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BRCAresponder

@brcaresponder.bsky.social
38 followers 56 following 45 posts

Advocate-Author-Film Producer BRCA, hereditary cancer > @lovedaniellefilm.bsky.social NEW TO BLUESKY! Active on IG, LinkedIn, FB

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Reposted by BRCAresponder
USA TODAY @usatoday.com · 16/05/2026
Jackie Tohn is opening up about a health scare and procedure she underwent after learning she had an 85% chance of getting breast cancer.
bit.ly
Jackie Tohn reveals she underwent double mastectomy after health scare
Jackie Tohn is opening up about a health scare and procedure she underwent after learning she had an 85% chance of getting breast cancer.
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BRCAresponder @brcaresponder.bsky.social · 19/05/2026
Watch the @sagaftra.org Foundation panel w/ LOVE, DANIELLE's Devin Sidell, Lesley Ann Warren, Jaime King, Raymond Cruz & Amy Byer Shainman, moderated by Jenelle Reilly. A film about BRCA, hereditary cancer, & the decisions that come with it. youtu.be/R7UbOGzE_AE #BRCA #HereditaryCancer #IndieFilm
youtu.be
Cast and Creators for ‘Love, Danielle’ | Conversations at the SAG-AFTRA Foundation
YouTube video by SAG-AFTRA Foundation
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Reposted by BRCAresponder
uinterview @uinterview.bsky.social · 20/04/2026
Lesley Ann Warren on the importance of breast cancer screening & her movie 'Love Danielle' Watch the full video: uinterview.com/news/exclusi... Follow uInterview for the latest celebrity news and videos!
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 16/04/2026
An international group led by researchers from the RIKEN Center for Integrative Medical Sciences (IMS) in Japan have discovered associations between pathogenic variants of the #BRCA genes & 4 types of cancer. #hereditarycancer #genetics #cancerresearch #medsky
eurekalert.org
BRCA gene mutations now implicated in thyroid, bladder, skin, and head and neck cancer
An international group have discovered associations between pathogenic variants of the BRCA 1 and 2 genes and four types of cancer. Published in ESMO Open, the findings expand the potential for p...
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Reposted by BRCAresponder
genetionary.org @genetionary.bsky.social · 21/03/2026
This resource was produced to try and help explain genetic mutations and cancer risk to those unfamiliar with the subject. Download a free PDF copy at www.genetionary.org. #freebooklet #genetictesting #health #cancer #HereditaryCancer #genetics #geneticmutations #familyhealth
Cover of the booklet Peas and Q’s. Text: “Hereditary Cancer Info. PEAS and Q's is a 20-page booklet that helps illustrate the terms related to genes, genetic mutations, & hereditary cancer in a simple question-and-answer format.

Download a free PDF copy at www.genetionary.org.”
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BRCAresponder @brcaresponder.bsky.social · 08/04/2026
Health screenings for BRCA carriers do not stop after preventive surgery. Here's what came up at my 6 month high-risk check up and why it matters. @oncodaily.bsky.social @oncoalert.bsky.social #BRCA #Previvor #HereditaryCancer #OncoDaily #OncoAlert
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 07/04/2026
Men represented a minority in #genetictesting for #hereditarycancer but had ⬆️ test + rates. These findings underscore the need for ⬆️ integration of routine screening for cancer risk factors in primary care settings to enhance early detection & prevention. #menshealth #BRCA #medsky #cancerresearch
frontiersin.org
Frontiers | Testing for hereditary cancer genes in men: a missed opportunity for cancer prevention
IntroductionGenetic testing for inherited cancer risk syndromes can inform targeted surveillance and intervention, but testing for male patients is inadequat...
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BRCAresponder @brcaresponder.bsky.social · 31/03/2026
My advocacy started from frustration. I help people better understand hereditary cancer and the decisions that come with it. I can’t sleep at night if I don’t. www.ourcancerstories.com/breast-cance...
ourcancerstories.com
Amy Byer Shainman
Amy Byer Shainman is a BRCA1 carrier and a previvor advocate known as BRCAresponder, an author, and a film producer behind feature film Love, Danielle.
