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Roberta Horgan

@horganroberta.bsky.social
324 followers 740 following 57 posts

Thriving with polyposis. Patient advocate and PPI rep Lynch Syndrome Ireland Group. Hereditary cancer awareness & support. Passionate about cancer research and PPI. Tries a bit of gardening 🌱🌺🐝

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Reposted by Roberta Horgan
Kevin Monahan @kevinmonahan.bsky.social · 27/11/2025
Diagnostic yield of colonoscopy in Lynch Syndrome We demonstrate a high adenoma burden with distinct phenotypic and gene-specific characteristics in a UK LS population undergoing high quality surveillance fg.bmj.com/content/earl...
fg.bmj.com
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International Society for Gastrointestinal Hereditary Tumours @insight-org.bsky.social · 25/11/2025
We’re proud to present the current Council members of The International Society for Gastrointestinal Hereditary Tumours (InSiGHT), driving progress in research, collaboration, and patient care worldwide. Learn more about us👉 shorturl.at/6cyJV #Genetics #GIHealth #HereditaryGICancer #InSiGHT
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Reposted by Roberta Horgan
International Society for Gastrointestinal Hereditary Tumours @insight-org.bsky.social · 27/11/2025
November is Pancreatic Cancer Awareness Month 💜 It’s the deadliest of the common cancers due to late detection. Researchers stress genetic testing - hereditary risk matters. Know your family history. Advocate for early detection. 💜 Read more 👉 shorturl.at/eKuTB #PancreaticCancer #GeneticTesting
shorturl.at
Genetic testing and pancreatic cancer: Why is it important?
By Eric Traub | Northside Hospital Cancer Institute Pancreatic cancer: arguably the most haunting pair of words in the medical world. Numerous high-profile people have succumbed to pancreatic cancer a...
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Reposted by Roberta Horgan
Sarah Fitzgibbon @sarahfitzwimin.bsky.social · 27/09/2025
I am constantly bouncing from imminent death to endless life (mostly metaphorically, but sometimes literally) and the push and pull of it is exhausting. www.medicalindependent.ie/comment/opin...
medicalindependent.ie
Appreciating the small things (but not all the time) - Medical Independent
Sometimes we need permission to be grumpy. What are the best things in life? A clear run of green traffic lights on your usual...
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The OncoAlert Network 🚨 @oncoalert.bsky.social · 16/10/2025
Day 2 of #ESSO44 in Gothenburg Sweden, Presentation by Dr. Jakob Hedberg of Uppsala🇸🇪 dMMR tumors in clinical practice? Do we have evidence for neoadjuvant strategy?
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Alfonso De Stefano @adestefano.bsky.social · 20/10/2025
Confirmed great data from #8HW trial at #ESMO25 with the combination NIVO+IPI confirms the standard of care option in 1st line MSI-H/dMMR mCRC patients @oncodaily.bsky.social
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Reposted by Roberta Horgan
Tony Collier BEM @ethansgrumps.bsky.social · 19/10/2025
Delighted with my presentation at #ESMO25 for @Medscape. It’s such a privilege to be given the patient voice and make the voices of the thousands of men that @TackleProstate support, heard. Now though I found a beer garden! Won’t be here long cos it’s freezing!
