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Amy 🌤️

@cloudsandsunshine.bsky.social
844 followers 917 following 754 posts

#CovidisAirborne #LongCovidKids #pwLC #pwME A life long reader, a sometimes baker and a community gardener. Views are my own.

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Reposted by Amy 🌤️
Bean & Sprout's Mom @beansproutsmom.bsky.social · 21h
Preventing COVID is social justice. Yes, that means masking, clean air, AND vaccines. Medical uncertainty, structural inequities and disease: The experiences of long COVID among racialized immigrants and racialized non-immigrants in Canada www.sciencedirect.com/science/arti...
sciencedirect.com
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Adam @abrokenbattery.bsky.social · 15/05/2026
Sleep hygiene can be just as “damaging as graded exercise” for patients with #MECFS Dr Nigel Speight describes a girl with severe sleep reversal. She walked into hospital and was carried out a month later needing to be tube fed.
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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 29/09/2026
Thank you for covering this, Betsy. One of my Facebook group moderators is a prison nurse. That's how she contracted it and developed long COVID. I know she will very much appreciate this piece.
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Kristin Meekes @kmeekes.bsky.social · 29/09/2026
The pandemic should have led to clean indoor air, treatments for long covid and related illnesses, next gen vaccines, normalization of masking, mandatory respiratory protection in healthcare, sick leave, and a paradigm shift around what infections do to people
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Becky Ancira Robertson @ancirabecky.bsky.social · 28/09/2026
danilobuonsenso.substack.com/p/a-mechanis...
danilobuonsenso.substack.com
A mechanism, at last: new phase-II data show how low-dose rapamycin may work in ME/CFS
A new paper in the Journal of Translational Medicine (Gile, Roy et al., 2026) is one of the most mechanistically detailed pieces of evidence yet for a treatment I’ve been building into the pharmacolog...
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Tom Kindlon @tomkindlon.bsky.social · 27/09/2026
25 adolescents with ME/CFS found to have slower information-processing speeds, poorer sleep, reduced quality of life, and poorer mental wellbeing compared with 25 healthy controls of the same age. Read more: bit.ly/4dUz7sZ Link to research paper: bit.ly/4rzVKc8 #mecfs #cfs #pwme #cfsme
ME/CFS in Adolescence: Effects on cognition and wellbeing 
25 young people with mild or moderate ME/CFS aged 12 to 19 years were compared with 25 healthy controls of the same age. 
Results showed that those with ME/CFS had: 

Greater symptom burden including poorer sleep and reduced quality of life 
Slower processing speeds 
'? 

Issues with attention and working memory 
Reduced `psychosocial wellbeing' 
Note: This study used a small sample size and did not include those with more severe froms of the disease. 
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INFORM. INFLUENCE. INVEST. 
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Chau, T., Josev, E. K., Scheinberg, A., at al. J. Paediatr. Child Health. 2026; 1-13.
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❌👑 Suz Brockmann @suzbrockmann.bsky.social · 26/09/2026
Hey Massachusetts! We have ten ballot Qs this year! As you prep to vote early (from 10/17 - 10/30) or by mail (depositing your ballot in your local dropbox!!) for Dems up & down the ballot, here’s a handy short guide about those Qs from Progressive Mass to use & share w fam & friends! #NoKings
PM PRSGRESSIVE
MASS
Your Progressive Guide to the 2026
Statewide Ballot Questions

VOTE YES ON 1
to expand the public records law to cover the Governor & Legislature. We're the only state that doesn't do that.

VOTE YES ON 2
to enable public defenders to collectively bargain. Every worker deserves to have a union, including public defenders, who are often overworked and underpaid.

VOTE NO ON 3
to prevent private equity billionaires from rigging our elections in their favor. Top-two primaries empower corporate PACs and self-funders and turn MAGA voters into election kingmakers

VOTE YES ON 4
to enable voters to register & update registration on
Election Day. No eligible voter should be turned away due to clerical errors, and this reform is proven to increase voter turnout.

VOTE NO ON 5
to protect our state's ability to invest in health care, transportation, and public education. If Q5 passes, the rich would get millions in tax rebates, while the rest of us suffer from underfunded public services.

VOTE HOW YOU WANT ON 6
Q6 came up shy of our endorsement threshold: members valued nature and water conservation, but were concerned about dedicating existing funds, rather than raising new ones.

VOTE YES ON 7
to enable more starter homes across the Commonwealth.
We have a housing crisis, and large lot size requirementsVOTE YES ON 2
to enable public defenders to collectively bargain. Every worker deserves to have a union, including public defenders, who are often overworked and underpaid.

