5jxxj Feat. neurologist Alejandra D. Ramirez.

000

Wheelie Out There @wheelieoutthere.bsky.social · 14/08/2026

I shambled and got dragged by my girlfriend a half-mile back to the car. Sat in the car air conditioning afterward. Good thing I had my first appointment with a neurologist scheduled back home. Also, married that girl! 2/2 #MultipleSclerosis #disability

010

Wheelie Out There @wheelieoutthere.bsky.social · 14/08/2026

#MultipleSclerosis summer meltdown stories — How does summer heat affect you? Got any true-tales or words of caution for others? My girlfriend & I took an easy 1-mile hike in Smoky Mtns. one May. When we started, I felt perfect. Halfway through, my mind grew foggy & my legs wobbly. 1/2 #disability

020

Reposted by Wheelie Out There

elizabethodr CTblueSky🦋🔆 🍀 @elizabethodr.bsky.social · 13/08/2026

bsky.app/profile/blue...

415727

Wheelie Out There @wheelieoutthere.bsky.social · 12/08/2026

Learning how to recognize relapses & what to do when they occur can help us feel more prepared. Join Gabriela Karolidis, DO, board-certified neurologist & neuroimmunologist, who discusses the role that relapses play in #MultipleSclerosis & how to navigate them. 2/2 Connect at tinyurl.com/hh9y3d3r

000

Wheelie Out There @wheelieoutthere.bsky.social · 12/08/2026

Thurs. 8/13/26, at Noon, ET — Ask an MS Expert: "Understanding MS Relapses" Relapses are one of the biggest wildcards when living with #MultipleSclerosis. Those internal thoughts we have: "Is this a couple bad days in a row — or is it a relapse?" 1/2 Connect at tinyurl.com/hh9y3d3r

000

Wheelie Out There @wheelieoutthere.bsky.social · 11/08/2026

Thurs. 8/13 virtual program — New to #MultipleSclerosis: Navigating Your Journey Program 8 PM ET, 75 min. Space is limited, and programs regularly reach capacity. Reserve your place: tinyurl.com/4aja4td2 1/2

110

Wheelie Out There @wheelieoutthere.bsky.social · 08/08/2026

Wed., 8/12/26 — The Black MS Summit Presents “Diversity in Research: Why It Matters & How To Get Involved” 12-1:15 pm CT / tinyurl.com/44t7ude9 MS research is important to the Black community. This program explores why your participation matters & how to get involved. #MultipleSclerosis #disability

010

Wheelie Out There @wheelieoutthere.bsky.social · 07/08/2026

So much of my #disabilty life is about losing time: the waiting, the slower pace, the obstacles, the need to do things more than once. When I can move quickly, it’s exhilarating, it's empowering. The MouthPad lets me to do this. My new blog: tinyurl.com/bdcnbd9p Pic: Multitasking with my MouthPad.

tinyurl.com

A Taste of the Future? Reviewing Augmental’s MouthPad^ Wearable Controller

Through a combination of frugality and needs, I long ago landed on a combination of speech recognition and a mouthstick to do my writing and...

010

Wheelie Out There @wheelieoutthere.bsky.social · 06/08/2026

"Recovery has been one of the hardest things I’ve ever faced — and I’ve always been a tough cookie — but every bit of progress feels like a win," she says. "This year, simply showing up at the MS Hike feels like a celebration of strength, connection, and hope." #MultipleSclerosis #disability 3/3

030

Wheelie Out There @wheelieoutthere.bsky.social · 06/08/2026

Clare used to do the MS Walk–Denver to support a friend. Then in 2024 she got an #MultipleSclerosis diagnosis of her own. In 2025 she got encephalitis due to West Nile Virus & was hospitalized 41 days. Over months of rehab afterward she relearned basic tasks like how to walk again. #disability 2/3

010

Wheelie Out There @wheelieoutthere.bsky.social · 06/08/2026

Clare Johnson at the MS Hike: "I can still take the gondola up, breathe in the mountain air & stand among people who truly understand the fight." "Resilience isn’t about doing things the way you used to; it’s about finding new ways to keep moving forward." #disability 1/x

000

Wheelie Out There @wheelieoutthere.bsky.social · 05/08/2026

Medical Cannabis for #MultipleSclerosis -- this Thursday's episode of Ask an MS Expert, 8/6/26 at 12–12:30 p.m. ET Michelle Cameron, MD, a neurologist, PT & prof. at Oregon Health & Science U., talks about benefits & risks of mmj. Originally aired Nov. 2023. Links: tinyurl.com/n2dsfskf #disability