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ESMO - European Society for Medical Oncology @myesmo.bsky.social · 18/10/2025
#ESMO25: Clinically relevant survival benefits reported in platinum-resistant #OvarianCancer with pembrolizumab plus weekly paclitaxel with or without bevacizumab in ENGOT-ov65/KEYNOTE-B96 #ESMODailyReporter 👉https://ow.ly/MIjA50XeuR3 #immunotherapy
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Séamus O’Reilly MDPhD @seamusoreilly.bsky.social · 18/10/2025
#ESMO25 Wonderful to see so many ☘️ colleagues at @myesmo.bsky.social #ClimateChange task force meeting Encouraging to see such interest in 🌍 Sustainability 🌳 @cancertrialsie.bsky.social @irishdocsenv.bsky.social
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ESMO - European Society for Medical Oncology @myesmo.bsky.social · 19/10/2025
#ESMO25: Regular exercise has a significant impact on patient survival, but how can physical activity be integrated into the patient journey? Pr Michel Ducreux considers barriers and possible solutions. #ESMODailyReporter📌 ow.ly/zect50Xezeq #CancerCare #CancerManagement
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Cancer Trials Ireland @cancertrialsie.bsky.social · 19/10/2025
Powerful message from Dr Anne-Marie Baird (TCD, ILCC) at #ESMO25 on gender bias in cancer care: 🔍 Recognise – bias distorts outcomes 🔧 Redesign – integrate sex & gender in every step 📊 Report – transparency in data, trials & diagnostics #CancerEquity #PatientAdvocacy #LungCancer
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Jon Lim, FRCP PhD @drjonlim.bsky.social · 20/10/2025
🗞️ Check out my short #ESMODailyReporter editorial on early data from a first-in-human TCR-T therapy targeting KRAS G12V in advanced pancreatic & colorectal cancer, presented today by Dr Bai from Zhejiang University. #ESMO25 #CellTherapy #ESMOAmbassadors @myesmo.bsky.social
dailyreporter.esmo.org
First-in-human trial of a TCR-T therapy targeting KRAS G12V reports a significant response rate
Preliminary results of NW-301V are promising, with a lack of severe adverse effects at all doses tested in patients with pancreatic cancer or colorectal cancer
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Reposted by Roberta Horgan
ESMO - European Society for Medical Oncology @myesmo.bsky.social · 23/10/2025
#ESMO25: Are personalised #CancerVaccines the next frontier or an elusive goal? Catherine Wu discusses the exciting potential of genomics-guided personalised vaccines and some of the related challenges. #ESMODailyReporter 👉 ow.ly/aMxi50Xgn37 #ImmunoOncology
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CGA-IGC @cgaigc.com · 22/10/2025
🧬 October = National Family History Month! Read the blog📜👉 tinyurl.com/bdhjjv83 Reminding us that even in the era of🧬testing, 👪history is still the foundation of hereditary cancer care. Asking the right❓& sharing results can save lives across generations. #HereditaryGICancer
tinyurl.com
National Family History Month: A Reminder for Providers and Genetic Counselors!
October’s National Family History Month is an important opportunity to emphasize how family history drives cancer risk assessment, genetic referrals, and prevention. Even with growing access to geneti...
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CGA-IGC @cgaigc.com · 13/10/2025
📣Missed #CGAIGC25 this year? Catch the short discussion between Prof Sir John Burn & @swatipatelmd.bsky.social sharing long-awaited CaPP3 results, a follow-up to the landmark CaPP2 trial showing aspirin’s 💊role in lowering cancer risk in #LynchSyndrome 👉 tinyurl.com/msshdb5b #HereditaryGICancer
tinyurl.com
Baby Aspirin and Cancer Prevention in Lynch Syndrome: New CaPP3 Results
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
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UCAN Ireland @ucanireland.bsky.social · 23/10/2025
Congratulations to our UCAN Ireland members @miriamstaunton.bsky.social & @cynthiacravo.bsky.social on becoming EUPATI Fellows 🎉 A wonderful achievement and testament of your dedication to patient advocacy👏👏👏 #ExpertPatientVoices #CancerTherapeutics #Innovation #EUPATI
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RTÉ News @news.rte.ie · 22/10/2025
The Irish Cancer Society has said there is a complacent notion that Ireland is doing well in terms of cancer treatment.
rte.ie
Radiation therapy targets consistently missed, cttee told
The Irish Cancer Society has said there is a complacent notion that Ireland is doing well in terms of cancer treatment.
