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Maggie

@heytheremaggs.bsky.social
459 followers 1.3K following 118 posts

Sooo… I really like dessert Applied Maths (BS), Data Science (MS), Graphic Design “Be mad; be outraged; demand accountability.” - Katie Phang (@katiephang.bsky.social) Wear a mask “Too young for that” #NEISvoid #Accessibility

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Maggie @heytheremaggs.bsky.social · 29/09/2026
Hi #LongCovid / #MECFS friends. What is the going feeling on the actively recruiting phase 3 Baricitinib trial? #NEISvoid #ClinicalTrial #Study #Science #Covid #RCT #REVERSE-LC #PostCovid #Covid19 #PASC #MoHashtagsMoProblems
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Maggie @heytheremaggs.bsky.social · 28/09/2026
FYI #NEISvoid #HoldOnForOneMoreDay
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💠𝑺𝒄𝒉𝒖𝒍𝒕𝒛𝒊𝒆𝑷𝒊𝒆💠 @schultziepie.bsky.social · 27/09/2026
Please share. #Pinks
girlyfeminist girlyfeminist
l've been a SA advocate for decades:
NEVER go to campus resources for a SA. Call a rape care hotline/program (off campus), get a SA advocate (they're free), go to a SART hospital for care (and evidence collection if you choose).
They activate the police. Schools have NO business in this process and will minimize and bury it. It's a criminal matter, not an administrative matter.
Period. No exceptions.
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Maggie @heytheremaggs.bsky.social · 25/09/2026
Looking at med bills and apparently I made a payment half a year before I had the (unscheduled at that time) appointment… But, sure—I’m the one with cognitive deficits. #MakeItMakeSense #NEISvoid #ItShouldNotBeThisHard #insurance #casual
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Maggie @heytheremaggs.bsky.social · 24/09/2026
Over here trying to put my reading glasses over my regular glasses…. *casual*
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Chronic Illness Humor @chronicillness.bsky.social · 09/09/2026
At the top, three drawn emoji faces are aligned horizontally: a sad face, an angry face, and a face rolling its eyes upward.

"WHAT'S WRONG WITH YOU NOW?"

"Bold of you to assume it's a new problem and not the same one just screaming louder."

@dear_chronic_pain
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Maggie @heytheremaggs.bsky.social · 03/09/2026
That moment where your bank’s password requirements say 8-20 characters but the frontend’s validation says maxlength=19 #SlowlyLosingIt #EyeTwitch #PushedToProd #YOLO #SoftwareEngineeing #Casual #FeatureNotABug
static.klipy.com
That's Not How It Works! That's Not How Any Of This Works!
Alt: A gif of part of an esurance ad. An older woman stands up from her chair and says, in almost a disbelieving tone, “That's Not How It Works! That's Not How Any Of This Works!” to her friend, named Beatrice. Beatrice—labeled an “Offline Over-Sharer”—just told her friend, (the woman who stood up), in person, that she “unfriends” her. The ad is a riff on the idea of Facebook but instead, someone (in this case an older woman) is actually acting out the online actions (e.g. sharing photos by printing them out and hanging the on the wall).
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Maggie @heytheremaggs.bsky.social · 02/09/2026
I’m mildly uncomfortable that the songs that pass for “rock” on this radio station are just all the songs from my emo period…
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Jinx Peregrine|Poet|Kickstarter @jinxperegrine.bsky.social · 29/08/2026
I wish my disabled community a no pain day, a day where someone sees & supports you, a day where you can feel kindness in your heart instead of rage at the world. I wish you a day of joyful peace. Keep existing in the world bc there's no one like you & we're better for you being here.💜
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Maggie @heytheremaggs.bsky.social · 27/08/2026
Time to build some IKEA furniture to see if I can (continue to) live with myself.
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it's an uncivil war @lucyksy.bsky.social · 17/08/2026
If we aren't going to the doctor, we are busy scheduling appts and dealing with insurance. Everything revolves around this and it all takes a lot of time, effort, and waiting. So much waiting.
Getting dressed up for the doctor's office because it is the only place I go.
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Chronic Illness Humor @chronicillness.bsky.social · 15/08/2026
@existennialmemes.bsky.social
existennialmemes - on tumblr

Emotional regulation requires energy!! When you're physically tired, emotional regulation is simply physiologically harder to achieve.

