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ME Research UK @meresearchuk.bsky.social · 13h

@bsky.app ME Research UK's September e-newsletter has been sent to all on our mailing list. Also available on our website - tinyurl.com/yvnety7y - but why not sign-up to receive new issues directly? - tinyurl.com/mr45azsf

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ME Research UK @meresearchuk.bsky.social · 14h

October is Dysautonomia Awareness Month. Dysautonomia encompasses conditions that affect the autonomic nervous system, e.g. orthostatic intolerance (including PoTS), and can significantly impact quality of life. People with ME/CFS often report related symptoms. tinyurl.com/dysauto2026

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ME Research UK @meresearchuk.bsky.social · 28/09/2026

In the fourth deep-dive of our weekly Symptom Saturday series, we explored debilitating fatigue in ME/CFS – including lived experience, research insights, related diagnostic delays, and management. Read more: tinyurl.com/fatiguesympt... Survey: tinyurl.com/fatiguesurve...

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ME Research UK @meresearchuk.bsky.social · 24/09/2026

In case you missed it - Sleep dysfunction can feel like a heavy weight on top of an already debilitating condition. We have drawn together some of the common themes about the experience of sleep dysfunction from our recent survey. tinyurl.com/sleepdysmeim...

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ME Research UK @meresearchuk.bsky.social · 14/09/2026

In the third deep-dive of our Symptom Saturday series, we explored sleep dysfunction in ME/CFS – including lived experience, patterns of sleep disruption, and research suggesting challenges across the brain and nervous system. tinyurl.com/sleepdyssymp... Survey: tinyurl.com/sleepdyssurv...

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ME Research UK @meresearchuk.bsky.social · 09/09/2026

Cognitive dysfunction is an intense, deeply distressing symptom that can erode many aspects of life. Careers are impacted, hobbies become exhausting or impossible, and relationships grow strained under the weight of this symptom. tinyurl.com/brainfogimpa...

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ME Research UK @meresearchuk.bsky.social · 31/08/2026

In the second deep-dive of our weekly Symptom Saturday series, we unpacked the reality of cognitive dysfunction in ME/CFS – including lived experience, key insights from research spanning interconnected body systems, and comorbidities. tinyurl.com/brainfogsymp... Survey: tinyurl.com/brainfogsurv...

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ME Research UK @meresearchuk.bsky.social · 25/08/2026

Whilst every individual’s experience is unique, it is striking how many shared themes emerge across the PEM survey responses. When people from all walks of life describe similar physical experiences, it offers a powerful insights into ME/CFS. tinyurl.com/PEMimpactME

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ME Research UK @meresearchuk.bsky.social · 17/08/2026

In case you missed it - here is a link to the PEM Symptom Saturday article (tinyurl.com/PEMsymptomsat) and survey (tinyurl.com/PEMsurveyME). Survey closes Friday Midday. For earlier access to Symptom Saturday postings, keep an eye out on our website on Saturdays or follow us on FB or Instagram.

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ME Research UK @meresearchuk.bsky.social · 14/08/2026

Tomorrow, we’re kicking off Symptom Saturday – an ongoing series dedicated to taking an in-depth look at one core or additional symptom of ME/CFS at a time. Weekly, we will explore relevant research, guidelines, lived experiences, and management. Keep an eye out on our website: www.meresearch.org.uk

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ME Research UK @meresearchuk.bsky.social · 04/08/2026

A team of researchers recently published a manuscript in Nature Communications highlighting that muscle problems in long COVID and ME/CFS cannot be explained by prolonged inactivity. Press release: tinyurl.com/3zrppbuw ME Research UK is acknowledged as one of the funders.

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ME Research UK @meresearchuk.bsky.social · 16/07/2026

For ME Research Day 2026, ME Research UK have highlighted how collaboration and knowledge sharing are vital for accelerating discovery in ME/CFS research. Find out more: bit.ly/4p0oKZ1 #MEResearchDay2026

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ME Research UK @meresearchuk.bsky.social · 16/07/2026

Knowledge sharing is essential at all stages of ME/CFS research, spanning both career progression and the full scope of a project. Find out more: tinyurl.com/bdeefnz9 #MEResearchDay2026

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ME Research UK @meresearchuk.bsky.social · 16/07/2026

Collaboration plays a key role in many ME/CFS research projects, and is widely recognised for boosting productivity, accelerating innovation, and improving problem-solving. Learn more: tinyurl.com/ym4h9nyx #MEResearchDay2026

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ME Research UK @meresearchuk.bsky.social · 14/07/2026

For ME Research Day 2026, ME Research UK asked researchers working on projects funded by the charity for their experience of working collaboratively. Here is what they had to say: #MEResearchDay2026

Prof Godderis:

“Our work on ME/CFS clearly illustrates how progress depends on bringing together complementary expertise – from clinical research to molecular biology and patient-centred perspectives. Collaboration across institutions was essential to translate complex biological mechanisms into clinically relevant insights.”