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Lynch Syndrome Ireland @lsireland.bsky.social · 16/09/2025
lynchsyndromeireland.com/2025/09/16/w...
lynchsyndromeireland.com
What to expect from the NHS Bowel Screening Programme for people with Lynch syndrome
If you live with Lynch syndrome, regular bowel screening is one of the most effective ways to reduce your risk of bowel (colorectal) cancer and catch problems early. The NHS Bowel Cancer Screening …
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Reposted by Roberta Horgan
Lynch Syndrome Ireland @lsireland.bsky.social · 14/09/2025
lynchsyndromeireland.com/2025/09/14/g...
lynchsyndromeireland.com
Gene-Specific Detection Rate of Adenomas and Advanced Adenomas in Lynch Syndrome
Colonoscopy is expected to reduce colorectal cancer (CRC) incidence in Lynch syndrome (LS) by detecting and removing adenomas. The existence of gene-specific differences in adenoma detection has be…
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Lynch Syndrome Ireland @lsireland.bsky.social · 11/09/2025
lynchsyndromeireland.com/2025/09/11/o...
lynchsyndromeireland.com
Occurrence of dMMR/MSI-H tumor during follow-up in Lynch syndrome patients treated with immune checkpoint inhibitors for metastatic digestive cancer
2015 and 2024: a retrospective analysis of a monocentric prospective cohort study Highlights Patients with LS treated with ICIs are at risk of metachronous dMMR/MSI-H cancers (8% of cohort). The mo…
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Lynch Syndrome Ireland @lsireland.bsky.social · 07/09/2025
lynchsyndromeireland.com/2025/09/07/g...
lynchsyndromeireland.com
Global epidemic of Young Onset Colorectal Cancer has arrived…
Epidemiology is the study of how often diseases occur in different groups of people and why.
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Lynch Syndrome Ireland @lsireland.bsky.social · 06/09/2025
lynchsyndromeireland.com/2025/09/06/r... @kevinmonahan.bsky.social
lynchsyndromeireland.com
Restrictive diets are unnecessary for colonoscopy: Non-inferiority randomized trial
In colonoscopy, preparation is often regarded as the most burdensome part of the intervention. Traditionally, specific diets have been recommended, but the evidence to support this policy is insuff…
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Reposted by Roberta Horgan
Lisa MG, RN @lmg622.bsky.social · 04/09/2025
September is #OvarianCancer Awareness Month, a time to spotlight a disease that remains one of the deadliest gynecologic cancers. In 2025, > 20,000 women in the U.S. will be diagnosed with OVCA, and roughly 60% of those diagnosed will die from it! #gyncsm #womenshealth #medsky #hereditarycancer
newswise.com
Ovarian Cancer Awareness Month: What Every Woman Should Know | Newswise
September is Ovarian Cancer Awareness Month, a time to spotlight a disease that remains one of the deadliest gynecologic cancers. To help raise awareness and share expert insights, Dr. Pedro T. Ramire...
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Lynch Syndrome Ireland @lsireland.bsky.social · 02/09/2025
lynchsyndromeireland.com/category/pre...
lynchsyndromeireland.com
Prevention – Lynch Syndrome Ireland
Posts about Prevention written by Lynch Syndrome Ireland
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Lynch Syndrome Ireland @lsireland.bsky.social · 01/09/2025
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Lynch Syndrome Ireland @lsireland.bsky.social · 30/08/2025
lynchsyndromeireland.com/2025/08/30/l...
lynchsyndromeireland.com
Lynch Syndrome UK – New Website
Check out their newly launched version….lots of information that you might find useful.
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Lynch Syndrome Ireland @lsireland.bsky.social · 28/08/2025
lynchsyndromeireland.com/2025/08/28/t...
lynchsyndromeireland.com
The diagnostic accuracy of the faecal immunochemical test(FIT) for the detection of early-onset colorectal cancer: an age-stratified analysis in South West England
The faecal immunochemical test (FIT) is a diagnostic triage tool for patients presenting with clinical features of CRC in primary care, though its performance in individuals under 50 years is not w…
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Digestive Cancers Europe @digestivecancerseu.bsky.social · 26/08/2025
Having reliable access to safe, affordable medicines 💊 is essential for everyone. We are urging policymakers to prioritise these issues and encourage manufacturers to produce the medicines in demand. ➡️ www.sandoz.com/makingaccess... #AccessToMedicines #HealthEquity @helloeacr.bsky.social
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Lynch Syndrome Ireland @lsireland.bsky.social · 22/08/2025
lynchsyndromeireland.com/2025/08/22/b...