VOTE NO ON 3
to prevent private equity billionaires from rigging our elections in their tavor. Top-two primaries empower corporate PACs and self-funders and turn MAGA voters into election kingmakers.

VOTE YES ON 4
to enable voters to register & update registration on
Election Day. No eligible voter should be turned away due to clerical errors, and this reform is proven to increase

VOTE NO ON 5
to protect our state's ability to invest in health care, transportation, and public education. If Q5 passes, the rich would get millions in tax rebates, while the rest of us suffer from underfunded public services.

VOTE HOW YOU WANT ON 6
Q6 came up shy of our endorsement threshold: members valued nature and water conservation, but were concerned about dedicating existing funds, rather than raising new ones.

VOTE YES ON 7
to enable more starter homes across the Commonwealth.
We have a housing crisis, and large lot size requirements result in fewer homes being built.

VOTE NO ON 8
to protect our state's cannabis laws. We said NO to the war on drugs in 2016, and we shouldn't turn back time and destroy local economies.

VOTE YES ON 9
to protect our state's landmark gun safety law, which cracked down on ghost guns, banned machine gun conversion devices, and strengthened gun violence data collection.2026 BALLOT QUESTIONS
* YOUR PROGRESSIVE GUIDE
There are QR codes with the following labels:
LEARN MORE & SHARE
FIND YOUR POLLING LOCATION 
TRACK YOUR BALLOT
CHECK YOUR VOTER REG.
PM
PROGRESSIVE
MASS -
VOTE BY TUESDAY, NOVEMBER 3
EARLY VOTING IS OCTOBER 17 - 30
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26/09/2026
I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?
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Belasco @belasco.bsky.social · 25/09/2026
Today I’m feeling particularly grateful for the #pwME & #pwLC who have the energy to get angry, stand up to & make the community aware of bad studies & bad actors, & even occasionally the ability to physically show up to represent the unseen masses.
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Tom Kindlon @tomkindlon.bsky.social · 26/09/2026
RECOVER researchers and caregivers shared insights into Long COVID social risk factors and how Long COVID affects children’s learning and school experiences—including what researchers hope to learn next. Text plus video recording recovercovid.org/r3-seminar-s... #LongCovid #LongCovidKids #LCKids
recovercovid.org
Growing up with Long COVID—Risk factors and school impacts
Findings from RECOVER’s pediatric observational study show that Long COVID can affect children’s health and daily lives in different ways. During the September 15, 2026, RECOVER Research Review (R3) S...
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Miranda 🌸 @crookedneighbor.bsky.social · 24/09/2026
RECOVER TLC registration is live! If you're planning to attend in person, please mention in the accessibility section that we need a dedicated space to eat (and network) outdoors! Last year there were 10-20 of us who consistently wound up having to sit on the sidewalk to eat fnih.org/our-programs...
A group of masked advocates with Long COVID who attended the RECOVER-TLC workshop on new Long COVID clinical trials (photo from The Sick Times)
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 25/09/2026
We've seen a distinct drop in interest in these conditions as people have memory-holed COVID; they'd like to forget infection-associated chronic conditions, but they're impacting everyone, including kids. I'm the Scientific Director at #MEAction, and I advocate for #MECFS, #LongCOVID, & other IACCs.
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Erin Kane @dianamonkey.bsky.social · 23/09/2026
Fundraising for mutual aid to support the New Bedford communities currently being hit hard by ICE activity
givebutter.com
Humanity At Work - New Bedford Immigrant Justice Coalition
Donate to support individuals and families harmed by ICE activities in greater New Bedford.
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Erin Kane @dianamonkey.bsky.social · 22/09/2026
Federal immigration agents have detained “at least a dozen” people in New Bedford over the past two days, officials said Tuesday, as community advocates warned of further operations. "How many people are just going shopping, getting their food and going to work, honorable people" being disappeared?
bostonglobe.com
‘These stories are heartbreaking’: Healey slams ICE raids in New Bedford as agents detain ‘at least a dozen’ people - The Boston Globe
Governor Maura Healey said many of the detained individuals have lived in Massachusetts for “many years” and were on their way to work when they were taken into custody.
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nathanpboston @nathanpboston.bsky.social · 19/09/2026
I'm attending De-ICE Action Network's event, “Boston Dynamics: Don’t trust ICE with Spot Robot Dogs” - sign up now to join me! www.mobilize.us/deicecitizen...
mobilize.us
Boston Dynamics: Don’t trust ICE with Spot Robot Dogs · De-ICE Action Network