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BRCAresponder @brcaresponder.bsky.social · 15/03/2026
Final project report: Social media for carriers of hereditary cancer syndromes. @stefaniavicari.bsky.social @leverhulme.ac.uk www.previvorship.org/final-report #BRCA #lynchsyndrome #socialmedia #research #hereditarycancer
previvorship.org
Previvorship - Final report
Final project report: Social media for carriers of hereditary cancer syndromes
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 14/03/2026
In 2013, following a strong #familyhistory of #breastcancer, Jacob Johnson learned he was #BRCA2 +. Over a decade later, at the age of 53, the father of 3 was diagnosed with a rare & aggressive form of cancer in his right breast. #bcsm #hereditarycancer #menshealth #genetics #patientexperience
people.com
Father of 3 ‘Shocked’ by Rare Breast Cancer Diagnosis on 53rd Birthday, Says Regular Testing ‘Saved My Life’ (Exclusive)
After discovering he carried the BRCA2 gene in 2013, one man began getting yearly mammograms. Twelve years later, he was still “shocked” to learn he had breast cancer and is now sharing his story to r...
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BRCAresponder @brcaresponder.bsky.social · 15/03/2026
Attending SGO this year? Add "Love, Danielle" when registering! This story needed to be told and I am so grateful it is now being seen by the medical community at one of the most important women's cancer conferences of the year. www.sgo.org/events/annua... #GynecologicOncology #BRCA
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 15/01/2026
Thank you to Marisa and BRCA & Beyond for such a thoughtful conversation. Lead actress Devin Sidell and executive producer Amy Byer Shainman talked about the lived experiences behind Love, Danielle and the realities of navigating hereditary cancer risk. shows.acast.com/689fca81aabb...
shows.acast.com
Love, Danielle - A Film About Previvorship | BRCA & Beyond
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BRCAresponder @brcaresponder.bsky.social · 13/01/2026
Previvor choices are nuanced, personal, and shaped by where you are in your life. Danielle’s decisions in Love, Danielle @lovedaniellefilm.bsky.social were the right choices for her. I wrote about this in my guest post on BRCAStrong. www.brcastrong.org/danielles-de... #BRCA #previvor
brcastrong.org
Danielle's Decisions and Why Previvor Choices Must Be Personal - BRCAStrong
By Amy Byer Shainman, @BRCAresponder     Love, Danielle is the narrative feature film I produced about a woman navigating hereditary cancer risk and the deeply personal decisions that come with it.   ...
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 15/12/2025
What Men Need to Know About #BRCA & Other Gene Mutations: Get to know your #familyhistory on both sides. If inherited gene mutations are prevalent in your family, consider #genetictesting If you’re a BRCA carrier, stay on top of breast self-exams & prostate exams. #menshealth #genetics
bcrf.org
What Men Need to Know About BRCA and Other Gene Mutations | Breast Cancer Research Foundation
Many of us are familiar with the BRCA1 and BRCA2 genes that, when mutated, are linked to an increased risk of breast cancer in women.…
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Reposted by BRCAresponder
The Jewish Chronicle @jewishchron.bsky.social · 22/12/2025
NHS restart of BRCA testing is good news for community – and Britain as a whole www.thejc.com/opinion/nhs-...
thejc.com
NHS restart of BRCA testing is good news for community – and Britain as a whole - The Jewish Chronicle
Wes Streeting’s welcome announcement points the way ahead for Government and UK’s Jews in 2026
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BRCAresponder @brcaresponder.bsky.social · 07/12/2025
The male breast cancer story of former San Diego Chargers defensive tackle, Tony Savage via My Faulty Gene. Watch here: familygeneshare.org/T3140 #FamilyGeneShare #BRCA #ItsNotJustPink #MaleBreastCancer #SanDiegoChargers #MustWatch #HereditaryCancer #MensHealth
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BRCAresponder @brcaresponder.bsky.social · 22/11/2025
thebrcaresponder.blogspot.com/2025/11/focu... #BRCA #hereditarycancer #blogpost Hormone Replacement Therapy - HRT #HRT
thebrcaresponder.blogspot.com
Focus on HRT
Why I’m Excited HRT Is Finally Getting Attention  Author Georgia Hurst  Georgia Hurst is a fierce patient advocate for those with Lynch syn...