lynchsyndromeireland.com
Bowel Cancer in Ireland:
Patients, Bowels, Basics, and BreakthroughsOn 11th & 12th September, RSCI is holding a bowel cancer event dedicated to patients, families, and the wider community affected by this cancer. PVCR …
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Reposted by Roberta Horgan
International Society for Gastrointestinal Hereditary Tumours @insight-org.bsky.social · 21/07/2025
👋 Welcome to InSiGHT on BlueSky! We are a global community of researchers, clinicians, and scientists dedicated to advancing the understanding, diagnosis, and management of hereditary GI cancers. Follow us for updates on scientific advances, clinical guidelines, and upcoming events. #InSiGHT
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Lynch Syndrome Ireland @lsireland.bsky.social · 24/08/2025
lynchsyndromeireland.com/2025/08/24/b...
lynchsyndromeireland.com
BETWEEN HOPE AND HYPE: WHAT CANCER BLOOD TESTS REALLY MEAN FOR PATIENTS
For us as advocates, the message is clear: celebrate the progress, but guard against the hype. Stories of individual breakthroughs are moving — but without long-term, carefully designed trials that…
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Reposted by Roberta Horgan
UCAN Ireland @ucanireland.bsky.social · 21/08/2025
"Patients are stakeholders. So why are we being sidelined? Every year, the NCPE Symposium brings together stakeholders to discuss issues surrounding how Ireland decides on access to new medicines. These are the medicines.." Read full article here 👇 www.ucanireland.ie/nothing-abou...
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OncoDaily @oncodaily.bsky.social · 03/08/2025
Arndt Vogel: New Insights Into Metachronous Colorectal Cancer Risk in Lynch Syndrome @arndtvogel.bsky.social oncodaily.com/science/arnd... #Cancer #Oncology #OncoDaily #Health #Medicine #ColorectalCancer
oncodaily.com
Arndt Vogel: New Insights Into Metachronous Colorectal Cancer Risk in Lynch Syndrome - OncoDaily
Arndt Vogel: New Insights Into Metachronous Colorectal Cancer Risk in Lynch Syndrome / Alexander Link, Andreas Block, Arndt Vogel, cancer, Christoph Engel,
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eJHaem Journal @ejhaem.bsky.social · 20/08/2025
The Intersection of Lynch Syndrome and Hematological Malignancies: A Rare Short Report onlinelibrary.wiley.com/doi/epdf/10....
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Lisa MG, RN @lmg622.bsky.social · 21/08/2025
Finding Support in Unexpected Places Through #HereditaryCancer Advocacy: Shout out to @brcaresponder.bsky.social #BRCA #LynchSyndrome #previvor #bcsm #gyncsm #womenshealth #genetics
curetoday.com
Finding Support in Unexpected Places Through Hereditary Cancer Advocacy
I share how my friendship with advocate Amy Byer Shainman helped me navigate hereditary cancer, showing that real support comes from empath and honesty.
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UCAN Ireland @ucanireland.bsky.social · 20/08/2025
Please help us to ensure that cancer patients across the Ireland have a voice at this important symposium 🙏 Thank you. #NothingAboutUsWithoutUs #UCANIreland #UnitedPatientVoice #NCPE #AccessMatters #StakeholdersNotSpectators
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UCAN Ireland @ucanireland.bsky.social · 20/08/2025
With NCPE Symposium fast approaching we ask that the most important stakeholders are treated as such... Patients should never be excluded or prohibited by costs to have a rightful seat at the table, one that decides what our lives are worth no less! #UnitedCancerVoicesIE
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Lynch Syndrome Ireland @lsireland.bsky.social · 18/08/2025
Clinical "noise" in medicine: it's not what you think myheartsisters.org/2025/08/10/c...
myheartsisters.org
Clinical “noise” in medicine: it’s not what you think
Noise is getting in the way of good medical practice and better patient outcome, warns Dr. Kamran Abbasi at the BMJ
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Lynch Syndrome Ireland @lsireland.bsky.social · 18/08/2025
lynchsyndromeireland.com/2025/08/18/b...