So if you've used all your physical spoons and you start crying because you dropped a pen, remember it's because your cells literally don't have enough ATP to coordinate the neurological processes that control your emotions. Give yourself grace and rest and probably a snack.
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Maggie @heytheremaggs.bsky.social · 15/08/2026
I’m over here telling my painfully subluxing* joints to STFU. I think I might’ve just leveled up. * worth noting they’re subluxing silently #iykyk #ExtraBendyBits #SickAndTired
static.klipy.com
Gli Jlo
Alt: A gif of Comedian Wanda Sykes from the movie “Monster-in-Law”, where she is saying “I am sick, sick, sigk, of your shit, and when I’m not sick, I’m tired. I am sick and tired.”
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Dr. Lucky Tran @luckytran.com · 01/08/2026
As we recall the trauma caused by COVID in 2020, we should not forget COVID continues to harm. Many still suffer from Long COVID, people who mask are often harassed, and we haven’t scaled clean air infrastructure. If we truly acknowledge past harms, we should be working to create a better future.
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Kelly @broadwaybabyto.bsky.social · 01/08/2026
You can become disabled or homeless in an instant. It just takes one accident or illness to change your life forever. It’s not a moral failing. You can’t just “try harder”. People need support, compassion and to have their basic needs met. That’s how you ensure survival.
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Grant Stoner @supercrip1994.bsky.social · 26/07/2026
Happy 36th anniversary of the passing of the Americans with Disabilities Act. To this day, disabled people still can't get married, and our rights are actively being challenged over and over. True disability inclusion happens when we're equals to our able-bodied peers.
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Anna Holmes @annabookwriter.bsky.social · 26/07/2026
If you enjoy things like your boss not being able to demand why you’re calling out sick and FMLA and not being forced to hand over your genetic information: thank a disabled activist. Better yet, show up for disabled people.
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Maggie @heytheremaggs.bsky.social · 24/07/2026
me: (trying to describe my nerve pain) like a stab with pizzaz? #OhTheSynonymsYou’llUse #ChronicPain #PointsForOriginality #NEISvoid #KeepYourThesaurusHandy
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World Health Network @thewhn.bsky.social · 22/07/2026
COVID prevention is collective action. Long COVID can only occur after a COVID infection, so preventing infection and reinfection matters. Cleaner indoor air, access to high-quality respirators, staying home when sick, and reliable testing help protect everyone. #PublicHealth #COVID19 #LongCOVID
WHN public health graphic on a dark charcoal background. At the top left is the white “whn.global” logo with a pink dot. At the top right: “World Health Network — Science for a safer, healthier world.” Large red and white text reads: “No COVID means no Long COVID.” Below: “N95 or better. Clean air. Test when needed. Stay home when sick.” A red banner at the bottom reads: “Prevent infection and reinfection.”
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AFL-CIO @aflcio.org · 21/07/2026
Black women help power our economy every single day. They deserve equal pay for equal work. Closing the pay gap means stronger families, stronger workplaces and a stronger economy. #BlackWomensEqualPayDay
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Patient-Led Research Collaborative @patientled.bsky.social · 20/07/2026
PLRC is kicking off a summer fundraiser to help sustain our work and fund new projects that will improve clinical trials and biomarkers! You can help by donating, sharing our posts, and forwarding the emails you receive to folks in your network.🧵 Donate: patientresearchcovid19.com/donate/
PLRC is currently fundraising for two projects that will improve clinical trials and biomarkers.
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Maggie @heytheremaggs.bsky.social · 18/07/2026
And don’t forget to #MaskUp, too!
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Sam Wise Masks @theailingwitch.bsky.social · 16/07/2026
It’s never too late to start masking, even if the world is already burning: ESPECIALLY if the world is already burning. 🔥 Stay safe out there. 💜 maskbloc.org
maskbloc.org
Worldwide Mask Bloc Directory – Find your local Mask Bloc
MaskBloc.org lists active Mask Blocs around the world. Free high-quality masks, COVID-19 tests and other equipment for your community. Mutual Aid & We Keep Us Safe.
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Sarah J. Jackson @sjjphd.bsky.social · 12/07/2026
Sharing a gift link to this because I know when I was caretaking my mom every ounce of validation that I was doing something emotionally, physically, professionally and financially impossible helped me feel less alone
nytimes.com
Opinion | This Is One of the Hardest Jobs in America. Millions Are Doing It Alone. (Gift Article)
Behind closed doors, millions of Americans are stepping into one of the hardest roles they’ll ever take on: caring for their aging parents.
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Maggie @heytheremaggs.bsky.social · 10/07/2026
It’s comforting to know that certain people can go nearly a month w/o being @ work w/o consequences, but I can’t take > 3 consecutive “sick” days for pre-planned, out-of-state medical visits w/o being required to use vacation days or go out on short term disability #DisabilityPrideMonth #NEISvoid
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Maggie @heytheremaggs.bsky.social · 04/07/2026
Why do I only ever concern myself with the dampness of my cacti’s soil immediately after I have finished washing my hands? #ImTheProblem #FaultyLogic #YetToMakeAChange
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Tom Kindlon @tomkindlon.bsky.social · 24/06/2026
🧵 "How to Apply For—& Receive—Your SSDI: Long COVID makes it tricky.Know the rules" longcovidmd.substack.com/p/you-may-qu... Blog with linked video recording Most of the advice is specific to SSDI rather than more generally useful internationally Also useful for other #spoonie #LongCovid #MEcfs 1/
How to Apply For—and Receive—Your SSDI
Long COVID makes it tricky. Know the rules.
Dr. Zeest Khan
Jun 23, 2026

