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Carl

@carlf.bsky.social
280 followers 218 following 1.2K posts

ME secondary to Covid vaccination. pro vax/vax injured. Zero tolerance for personal abuse. Do unto others as you would have others do unto you.

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Reposted by Carl
Didier @medidier.bsky.social · 22h
No matter how many times studies demolish this belief scientifically. You will not hear a single one of those that harmed and pushed for GET for years publicly apologise or rectify. Lack of accountability at its max expression.
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Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 01/10/2026
Has anyone ever followed up a link between Cardiolipin antibodies and ME? They are found on mitochondrial membranes. Wikipedia refers to 2009 paper showing 95% of CFS patients have anti-cardiolipin antibodies. Link in first comment. #MEcfs #cardiolipin en.wikipedia.org/wiki/Cardiol...
en.wikipedia.org
Cardiolipin - Wikipedia
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Best for Britain @bestforbritain.org · 29/09/2026
🚨 BREAKING 🚨 Burnham: "Homes, water, energy, transport, care, broken up and sold off." "The British right talk about taking back control. Never let them forget they are the ones. That gave it away in the first place."
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Paul Brand @paulbrand.bsky.social · 29/09/2026
Burnham announces a new Water Bill which will repeal Thatcher's ban on public ownership of water companies
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Shaun Lintern @shaunlintern.bsky.social · 20/09/2026
Dozens of readers have contacted The Sunday Times with their own experiences of the polypharmacy crisis. A common complaint is that requests for a medication review never happened. Some ended up in hospital, some saw relatives die: www.thetimes.com/article/c7fd...
thetimes.com
Dad died after a fall. Was his prescription of 10 drugs to blame?
Millions of elderly people are given too many medications. Readers have shared their stories of side-effects, from nausea to kidney failure
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Steve Fifield @stevefifield.bsky.social · 19/09/2026
I’ve just donated to Justice4ME. Over a year since the ‘Final Delivery’ plan for ME was published yet still: - Most NHS think we’re just a bit tired - We aren’t getting better - No treatments - Services cut - No public awareness - Barely funded - Severe ME patients still being harmed justice4me.uk
crowdjustice.com
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
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Guy Shrubsole @guyshrubsole.bsky.social · 19/09/2026
BREAKING; The UK has lost confidence in Jim Ratcliffe. Actually, that happened when he scooted off to Monaco to avoid paying tax, tried to force fracking on Britain, and claimed the UK had been ‘colonised by migrants’. www.bbc.co.uk/news/article...
bbc.co.uk
Billionaire Manchester United owner Sir Jim Ratcliffe says he has lost confidence in UK
Ineos founder Sir Jim Ratcliffe tells the BBC he thinks the country is "on the slide" and calls for more investment in the North Sea.
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John Oxley @joxley.jmoxley.co.uk · 18/09/2026
What on earth is happening?
  This had become the new normal. RNLI crew members had been forced to take their permits off their cars after their tyres have been repeatedly slashed. Most of them have been pilloried at the school gates or turned away from local pubs. One man who worked in search and rescue had been beaten unconscious and hospitalised, recognised for TV interviews he had done.
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Tax Justice UK @taxjusticeuk.bsky.social · 15/09/2026
"So, what should really worry us all, though, is what this story tells us about inequality in the UK, the gap between the very wealthiest and everyone else, and the scare tactics being used to maintain the status quo." 👏 Thanks to Stephen Kinsella OBE for pushing back on the panic.
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Carl @carlf.bsky.social · 15/09/2026
“Trust me Bro!”
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Long Covid UK @longcoviduk.bsky.social · 12/09/2026
Join us for 'Neurodivergence, Hypermobility & Long COVID with Dr Jessica Eccles' on Wednesday 16 September, at 6pm! Dr Binita Kane & Dr Jessica Eccles speak about the fascinating connections between Long COVID, neurodivergence, ADHD, autism, joint hypermobility, dysautonomia, POTS, ME/CFS, & more.
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Michiel @murtoz.bsky.social · 12/09/2026
It is a giant gaslighting operation. Our government is continuing to do eugenics to pwME. And they have knighted sir simon twice for his services to eugenics. Oh and did I mention? He is also on the "mental health & neurodvergence overdagnosis comittee"?
thecanary.co
Labour is trying to prove mental health is over-diagnosed so it can cut DWP benefits further
Wes Streeting's new review into mental health and neurodivergency will be vice chaired by “the most hated doctor in Britain”, Simon Wessely
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Carl @carlf.bsky.social · 12/09/2026
Every time something like this comes out the public are shocked that governments covered it up. Hillsborough, Post Office, Infected Blood…. Often advocates are labeled as crazy to undermine their credibility. Wonder if #postvaccine will ever get the recognition and research it deserves.
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Jessica Ellis @baddestmamajama.bsky.social · 12/09/2026
