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Princess in the Tower @apainprincess.bsky.social · 2h

“Confined to my bed… #Pain and illness are insidious… You hurt, you’re sick; you can’t leave the house. #Anxiety develops. The claws of #depression come out… Hours pass; it could be minutes… feeling every microsecond in the small fibers of your body.” buff.ly/IFhazBV #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 18h

“There is still a part of me that wants to push through, to pretend I can manage what I had planned and refuse to let my symptoms dictate my day… The acceptance can feel like a loss. But it can also be an act of #kindness towards myself.” buff.ly/x6hwpg4 #PainAwarenessMonth #ChronicallyIll

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Princess in the Tower @apainprincess.bsky.social · 29/09/2026

“Never in my life did I think that taking a shower would actually be hard. It’s an exhausting activity that usually requires me to sit or lie down for a while afterward to recover.” Challenging Daily Decisions buff.ly/4d11C5j #PainAwarenessMonth #Disability #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 29/09/2026

“People who see us ‘able’ to carry out activities are oblivious to the pain involved, aftermath or inability to repeat that activity. The swift flare from ‘normal’ pain to being entirely unable to speak can also be perplexing.” buff.ly/3XV4FYt #PainAwarenessMonth #CentralPain #NervePain

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Princess in the Tower @apainprincess.bsky.social · 28/09/2026

“We’re not being anti-social, we’ve probably just run out of spoons…our able bodied counterparts have an infinite number of spoons, a person with #disability does not. Every little action, movement or choice costs a spoon.” buff.ly/3ORzK9u #PainAwarenessMonth #InvisibleIllness #spoonies

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Princess in the Tower @apainprincess.bsky.social · 28/09/2026

“The myth that doctors “overprescribing” prescription pain pills…led to the overdose crisis… Data from CDC and NSDUH reveal no correlation between the volume of painkiller prescriptions and non-medical use or addiction to prescription painkillers.” buff.ly/3Vp8WT4 #cpp

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Princess in the Tower @apainprincess.bsky.social · 27/09/2026

“I spend everyday in excruciating pain…I’m sensitive to light and noise, simple tasks are hard… My short term memory is bad… #CRPS is a horrid disease… Don’t allow someone else to minimize your journey—every warrior is a warrior.” buff.ly/47Ed0CT #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 27/09/2026

“If you have someone in your life who struggles with an #invisibleillness just remember they probably do their best to look or act ‘normal’… Even simple things can set us back for the rest of the day… or sometimes even for weeks.” buff.ly/LXFELL3 #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 27/09/2026

“We never get to see people living with pain or #disability because—guess what? They can’t leave their houses. #PainFlare-ups can also be unpredictable. You might make plans and then have to say, ‘I’m sorry, but I can’t manage this today.’” buff.ly/bsuSn1A #chronicillness

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Princess in the Tower @apainprincess.bsky.social · 26/09/2026

“It’s not just pain. It’s being completely exhausted… It’s being nauseous and having no appetite… It’s spending most of my day in a dark, silent room because lights, sounds, even smells hurt. It’s not being able to think straight because of #brainfog.” buff.ly/3MQk1Xz #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 25/09/2026

“If you struggled to shower today; if you can’t get out of bed because the #pain is so bad…if you’re crying at 2am because you can’t handle the severity of your pain… know #YouAreNotAlone—We are all warriors, fighting battles nobody sees or understands.” buff.ly/41oeKLO

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Princess in the Tower @apainprincess.bsky.social · 25/09/2026

“Living with #ChronicPain isn’t just about living with pain. The #fatigue that pain brings is beyond comprehension. Then there’s the loneliness and hopelessness. Stress, #anxiety and #depression… It steals so much from us.” buff.ly/vFLiGfP #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 24/09/2026

“I wish people understood that I’m not lazy… And if I do participate in a physical activity I will ‘pay for it’ for days or possibly weeks with additional pain and/or exhaustion… When I say I can’t, I really can’t.” buff.ly/3N11Nnl #PainAwarenessMonth #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 22/09/2026

“One day I am fully capable of a task while the next day I struggle with generally simple things like brushing my teeth or getting dressed… Your abilities change dramatically from one day to the next.” www.themuse.com/advice/working-livi… #ChronicIllness #Disabilities

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Princess in the Tower @apainprincess.bsky.social · 21/09/2026

“Those of us with #ChronicPain wake up every day with pain. This automatically causes a problem with the standard pain scale… Some of us never have a zero… People who don’t have chronic pain often have a hard time understanding that.” buff.ly/DV4J65r #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 20/09/2026