Join the De-ICE Action Network–which is evolving from the De-ICE Citizens Bank campaign– to send a message to Boston Dynamics to not trust ICE with their Spot Robot Dogs. Organizers will have flyer...
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Massachusetts Immigrant & Refugee Advocacy (MIRA) Coalition @miracoalition.bsky.social · 18/09/2026
📣Upcoming Webinar Immigration Court Observation in Massachusetts: Data Collection for Systemic Change 📆 Tuesday, September 29, 2026 ⏰ 3pm EST Come learn how you can contribute to immigration court observation efforts in Massachusetts! Register below ow.ly/UVgl50ZOnvU
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Long Covid Kids @longcovidkids.bsky.social · 18/09/2026
Standing together against stigma and disbelief. Long Covid Kids has joined fellow members of the Overlapping Illness Alliance in writing to The Telegraph about “How having a disability became cool.” Complex illness deserves evidence and curiosity, not suspicion. 🧡 #LongCovid #Disability
Overlapping Illness Alliance graphic featuring a black-and-white group photograph of representatives from member organisations, including a wheelchair user. Text reads: “Standing together against stigma and disbelief. Our joint response to The Telegraph.” The Overlapping Illness Alliance logo appears at the top.
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mcboingboing @mcboingboing.bsky.social · 18/09/2026
I had to double-check the date on this article before reposting it because I know I saw another headline like this a week or two ago. Long Covid has already surpassed asthma as the most common chronic illness among kids—how many more will develop it in the current wave? 😭
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Julia Métraux @juliametraux.bsky.social · 17/09/2026
If you're a parent of a kid with health issues who can't get their Covid shot through Vaccines for Children right now please reach out at jmetraux@motherjones.com
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Amy 🌤️ @cloudsandsunshine.bsky.social · 18/09/2026
Clean air is public health and we should be doing everything we can to improve infrastructure and air quality to protect our children in our schools.
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Adam @abrokenbattery.bsky.social · 16/09/2026
Having the reality of your illness denied “is almost as bad as the actual physical symptoms themselves.” Ed Yong, speaking about #LongCovid patients being disbelieved and dismissed, and how gender and racial bias affect their care.
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Judy Stone @drjudystone.bsky.social · 16/09/2026
Thanks for interviewing me, Joan Esposito @heartlandsignal.com omny.fm/shows/joan-e... We disc #Covid #ventilation #CorsiRosenthal boxes, #CO2 monitors #Metformin #BlueWashing and @michael-hoerger.bsky.social's work, and @defendpublichealth.bsky.social's Whopper series www.forbes.com/sites/judyst...
omny.fm
WCPT 820 Interview: Dr. Judy Stone - Joan Esposito: Live, Local & Progressive
Joan Esposito is joined by Dr. Judy Stone, infectious diseases physician, journalist and author. Last month she wrote a piece for Forbes called "Covid-19 Cases Surge—Here’s What’s Different This Summe...
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Hazie @hazie.bsky.social · 16/09/2026
Covid continues to covid. Infection rates are high. Asymptomatic spread is common. Every exposure could lead to extended illness. One out of every ten people who contract covid are likely to experience long term harm, including, but not limited to heart, lung & brain disease.
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Wail of a Tale Productions @wailofatale.bsky.social · 15/09/2026
Tomorrow, 11:00 AM Eastern. Free. What clean air in schools actually returns, at three tiers, with updated district numbers. Register: forms.gle/u1MThvmASW2kawrL7
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tj (THEY/THEM) go watch invincible fight girl 😷😷😷 @atjscreams.blacksky.app · 14/09/2026
anyone in victim services still wear masks? id be excited about this training if we were protecting our kids from an airborne virus, that mutates into long covid which has replaced asthma as the most chronic health condition among children jamanetwork.com/journals/jam... #Covid #CovidIsAirborne
jamanetwork.com
Long COVID in Young Children, School-Aged Children, and Teens
This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.
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Tom Kindlon @tomkindlon.bsky.social · 14/09/2026
Long Covid Kids @longcovidkids.bsky.social have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF www.longcovidkids.org/download-res... Screenshot from Science for ME update #LongCovid #LongCovidKids #PASC
UK Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF. It is intended to be filled in for each child with long Covid or related conditions to provide schools with information about the child's needs for adjustments and support at school.
Website with links | Thread
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C.H. Romatowski @chromatowski.bsky.social · 14/09/2026