In May 2003, writer Simon Wessley opined about “World Trade Center Syndrome”, claiming that traumatized, anxious Manhattanites were experiencing a psychological problem, and not the real physical symptoms they were reporting. Thousands would later die from exposure to toxic chemicals from 9/11.
How have we reached this state of affairs?
Our reactions to the anthrax episode cannot be seen in isolation, or without reference to our general views of health, illness and risk.
Similarly, the emergence of 'World Trade Syndrome', a vague collection of symptoms among the residents of Lower Manhattan, blamed on various 'toxins' released after the collapse of the Twin Towers, only makes sense in the context of a seemingly endless list of other mysterious symptoms and syndromes that are blamed on similar toxic disasters.
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Adam Bienkov @adambienkov.bsky.social · 11/09/2026
A reminder that Delo previously pled guilty in the US to violating money laundering protections and agreed to pay a $10 million fine for "willfully” breaking the law with his BitMex platform, which was described as "in effect a money laundering platform.” This is who owns Farage now
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Adam @abrokenbattery.bsky.social · 11/09/2026
Today marks 25 years since 9/11. 8 months after the attack, psychiatrist Simon Wessely argued that illness reported around Ground Zero was being wrongly attributed to environmental toxins, suggesting “World Trade Centre Syndrome” was driven by social and psychological factors.
Screenshot from the article
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Aaron Rupar @atrupar.com · 11/09/2026
Q: On the checks, we have $40t in debt. If your economic policies are working, why do you need an incentive for people to turn out to vote? T: I'm doing it as a reward for having to put up w/Biden Q: You also offered tariff refunds-- TRUMP: Not you Q: And that didn't happen T: You're the worst
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Alex von Tunzelmann @alexvont.bsky.social · 10/09/2026
If you feel like donating to the RNLI, here’s a link. I just have. Their minimum donation is £2: I think it might be nice for them to receive a lot of donations this week, even if they’re mostly very modest. Just so they know a lot of people out here appreciate their work. rnli.org/support-us/g...
rnli.org
Donate to the RNLI and help save lives at sea
Your donations really make a difference. We depend on your generosity to educate people to stay safe and prevent tragedies on and offshore. Donate here.
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Prof. Michael Fuhrer @michaelsfuhrer.bsky.social · 09/09/2026
Covid emergency department visits (blue) have peaked in US, ~60% lower than summer 2025, which was ~40% lower than summer 2024. Wastewater RNA, positivity, hospitalizations, deaths show similar trend. Covid-19 decreasing year-on-year, and the decrease is accelerating. Unexpected good news! 1/
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Dale Vince @dalevince.com · 08/09/2026
Netanyahu threw his own citizens under the bus? He allowed the Hamas atrocities, used them to justify what he wanted to do next - the far greater atrocities committed in Palestine - only a truly evil person would do such a thing. www.timesofisrael.com/days-before-...
timesofisrael.com
Days before Oct. 7, UAE leader warned Netanyahu Hamas was planning war, but PM did nothing with the info – report
In month before massacre, Sinwar said to convey message via UAE he was ready to launch 'earthquake' amid moribund talks with Israel, PM didn't inform Shin Bet of Emirati president's warning; Bennett:…
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Tax Justice UK @taxjusticeuk.bsky.social · 08/09/2026
Gary is just 1 of the 120 @PatrioticMillionairesuk that signed an demanding Burnham tax them more. And, despite what you might see in the press, Gary is part of the majority. 80% of UK millionaires support a 2% tax on wealth over £10million. bit.ly/46vXidv
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Cold War Steve @coldwarsteve.bsky.social · 05/09/2026
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Monevator @monevator.bsky.social · 05/09/2026
Are government bond buyers starting to wonder who will pay the taxes to repay them in an AI-dominant future? Plus all the week's best money and investing reads! monevator.com/weekend-read...
monevator.com
Weekend reading: are bonds discounting a robot revolution? - Monevator
Who will pay our debts? Plus all the week's best money and investing reads…
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Dave Vetter @davidrvetter.bsky.social · 05/09/2026
Content warning: Multiple men violently assault a female protester at Reform's conference at the Birmingham NEC, to the visible delight of Nigel Farage.
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ME/CFS Science @mecfsscience.org · 01/09/2026
1) Many patients with orthostatic intolerance do not meet the require heart rate increase of POTS criteria. This new expert consensus paper argues that that this group deserves more recognition, including a separate diagnosis and ICD-code.
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ME/CFS Science @mecfsscience.org · 29/08/2026
1) New blog article: the hormone prolactin rises much higher in ME/CFS patients after taking buspirone than in controls. This is one of the most replicated findings in the field but for years this line of research was abandoned.
mecfsscience.org
Increased prolactin response to buspirone - ME/CFS Science