010

Wheelie Out There @wheelieoutthere.bsky.social · 01/08/2026

Controlling your computer and phone — with your tongue? I'm using the MouthPad, a new device that is a dental retainer w a touchpad embedded in it. With the flick of my tongue, I can control the AC, turn lights on and off, and write this post to you right now. My review: tinyurl.com/yrw925mz 1/2

tinyurl.com

A Taste of the Future? Reviewing Augmental’s MouthPad^ Wearable Controller

Through a combination of frugality and needs, I long ago landed on a combination of speech recognition and a mouthstick to do my writing and editorial work. I am a C4 quadriplegic with multiple…

000

Wheelie Out There @wheelieoutthere.bsky.social · 26/07/2026

It's a fact: #Disability affects us all at some point in our lives — through age, disease, accident or because it affects a loved one. What affects people with disabilities, affects us all. What helps people with disabilities, helps us all. Be an ally, be an advocate. #Disability Pride Month. 2/2

000

Wheelie Out There @wheelieoutthere.bsky.social · 26/07/2026

My grandpa used a wheelchair in the '70s bc of post-polio, & nothing in public was accessible to him. I use a wheelchair today due to #MultipleSclerosis, & I can get into most places, & Zoom when I'm at home. The difference is the ADA, signed 36yrs ago & July is #Disability Pride Month. 1/x

030

Wheelie Out There @wheelieoutthere.bsky.social · 24/07/2026

Here's a fancy one ... I'm sure you can leave out an ingredient or two and it's still yummy — Mango, Pineapple, & Peach Chia Seed Smoothie -- tinyurl.com/mrx7nes5 Stay cool, my friends. 2/2 #MultipleSclerosis #disability #smoothie #heat

000

Wheelie Out There @wheelieoutthere.bsky.social · 24/07/2026

My neuro says one reason smoothies cool so well is bc when you drink, the cold travels alongside your spinal column, helping relieve inflammation. Well, plus it tastes good, so you wanna drink more! Here's a recipe that sure looks good — 1/x #MultipleSclerosis #disability #smoothie #heat

110

Wheelie Out There @wheelieoutthere.bsky.social · 23/07/2026

I'd tell my younger self to relax and trust a little more. There are allies and angels everywhere if you'll only let them in. #MultipleSclerosis #MightyTogether #caregiving #ChronicIllness #newlydiagnosed #autoimmune #disability

020

Wheelie Out There @wheelieoutthere.bsky.social · 20/07/2026

When I was newly diagnosed with MS, I was given little info or support, and suffered in silence. But remember, that *you* are not alone. Come find support and community —> New to MS Virtual Meetup, Thurs. 8 PM ET Email newtoms@nmss.org for details. #MultipleSclerosis #disability

000

Wheelie Out There @wheelieoutthere.bsky.social · 16/07/2026

#Disability photographer. His IG feed is so cool & fun.

010

Wheelie Out There @wheelieoutthere.bsky.social · 16/07/2026

4 Reasons Frozen Blueberries & Grapes Are Your Summer Besties: 1. Leave them in the bag & they are a shape-conforming cold pack. 2. Pop them in your mouth as cold treats for instant cooling. 3. Tons of nutrients & antioxidants. 4. They're just yummy. #multiplesclerosis #disability #caregiving

230

Wheelie Out There @wheelieoutthere.bsky.social · 15/07/2026

Ask an MS Expert: Progressive MS en Espanol, Thurs., 7/16/26 at 12–12:30 p.m. ET Spanish-language program on PPMS & its management, w neuro Vanessa Marín Collazo, MD, of Mayo Clinic Hospital in Jacksonville, FL. Prerecorded. Links: tinyurl.com/dn8sr82t #MultipleSclerosis #caregiving #disability

010

Wheelie Out There @wheelieoutthere.bsky.social · 12/07/2026

Actor & #caregiver Gary Sinise on difficult times, suffering, strength and hope. Saw him & his Lt. Dan Band play a twilight gig for thousands of vets yesterday at beautiful Cantigny Park. Sinise reads Romans 5:3-5. tinyurl.com/y599d9v6 #MultipleSclerosis #caregiving #disability 1/2

110