iiinova — where your digital self keeps evolving

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UCAN Ireland @ucanireland.bsky.social · 23/10/2025

Congratulations to our UCAN Ireland members @miriamstaunton.bsky.social & @cynthiacravo.bsky.social on becoming EUPATI Fellows 🎉 A wonderful achievement and testament of your dedication to patient advocacy👏👏👏 #ExpertPatientVoices #CancerTherapeutics #Innovation #EUPATI

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UCAN Ireland @ucanireland.bsky.social · 08/08/2025

We are thrilled to be shortlisted for the Irish Healthcare 'Patient Advocacy Project Of The Year' Award 2025 🎉 This is testament to the power of the patient voice and teamwork. Thank you to everyone who supports us. #UnitedCancerVoiceIE #TogetherWeCanDoMore

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Lynch Syndrome Ireland @lsireland.bsky.social · 08/08/2025

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UCAN Ireland @ucanireland.bsky.social · 20/08/2025

Please help us to ensure that cancer patients across the Ireland have a voice at this important symposium 🙏 Thank you. #NothingAboutUsWithoutUs #UCANIreland #UnitedPatientVoice #NCPE #AccessMatters #StakeholdersNotSpectators

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UCAN Ireland @ucanireland.bsky.social · 20/08/2025

With NCPE Symposium fast approaching we ask that the most important stakeholders are treated as such... Patients should never be excluded or prohibited by costs to have a rightful seat at the table, one that decides what our lives are worth no less! #UnitedCancerVoicesIE

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UCAN Ireland @ucanireland.bsky.social · 21/08/2025

"Patients are stakeholders. So why are we being sidelined? Every year, the NCPE Symposium brings together stakeholders to discuss issues surrounding how Ireland decides on access to new medicines. These are the medicines.." Read full article here 👇 www.ucanireland.ie/nothing-abou...

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UCAN Ireland @ucanireland.bsky.social · 10/07/2025

Care delayed is care denied. Cancer patients simply cannot afford to wait. Timely access to scans for both diagnosis & disease and treatment monitoring is detrimental to outcomes. Action is desperately needed. #UnitedCancerVoicesIE #CancerCareCrisis

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UCAN Ireland @ucanireland.bsky.social · 10/07/2025

Listen back to Dr Michael McCarthy on Midwest Radio this morning discussing the national issue of serious delays in patients starting treatment within recommend time frame, why these issues exist and the types of investment needed 🗣️👂 midwestradio.ie/news/oncology-…

midwestradio.ie

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UCAN Ireland @ucanireland.bsky.social · 24/07/2025

UCAN sent this letter to Minister for Health Jennifer Carroll MacNeill TD this morning in response to a PQ submitted on our behalf by Pádraig Rice TD, Chair of the @oireachtasnews.bsky.social Health Committee, on the issue of Irelands drug reimbursement process www.ucanireland.ie/programme-fo...

ucanireland.ie

Programme for Government Commitments - UCAN Ireland

Letter to the Minister – Programme for Government commitments Today [...]

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UCAN Ireland @ucanireland.bsky.social · 24/07/2025

On behalf of every person diagnosed with cancer in Ireland, we are calling on the government to make good their commitments made in the Programme for Government. Cancer patients demand action now. They simply don't have time to wait. #UnitedCancerVoicesIE #AccessMatters

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UCAN Ireland @ucanireland.bsky.social · 06/08/2025

Cancer survivors should not be punished by insurers. It's unjust. Protections against this discriminatory practice exist in many other EU countries, but not in Ireland ⚠️ We join cancer centers' calls for immediate action to enshrine the #RightToBeForgotten into Irish law ✊ #UnitedCancerVoicesIE

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UCAN Ireland @ucanireland.bsky.social · 06/08/2025

📢 Local cancer centers across Ireland are calling on government to stand up and protect cancer survivors from discrimination when accessing financial products. Read their press release 📜 #RightToBeForgotton #UnitedCancerVoicesIE

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UCAN Ireland @ucanireland.bsky.social · 06/08/2025

."Laura Magan is speaking out along with 13 cancer centres, including in Cork and Tipperary, who together warned that a voluntary agreement to have diagnoses disregarded by insurers is “toothless” #RightToBeForgotten #UnitedCancerVoicesIE www.irishexaminer.com/news/arid-41...

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UCAN Ireland @ucanireland.bsky.social · 05/06/2025

Our Website is Now Live!! 🎉 Visit to learn more about us, our motivations & goals, and see how you can support our mission to ensure timely & equitable access to the best cancer treatments for all public patients in Ireland #UnitedCancerVoicesIE #PatientAdvocacy ucanireland.ie/about-us/

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UCAN Ireland @ucanireland.bsky.social · 07/06/2025

Every person facing a cancer diagnosis deserves timely access to the best standards of care and novel treatments. Ireland is failing here, we are almost bottom of the table in comparison to our European counterparts. Change MUST happen. Patients simply don't have time to wait #UnitedCancerVoicesIE

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UCAN Ireland @ucanireland.bsky.social · 01/07/2025

Please take a moment to read UCAN response to comments attributed to Prof Michael Barry NCPE. We as patients & advocates are deeply concerned about this discrediting of oncologist who are calling for drug reimbursement in a system that's badly failing patients. www.ucanireland.ie/the-art-of-d...

ucanireland.ie

The Art of Distraction - UCAN Ireland

The Art of Distraction UCAN Ireland notes with concern the [...]