Multiple studies have found an increased response of the hormone prolactin to the drug buspironeContinue readingIncreased prolactin response to buspirone
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Didier @medidier.bsky.social · 29/08/2026
One more that would deserve frontpages, but no one nowhere will read about it...
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Adam @abrokenbattery.bsky.social · 15/08/2026
“It feels like I’m on an island by myself, on a different planet, because no one seems to understand.” Emily developed #LongCovid aged 9. Now 14, she lives with constant pain and struggles to fit in at school because she uses a walking stick. Clip from Channel 5 News.
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Adam @abrokenbattery.bsky.social · 14/08/2026
CNN Article www.cnn.com/2018/10/05/h... Nobody’s Empire – a Belle & Sebastian song inspired by his experience with ME. youtu.be/Rgb8am3NQU0?...
cnn.com
Indie pop sensation’s disease became his muse | CNN
Stuart Murdoch was an athletic young man before becoming bedridden with myalgic encephalomyelitis/chronic fatigue syndrome. He began putting his feelings to music, eventually forming the indie pop gro...
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Vlad Vexler @vladvexler.bsky.social · 14/08/2026
Dear people with #longcovid and #pwME, I'm looking for strong pro-vaccine sources that also take vaccine injury and post-vaccination disability seriously, especially links between vaccination, Covid and Long Covid. I know the clinical picture. I need good material to point people to. Thank you.
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Victoria Derbyshire @vicderbyshire.bsky.social · 14/08/2026
Nigel Farage has won Clacton by-election, which was boycotted by other major Westminster parties 
The contest was triggered when the Reform UK leader resigned as an MP while under investigation for £5m gift he didn't declare Now he’s been re-elected, that parliamentary investigation will resume
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 09/08/2026
Rare Complete Restoration of Intraepidermal Nerve Fibre Density by Immunoglobulins in Post-COVID Vaccination Syndrome-Associated Small Fibre Neuropathy: A Case Report and Literature Review www.cureus.com/articles/512... After IVIG, nerve fibre density & symptoms improved.
cureus.com
Rare Complete Restoration of Intraepidermal Nerve Fibre Density by Immunoglobulins in Post-COVID Vaccination Syndrome-Associated Small Fibre Neuropathy: A Case Report and Literature Review
This report describes the rare complete restoration of reduced intraepidermal nerve fibre density (IENFD) following the administration of intravenous immunoglobulins (IVIG) in a patient with post-acut...
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J. Offir, PhD @joffirphd.bsky.social · 06/08/2026
(Long) Commentrary🧵: Sydney Towle, who recently turned 26, has died of cholangiocarcinoma. 2 lessons to be learned from online responses to this TikTok influencer: 🔺️The public couldn't be worse at discerning fact from fiction. 🔺️Disabled & chronically ill folks... www.nytimes.com/2026/08/06/s...
nytimes.com
Sydney Towle, Who Chronicled Her Cancer on TikTok, Dies at 26 (Gift Article)
For an audience that grew to more than a million followers, she challenged assumptions about how people with serious illnesses should look and live.
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Didier @medidier.bsky.social · 06/08/2026
"What kind of example are you giving to your child?" 6 months into severe #ME onset after covid. Wheelchair, severe POTS, dozens test abnormalities, could barely speak a sentence, had lost 35kg, brutal mcas...
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Chris Ponting @cgatist.bsky.social · 06/08/2026
ME/CFS - with Long Covid - should now be treated by Governments and society as a common and highly debilitating disease. The neglect, scorn and gaslighting must stop.
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Tom Kindlon @tomkindlon.bsky.social · 04/08/2026
I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC 1/
APPENDIX 2. ME/CFS Symptom Prevalence and Severity (These prevalence and severity figures are from A definition-based analysis of symptoms in a large cohort of patients with chronic fatigue syndrome, P. De Becker, N. McGregor, and K. De Meirleir. Journal of Internal Medicine 2001;250:234-240.) A total of 2,073 consecutive patients with major complaints of prolonged fatigue were assessed. Among them 1,578 met the Fukuda criteria and of those, 951 met the Holmes criteria. The figures indicate the differences in prevalence and severity of symptoms between these patient groups.
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Frances Ryan @francesryan.bsky.social · 03/08/2026
As Rod Liddle has died, I notice this column I wrote in 2019 about his attacks on people with M.E. is on the most read again. Rebekah Brooks, of News UK, described Liddle today as “provocative”. In reality, he spread lies about very sick people for cash. www.theguardian.com/commentisfre...
theguardian.com
Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be | Frances Ryan
Whether it is ME patients or another target, huge swathes of the media have normalised hatred of minorities for years, says Guardian columnist Frances Ryan
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Tom Kindlon @tomkindlon.bsky.social · 02/08/2026
ME Research UK: Read more about this newly published research on the glymphatic system in people with ME/CFS at our website: bit.ly/4vNixld #mecfs #cfs #pwme
Disrupted brain waste clearance in ME/CFS Frontiers in Neuroscience, 2026 June 19; 20:1875420 