“Nobody can really “get” what any #chronicillness, pain condition or other #disability is like, how it feels or how it truly impacts life unless they’ve experienced it for themselves… Even then the experience is unique to the individual.” ~ InvisiblyMeBlog buff.ly/2tTxET6 #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 20/09/2026

“People with #ChronicPain learn to function while in enough pain to send a person to the ER… They learn to act relatively normal because it makes most uncomfortable to see someone in pain… that day they were stuck in bed, in tears from intolerable pain.” buff.ly/3X7OBAC #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 19/09/2026

“One of the most frustrating aspects of living with #chronicpain is not being able to achieve what we’d like to… we tend to berate ourselves… We put pressure on ourselves to do more than we’re capable of. That pressure turns to #stress.” buff.ly/VFVMtlQ #PainAwarenessAMonth

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Princess in the Tower @apainprincess.bsky.social · 19/09/2026

“#ChronicIllness can make you feel worthless… Many of us lived fast-paced lives before…running around, full of life…to struggling to get out of bed… It may make you feel upset with your appearance but nobody can take your inner beauty—You are worthy.” buff.ly/3XzCLAI #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 18/09/2026

“My skin’s excruciating to the touch and my nerve endings are ablaze in a fury of a 1000 bee stings… My joints are on fire as if acid’s coursing through them… As I move my fingers to write this—they’re screaming… begging me to stop.” buff.ly/3MpF5E5 #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 18/09/2026

“It’s a day-to-day battle… a lot of the time it feels more like just surviving… Pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” buff.ly/4dIwA33 #PainAwarenessMonth #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 17/09/2026

“Years of constant #ChronicPain can make us masters in the skill of hiding it. Just as we struggle with a condition that is so all encompassing, others may find it hard to comprehend as they cannot see the pain we become so adept at hiding.” buff.ly/4es4d9a #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 10/09/2026

“It’s not our place to judge how another copes with their #diagnosis… How [it] affects one person can be drastically different from another—neither are wrong… What you share is for you to determine… None of us owe anyone the full picture of our health.” buff.ly/IrXM0b3 #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 10/09/2026

“What I need you to know when I don’t reply is that I’m doing my best. I know it may not seem it…if your message stays unread. Or worse—read but not responded to. I know you probably think it makes me rude but it’s simply as I have nothing left.” buff.ly/4gbE40b #chronicillness #chronicpain

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Princess in the Tower @apainprincess.bsky.social · 09/09/2026

“The rug’s been pulled out from beneath you—so give yourself time to mourn… You may lose friends [who] don’t “get it.” You may have to adjust…but you’re likely to gain new friends who don’t care if you’ve not been able to blow-dry your hair since 2007.” buff.ly/3TDw4vD

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Princess in the Tower @apainprincess.bsky.social · 09/09/2026

“When we live with pain, we soon learn that everything we do comes with a cost… That cost is more pain, often accompanied by #fatigue. That lovely gift for simply having a shower, making a meal or visiting a relative can last for hours, days—even weeks.” buff.ly/ICwc4lY #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 08/09/2026

“So many people don’t know that this is my life. Weekly doctor visits and tests… No matter what, just gotta smile through it… I’m happy just to finally have my #diagnosis.” themighty.com/topic/chronic-illness… #ChronicIllness #ChronicPain

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Princess in the Tower @apainprincess.bsky.social · 07/09/2026

“People with #ChronicPain don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness buff.ly/2QDK9qf #PainAwarenessMonth #RareDiseases

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Princess in the Tower @apainprincess.bsky.social · 07/09/2026

“Every #ChronicIllness and pain patient does not know, from day-to-day, how they are going to feel when they wake up and each day has to be taken as it comes. In many cases, they don’t know from minute to minute.” cme.sh/19oQre @apainprincess.bsky #PainAwarenessMonth #IntractablePain

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Princess in the Tower @apainprincess.bsky.social · 06/09/2026

“We don’t want to sound like we’re complaining… This is why most #chronicillness warriors aren’t vocal about their struggles… but please keep in mind that there’s a huge difference between feeling that way once or feeling that every day of your life.” buff.ly/3IaJj0f #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 06/09/2026

“I’m practically #bedbound so going anywhere is a huge production. Just leaving my house results in a multi-day setback. Having to for multiple days and stay somewhere unfamiliar? It can wreck me.” www.disabledginger.com/p/what-if-th… @broadwaybabyto.bsky.social #disability

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Princess in the Tower @apainprincess.bsky.social · 05/09/2026

“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love themighty.com/2017/06/chronic-pain-… #PainAwarenessMonth #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 05/09/2026