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Roberta Horgan @horganroberta.bsky.social · 07/05/2025

So proud of our @ucanireland.bsky.social Chair @miriamstaunton.bsky.social speaking to @fergalbowers.bsky.social @news.rte.ie keeping the spotlight on the key issue of disparities in accessing new EMA approved cancer medicines experienced by cancer patients in Ireland 👏 #UnitedCancerVoices

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UCAN Ireland @ucanireland.bsky.social · 08/04/2025

Just some of the media coverage from our launch week #proud #unitedcancervoicesIE

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miriamstaunton.bsky.social @miriamstaunton.bsky.social · 02/04/2025

I’ll be on the Last word with @mattcooperlastword.bsky.social on @todayfm.bsky.social at 5:45pm. Tune in to hear about our new organisation

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Roberta Horgan @horganroberta.bsky.social · 24/03/2025

One of many educational talks @lsireland.bsky.social @svuh.bsky.social Patient Symposium. Dr Nicola Cochrane on impact of #SurgicalMenopause on women's health & safety profile of Oestrogen HRT use. Great to know it's not only safe but beneficial for lowering #CRC risk!

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Roberta Horgan @horganroberta.bsky.social · 22/03/2025

It's #LynchSyndromeAwarenessDay! Excited to be on route to @svuh.bsky.social for the LS Patient Symposium 😃 Bringing together the patient & professional community for an afternoon of shared learning. We march forward together ❤️ #TeamLynch #knowledgeispower #PatientSupport #HereditaryCancer

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LynchSyndromeUK @lynchsyndromeuk.bsky.social · 22/03/2025

More morning information at Lynch Syndrome Conference

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Mark Hamill @markhamillofficial.bsky.social · 17/03/2025

The TESLA (a/k/a "TESLER") TAKEDOWN is working... WORLDWIDE! Turns out people really resent an unelected weirdo running our Government & creating economic chaos. Hit Elmo where it really hurts: in his big, fat wallet. If we #TankTesla, It's Ex-X! (a/k/a Twitter) #WinWin Visit www.takedowntesla.com

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Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 08/03/2025

Stand Up for Science Burlington, Vermont

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Cancer Trials Ireland @cancertrialsie.bsky.social · 08/03/2025

Passionate and committed member of our Patient Consultants Committee, @miriamstaunton.bsky.social , gives a patient perspective on the important roles played by women in #CancerClinicalTrials on International Women's Day 2025. #IWD2025 #AccelerateAction

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Lynch Syndrome Ireland @lsireland.bsky.social · 07/03/2025

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CALL TO ACTIVISM @calltoactivism.bsky.social · 05/03/2025

BREAKING NEWS: Canadian Premier Wab Kinew of Manitoba MOCKS Trump by signing a “beautiful” order that officially removes ALL American liquor from Canadian stores in his province. Donald Trump just caused massive economic damage to our country. How sad and embarrassing.

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Adam Zyglis @adamzyglis.bsky.social · 05/03/2025

Sign of the times… #DoSomething

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miriamstaunton.bsky.social @miriamstaunton.bsky.social · 05/03/2025

Have you done my survey yet? I really need as many Irish cancer patients as possible to answer it. It’s fast. It’s anonymous. And we plan to use the output to help deliver a better digital patient record. #spéirgorm #patientvoice Click here 👇🏻 www.surveymonkey.com/r/LTZHRYK

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miriamstaunton.bsky.social @miriamstaunton.bsky.social · 03/03/2025

Thanks to the Irish times and Dominic Coyle for this incredible write up

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miriamstaunton.bsky.social @miriamstaunton.bsky.social · 03/03/2025

Have you had a diagnosis of cancer and been treated in Ireland? I’ve created this survey on accessing your medical information & would love to get your views. The link is here: bit.ly/3X6KXbc #speirgorm #patientvoices #yourhealthdata @cancertrialsie.bsky.social

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James Larkin @jameslarkin13.bsky.social · 03/03/2025

📢 PhD Publication Our survey & choice experiment showed that people in Ireland with chronic conditions are experiencing significant financial issues: 🔎Over a third said they avoided healthcare appointments or buying medicine in previous year due to cost bmcprimcare.biomedcentral.com/articles/10....

bmcprimcare.biomedcentral.com

How do people with multimorbidity prioritise healthcare when faced with tighter financial constraints? A national survey with a choice experiment component - BMC Primary Care

Background People with multimorbidity (i.e., two or more chronic conditions) experience increased out-of-pocket healthcare costs and are vulnerable to cost-related non-adherence to recommended treatme...

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