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 07/11/2025
Asking For a Friend: How I Found Strength While Facing #BRCA related #BreastCancer — Twice #hereditarycancer #bcsm #patientexperience #womenshealth #genetics #medsky
theskimm.com
Asking For a Friend: How I Found Strength While Facing Breast Cancer — Twice
How I Found Strength While Facing Breast Cancer — Twice
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 11/11/2025
Treatment of #infertility & risk of #breastcancer among women with a #BRCA pathogenic variant: An international matched case-control study. #bcsm #hereditarycancer #womenshealth #genetics #camcerresearch #medsky
bmccancer.biomedcentral.com
Treatment of infertility and risk of breast cancer among women with a BRCA pathogenic variant: a matched case-control study - BMC Cancer
Background The global trend toward delayed childbearing has led to an increased use of fertility treatment, including in vitro fertilization (IVF) and hormonal medications. Concerns regarding the pote...
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 05/11/2025
We're in @usweeklymag.bsky.social!! 🤩 Check out the exclusive interview with our very own Jaime King 💗👏 www.usmagazine.com/entertainmen... #USWeekly #LoveDanielleFilm #Exclusive
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BRCAresponder @brcaresponder.bsky.social · 29/10/2025
#BRCA Facts First @lovedaniellefilm.bsky.social
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 21/10/2025
Meet Ellen Matloff, a certified genetic counselor and Co-Founder and CEO of @mygenecounsel.bsky.social 🩷 #BRCA #LoveDanielleFilm #LoveYourself #Previvor
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 20/10/2025
Love, Danielle is proud to have Nightbirde's song, "It's OK", as the end credit song of our film. 🎶🩷 #ItsOK #Nightbirde #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 17/10/2025
This Men's Breast Cancer Awareness Week, Meet Raymond Cruz, "Stan" in Love, Danielle 🩷 #BRCA #LoveDanielleFilm #LoveYourself #Previvor
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 14/10/2025
Meet Lesley Ann Warren, "Candie" in Love, Danielle 🩷 #BRCA #LoveDanielleFilm #LoveYourself #Previvor
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 15/10/2025
October is Breast Cancer Awareness Month - a reminder to honor previvors, survivors, and support those with metastatic disease. 💗 #BreastCancerAwarenessMonth #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
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BRCAresponder @brcaresponder.bsky.social · 15/10/2025
LOVE, DANIELLE - Fri. Oct. 17 - 7pm Award-winning hereditary cancer feature film. A patient-eye view of the “before” that connects genomic discovery to real world decision-making. Learn more, watch the movie trailer, and RSVP via conference schedule/mobile app. #ASHG25 #LoveDanielleFilm #BRCA
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BRCAresponder @brcaresponder.bsky.social · 14/10/2025
#ASHG2025 LOVE, DANIELLE screens Friday, Oct 17, 7:00pm Learn more, watch the movie trailer, and RSVP via the conference schedule or mobile app. #ASHG #HumanGenetics #LoveDanielleFilm #BRCA #hereditarycancer
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 13/10/2025
These findings show that the stress hormone cortisol increases the risk of #breastcancer and #prostatecancer in people with #BRCA mutations @icr.ac.uk #hereditarycancer #genetics #bcsm #medsky #menshealth #cancerresearch #womenshealth
icr.ac.uk
Stress may increase cancer risk in people with inherited cancer genes
Stress may increase cancer risk in people with inherited cancer genes
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 11/10/2025
It's been 7 days since Love, Danielle has been available to watch! 😍 Here are 7 reasons as to why YOU should watch Love, Danielle! 💗 #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
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BRCAresponder @brcaresponder.bsky.social · 13/10/2025
Love, Danielle Speaks to the Hereditary Cancer Community by Georgia Hurst www.curetoday.com/view/love-da... #BRCA #hereditarycancer @lovedaniellefilm.bsky.social @curetoday.bsky.social #previvor #LoveDanielleFilm #indiefilm
curetoday.com
‘Love, Danielle’ Speaks to the Hereditary Cancer Community | CURE
As a Lynch syndrome previvor, I felt that the film “Love, Danielle” struck a deeply personal chord.