I lost my job because of long COVID
So I was glad that I had taken my mentor’s advice and purchased disability insurance in residency. I thought that was enough to protect me from the rainy day. But when the time came, it was really hard to prove it was raining. I had to fight to receive the payments I was owed.

You might be in the same boat. Paying for a disability policy doesn’t mean you’ll get your payout easily, and it’s an especially tricky process when you have a condition like long COVID. Because our symptoms fluctuate, and because we don’t have reliable easy-to-measure biomarkers, disability claims for people with long COVID are often challenged or denied.

But you can get the payments you deserve. The first step is understanding the system and process you’re engaging with.
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Naomi @nobonesnaomi.bsky.social · 20/06/2026
Keep feeling bad about doing nothing, years of energy limiting chronic illness and I'm still bad at this
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Maggie @heytheremaggs.bsky.social · 18/06/2026
While I’m touched my phone thinks I use the word “tittle” with much regularity (not like I’ve never used it) but in this case I did (sadly) just mean title. #WordsAreFun #Typography #Autocorrect #ImSoFancy
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FunkisHen @funkishen.bsky.social · 13/06/2026
Friends in the #PwME circle, I was trying to find an article but I'm drawing a blank. It was about why normal sleep hygiene doesn't work for someone with ME/CFS, and was written by a medical ME expert I think? If anyone knows what I'm referring to, please drop the link! #NEISvoid #LongCovid
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Cats of Yore @catsofyore.bsky.social · 19/04/2024
Posting this again because a lot of people said they found it helpful! Guide to ALT text: www.perkins.org/resource/how...
ALT text copied and pasted from the linked website: An infographic titled “How To Write Alt Text” featuring a photo of a capybara. Parts of alt text are divided by color, including identify who, expression, description, colour, and interesting features. The finished description reads “A capybara looking relaxed in a hot spa. Yellow yuzu fruits are floating in the water, and one is balanced on the top of the capybara’s head.”
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Joanna "Ms. Crow" Blackhart [They/Them] @joannablackhart.com · 06/06/2026
I'm asking that, for this pride month, you commit to a $1 monthly membership (or more, if you can) to help keep me and my family going. It's also a great way to celebrate pride! ko-fi.com/joannablackh...
ko-fi.com
Support Joanna Blackhart
Support Joanna Blackhart
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trick-is-a-treat-kat @trickykat.bsky.social · 03/06/2026
sorry i used whimsy on you but in my defence i'd run out of sarcasm
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Accessibility Awareness @a11yawareness.bsky.social · 31/05/2026
Automatic transcription can be much faster than manual transcription, but it's not as accurate. Humans can catch errors that software may miss because of background noise or poor audio quality. Always review and edit transcripts before publishing.
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Maggie @heytheremaggs.bsky.social · 23/05/2026
Hi #ChronicIllness Community (my #NEISvoid fam), how are we currently organizing our medical info/history? I have binders, dividers, tabs & too much paperwork. By body part? By speciality? What is the most intuitive way to catalogue it all? #MountainOfPaper #PoorTrees #MedSky #Medical #Organization
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Maelee @bakednbougie.bsky.social · 18/05/2026
Help a Black queer disability community leader survive the SSI process as my lawyer appeals the most recent denial I'm hoping that w/ community help I can raise 💲to get help w/ food & r3nt $125 for food $1750 for r3nt by June 3rd $maelee21 V: @ Maelee-Johnson PayPal.me/maeleeJ ko-fi.com/maedaej
A yellow rectangle with white boxes for text, a photo of a light complected Black women wearing glasses and cat ears sits at the top right hand corner. Small, bullhorns frame the center text box: 

Text reads: Community Aid needed for Mae

Help a Black queer disability community leader survive the SSI process as her lawyer appeals the most recent denial. 