Photo of Dr Kiran Thapaliya Griffith University 
bit.ly/4vNixId 
tt This study is the first to demonstrate impaired glymphatic function in ME/CFS using MRI. This suggests that dysfunction in the brain's natural cleaning system may be a key driver of this condition. 

RESEARCH UK 
SCIO Charity Number: SCO36942 
11 
INFORM. INFLUENCE. INVEST.
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Jean Fisch @jeanfisch.bsky.social · 31/07/2026
@insee.fr released France's daily deaths up to 30/6 so I was curious for Paris (one of the regions hardest hit by the heat in Europe) The impact is "beyond": On Friday 26/6, Paris saw more deaths than on any day during pandemic, incl during its huge wave 1
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Adam @abrokenbattery.bsky.social · 29/07/2026
Councillor Bill Armer, whose late wife had #MECFS, said patients were given a label, but “nothing at all to follow up”. After hearing evidence at a Kirklees Council meeting, he said “I don’t think we’ve made much progress in the last 15–16 years.” He was “disappointed” and “concerned”.
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Didier @medidier.bsky.social · 29/07/2026
This study + the one on aab transfer to mice, the decodeME, the autopsy one coupled with the shrinking brainstem from Germany... all those deserved to be in the frontpage of every mainstream newspaper since 2024. Never happens. From "mysterious and complex" to invisible. It's so obvious it hurts.
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Carl @carlf.bsky.social · 28/07/2026
@monevator.bsky.social Thought you might like this one. In The Times of all places. (Headline should be *isn‘t*) stocks.apple.com/A4vDFZYWvSau...
stocks.apple.com
Opinion: Inheritance tax is fair because generational wealth is not earned — The Times and The Sunday Times
It’s not right that somebody pays less to the state on unearned assets handed down by loved ones than someone who works every day for their money
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Jill Piggott @jillpiggott.bsky.social · 13/07/2026
@tomkindlon.bsky.social My ME/CFS symptoms are so improved on sunny days that I looked for studies of light therapy as a treatment &, alas, found this. Does natural light help you (or anyone with ME/CFS reading along)? Thanks always for your good work.
Assessing fatigue in myalgic encephalomyelitis/chronic fatigue syndrome patients before and after treatment with bright light therapy: A prospective randomized controlled crossover study

