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Hey Janae🧡

@heyjanae.bsky.social
1.2K followers 1.1K following 239 posts

she/her | ♒️ | copywriter & 🩵 @ctpublic.bsky.social social media editor 🩵 Anime & Cartoons | 日本語OK | Long Covid Mar 2022 | I complain often ✨🌺🧡 #CovidCompetent

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ProPublica @propublica.org · 26/01/2026
The FDA won’t tell Americans where their generic drugs are made, so ProPublica built a tool to show you. Here’s how Rx Inspector has helped patients, doctors and researchers so far.
propublica.org
“A Godsend”: ProPublica’s Rx Inspector Tool Is Helping People Find Critical Safety Information on Generic Drugs
Health care workers are changing how they counsel patients. Experts are using our database to support their research. And some consumers report they’ve discovered troubling records at the factories wh...
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Dimitri Drekonja, MD, MS @dimitridrekonja.bsky.social · 24/01/2026
Alex Pretti was a colleague at the VA. We hired him to recruit for our trial. He became an ICU nurse- I lover working with him. He was a good kind person who lived to help and these fuckers executed him. White. Hot. Rage.
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Hey Janae🧡 @heyjanae.bsky.social · 13/01/2026
I have become one of those people whose body does weird shit when the air pressure drops the day before rain (I get a sore throat) or I'm just sick we shall see
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Jessica Ellis @baddestmamajama.bsky.social · 09/01/2026
Well that only took six years. And also, we told you so.
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Hey Janae🧡 @heyjanae.bsky.social · 08/01/2026
Sat up two days in a row + hyperfixated on something deep into the night but still managed to fall asleep with a little melatonin true BABY STEPPING out of this crash
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Hey Janae🧡 @heyjanae.bsky.social · 03/01/2026
Shout out to Monster Prom for being a shred of light these last few days
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Hey Janae🧡 @heyjanae.bsky.social · 02/01/2026
No more circling back this year we’re squaring up
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C.H. Romatowski @chromatowski.bsky.social · 01/01/2026
CC #NEISvoid
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Eric Topol @erictopol.bsky.social · 28/12/2025
Do you know about LVA surgery that is being done to increase brain waste product drainage, with intent to treat or prevent neurodegenerative diseases? In conversation with @jonykipnis.bsky.social erictopol.substack.com/p/how-our-br...
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Eric Topol @erictopol.bsky.social · 28/12/2025
98 million Americans have prediabetes. A recent landmark paper showed normalization of glucose in people with prediabetes is linked to halving of major cardiovascular adverse events over ensuing decades thelancet.com/journals/lan...
thelancet.com
Prediabetes remission and cardiovascular morbidity and mortality: post-hoc analyses from the Diabetes Prevention Program Outcome study and the DaQing Diabetes Prevention Outcome study
Reaching prediatbetes remission is linked to a decades-long benefit, halving the risk of cardiovascular death or hospitalisation for heart failure in diverse populations. Targeting remission might rep...
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C.H. Romatowski @chromatowski.bsky.social · 22/12/2025
March 31, 2020:
Two tweets from me on March 31, 2020

The press should be asking public officials whether they expect a rise in #MECFS cases following the Corona virus and what they plan to do about that long tail of this public health crisis.

ME already affects almost 1% of the population (2.8M Americans)an onset typically follows a viral infection. So that number may rise precipitously.

Meanwhile there are 12 ME doctors in the entire country.
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Anna Holmes @annabookwriter.bsky.social · 18/12/2025
Time for my yearly shoutout to my very excellent former therapist who listened to me complain about how I feel like I get so little done in winter and was like “nature’s resting. Why shouldn’t you?” My god, it was full of stars.
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Imani Barbarin @imanibarbarin.bsky.social · 18/12/2025
Look at the date. Disabled people told you. They made too many disabled people.