lynchsyndromeireland.com
Building Supportive Communities for Patients Navigating Cancer
Key Takeaways Stage 4 cancer patients often find more relevant information from peers than healthcare providers, highlighting the importance of community connections. The cancer community’s c…
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Lynch Syndrome Ireland @lsireland.bsky.social · 19/08/2025
lynchsyndromeireland.com/2025/08/19/c...
lynchsyndromeireland.com
Cancer Revolution Exhibition
WHAT YOU’LL DISCOVER Real stories from people affected by cancer Groundbreaking science that’s shaping the future of treatment Interactive exhibits that let you explore how cancer works The surpris…
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Lynch Syndrome Ireland @lsireland.bsky.social · 19/08/2025
lynchsyndromeireland.com/2025/08/19/p...
lynchsyndromeireland.com
Patients, Bowels, Basics and Breakthroughs
Very excited to share that @rcsi_irl ‘Patients, Bowels, Basics and Breakthroughs’ is back!!! This two day event is aimed at bringing together the patient & professional community to…
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Lynch Syndrome Ireland @lsireland.bsky.social · 20/08/2025
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Lynch Syndrome Ireland @lsireland.bsky.social · 10/08/2025
lynchsyndromeireland.com/2025/08/10/w...
lynchsyndromeireland.com
Who is responsible?
Is there anyone responsible for figuring this out, or is the whole system just going to drift into the future? Overall, the National Development Plan is not heavy on specifics. While it refers to t…
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Cancer Trials Ireland @cancertrialsie.bsky.social · 11/08/2025
🧡 Looking for trusted cancer support resources? Our website links to practical advice and services, mainly from the Irish Cancer Society, who also fund €1M/year in cancer research through Cancer Trials Ireland. 🔗 www.cancertrials.ie/patients/sup... #CancerSupport #IrishCancerSociety
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Kevin Monahan @kevinmonahan.bsky.social · 11/08/2025
Come and work with us! We are seeking a Regional #LynchSyndrome Nursing Lead band 8 for 12 months to provide teaching and training across North London #Genomics apps.trac.jobs/job-advert/7...
apps.trac.jobs
Regional Lynch Syndrome Nursing Lead | Job advert | Trac
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Lynch Syndrome Ireland @lsireland.bsky.social · 14/08/2025
lynchsyndromeireland.com/2025/08/14/p...
lynchsyndromeireland.com
Putting Early-Onset Colorectal Cancer on the Map
A recent survey reveals the extent of the issue: 75% of EOCRC patients saw at least two doctors before receiving a diagnosis, and 20% saw four or more. These delays, often driven by medical bias, c…
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Lynch Syndrome Ireland @lsireland.bsky.social · 15/08/2025
lynchsyndromeireland.com/2025/08/15/c...
lynchsyndromeireland.com
#Cancer Revolution
If you are in Dublin over the coming weeks, please call to @BreakthroCancer#CancerRevolution exhibition which opens today. Read the inspiring stories, get to see what is being done in #research. 1/…
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UCAN Ireland @ucanireland.bsky.social · 06/08/2025
📢 Local cancer centers across Ireland are calling on government to stand up and protect cancer survivors from discrimination when accessing financial products. Read their press release 📜 #RightToBeForgotton #UnitedCancerVoicesIE
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UCAN Ireland @ucanireland.bsky.social · 08/08/2025
🚨 MUST READ!! “Our doctors, nurses, hospital pharmacists and others have done everything they can to minimise waiting times. However, we simply don’t have enough staff, space, or equipment to cope and patients are paying the price." - Dr Michael McCarthy www.con-telegraph.ie/2025/08/03/a...
con-telegraph.ie
A Mayo View: A sad and shocking indictment of our cancer care services | Connaught Telegraph
A number of protests took place in Castlebar in 2008 over the decision to move cancer care services from Mayo University Hospital to a centre of excellence at Galway University Hospital.
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