Prof Godderis: “Close collaboration between research teams and specialised laboratories proved crucial. When initial analytical approaches did not deliver as expected, collaboration enabled us to pivot methodologically and continue generating meaningful results.”

Jolien Hendrix:

“The value of collaboration lies not only in combining knowledge, but in seeing the same problem through different eyes. Having this collaboration, we can have a strong methodological approach for lab analysis but still make it as relevant and feasible for people with ME/CFS”

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ME Research UK @meresearchuk.bsky.social · 14/07/2026

Yesterday marked the second ME Research Day, a day which was launched by ME Research UK in 2025 to mark 25 years since the foundation of the charity. This year, the focus of ME Research Day is ‘knowledge sharing and collaboration in ME/CFS research’. Find out more: bit.ly/3QdkJ6O #MEResearchDay2026

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ME Research UK @meresearchuk.bsky.social · 06/07/2026

For Research Appreciation Day 2026, ME Research UK's Researcher Circle is being opened up to all PhD students and early career researchers working on biomedical ME/CFS research projects. Find out more: tinyurl.com/2armp77c

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ME Research UK @meresearchuk.bsky.social · 06/07/2026

The 5th July 2026 marked Research Appreciation Day and ME Research UK would like to again extend a well done to all those working on ME Research UK-funded studies who have made great strides in their work: bit.ly/4olqfAF #ResearchAppreciationDay

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ME Research UK @meresearchuk.bsky.social · 06/07/2026

Yesterday marked Research Appreciation Day, celebrating the hard work of health researchers around the world. Therefore, we highlight the work ME Research UK is currently funding and celebrate the hard work of all researchers involved. tinyurl.com/28275z5y #ResearchAppreciationDay

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ME Research UK @meresearchuk.bsky.social · 03/07/2026

On securing major EU Horizon funding co-lead Prof Simon Carding says "My ME Research UK grant played no small part in developing and validating experimental protocols and bioinformatic pipelines that underpin studies proposed in DISCOVER-ME..." More - tinyurl.com/8spcke28

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ME Research UK @meresearchuk.bsky.social · 20/05/2026

For ME Awareness Week 2026, we discussed ME/CFS symptoms, impact, and research. For ease of access, these are links to our overview articles: ME/CFS symptoms and impact - tinyurl.com/MEAW26impact ME/CFS research - tinyurl.com/MEAW26research

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ME Research UK @meresearchuk.bsky.social · 18/05/2026

Many congratulations to Hollie Byrne, Sarah Knight and the team at Murdoch Children's Research Institute, whose research paper on hypothalamus connectivity in adolescent ME/CFS was recognised as a top viewed article for 2025 in the Journal of Neuroscience Research. bit.ly/4erLnPk

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ME Research UK @meresearchuk.bsky.social · 12/05/2026

In 2024, @MEResearchUK initiated the “Founders’ Science Writing Award”. This year, early career scientists are invited to discuss heterogeneity in ME/CFS research populations. Cash prizes for winning entries. More info: bit.ly/4tHXlwr #MECFS #MEresearch

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ME Research UK @meresearchuk.bsky.social · 11/05/2026

This week is ME Awareness Week (11th - 17th May 2026). ME/CFS is a complex and debilitating disease that significantly impacts the lives of affected individuals. Read more about the symptoms and impact of ME/CFS: tinyurl.com/MEAW2026

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ME Research UK @meresearchuk.bsky.social · 05/05/2026

ME Research UK currently has more than £2 million invested in 14 ME/CFS research projects across the globe. These cover a range of different scientific areas, and you can read more about them – and other recent studies – on our website: meres.uk/current.

An infographic illustrating the scientific and geographic range of research projects currently supported by ME Research UK

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ME Research UK @meresearchuk.bsky.social · 30/04/2026

ME Research UK's April e-newsletter highlighting our activities this month has been sent to all on our e-mailing list and is now available on-line - tinyurl.com/mvyyrefy

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ME Research UK @meresearchuk.bsky.social · 27/04/2026

Considering the prevalence of long COVID is a complex issue. In a series of articles, ME Research UK will take a closer, unbiased look at existing estimates, and, most importantly, the limitations of the studies that calculated them. Read more: tinyurl.com/2d67m2mu

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ME Research UK @meresearchuk.bsky.social · 13/12/2024

ME Research UK's charity year ended on 31 October and we want to take this opportunity to review what the last year has meant for us, focusing on our three key activities of Investing, Informing and Influencing. Thank you so much for your continued support bit.ly/3VmbD6W

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ME Research UK @meresearchuk.bsky.social · 09/12/2024

ME Research UK currently has £1.9m invested in 16 ME/CFS projects around the world, and in 6 areas. This work wouldn't be possible without the generosity of our supporters, including via the Big Give Christmas Challenge which runs until tomorrow bit.ly/biggivemeresearch24

Research projects 2024: £1.9 m invested, 16 projects, 6 areas, 7 countries

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