A tweet from imani on 12/19/2020 quoting Gregory Mansfield about making assisted suicide available before healthcare. Her quote reads: This is what l've been saying, with a massive influx of disabled people from COVID, we're going to see a huge influx of assisted suicide programs and legislation because the system barely worked ahead of the pandemic.
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MonzaMayhem @monzamayhem.bsky.social · 16/12/2025
"What Doesn't Kill You" is a forthcoming documentary exploring the lives of people battling ME/CFS and Long COVID, scandalously underfunded and chronically ignored diseases. whatdoesntkillyou.movie?fbclid=IwdGR...
whatdoesntkillyou.movie
What Doesn't Kill You | ME/CFS Documentary | Coming in 2025
"What Doesn't Kill You" is a forthcoming documentary exploring the lives of people battling ME/CFS, a scandalously underfunded and chronically ignored disease.
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Billy Hanlon @bhanlon15.bsky.social · 28/11/2025
The Sick Times: 'You know someone with Long COVID. They need you to ask about it genuinely.' Written by Philip Hoover 'If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.' thesicktimes.org/2025/11/28/y...
thesicktimes.org
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
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Julia MV @julialmv.bsky.social · 26/11/2025
There are >800 LoCITT-T participants, & >200 people who are eligible & just need to take one more step to claim their spot. There's time for new folks to join! We're particularly hoping to enroll folks from ND, MS, & PR & more BIPOC participants: longcovid.scripps.edu/locitt-t/?ut...
Map of the US with states colored by the number of LoCITT participants per state:
States with 20+ are WA, OR, CA, CO, TX, MD, MO, IL, MI, OH, PA, NY, MA, MD, VA, NC, FL
States with 0 are ND, MS, HI
The rest have between 1 and 19 participants
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Kelly @broadwaybabyto.bsky.social · 26/11/2025
“If you were that sick you would be dead.” “If it were that bad you would get help.” “If you can post on social media you’re fine”. Disabled people are constantly subjected to “if” statements from people who have no concept how bad it can get & how little help is available
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Allison Good @allisonwgood.bsky.social · 25/11/2025
It’s true. A flu can give you POTS/MCAS/EDS/MECFS, all acronyms you’ll wish you never knew.
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Billy Hanlon @bhanlon15.bsky.social · 01/11/2025
CIDRAP: 'Kids exposed to COVID in utero may be at higher risk for autism, other brain problems' 'Massachusetts General Hospital researchers analyzed data on 18,124 live births at Mass General Brigham from March 2020 through May 2021' www.cidrap.umn.edu/covid-19/kid...
cidrap.umn.edu
Kids exposed to COVID in utero may be at higher risk for autism, other brain problems
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Allison Gill @muellershewrote.com · 03/10/2025
Oh. Election denier and right winger Pizzagate TPUSA hack Jack Posobiec appears to have voted illegally - living in Maryland but voting in Pennsylvania. From Jacqueline Sweet at @slate.com and @marisakabas.bsky.social at The Handbasket: slate.com/news-and-pol...
slate.com
MAGA’s “Voter Fraud” Watchdog Votes in a Swing State. He Doesn’t Live There.
A long paper trail shows that Jack Posobiec casts a ballot in one state and lives in another.
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Ashley ShooOOOooo @ashleyshoo.bsky.social · 02/10/2025
Friend who's had some concussions: “If I already told you and forgot — sorry." Me, a person with chemobrain: “I can’t remember." Disabled friendships are elite. I’m sorry for the rest of you.
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Hey Janae🧡 @heyjanae.bsky.social · 01/10/2025
I cannot explain how confounded I am by the popularity of Fourth Wing
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Hey Janae🧡 @heyjanae.bsky.social · 29/09/2025
I wish more parents understood the risk that who they are in moments of weakness will come to define their children.