The primary outcome variable fatigue was not significantly improved after treatment with BLT compared to wait list in the full crossover design, although fatigue scores improved immediately after two weeks of BLT. Additionally, patients showed decreased reaction time after treatment with BLT in a subtest of TAP compared to wait list. Over 45 % of patients were diagnosed with postural tachycardia syndrome.

BLT for two weeks is not effective for the treatment of fatigue in ME/CFS, but it might have beneficial effects on attention in patients with ME/CFS.

Ludwig B, et al. Assessing fatigue in myalgic encephalomyelitis/chronic fatigue syndrome patients before and after treatment with bright light therapy: A prospective randomized controlled crossover study. Sleep Medicine. 2025 May 1;129:369-74.
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Count Binface @countbinface.bsky.social · 19/07/2023
Under a Binface government, anyone who doesn’t accept human-made climate change as fact will be sent back to school, from Year 1 right the way to A Levels, to see if anything goes in the second time round. #VoteBinface
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Didier @medidier.bsky.social · 11/07/2026
2026 and seems we are slowly getting somewhere undeniably clear: cholinergic loss, brainstem mass volume shrinkage, connectivity issues, loss of dopaminergic neurons, autopsy-study, genetics pointing to neurons, key role of mast cells as mediators... 1/3
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Anil van der Zee @anilvanderzee.bsky.social · 10/07/2026
Interesting preliminary study shows that people with #LongCOVID have actual damage to the vagus nerve fibers that normally control the stomach. When they looked at stomach biopsies, they found far fewer nerve fibers, especially the cholinergic (vagal) ones, compared to HC.
ijidonline.com
Vagal cholinergic denervation of the gastric mucosa in Long-COVID-19: in vivo evidence of structural autonomic dysfunction
Since the end of 2019, a coronavirus pandemic (SARS-CoV-2), responsible for severe acute respiratory syndrome, has spread worldwide. This pandemic, due to the spread of SARS-CoV-2, is similar to two p...
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 10/07/2026
Medically unexplained symptoms: time to and triggers for diagnosis in primary care consultations pmc.ncbi.nlm.nih.gov/articles/PMC... Mean time = 2-4 minutes "This suggests that non-analytical reasoning was a central component in their thought process"
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Count Binface @countbinface.bsky.social · 09/07/2026
What’s that, Dale? You want to give me an unconditional personal gift of £5million to do whatever I want with? Sure! I just need to fill out a form. If I didn’t declare it that would be silly.
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Martin Grimshaw Has Long Covid @thrivingplanet.bsky.social · 09/07/2026
For anyone interested in the paper that included the image of people's capillaries after Covid above, it's been located. pmc.ncbi.nlm.nih.gov/articles/PMC... With thanks to @drannemurphy.bsky.social @lizziec.bsky.social #LongCovid
A screenshot of the title and first introduction paragraph of the paper on blood and capillary abnormalities after Covid.

The title is "Multicentre retrospective detection of nailfold videocapillaroscopy abnormalities in long covid patients"
by Emanuele Gotelli et al published in April 2025, and it is linked to in this post above.
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