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 10/10/2025
Meet Jaime King, "Amy" in Love, Danielle 🩷 #LoveDanielleFilm #LoveYourself #BRCA
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BRCAresponder @brcaresponder.bsky.social · 08/10/2025
Wrapping our film festival run with a special @lovedaniellefilm.bsky.social #LosAngeles screening 10/25 at 7:00 PM Q&A after with: Devin Sidell, lead actress/co-writer/producer Dena Goldberg, MS, CGC Save your seat: app.entertainmentoxygen.com/festivals/9b... #LosAngeles #BRCA #lovedaniellefilm
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 01/10/2025
Testing for #hereditarycancer can be a lifesaver! Via @doublewhammied.bsky.social @fredhutch.org #CHEK2 #prostatecancer #menshealth #genetics #patientexperience #HereditaryCancerWeek
fredhutch.org
Testing for hereditary cancers can be a lifesaver
Research shows germline genetic testing — testing for a cancer risk gene you may have inherited — can save lives. Not just a patient’s, but their family members, as well. Hereditary Cancer Awareness W...
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Reposted by BRCAresponder
genetionary.org @genetionary.bsky.social · 03/10/2025
Got questions about genes, genetic mutations, and/or hereditary cancer? This free booklet is a good resource to start with. The 20-page booklet can be downloaded as a PDF at: genetionary.org/resources/ A professionally published edition is also available. #hereditarycancer #germlinemutations
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BRCAresponder @brcaresponder.bsky.social · 05/10/2025
OUT NOW! (North America) "LOVE, DANIELLE" freestyledigitalmedia.tv/film/love-da... #BRCA #HereditaryCancer #indiefilm #Previvor #BreastCancerAwarenessMonth #MustSee #SundayMatinee @lovedaniellefilm.bsky.social
freestyledigitalmedia.tv
Love, Danielle | Freestyle Digital Media
Danielle tests positive for a BRCA1 gene mutation, a marker for developing breast and ovarian cancer. As her sister Amy undergoes chemotherapy for a breast cancer diagnosis, Danielle considers prevent...
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BRCAresponder @brcaresponder.bsky.social · 30/09/2025
I had the pleasure of talking to AMFM Magazine about @lovedaniellefilm.bsky.social LOVE, DANIELLE www.amfm-magazine.tv/telling-stor... #BRCA #HereditaryCancer #movie #filmmaker #WomenInFilm
amfm-magazine.tv
Telling Stories That Save Lives: Amy Byer Shainman’s Journey with Love, Danielle
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 09/09/2025
At long last, we are SO excited to share that #LoveDanielleFilm will be available to stream beginning October 3, 2025!! 💗🎉 Check out our official trailer below and stay tuned for more information 👀🎥 www.youtube.com/watch?v=2oNP... #StreamLoveDanielleFilm #BRCA #ThanksALotDNA #TheWaitIsAlmostOver
youtube.com
LOVE, DANIELLE | Official Trailer (2025)
YouTube video by Freestyle Digital Media
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BRCAresponder @brcaresponder.bsky.social · 17/09/2025
New post on my blog: thebrcaresponder.blogspot.com/2025/09/sept... #BRCA #hereditarycancer #breastcancer #MBC #research #NYFW
thebrcaresponder.blogspot.com
September 16
Image from my memoir  Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew . Today I ...