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Billy Hanlon @bhanlon15.bsky.social · 25/09/2025
Economic Times: 'Violet Affleck hits world leaders for harming children at passionate UN speech' 'Violet Anne Affleck, daughter of Ben Affleck and Jennifer Garner, addressed the United Nations. She urged global leaders to act against long COVID' economictimes.indiatimes.com/news/interna...
economictimes.indiatimes.com
Violet Affleck hits world leaders for harming children at passionate UN speech
Violet Anne Affleck, daughter of Ben Affleck and Jennifer Garner, addressed the United Nations. She urged global leaders to act against long COVID. Violet shared her experience of contracting a viral ...
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Hey Janae🧡 @heyjanae.bsky.social · 24/09/2025
I miss Waffle Crisp cereal
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Dr. Lucky Tran @luckytran.com · 23/09/2025
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
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Hey Janae🧡 @heyjanae.bsky.social · 23/09/2025
Attack on Titan fans have we looked into this
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Hey Janae🧡 @heyjanae.bsky.social · 23/09/2025
Spider in my bed READY FOR THE BUGS TO DIE PLEASE
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Billy Hanlon @bhanlon15.bsky.social · 18/09/2025
'Swiss government tasked with developing strategy for Long Covid' 'The Swiss government is to draw up a national strategy to improve the medical situation of people suffering from Long Covid. On Thursday, Senate tacitly accepted a House of Representatives motion' www.swissinfo.ch/eng/health-s...
swissinfo.ch
Swiss government tasked with developing strategy for Long Covid
The Swiss government is to draw up a national strategy to improve the medical situation of people suffering from Long Covid following a Senate vote.
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Hey Janae🧡 @heyjanae.bsky.social · 18/09/2025
Idk what to call it but sometimes when my long covid flares or I stop taking my medicine my sleep is extremely strange It feels like I’m up all night but I’m definitely in and out of sleep I call it tethered sleep bc it feels like I never actually fall away into dreams, I’m latched onto awakeness
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Amy 🌤️ @cloudsandsunshine.bsky.social · 09/09/2025
This is so chilling and totally tracks. If my state did not have paid family medical leave it would have stretched us to the breaking point.
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Chris Polansky @chrispolansky.bsky.social · 11/09/2025
Connecticut is lowering flags to half-staff for Charlie Kirk.
(HARTFORD, CT) - Governor Ned Lamont today announced that - in accordance with a
proclamation from President Donald Trump ordering flags throughout the United States to be lowered as a mark of respect for the memory of Charlie Kirk - he is ordering U.S. and state flags in Connecticut to be flown at half-staff effective immediately and remain lowered through sunset on Sunday, September 14, 2025.
"Political violence of any kind has no place in our country and is never acceptable," Governor Lamont said. "The tragic attack on Charlie Kirk today is absolutely awful. My prayers are with him and his family."
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olive consumer's floating skull @machete.gay · 10/09/2025
The shooting of Charlie Kirk will have almost exclusively extremely negative consequences for American society in general, the stability of society in specific, and the safety of everyone living in it.
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Hey Janae🧡 @heyjanae.bsky.social · 08/09/2025
I did not realize when people put “minors DNI” in their bio it’s bc they’re posting explicit content I just thought that was something to do if we didn’t want 14yos to bother us
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Kelly @broadwaybabyto.bsky.social · 05/09/2025
Disability is not a choice. It’s not a punishment or a moral failing. It’s not a vacation. It’s not a free ride. It’s an unrelenting 24/7 job. It’s suffering, gaslighting, neglect and poverty. It’s hard work. No one is immune. Disability comes for almost everyone eventually.
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Hey Janae🧡 @heyjanae.bsky.social · 30/08/2025
I would like someone to give me a PS4 copy of Ultimate Ninja Storm 4 for free/for a small non-gross favor
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Mad Scholar Frights @mattzollerseitz.bsky.social · 30/08/2025
2025 Democratic politics is that scene in every 70s movie where somebody gets their car stolen and runs down the street shaking their fist in the air yelling, "Hey, that's my car!!!"
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Hey Janae🧡 @heyjanae.bsky.social · 30/08/2025
Spotted in Virginia so 6 more weeks of winter ig
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Hey Janae🧡 @heyjanae.bsky.social · 29/08/2025
Work milestone reached! Got one of my videos featured on the NPR Instagram page 🎉 (it's the lobster roll one!)