“People with chronic pain live through this night after night. It can become a harrowing cycle, since a lack of sleep can ramp up pain levels, which results in another wide-awake night — even when we take our medication.” buff.ly/2yajY29 #PainAwarenessMonth #ChronicPain #Painsomnia

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Princess in the Tower @apainprincess.bsky.social · 04/09/2026

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Princess in the Tower @apainprincess.bsky.social · 04/09/2026

“The real hardships come from the repercussions of being in #pain all the time—the exhaustion, mental blur, inability to connect… because of the constant blinding discomfort… Even the simplest things become so complicated.” www.theodysseyonline.com/why-does-n…

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Princess in the Tower @apainprincess.bsky.social · 03/09/2026

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Princess in the Tower @apainprincess.bsky.social · 03/09/2026

“There are millions of #patients who have taken #opioids safely for years… Opioids actually gave them more life, because they were able to work, exercise and function when their pain was properly managed.” buff.ly/44n9aec @PainNewsNetwork.bsky #ChronicPain #CRPS

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Princess in the Tower @apainprincess.bsky.social · 02/09/2026

“Your pain scale shifts when you have chronic pain. When doctors ask what your pain is on a scale of 1-10, I had to ask, 'your 1-10 or mine?'” 23 Things That Help You Understand What #ChronicPain Is Really Like www.buzzfeed.com/anthonyrivas/chron… #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 01/09/2026

“You don’t ever get a break from chronic pain. #ChronicPain is a vicious cycle, and wears you out to your core. Not only does everything hurt, but you also are always so incredibly tired from not being able to sleep, you don’t get good rest.” buff.ly/2z8ll20 #Painsomnia #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 31/08/2026

“As the world outside continues to turn, I remain laid up in the one thing that eases any physical pain. The mental pain it causes however hurts much more.” What It's Really Like to Stay in Bed Due to Pain themighty.com/topic/chronic-illness… #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 31/08/2026

“It can feel like #ChronicIllness is like living in a prison. Symptoms imprison you to spending a large amount of time at home… Your world becomes smaller and smaller, leading to loneliness and isolation.” Silent Symptoms buff.ly/3IhCuKh @despitepain.bsky #ChronicPain

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Princess in the Tower @apainprincess.bsky.social · 30/08/2026

“People who are not familiar with #chronicillness often don’t understand that energy levels in people with chronic illness are different from able-bodied people—and our usable hours in a day are different as well.” themighty.com/topic/fibromyalgia/ch… #spoonie

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Princess in the Tower @apainprincess.bsky.social · 30/08/2026

“The nerves misfire, sending constant #pain signals to the brain. The agony is so intense…it’s measured as one of the most severe on the McGill Pain Index… Yet because this is invisible, the impact on sufferers is not acknowledged or understood.” buff.ly/QLBmOQ2 #CRPS #ChronicPain #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 28/08/2026

“Look for beauty. No matter how awful it is, there is still beauty…your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” themighty.com/topic/fibromyalgia/fi…

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Princess in the Tower @apainprincess.bsky.social · 26/08/2026

“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness

cme.sh

Why Do I Pretend To Be Well?

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Princess in the Tower @apainprincess.bsky.social · 25/08/2026

“It demands our full attention, and it takes most of our energy—being in pain… Maybe you want to advocate for people with #ChronicPain — Maybe the pain has taught you something that you can put into #writing or #art or #poetry or #music or song.” themighty.com/2017/07/hope-and-chro…

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Princess in the Tower @apainprincess.bsky.social · 25/08/2026

“Being more honest and realistic about my limitations with #chronicillness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” buff.ly/W7IZIiT @carriekellenberger.bsky.social #MentalHealthMatters #YouAreNotAlone

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Princess in the Tower @apainprincess.bsky.social · 24/08/2026

“The way you keep fighting each day, through every struggle, shows such great strength. I see you getting back up, each time life knocks you down… To everyone one of you reading this, thinking “I am not enough”… You are, and will always be.” buff.ly/3zFCnVs #ChronicPain #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 24/08/2026

“Fatigue from pain is a different kind of #fatigue that you will never understand without living with it. People who are fatigued from pain don’t have the energy to do basic tasks… You can’t sleep and make it better.” buff.ly/F4yheHR #ChronicPain #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 23/08/2026

“Whether it’s the awful symptoms, the side effects, the isolation or the mental anguish that comes with being stuck in a body that you want a refund for. But together we are so much stronger. We will lift each other when one of us falls.” buff.ly/0XIC0HH #chronicillness #chronicpain

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