I really love this pediatric study that found the Covid vax was 61% effective against Long COVID at the six-month mark, but that fell to less than 11% effective after 18 months. In case you need incentive to reup your protection!
recovercovid.org
RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
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victoria @vashetc.blacksky.app · 14/09/2026
Closing this survey in a few hours if there's any last minute stragglers :)
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Chantzy @chantzy.bsky.social · 13/09/2026
This year, 25 years after 9/11, was one of the first years I've seen a concerted media focus on the long term harms of 9/11 toxic air pollution. In time, knowledge of the long term harms of COVID will be mainstream too
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Erin Kane @dianamonkey.bsky.social · 11/09/2026
Can't believe I missed this pretty comprehensive page of resources for folks facing ICE detention or deportation maintained by ... the Boston Public Library!
bpl.org
Resources for People Facing Detention or Deportation
With the new presidential administration beginning mass deportations, this is a frightening time for many immigrants and their families.…
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J. Offir, PhD @joffirphd.bsky.social · 10/09/2026
There's a huge public school nursing shortage. In private schools, it's even worse: only 35% have even a p/t school nurse (source: www.frontlineeducation.com/blog/school-...) But tell me again, @washingtonpost.com, how schools should prioritize treatment & child-led prevention of allergy reactions.
Graphic from the National Association of School Nurses (NASN) showing only 65% of public schools had 35/hour week access to a nurse (of any sort), 1 in 16 schools have zero access to a school nurse.
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🔥Latina🔥 #MutualAid #Abolition #AI #UnionStrong✊ @dalatindiva.bsky.social · 10/09/2026
“My Long Covid Story” Is Having a Moment: Screening Sunday 3pm at Amazing Fantasy Festival in Buffalo. If you’re near the Amazing Fantasy Festival this weekend, I’d love for you to check out the screening on Sunday at 3:15 PM at the Dipson Theater in Amherst. Q&A afterwards!
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victoria @vashetc.blacksky.app · 09/09/2026
I will be closing this survey this weekend! We're at 585 responses! After survey closes, i will use the website to house dissemination of findings. For example I will post two video presentations I've done on preliminary findings, and a research brief as well. Thank you to all who participated!
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Massachusetts Immigrant & Refugee Advocacy (MIRA) Coalition @miracoalition.bsky.social · 09/09/2026
New resource for students & educators! Español & English: bit.ly/MIRAyouthtoolkit Know Your Rights resources mental health resources immigration terminology how to get involved as an immigrant advocate financial aid information for immigrant students #knowyourrights #backtoschool #MIRAYouthToolkit
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Chantzy @chantzy.bsky.social · 09/09/2026
The way people are ignoring the large NEJM study of 100K+ adults that found measurable deficits in memory, reasoning & executive function even among those whose Covid symptoms reportedly resolved within 4 weeks 🔗 www.nejm.org/doi/full/10....
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Chantzy @chantzy.bsky.social · 09/09/2026
Reminder as we head into back to school season: Covid isn't seasonal - it spreads all year round. It's also not just respiratory. It's a systemic multi-organ virus. Masks, clean air, vaccines, testing, staying home when sick are all part of the solution
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❌👑 Suz Brockmann @suzbrockmann.bsky.social · 09/09/2026
To definitively state this isn’t from Covid, when the virus, known for cognitive decline, strange forgetfulnessand hostility, and BRAIN DAMAGE, is currently still a serious health threat is certainly interesting.
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Jonathan Paz @pazforthepeople.bsky.social · 09/09/2026
If you wonder why Dem leadership never put Medicare For All up for a vote - when they had the majority - wonder no more. www.bostonglobe.com/2026/09/08/b...
bostonglobe.com
UnitedHealth executives shower Representative Katherine Clark with donations ahead of midterms - The Boston Globe
More than 40 officials and board members across UnitedHealth cumulatively donated more than $100,000 to Clark’s campaign during the 2025-2026 election cycle.
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Amy 🌤️ @cloudsandsunshine.bsky.social · 08/09/2026
RT if you've never had a tab of ChatGPT open, period.
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Wilhelmina Jenkins @wilhelminaj.bsky.social · 04/09/2026
Friends, a major problem in the demographics of ME/CFS studies is the absence of Black participants. If you know of any Black adults with ME/CFS, please suggest that they complete this survey. I have completed it and it is relatively untaxing. Thanks!