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Jeremy Chen @jeremychentv.bsky.social · 27/08/2025
Teaching people to potentially save a life. CPR classes are being offered at #NewHaven libraries to give people the skills to act if they see someone in cardiac arrest. @nbcconnecticut.com www.nbcconnecticut.com/news/local/f...
nbcconnecticut.com
Free CPR classes offering potentially lifesaving skills in New Haven
Teaching people to potentially save a life. CPR classes are being offered at New Haven libraries to give people the skills to act if they see someone in cardiac arrest. As compressions follow the beat...
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Hey Janae🧡 @heyjanae.bsky.social · 24/08/2025
I have been saying this since the day it came out and I’m so glad other people feel this way
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Billy Hanlon @bhanlon15.bsky.social · 22/08/2025
'Wearable Devices Capture Biometric Patterns in Long COVID' 'STOP-PASC substudy finds digital biometrics align with symptom burden, supporting their use as objective measures in long COVID research.' www.contagionlive.com/view/title-w...
contagionlive.com
Wearable Devices Capture Biometric Patterns in Long COVID
STOP-PASC substudy finds digital biometrics align with symptom burden, supporting their use as objective measures in long COVID research.
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Billy Hanlon @bhanlon15.bsky.social · 22/08/2025
Daily Echo: 'Long Covid Kids chosen as charity for Sunflower Festival' 'A charity supporting children with long Covid has been named as the beneficiary of a popular sunflower festival.' www.dailyecho.co.uk/news/2540507...
dailyecho.co.uk
Sunflower festival to raise funds for children living with long Covid
The festival will take place on August 24 and 25, at Silkstead Sunflowers, Four Dells Farm in Otterbourne.
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Connecticut Public @ctpublic.bsky.social · 13/08/2025
We’ve lost $2.1 million in annual federal support, but we’re not backing down. Monthly donors are the foundation of public media. Help us rebuild it — one month at a time. Become a Sustainer: ctpublic.org/future
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Hey Janae🧡 @heyjanae.bsky.social · 10/08/2025
Being in your 30s watching your college friends have kids while they still look like your college friends is so disorienting It feels like yesterday we were at Denny’s at 4am already hung over who gave you a CHILD
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Hey Janae🧡 @heyjanae.bsky.social · 10/08/2025
The visual aesthetic for this era is defined by that Severance style blue haze/saturation and yellow text
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Connecticut Public @ctpublic.bsky.social · 08/08/2025
This Saturday is Puerto Ricans United’s ninth annual festival in New Haven, but there’s no parade, and the vendors are not just selling flags and T-shirts; it's a job fair. www.ctpublic.org/news/2025-08...
ctpublic.org
This Puerto Rican festival doesn't have a parade. But it might get you a job
Puerto Ricans United’s ninth annual fest boasts a job fair along with the live music, food and merchandise vendors.
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Jessica Ellis @baddestmamajama.bsky.social · 08/08/2025
So many of us living with long covid have no idea if this is our soon-to-be fate. One of the reasons we talk about it so much is we don’t know how long we’ll have to do so. Saddened to hear of yet another advocate losing their life.
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Billy Hanlon @bhanlon15.bsky.social · 07/08/2025
New York Post: 'Debilitating illness once dismissed as ‘yuppie flu’ actually has genetic causes: study' 'Researchers are calling the discovery a “wakeup call” that could finally shift public perception...' “These results are groundbreaking" #DecodeME nypost.com/2025/08/07/h...
nypost.com
Debilitating illness once dismissed as ‘yuppie flu’ actually has genetic causes: study
The condition is believed to affect 67 million people worldwide — including an estimated 3.3 million Americans.
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The Latest Kate @thelatestkate.bsky.social · 06/08/2025
A drawing of fireflies in a forest graveyard. The caption reads, "You don't have to get it all perfect in order to make a good life."
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