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BRCAresponder @brcaresponder.bsky.social · 01/09/2025
Heading to ASHG in Boston this year? Heads up: 🎬 MOVIE NIGHT! LOVE, DANIELLE on Friday, Oct 17, 7:00 pm to 9:00 pm at Alamo Drafthouse Cinema Seaport. Limited seating. RSVP in the ASHG app or conference schedule when available in September. #ASHG #ASHG2025 #HumanGenetics #LoveDanielleFilm
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 21/08/2025
Finding Support in Unexpected Places Through #HereditaryCancer Advocacy: Shout out to @brcaresponder.bsky.social #BRCA #LynchSyndrome #previvor #bcsm #gyncsm #womenshealth #genetics
curetoday.com
Finding Support in Unexpected Places Through Hereditary Cancer Advocacy
I share how my friendship with advocate Amy Byer Shainman helped me navigate hereditary cancer, showing that real support comes from empath and honesty.
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BRCAresponder @brcaresponder.bsky.social · 17/08/2025
Why make a movie about #BRCA? Devin Sidell and I discuss our film Love, Danielle @lovedaniellefilm.bsky.social with All Access DNA @kategenetics.bsky.social. #podcast #filmmaking #movie #storytelling #DNA #previvor
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Reposted by BRCAresponder
Kate All Access DNA @kategenetics.bsky.social · 12/08/2025
New episode of #AllAccessDNA podcast. Devin Sidell and Amy Byer Shainman about their new film Love, Danielle. Devin co-wrote the movie inspired by her experience as a #BRCA #previvor Listen here or allaccessdna.podbean.com #GeneChat youtu.be/6V4dbEOg-SQ
youtu.be
What does it mean to have a BRCA mutation? with Love, Danielle film
YouTube video by All Access DNA
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BRCAresponder @brcaresponder.bsky.social · 12/08/2025
After a positive genetic test result comes the hardest part: decision-making. On All Access DNA Podcast w/Kate Wilson, Devin Sidell & I discuss why we made @lovedaniellefilm.bsky.social, life after risk-reducing surgeries, & the power of storytelling. Listen here: www.podbean.com/ew/pb-62sic-...
podbean.com
What does it mean to have a BRCA mutation? with Love, Danielle film
Exploring Hereditary Cancer and the Making of "Love, Danielle". In this conversation, Devon Sidell and Amy Byer Shaneman discuss their new film, 'Love, Danielle' which explores the emotional and physi...
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Reposted by BRCAresponder
Lisa MG, RN @lmg622.bsky.social · 12/07/2025
Mom, 33, Details 1st Sign of #BRCA Related Stage 4 #OvarianCancer That Doctors Mistook for a Chest Infection @todayshow.com #hereditarycancer #gyncsm #womenshealth #genetics #patientexperience #medsky
today.com
Mom, 33, Details 1st Sign of Stage 4 Ovarian Cancer That Doctors Mistook for a Chest Infection
Doctors treated Nikki Myers for an infection. But she did not improve and they soon discovered why.
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 26/06/2025
And Devin’s acceptance speech!
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 26/06/2025
THANK YOU NEVADA WOMEN'S FILM FEST! 🎬 💫💖 We had the pleasure of attending @nwffest.bsky.social in Nevada this past weekend, where Love, Danielle took home #BestFeatureFilm! Check out some of the highlights! 🎉 #BRCA #FilmFestival #AwardWinner #NWFFest #LasVegas #WomenInFilm
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BRCAresponder @brcaresponder.bsky.social · 24/06/2025
Devin Sidell and I talk with with @vegasfilmcritic.bsky.social about LOVE, DANIELLE @lovedaniellefilm.bsky.social youtu.be/shrv2r1i4to?... #BRCA #indiefilm #movie #HereditaryCancer #genetics #comedy #drama
youtu.be
Devin Sidell Interview - Love, Danielle
YouTube video by Vegas Film Critic
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Reposted by BRCAresponder
Love, Danielle @lovedaniellefilm.bsky.social · 23/06/2025
#LoveDanielleFilm has been awarded #BestFeatureFilm at this year's @nwffest.bsky.social! 💖👏 Heartfelt thanks to the Nevada Women's Film Festival for the opportunity to share this inspiring story and for welcoming us among so many talented filmmakers. 🙌🎞️ #BRCA #AwardWinner #NWFFest #WomenInFilm
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BRCAresponder @brcaresponder.bsky.social · 23/06/2025
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