Calling on community to help with the following: 

$125 for food ASAP
$1750 for rent by June 3rd deadline

Ways to aid: 

$maelee21 
V: @ Maelee-Johnson
PayPal.me/maeleeJ 
ko-fi.com/maedaej
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Maggie @heytheremaggs.bsky.social · 18/05/2026
I’m not entirely sure what type of life my phone thinks I’m leading as it’s correcting my slight misspelling of “difficult” to “disco hot”… (not that I’m entirely opposed to that fantasy) #NEISvoid
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Maggie @heytheremaggs.bsky.social · 12/05/2026
Solidarity with and many thanks to those who have come before us #mecfs #MECFSAwarenessDay
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Chronic Illness Humor @chronicillness.bsky.social · 11/05/2026
image from the animated series Bob's Burgers featuring the character Tina Belcher standing in her bedroom. She has a blank, overwhelmed expression and is wrapped in a large white blanket like a cape or shroud. Overlaid on the image is white text that reads: "they knew I'd be too powerful with a working nervous system." 
MyBodyIsTryingToKillMe.com
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Maggie @heytheremaggs.bsky.social · 11/05/2026
Ohmigod, you guys… I’ve found the secret to stopping joint pain… Turns out garlic wards off more than just vampires 🧄👍🏼 /s #NEISvoid #Pain #IfOnlyItWereThatEasy #DontTryThisAtHome #ThanksPopUpAd #ThingsIWillNeverSay by #SeriousPeople
An online advertisement, showing the front of a pair of legs, really from 3 inches above the knee to 4 inches below. The kneecaps are covered with ½ (one-half) of a head of unpeeled garlic (about 3 cloves per kneecap). The bold text below reads “Before Your Joint Pain Gets Worse — Watch This”. Lighter gray text below says “VitalFlow Insider”. There is a small triangle in the upper right hand corner which looks like a “play” button. 
Why someone would click it is beyond me. 
I hate to think of the purgatory that awaits an accidental click-er.
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Maggie @heytheremaggs.bsky.social · 07/05/2026
Mask up for yourself and for those who can’t. #WearAMask #Protection4All #PublicHealth #Equity
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It's Abby. Yep @itsabbyyep.bsky.social · 30/04/2026
I'm too busy to do everything well so I will focus on doing it all very poorly
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Maggie @heytheremaggs.bsky.social · 12/03/2026
Still haven’t decided if cursing at inanimate objects is more helpful or hurtful #NEISvoid #LowPowerMode #ThatSpatulaDeservedIt
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Long Covid SOS @longcovidsos.bsky.social · 08/03/2026
Women are too often dismissed when it comes to their health told it’s “anxiety”, “your age” or “all tests are normal” #LongCovid is following a pattern many women already know. Women living with Long Covid deserve to be heard, believed and supported. #IWD2026 #NoMoreGaslighting
Graphic for March 8th International Women’s Day. The Long Covid SOS logo appears at the top in awareness day colours. Beneath it, “March 8th International Women’s Day” in teal and underneath in a lighter teal shade “Women living with Long Covid and other invisible illnesses deserve to be heard, believed and supported” 
“No more gaslighting” in orange italics. 
At the bottom the image shows layered silhouettes of diverse women in profile, in different colours and hairstyles to represent solidarity and shared experience. A faint lifering motif from the Long Covid SOS logo forms the background. And at the bottom left text reads “#IWD2026”
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Maggie @heytheremaggs.bsky.social · 25/02/2026
@joyannreid.bsky.social proudly being a Cussin’ Christian is just …. *chef’s kiss* Who could ask for anything more?
media.tenor.com
a cartoon character from the emperor 's new groove is giving the ok sign .
Alt: A gif of the cartoon character named Pacha from the movie “The Emperor's New Groove” is giving the ok sign with his eyes closed, indicating that the situation is simply perfection and something smells just excellent. Pacha is wearing an olive colored poncho and an earthy brown head covering and tunic.
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Kristin Houlihan, Writer @kristinwrites.bsky.social · 15/02/2026
Heartburn + MCAS + Vertigo + CCI Cannot please them all at the same time.
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Marisa Kabas @marisakabas.bsky.social · 07/02/2026
i need an emotional support perogi
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Maggie @heytheremaggs.bsky.social · 05/02/2026
The irony of trying to find my thumb brace while not wearing my thumb brace isn’t lost on me. #HeldTogetherByTape #LigamentsAreOptional #NEISvoid #IYKYK
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Maggie @heytheremaggs.bsky.social · 04/02/2026
I feel both seen and called out #NEISvoid Still, it’s a good + validating read.
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