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Jon Douglas @atranscendedman.bsky.social · 02/09/2026
American Academy of Pediatrics, reviewing evidence including 2.4M children, reports COVID vaccination lowers pediatric hospitalization and long COVID risk. Infants under 2 still carry the greatest severe disease burden. publications.aap.org/pediatrics/a...
publications.aap.org
Recommendations for COVID-19 Vaccines in Infants, Children, and Adolescents, 2026–2027: Technical Report
This technical report accompanies the American Academy of Pediatrics policy statement recommendations for COVID-19 vaccination during the 2026–2027 respiratory virus season. The rationale is presented for recommending vaccination in all infants and children 6 through 23 months of age, children 6 months through 18 years of age who are moderately or severely immunocompromised, and children 2 through 18 years of age in certain additional risk groups, including those at high risk of severe COVID-19, residents of long-term care facilities or other congregate settings, children who have never been vaccinated against COVID-19, and children whose household contacts are at high risk for severe COVID-19. The report synthesizes currently available evidence on SARS-CoV-2 epidemiology, disease burden, COVID-19 vaccine effectiveness, vaccine safety, and vaccine cost-effectiveness in pediatric populations. Additionally, the report provides an overview of available COVID-19 vaccine products, formulations, storage and handling considerations, and coadministration with other immunizations.
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mezzo-voce.bsky.social @mezzo-voce.bsky.social · 31/08/2026
A VOTE FOR PAZ IS A VOTE FOR PEACE ✌️ PAZ IS THE PEACE CANDIDATE FOR US MA-5 Endorsed by @masspeaceaction.bsky.social OurRevolutionMA CAIR_Action_MA Muslims_4_Justice and more,,, see @pazforthepeople.bsky.social Stop the Wars Abolish ICE
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 01/09/2026
"For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief" #LongCOVID Archive link: archive.md/aajiu Source: www.smithsonianmag.com/innovation/m...
An article from Smithsonian Magazine titled "For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief" by Mike Mariani.
The subtitle explains that Long Covid saps the strength and vitality of patients who have little recourse to fight it, noting that a team of specialists—including an afflicted researcher working mostly from her bed—is actively looking for answers.
Below the text, a photograph taken by Rachel Bujalski and Kate Warren features a close-up of a laboratory setting. A pair of hands wearing white sterile gloves is carefully pouring liquid from a small laboratory vial into a clear plastic test tube. The test tube sits securely inside a bright orange, multi-tiered plastic test tube rack positioned on a metallic lab workspace.
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Jonathan Paz @pazforthepeople.bsky.social · 01/09/2026
Vote TODAY for Medicare for All, universal childcare, and abolishing ICE. Vote Jonathan Paz for Congress!
Paz w all endorsements
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Missy Opposes Fascism 🦋🇺🇦🇵🇸🇬🇱🏳️‍🌈🏳️‍⚧️🍂 @fangirling0nly.bsky.social · 01/09/2026
Cast my vote for @edmarkey.bsky.social and @pazforthepeople.bsky.social! 🗳️
"I Voted" sticker on a black shirt
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Library Bear 📚 @adklibrarybear.bsky.social · 01/09/2026
Beloved MA05 fam!! Today’s the day PEACE IS ON THE BALLOT!! for a pro-peace, pro-Palestine candidate that will ABOLISH ICE, vote for @pazforthepeople.bsky.social ☮️🔥🧊🇵🇸
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Jonathan Paz @pazforthepeople.bsky.social · 31/08/2026
Peace is in the ballot, set a reminder to vote this Tuesday September 1st! I'm talking to you CD5: Arlington Bedford Belmont Cambridge Framingham Lexington Lincoln Malden Maynard Medford Melrose Natick Revere Stoneham Sudbury Waltham Watertown Wayland Wellesley Weston Winchester Winthrop Woburn
Comparison chart!
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MaskTogetherAmerica @togetherwemask.bsky.social · 26/08/2026
Long COVID Defense Series IV (Sep 2, 3:40pm–6:40pmET | 6 Q&A(s) 3:45PM Robert DeRosa @robertderosa.bsky.social 4:20PM Laura Pensiero 4:55PM Dr. @michaelpelusomd.bsky.social 5:30PM Dr. Elham Raker 6:00PM Dr. @drdavidkeegan.bsky.social 📍NOTE: Dr. @putrinolab.bsky.social will record his session 🧵
Long COVID Defense Series IV: Six Q&A Sessions 
Live virtual event: Sep 2, 2026, from 3:40PM to 6:40PM ET. 
Please Register to Join: bit.ly/LCDefenseIV.
Schedule (all times ET):
3:45 PM Robert DeRosa 
4:20 PM Laura Pensiero 
4:55 PM Dr. Michael Peluso 
5:30 PM Dr. Elham Raker 
6:00 PM Dr. David Keegan 
RECORDING*: Dr. David Putrino 
*Note: Due to a scheduling conflict, Dr. Putrino’s Q&A session will be recorded and shared in the final recording. 
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